Introduction and Request

C

cfguide

New member
Newborn screening is such a great thing - only a few more states to go until it is nationwide!<img src="i/expressions/face-icon-small-smile.gif" border="0">

Since Emma was diagnosed at such an early age, has preventative treatment been succesful in warding off problems for her? I'd love to know more about your experience with that.

Thanks for sharing, and please feel free to come post your story on my forum @ <a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.about.com.">http://cysticfibrosis.about.com.</a>
 
C

cfguide

New member
Newborn screening is such a great thing - only a few more states to go until it is nationwide!<img src="i/expressions/face-icon-small-smile.gif" border="0">

Since Emma was diagnosed at such an early age, has preventative treatment been succesful in warding off problems for her? I'd love to know more about your experience with that.

Thanks for sharing, and please feel free to come post your story on my forum @ <a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.about.com.">http://cysticfibrosis.about.com.</a>
 
C

cfguide

New member
Newborn screening is such a great thing - only a few more states to go until it is nationwide!<img src="i/expressions/face-icon-small-smile.gif" border="0">

Since Emma was diagnosed at such an early age, has preventative treatment been succesful in warding off problems for her? I'd love to know more about your experience with that.

Thanks for sharing, and please feel free to come post your story on my forum @ <a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.about.com.">http://cysticfibrosis.about.com.</a>
 
C

cfguide

New member
Newborn screening is such a great thing - only a few more states to go until it is nationwide!<img src="i/expressions/face-icon-small-smile.gif" border="0">

Since Emma was diagnosed at such an early age, has preventative treatment been succesful in warding off problems for her? I'd love to know more about your experience with that.

Thanks for sharing, and please feel free to come post your story on my forum @ <a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.about.com.">http://cysticfibrosis.about.com.</a>
 
C

cfguide

New member
Newborn screening is such a great thing - only a few more states to go until it is nationwide!<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Since Emma was diagnosed at such an early age, has preventative treatment been succesful in warding off problems for her? I'd love to know more about your experience with that.
<br />
<br />Thanks for sharing, and please feel free to come post your story on my forum @ <a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.about.com.">http://cysticfibrosis.about.com.</a>
 
C

cfguide

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommy2Alysa</b></i>

HI Lori,



Welcome to the site. I am Nicole and mother to Alysa and Kiana BOTH with CF. Alysa was diagnosed at 18 months and Kiana was diagnosed about 3-5 months later while I was pregnant with her.



Alysa's diagnosis was a long journey and if you are willing to hear it I dont mind sharing it with you.</end quote></div>

Nicole,

I'd love to hear about your journey. I'm sure your experiences could be very helpful to others in your situation. You can write to me at cysticfibrosis.guide@about.com, or post it in my forum at <a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.about.com.
">http://cysticfibrosis.about.com.
</a>
Thanks!
 
C

cfguide

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommy2Alysa</b></i>

HI Lori,



Welcome to the site. I am Nicole and mother to Alysa and Kiana BOTH with CF. Alysa was diagnosed at 18 months and Kiana was diagnosed about 3-5 months later while I was pregnant with her.



Alysa's diagnosis was a long journey and if you are willing to hear it I dont mind sharing it with you.</end quote></div>

Nicole,

I'd love to hear about your journey. I'm sure your experiences could be very helpful to others in your situation. You can write to me at cysticfibrosis.guide@about.com, or post it in my forum at <a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.about.com.
">http://cysticfibrosis.about.com.
</a>
Thanks!
 
C

cfguide

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommy2Alysa</b></i>

HI Lori,



Welcome to the site. I am Nicole and mother to Alysa and Kiana BOTH with CF. Alysa was diagnosed at 18 months and Kiana was diagnosed about 3-5 months later while I was pregnant with her.



Alysa's diagnosis was a long journey and if you are willing to hear it I dont mind sharing it with you.</end quote></div>

Nicole,

I'd love to hear about your journey. I'm sure your experiences could be very helpful to others in your situation. You can write to me at cysticfibrosis.guide@about.com, or post it in my forum at <a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.about.com.
">http://cysticfibrosis.about.com.
</a>
Thanks!
 
C

cfguide

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommy2Alysa</b></i>

HI Lori,



Welcome to the site. I am Nicole and mother to Alysa and Kiana BOTH with CF. Alysa was diagnosed at 18 months and Kiana was diagnosed about 3-5 months later while I was pregnant with her.



Alysa's diagnosis was a long journey and if you are willing to hear it I dont mind sharing it with you.</end quote>

Nicole,

I'd love to hear about your journey. I'm sure your experiences could be very helpful to others in your situation. You can write to me at cysticfibrosis.guide@about.com, or post it in my forum at <a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.about.com.
">http://cysticfibrosis.about.com.
</a>
Thanks!
 
C

cfguide

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommy2Alysa</b></i>
<br />
<br />HI Lori,
<br />
<br />
<br />
<br />Welcome to the site. I am Nicole and mother to Alysa and Kiana BOTH with CF. Alysa was diagnosed at 18 months and Kiana was diagnosed about 3-5 months later while I was pregnant with her.
<br />
<br />
<br />
<br />Alysa's diagnosis was a long journey and if you are willing to hear it I dont mind sharing it with you.</end quote>
<br />
<br />Nicole,
<br />
<br />I'd love to hear about your journey. I'm sure your experiences could be very helpful to others in your situation. You can write to me at cysticfibrosis.guide@about.com, or post it in my forum at <a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.about.com.
">http://cysticfibrosis.about.com.
</a><br />
<br />Thanks!
<br />
<br />
<br />
<br />
 
C

cfguide

New member
Wow! You guys are a great group! Thanks so much for the warm welcome and your willingness to share this part of your lives with me, and potentially with visitors to my site.

