Is Atypical CF really all that uncommon?

M

marcijo

Guest
Well, Amy is right in saying that we all do have CF, and that CF is CF.

But...I also agree that there are a lot more cases that aren't the "norm" with CF. Not that there is a norm with CF...but I think you know what I mean.

Take my case, for example...I wasn't diagnosed until I was 21 - never had any obvious symptoms until I got walking pneumonia at 21 and they wanted to figure out why I got it. Even now, I haven't yet been hospitalized for my CF - although I am sure that will come sometime in the future.

Just my 2 cents.
 
M

marcijo

Guest
Well, Amy is right in saying that we all do have CF, and that CF is CF.

But...I also agree that there are a lot more cases that aren't the "norm" with CF. Not that there is a norm with CF...but I think you know what I mean.

Take my case, for example...I wasn't diagnosed until I was 21 - never had any obvious symptoms until I got walking pneumonia at 21 and they wanted to figure out why I got it. Even now, I haven't yet been hospitalized for my CF - although I am sure that will come sometime in the future.

Just my 2 cents.
 
M

marcijo

Guest
Well, Amy is right in saying that we all do have CF, and that CF is CF.

But...I also agree that there are a lot more cases that aren't the "norm" with CF. Not that there is a norm with CF...but I think you know what I mean.

Take my case, for example...I wasn't diagnosed until I was 21 - never had any obvious symptoms until I got walking pneumonia at 21 and they wanted to figure out why I got it. Even now, I haven't yet been hospitalized for my CF - although I am sure that will come sometime in the future.

Just my 2 cents.
 
M

marcijo

Guest
Well, Amy is right in saying that we all do have CF, and that CF is CF.

But...I also agree that there are a lot more cases that aren't the "norm" with CF. Not that there is a norm with CF...but I think you know what I mean.

Take my case, for example...I wasn't diagnosed until I was 21 - never had any obvious symptoms until I got walking pneumonia at 21 and they wanted to figure out why I got it. Even now, I haven't yet been hospitalized for my CF - although I am sure that will come sometime in the future.

Just my 2 cents.
 
M

marcijo

Guest
Well, Amy is right in saying that we all do have CF, and that CF is CF.
<br />
<br />But...I also agree that there are a lot more cases that aren't the "norm" with CF. Not that there is a norm with CF...but I think you know what I mean.
<br />
<br />Take my case, for example...I wasn't diagnosed until I was 21 - never had any obvious symptoms until I got walking pneumonia at 21 and they wanted to figure out why I got it. Even now, I haven't yet been hospitalized for my CF - although I am sure that will come sometime in the future.
<br />
<br />Just my 2 cents.
<br />
<br />
 
H

hopesiris

Guest
I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know.
 
H

hopesiris

Guest
I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know.
 
H

hopesiris

Guest
I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know.
 
H

hopesiris

Guest
I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know.
 
H

hopesiris

Guest
I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know.
<br />
<br />
 
C

chrissyd

New member
<div class="FTQUOTE"><begin quote>I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know. </end quote></div>

If you ever find where you read that again let me know (please) I'd like to see if it says anything about my mutation combination.

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
<div class="FTQUOTE"><begin quote>I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know. </end quote></div>

If you ever find where you read that again let me know (please) I'd like to see if it says anything about my mutation combination.

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
<div class="FTQUOTE"><begin quote>I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know. </end quote></div>

If you ever find where you read that again let me know (please) I'd like to see if it says anything about my mutation combination.

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
<div class="FTQUOTE"><begin quote>I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know. </end quote>

If you ever find where you read that again let me know (please) I'd like to see if it says anything about my mutation combination.

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
<div class="FTQUOTE"><begin quote>I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know. </end quote>
<br />
<br />If you ever find where you read that again let me know (please) I'd like to see if it says anything about my mutation combination.
<br />
<br /><img src="i/expressions/rose.gif" border="0">
 
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