I'm trying REALLY hard to not let CF get me down

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b12bc

New member
... but sometimes it is just impossible not to! I hope you don't mind a rant, but I'm sure most of you have felt this way before. I am just sick and tired of my health and life being totally beaten down by horrible, awful, nasty CF. I was really healthy for most of my life, and then about a year ago I got my first really bad infection and was in the hospital for almost 5 weeks (my first hospitalization beyond yearly tune-ups). I have been in and out since then, spending 4 out of the past 6 months on IVs. My lungs are really badly damaged - I was functioning in the high 90%s not terribly long ago and it has been getting progressively worse (quickly) and I am now lucky to hit the mid 70s on a good day. I am officially dx with CFRD now, just one more thing to add to the list.


I guess I can just feel that my body is starting to rebel and it terrifies me how quickly this has happened. I'm 20 years old damn it and have to think about reaching the end of my life. Nobody else gets it - my peers are just beginning their lives and I am constantly preparing for the worst to happen. I spent my entire life up until now doing treatments religiously just because I had to, not because I really felt the effects of CF, and now after all of that my body is still shutting down. I was supposed to start my sophomore year of college after transferring to another school (couldn't complete any of my classes last year), but of course I'm back in the hospital now and who the hell knows what will happen now.

Again, I'm sorry for the rant, but I just needed to get this off my chest. Nobody in my immediate family or group of friends really understands. They're very supportive and kind, but I guess there is some comfort to be found in talking with others who have been here and done this. Being stuck in this place leaves one with a lot of time to dwell on being miserable. I don't think my outlook is usually quite this negative.
 
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b12bc

New member
... but sometimes it is just impossible not to! I hope you don't mind a rant, but I'm sure most of you have felt this way before. I am just sick and tired of my health and life being totally beaten down by horrible, awful, nasty CF. I was really healthy for most of my life, and then about a year ago I got my first really bad infection and was in the hospital for almost 5 weeks (my first hospitalization beyond yearly tune-ups). I have been in and out since then, spending 4 out of the past 6 months on IVs. My lungs are really badly damaged - I was functioning in the high 90%s not terribly long ago and it has been getting progressively worse (quickly) and I am now lucky to hit the mid 70s on a good day. I am officially dx with CFRD now, just one more thing to add to the list.


I guess I can just feel that my body is starting to rebel and it terrifies me how quickly this has happened. I'm 20 years old damn it and have to think about reaching the end of my life. Nobody else gets it - my peers are just beginning their lives and I am constantly preparing for the worst to happen. I spent my entire life up until now doing treatments religiously just because I had to, not because I really felt the effects of CF, and now after all of that my body is still shutting down. I was supposed to start my sophomore year of college after transferring to another school (couldn't complete any of my classes last year), but of course I'm back in the hospital now and who the hell knows what will happen now.

Again, I'm sorry for the rant, but I just needed to get this off my chest. Nobody in my immediate family or group of friends really understands. They're very supportive and kind, but I guess there is some comfort to be found in talking with others who have been here and done this. Being stuck in this place leaves one with a lot of time to dwell on being miserable. I don't think my outlook is usually quite this negative.
 
B

b12bc

New member
... but sometimes it is just impossible not to! I hope you don't mind a rant, but I'm sure most of you have felt this way before. I am just sick and tired of my health and life being totally beaten down by horrible, awful, nasty CF. I was really healthy for most of my life, and then about a year ago I got my first really bad infection and was in the hospital for almost 5 weeks (my first hospitalization beyond yearly tune-ups). I have been in and out since then, spending 4 out of the past 6 months on IVs. My lungs are really badly damaged - I was functioning in the high 90%s not terribly long ago and it has been getting progressively worse (quickly) and I am now lucky to hit the mid 70s on a good day. I am officially dx with CFRD now, just one more thing to add to the list.
<br />
<br />
<br />I guess I can just feel that my body is starting to rebel and it terrifies me how quickly this has happened. I'm 20 years old damn it and have to think about reaching the end of my life. Nobody else gets it - my peers are just beginning their lives and I am constantly preparing for the worst to happen. I spent my entire life up until now doing treatments religiously just because I had to, not because I really felt the effects of CF, and now after all of that my body is still shutting down. I was supposed to start my sophomore year of college after transferring to another school (couldn't complete any of my classes last year), but of course I'm back in the hospital now and who the hell knows what will happen now.
<br />
<br />Again, I'm sorry for the rant, but I just needed to get this off my chest. Nobody in my immediate family or group of friends really understands. They're very supportive and kind, but I guess there is some comfort to be found in talking with others who have been here and done this. Being stuck in this place leaves one with a lot of time to dwell on being miserable. I don't think my outlook is usually quite this negative.
 