Remember, please fell free to send me your stories, questions, suggestions - anything you'd like me to write about. I'm all ears and would love to hear from any of you about whatever's on your mind.

my email: cysticfibrosis.guide@about.com
website: <a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.about.com
">http://cysticfibrosis.about.com
</a>
 
C

cfguide

New member
Wow! You guys are a great group! Thanks so much for the warm welcome and your willingness to share this part of your lives with me, and potentially with visitors to my site.

Remember, please fell free to send me your stories, questions, suggestions - anything you'd like me to write about. I'm all ears and would love to hear from any of you about whatever's on your mind.

my email: cysticfibrosis.guide@about.com
website: <a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.about.com
">http://cysticfibrosis.about.com
</a>
 
C

cfguide

New member
Wow! You guys are a great group! Thanks so much for the warm welcome and your willingness to share this part of your lives with me, and potentially with visitors to my site.

Remember, please fell free to send me your stories, questions, suggestions - anything you'd like me to write about. I'm all ears and would love to hear from any of you about whatever's on your mind.

my email: cysticfibrosis.guide@about.com
website: <a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.about.com
">http://cysticfibrosis.about.com
</a>
 
C

cfguide

New member
Wow! You guys are a great group! Thanks so much for the warm welcome and your willingness to share this part of your lives with me, and potentially with visitors to my site.

Remember, please fell free to send me your stories, questions, suggestions - anything you'd like me to write about. I'm all ears and would love to hear from any of you about whatever's on your mind.

my email: cysticfibrosis.guide@about.com
website: <a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.about.com
">http://cysticfibrosis.about.com
</a>
 
C

cfguide

New member
Wow! You guys are a great group! Thanks so much for the warm welcome and your willingness to share this part of your lives with me, and potentially with visitors to my site.
<br />
<br />Remember, please fell free to send me your stories, questions, suggestions - anything you'd like me to write about. I'm all ears and would love to hear from any of you about whatever's on your mind.
<br />
<br />my email: cysticfibrosis.guide@about.com
<br />website: <a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.about.com
">http://cysticfibrosis.about.com
</a><br />
<br />
 
M

mneville

Guest
Hi Lori. My son Aidan, now three, was also diagnosed through newborn screening. We are both carriers of the Delta and had no idea. Thank God for newborn screening because Aidan was already showing symptoms of pancreatic insufficiency by eight days old when he was diagnosed.

We started VERY proactive treatments and he is currently doing great. He is off the charts in weight at 50 pounds and his major issue is sinus disease. He has had two PICCS and surgeries for that. We have a second son, Gavin, who was conceived through IVF/PGD so he does not have CF. Welcome and I'll check out your site!

Megan
 
M

mneville

Guest
Hi Lori. My son Aidan, now three, was also diagnosed through newborn screening. We are both carriers of the Delta and had no idea. Thank God for newborn screening because Aidan was already showing symptoms of pancreatic insufficiency by eight days old when he was diagnosed.

We started VERY proactive treatments and he is currently doing great. He is off the charts in weight at 50 pounds and his major issue is sinus disease. He has had two PICCS and surgeries for that. We have a second son, Gavin, who was conceived through IVF/PGD so he does not have CF. Welcome and I'll check out your site!

Megan
 
M

mneville

Guest
Hi Lori. My son Aidan, now three, was also diagnosed through newborn screening. We are both carriers of the Delta and had no idea. Thank God for newborn screening because Aidan was already showing symptoms of pancreatic insufficiency by eight days old when he was diagnosed.

We started VERY proactive treatments and he is currently doing great. He is off the charts in weight at 50 pounds and his major issue is sinus disease. He has had two PICCS and surgeries for that. We have a second son, Gavin, who was conceived through IVF/PGD so he does not have CF. Welcome and I'll check out your site!

Megan
 
M

mneville

Guest
Hi Lori. My son Aidan, now three, was also diagnosed through newborn screening. We are both carriers of the Delta and had no idea. Thank God for newborn screening because Aidan was already showing symptoms of pancreatic insufficiency by eight days old when he was diagnosed.

We started VERY proactive treatments and he is currently doing great. He is off the charts in weight at 50 pounds and his major issue is sinus disease. He has had two PICCS and surgeries for that. We have a second son, Gavin, who was conceived through IVF/PGD so he does not have CF. Welcome and I'll check out your site!

Megan
 
M

mneville

Guest
Hi Lori. My son Aidan, now three, was also diagnosed through newborn screening. We are both carriers of the Delta and had no idea. Thank God for newborn screening because Aidan was already showing symptoms of pancreatic insufficiency by eight days old when he was diagnosed.
<br />
<br />We started VERY proactive treatments and he is currently doing great. He is off the charts in weight at 50 pounds and his major issue is sinus disease. He has had two PICCS and surgeries for that. We have a second son, Gavin, who was conceived through IVF/PGD so he does not have CF. Welcome and I'll check out your site!
<br />
<br />Megan
 
You must log in or register to reply here.
Top