F

falloutboygurl16

New member
i know exactly how you feel. but i started getting sick when i was 16 and now im 21. before i turned 16 i was amazingly healthy but it just immediately went to great to a couple months or years later my lung function was at 20% im fine now im actually at 77+ pfts. i know how hard it is not to think about dying or how unfair it is that everyone else is planning their future and you have to worry about whether youll be fine by the end of the week.
i live a pretty normal life actually. i dont dwell on my cf and it killing me at all. i know im sick but i dont just look at it like that. its your QUALITY of life that matters most. i have plans but CF just makes me want them to happen sooner because i dont know how long ive got...but i cannot make the world move faster because of it. so i say just live life how you wish. of course do treatments.ivs. blahblah. but its important to do what makes you happy and what you would want to do if you werent given this illness.
mmm its hard to explain in a post. and im a really good listener and empathetic as well. if you would like to talk im up for that. ive got facebook: <a target=_blank class=ftalternatingbarlinklarge href="http://www.facebook.com/profile.php?id=100000206212530">http://www.facebook.com/profile.php?id=100000206212530</a> myspace:www.myspace.com/gummibear5804 and i can talk on here. :]
 
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falloutboygurl16

New member
i know exactly how you feel. but i started getting sick when i was 16 and now im 21. before i turned 16 i was amazingly healthy but it just immediately went to great to a couple months or years later my lung function was at 20% im fine now im actually at 77+ pfts. i know how hard it is not to think about dying or how unfair it is that everyone else is planning their future and you have to worry about whether youll be fine by the end of the week.
i live a pretty normal life actually. i dont dwell on my cf and it killing me at all. i know im sick but i dont just look at it like that. its your QUALITY of life that matters most. i have plans but CF just makes me want them to happen sooner because i dont know how long ive got...but i cannot make the world move faster because of it. so i say just live life how you wish. of course do treatments.ivs. blahblah. but its important to do what makes you happy and what you would want to do if you werent given this illness.
mmm its hard to explain in a post. and im a really good listener and empathetic as well. if you would like to talk im up for that. ive got facebook: <a target=_blank class=ftalternatingbarlinklarge href="http://www.facebook.com/profile.php?id=100000206212530">http://www.facebook.com/profile.php?id=100000206212530</a> myspace:www.myspace.com/gummibear5804 and i can talk on here. :]
 
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falloutboygurl16

New member
i know exactly how you feel. but i started getting sick when i was 16 and now im 21. before i turned 16 i was amazingly healthy but it just immediately went to great to a couple months or years later my lung function was at 20% im fine now im actually at 77+ pfts. i know how hard it is not to think about dying or how unfair it is that everyone else is planning their future and you have to worry about whether youll be fine by the end of the week.
<br />i live a pretty normal life actually. i dont dwell on my cf and it killing me at all. i know im sick but i dont just look at it like that. its your QUALITY of life that matters most. i have plans but CF just makes me want them to happen sooner because i dont know how long ive got...but i cannot make the world move faster because of it. so i say just live life how you wish. of course do treatments.ivs. blahblah. but its important to do what makes you happy and what you would want to do if you werent given this illness.
<br />mmm its hard to explain in a post. and im a really good listener and empathetic as well. if you would like to talk im up for that. ive got facebook: <a target=_blank class=ftalternatingbarlinklarge href="http://www.facebook.com/profile.php?id=100000206212530">http://www.facebook.com/profile.php?id=100000206212530</a> myspace:www.myspace.com/gummibear5804 and i can talk on here. :]
 
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colinmaydahl

New member
Around the time I turned 21 I started getting sick a lot. 4-7 hospitations with IV's a year. I've had some better years than others, but my PFT's are in the low 60's on a good day. I'm starting my 3rd corse of IV's since June, it sucks. CF sucks. My last stay in lock up(4 weeks ago) I was in a very dark place (I was not getting better). I got out, felt weird for the first few days, got some energy back, had some fun with friends and Family and was on oral antib 2 weeks after getting out and now I'm back in again. I feel Your pain.

As with life, most people with CF can't/dont go through the normal steps of life. I was never able to get more than 1/2 way through a semester with out getting sick and getting locked up for a week or 3. I had to go on disability, and now work when I can under the table. It took me along time to not feel like I was not doing what I thought was expected of me. You just need to find another outlet other than school. I wish I had a better answer, but You are not alone. I think a lot of us go through the same *****.

Stay on all of Your meds/nebs, I never had to do much to be healthy and now it is all I do to keep what lung function I have left. I still go downhill mountain biking in Whistler every summer, still go out with friends, I just spent much more time taking care of myself. Email me if You have any questions, or want to talk about anything. I'm locked up for the next week or more....colinmaydahl@gmail.com

Colin 28m w/CF
 
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colinmaydahl

New member
Around the time I turned 21 I started getting sick a lot. 4-7 hospitations with IV's a year. I've had some better years than others, but my PFT's are in the low 60's on a good day. I'm starting my 3rd corse of IV's since June, it sucks. CF sucks. My last stay in lock up(4 weeks ago) I was in a very dark place (I was not getting better). I got out, felt weird for the first few days, got some energy back, had some fun with friends and Family and was on oral antib 2 weeks after getting out and now I'm back in again. I feel Your pain.

As with life, most people with CF can't/dont go through the normal steps of life. I was never able to get more than 1/2 way through a semester with out getting sick and getting locked up for a week or 3. I had to go on disability, and now work when I can under the table. It took me along time to not feel like I was not doing what I thought was expected of me. You just need to find another outlet other than school. I wish I had a better answer, but You are not alone. I think a lot of us go through the same *****.

Stay on all of Your meds/nebs, I never had to do much to be healthy and now it is all I do to keep what lung function I have left. I still go downhill mountain biking in Whistler every summer, still go out with friends, I just spent much more time taking care of myself. Email me if You have any questions, or want to talk about anything. I'm locked up for the next week or more....colinmaydahl@gmail.com

Colin 28m w/CF
 
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colinmaydahl

New member
Around the time I turned 21 I started getting sick a lot. 4-7 hospitations with IV's a year. I've had some better years than others, but my PFT's are in the low 60's on a good day. I'm starting my 3rd corse of IV's since June, it sucks. CF sucks. My last stay in lock up(4 weeks ago) I was in a very dark place (I was not getting better). I got out, felt weird for the first few days, got some energy back, had some fun with friends and Family and was on oral antib 2 weeks after getting out and now I'm back in again. I feel Your pain.
<br />
<br />As with life, most people with CF can't/dont go through the normal steps of life. I was never able to get more than 1/2 way through a semester with out getting sick and getting locked up for a week or 3. I had to go on disability, and now work when I can under the table. It took me along time to not feel like I was not doing what I thought was expected of me. You just need to find another outlet other than school. I wish I had a better answer, but You are not alone. I think a lot of us go through the same *****.
<br />
<br />Stay on all of Your meds/nebs, I never had to do much to be healthy and now it is all I do to keep what lung function I have left. I still go downhill mountain biking in Whistler every summer, still go out with friends, I just spent much more time taking care of myself. Email me if You have any questions, or want to talk about anything. I'm locked up for the next week or more....colinmaydahl@gmail.com
<br />
<br />Colin 28m w/CF
 
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ej0820

New member
I am right there with you!

I was never a really sick child, either, being pretty healthy up until the last couple of years (I'm 25 now). All of a sudden, since the beginning of this summer, I've felt the effects tenfold. I'm out of breath, I can't catch it well and I am now on my second IVs since march (that's not common for me...at least it didn't used to be). My pfts suck, royally. I'm in the 40s. I'm on disability and work part time. The last few weeks I've DREAMED of not working at my part time job anymore because I can't breathe and I feel kind of useless for them (I'm a cashier, how important). At the same time, I feel like quitting my job or taking some time off would just make me feel like a waste. I just got a bachelor's degree in biology and am going to a community college for a certification so I can just jump into my career as soon as my program is over (2 years). All I feel like at school anymore, is that I will never get to where I want to be. I feel like when my peers are taking the certification exams, I'll be sicker, wishing I was with them. If I am with them, they'll be getting job offers and I will be certified to do a job I've always dreamed of having but will never, ever have the health to actually experience it-part time or full.

I've been pretty down the last couple weeks because even though I've always known CF was there, I feel like I can suddenly SEE and FEEL it now...and it scares me, angers me, frustrates me and makes me feel lousy (physically and emotionally). I'm 25 years old and suddenly feel like I'm 70.

And no one around me understands. My family is there for me, as I know you understand, but they don't fully understand me when I say "Geez, I'm tired." or "Man, I can't breathe!" My fiance and I have had a couple of game nights in the last month-a group of people come over and we play games and do dinner. There have been moments where they are all laughing and laughing and I hesitate to join in because I know it's just going to make me cough and be so freaking out of breath...and then I'll be embarrassed.

Ugh, sorry this post was long and depressing! I know where you're coming from and I hope you can feel better soon. I hope my post didn't drag you down further into the CF-is-getting-harder hole, I just wanted to rant/vent with you and show you that I know exactly how you feel.
 
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ej0820

New member
I am right there with you!

I was never a really sick child, either, being pretty healthy up until the last couple of years (I'm 25 now). All of a sudden, since the beginning of this summer, I've felt the effects tenfold. I'm out of breath, I can't catch it well and I am now on my second IVs since march (that's not common for me...at least it didn't used to be). My pfts suck, royally. I'm in the 40s. I'm on disability and work part time. The last few weeks I've DREAMED of not working at my part time job anymore because I can't breathe and I feel kind of useless for them (I'm a cashier, how important). At the same time, I feel like quitting my job or taking some time off would just make me feel like a waste. I just got a bachelor's degree in biology and am going to a community college for a certification so I can just jump into my career as soon as my program is over (2 years). All I feel like at school anymore, is that I will never get to where I want to be. I feel like when my peers are taking the certification exams, I'll be sicker, wishing I was with them. If I am with them, they'll be getting job offers and I will be certified to do a job I've always dreamed of having but will never, ever have the health to actually experience it-part time or full.

I've been pretty down the last couple weeks because even though I've always known CF was there, I feel like I can suddenly SEE and FEEL it now...and it scares me, angers me, frustrates me and makes me feel lousy (physically and emotionally). I'm 25 years old and suddenly feel like I'm 70.

And no one around me understands. My family is there for me, as I know you understand, but they don't fully understand me when I say "Geez, I'm tired." or "Man, I can't breathe!" My fiance and I have had a couple of game nights in the last month-a group of people come over and we play games and do dinner. There have been moments where they are all laughing and laughing and I hesitate to join in because I know it's just going to make me cough and be so freaking out of breath...and then I'll be embarrassed.

Ugh, sorry this post was long and depressing! I know where you're coming from and I hope you can feel better soon. I hope my post didn't drag you down further into the CF-is-getting-harder hole, I just wanted to rant/vent with you and show you that I know exactly how you feel.
 
E

ej0820

New member
I am right there with you!
<br />
<br />I was never a really sick child, either, being pretty healthy up until the last couple of years (I'm 25 now). All of a sudden, since the beginning of this summer, I've felt the effects tenfold. I'm out of breath, I can't catch it well and I am now on my second IVs since march (that's not common for me...at least it didn't used to be). My pfts suck, royally. I'm in the 40s. I'm on disability and work part time. The last few weeks I've DREAMED of not working at my part time job anymore because I can't breathe and I feel kind of useless for them (I'm a cashier, how important). At the same time, I feel like quitting my job or taking some time off would just make me feel like a waste. I just got a bachelor's degree in biology and am going to a community college for a certification so I can just jump into my career as soon as my program is over (2 years). All I feel like at school anymore, is that I will never get to where I want to be. I feel like when my peers are taking the certification exams, I'll be sicker, wishing I was with them. If I am with them, they'll be getting job offers and I will be certified to do a job I've always dreamed of having but will never, ever have the health to actually experience it-part time or full.
<br />
<br />I've been pretty down the last couple weeks because even though I've always known CF was there, I feel like I can suddenly SEE and FEEL it now...and it scares me, angers me, frustrates me and makes me feel lousy (physically and emotionally). I'm 25 years old and suddenly feel like I'm 70.
<br />
<br />And no one around me understands. My family is there for me, as I know you understand, but they don't fully understand me when I say "Geez, I'm tired." or "Man, I can't breathe!" My fiance and I have had a couple of game nights in the last month-a group of people come over and we play games and do dinner. There have been moments where they are all laughing and laughing and I hesitate to join in because I know it's just going to make me cough and be so freaking out of breath...and then I'll be embarrassed.
<br />
<br />Ugh, sorry this post was long and depressing! I know where you're coming from and I hope you can feel better soon. I hope my post didn't drag you down further into the CF-is-getting-harder hole, I just wanted to rant/vent with you and show you that I know exactly how you feel.
 
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rubyroselee

New member
Hey,

I'm so sorry you're feeling like this. CF is terrible. It's especially terrible when things were going just fine and then BAM, the s*** hits the fan. That is really hard when that happens. I just had a really long stint of feeling great and then I started with an infection a few weeks ago. I forgot how absolutely horrible it makes you feel when you start feeling sick. Just exhausted, uncomfortable, and embarrassing cough attacks. And no one really understands how you feel. But as you can see, there are plenty of people on this forum who understand your pain and frustration with CF. Hopefully once you're off IVs, you'll be feeling better and can enjoy life! Hang in there - there are a lot of people here that understand what you're going through <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

rubyroselee

New member
Hey,

I'm so sorry you're feeling like this. CF is terrible. It's especially terrible when things were going just fine and then BAM, the s*** hits the fan. That is really hard when that happens. I just had a really long stint of feeling great and then I started with an infection a few weeks ago. I forgot how absolutely horrible it makes you feel when you start feeling sick. Just exhausted, uncomfortable, and embarrassing cough attacks. And no one really understands how you feel. But as you can see, there are plenty of people on this forum who understand your pain and frustration with CF. Hopefully once you're off IVs, you'll be feeling better and can enjoy life! Hang in there - there are a lot of people here that understand what you're going through <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

rubyroselee

New member
Hey,
<br />
<br />I'm so sorry you're feeling like this. CF is terrible. It's especially terrible when things were going just fine and then BAM, the s*** hits the fan. That is really hard when that happens. I just had a really long stint of feeling great and then I started with an infection a few weeks ago. I forgot how absolutely horrible it makes you feel when you start feeling sick. Just exhausted, uncomfortable, and embarrassing cough attacks. And no one really understands how you feel. But as you can see, there are plenty of people on this forum who understand your pain and frustration with CF. Hopefully once you're off IVs, you'll be feeling better and can enjoy life! Hang in there - there are a lot of people here that understand what you're going through <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
W

windex125

Guest
Hi All, I joined this site a few yrs ago I think? but I just recently started posting,as I never talk about my CF with anyone. Also everyone knows all their #'s specifics, very impressive to me. I still have trouble with alot of the abbreviations, but I am learning. Iam a women of 55 by the grace of God still waking up in the morning. I keep thinkg I am here for some special reason. My pft's are low in the40-50 range. My cough is a terrible most times. I can celar a room in mins. my biggest fear when I am out with friends and start laughing is that a big phelem ball is goinna hit someone straight in the face. I always have tissues and even now if I am in the car travel with small dixie cups. My high's are high and lows very low. I get so angry as I try my best to do my treatments, stay on tract, but right around the corner there is another infection waiting. My port was put in in 01 and I was horribly upset with that, now yrs. later it's the best thing I ever did. Our lives are like roller coaster rides.My immediate family and some friends try to be comforting, but I always say if your not going though it, it's hard to understand.I worked from age 20-36 and never told anyone.About my illness always said bad asthma.Also you would have never known I had this disease. I was a late bloomer, This is a job we have to work at it every day to stay well. I get really pissed when someone tells me oh I have a cold I'm so run down, my back is killing me blah, blah, who wants to hear it. I may be getting alittle bitter at times, I am now dealing with a flare up and am suppossed to start that new drug Clayston? not sure on the spelling. I used it though IV under the other name, will it help who knows? we never know we just do what it avail for that bug at the time. since I am older I will use the old saying this is the deck of cards I was dealt, I will play my hand as best as I can. I have 3 other siblings all CF free. So please rant as much as you need, I am so happy to finally be posting and talking with people that are dealing with exactly what I am, I also have to share I use a drug called Klonpin for the depression occassioanlly, and panic attacks, when did they start a few yrs.ago with the acid reflux, IBS, loss of hearing from TOBI Remember our mind is the most powerful, try to keep a postive attitude even when you want to say $%^&& I've had enough.Thanks for listening to my rant.----------- Pat 55/staph -MAC- PA
 
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windex125

Guest
Hi All, I joined this site a few yrs ago I think? but I just recently started posting,as I never talk about my CF with anyone. Also everyone knows all their #'s specifics, very impressive to me. I still have trouble with alot of the abbreviations, but I am learning. Iam a women of 55 by the grace of God still waking up in the morning. I keep thinkg I am here for some special reason. My pft's are low in the40-50 range. My cough is a terrible most times. I can celar a room in mins. my biggest fear when I am out with friends and start laughing is that a big phelem ball is goinna hit someone straight in the face. I always have tissues and even now if I am in the car travel with small dixie cups. My high's are high and lows very low. I get so angry as I try my best to do my treatments, stay on tract, but right around the corner there is another infection waiting. My port was put in in 01 and I was horribly upset with that, now yrs. later it's the best thing I ever did. Our lives are like roller coaster rides.My immediate family and some friends try to be comforting, but I always say if your not going though it, it's hard to understand.I worked from age 20-36 and never told anyone.About my illness always said bad asthma.Also you would have never known I had this disease. I was a late bloomer, This is a job we have to work at it every day to stay well. I get really pissed when someone tells me oh I have a cold I'm so run down, my back is killing me blah, blah, who wants to hear it. I may be getting alittle bitter at times, I am now dealing with a flare up and am suppossed to start that new drug Clayston? not sure on the spelling. I used it though IV under the other name, will it help who knows? we never know we just do what it avail for that bug at the time. since I am older I will use the old saying this is the deck of cards I was dealt, I will play my hand as best as I can. I have 3 other siblings all CF free. So please rant as much as you need, I am so happy to finally be posting and talking with people that are dealing with exactly what I am, I also have to share I use a drug called Klonpin for the depression occassioanlly, and panic attacks, when did they start a few yrs.ago with the acid reflux, IBS, loss of hearing from TOBI Remember our mind is the most powerful, try to keep a postive attitude even when you want to say $%^&& I've had enough.Thanks for listening to my rant.----------- Pat 55/staph -MAC- PA
 
W

windex125

Guest
Hi All, I joined this site a few yrs ago I think? but I just recently started posting,as I never talk about my CF with anyone. Also everyone knows all their #'s specifics, very impressive to me. I still have trouble with alot of the abbreviations, but I am learning. Iam a women of 55 by the grace of God still waking up in the morning. I keep thinkg I am here for some special reason. My pft's are low in the40-50 range. My cough is a terrible most times. I can celar a room in mins. my biggest fear when I am out with friends and start laughing is that a big phelem ball is goinna hit someone straight in the face. I always have tissues and even now if I am in the car travel with small dixie cups. My high's are high and lows very low. I get so angry as I try my best to do my treatments, stay on tract, but right around the corner there is another infection waiting. My port was put in in 01 and I was horribly upset with that, now yrs. later it's the best thing I ever did. Our lives are like roller coaster rides.My immediate family and some friends try to be comforting, but I always say if your not going though it, it's hard to understand.I worked from age 20-36 and never told anyone.About my illness always said bad asthma.Also you would have never known I had this disease. I was a late bloomer, This is a job we have to work at it every day to stay well. I get really pissed when someone tells me oh I have a cold I'm so run down, my back is killing me blah, blah, who wants to hear it. I may be getting alittle bitter at times, I am now dealing with a flare up and am suppossed to start that new drug Clayston? not sure on the spelling. I used it though IV under the other name, will it help who knows? we never know we just do what it avail for that bug at the time. since I am older I will use the old saying this is the deck of cards I was dealt, I will play my hand as best as I can. I have 3 other siblings all CF free. So please rant as much as you need, I am so happy to finally be posting and talking with people that are dealing with exactly what I am, I also have to share I use a drug called Klonpin for the depression occassioanlly, and panic attacks, when did they start a few yrs.ago with the acid reflux, IBS, loss of hearing from TOBI Remember our mind is the most powerful, try to keep a postive attitude even when you want to say $%^&& I've had enough.Thanks for listening to my rant.----------- Pat 55/staph -MAC- PA
 
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colinmaydahl

New member
Where are You from Pat? That is great that your PFT's are still so good. The Cayston is great, very fast and quiet. I have starting reaching out to other CFers more and it feels good to know that we are not alone. One day at a time. Love what You have in life not what You don't have.

Colin
 
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colinmaydahl

New member
Where are You from Pat? That is great that your PFT's are still so good. The Cayston is great, very fast and quiet. I have starting reaching out to other CFers more and it feels good to know that we are not alone. One day at a time. Love what You have in life not what You don't have.

Colin
 
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