Is it just me...or

Cherylwithone · Mar 28, 2010

I was wondering if everybody else has notice that this past year alot of people have died in the CF community. Is there
something so different from this year then the rest. Some of the people just went in for clean outs and just seemed to not make it. Are we missing something here????

The reason I ask is we keep seeing in print that people with
CF are living longer and their is all this research going on
yet, there is still so much death.

Cherylwithone · Mar 28, 2010

I was wondering if everybody else has notice that this past year alot of people have died in the CF community. Is there
something so different from this year then the rest. Some of the people just went in for clean outs and just seemed to not make it. Are we missing something here????

The reason I ask is we keep seeing in print that people with
CF are living longer and their is all this research going on
yet, there is still so much death.

Cherylwithone · Mar 28, 2010

I was wondering if everybody else has notice that this past year alot of people have died in the CF community. Is there
something so different from this year then the rest. Some of the people just went in for clean outs and just seemed to not make it. Are we missing something here????

The reason I ask is we keep seeing in print that people with
CF are living longer and their is all this research going on
yet, there is still so much death.

Cherylwithone · Mar 28, 2010

I was wondering if everybody else has notice that this past year alot of people have died in the CF community. Is there
something so different from this year then the rest. Some of the people just went in for clean outs and just seemed to not make it. Are we missing something here????

The reason I ask is we keep seeing in print that people with
CF are living longer and their is all this research going on
yet, there is still so much death.

Cherylwithone · Mar 28, 2010

I was wondering if everybody else has notice that this past year alot of people have died in the CF community. Is there
 something so different from this year then the rest. Some of the people just went in for clean outs and just seemed to not make it. Are we missing something here????
 
 The reason I ask is we keep seeing in print that people with
 CF are living longer and their is all this research going on
 yet, there is still so much death.

Mommafirst · Mar 28, 2010

I don't think its just you, but I've only been doing this CF life for 4 years, so I don't have a ton of perspective.

I do wonder why people are "living longer with CF" and there is now a newborn screen identifying patients earlier and yet the numbers reported of how many CFers in the world or in the country don't seem to change.

The deaths are emotionally reeling, especially when they aren't just statistics, but real people you have come to know for their wisdom, spirit, heart, and humor. Every time someone else passes, my husband questions what I'm doing to myself coming here only to be heartbroken with the losses -- but how can we not, I get way more than I lose.

Mommafirst · Mar 28, 2010

I don't think its just you, but I've only been doing this CF life for 4 years, so I don't have a ton of perspective.

I do wonder why people are "living longer with CF" and there is now a newborn screen identifying patients earlier and yet the numbers reported of how many CFers in the world or in the country don't seem to change.

The deaths are emotionally reeling, especially when they aren't just statistics, but real people you have come to know for their wisdom, spirit, heart, and humor. Every time someone else passes, my husband questions what I'm doing to myself coming here only to be heartbroken with the losses -- but how can we not, I get way more than I lose.

Mommafirst · Mar 28, 2010

I don't think its just you, but I've only been doing this CF life for 4 years, so I don't have a ton of perspective.

I do wonder why people are "living longer with CF" and there is now a newborn screen identifying patients earlier and yet the numbers reported of how many CFers in the world or in the country don't seem to change.

The deaths are emotionally reeling, especially when they aren't just statistics, but real people you have come to know for their wisdom, spirit, heart, and humor. Every time someone else passes, my husband questions what I'm doing to myself coming here only to be heartbroken with the losses -- but how can we not, I get way more than I lose.

Mommafirst · Mar 28, 2010

I don't think its just you, but I've only been doing this CF life for 4 years, so I don't have a ton of perspective.

I do wonder why people are "living longer with CF" and there is now a newborn screen identifying patients earlier and yet the numbers reported of how many CFers in the world or in the country don't seem to change.

The deaths are emotionally reeling, especially when they aren't just statistics, but real people you have come to know for their wisdom, spirit, heart, and humor. Every time someone else passes, my husband questions what I'm doing to myself coming here only to be heartbroken with the losses -- but how can we not, I get way more than I lose.

Mommafirst · Mar 28, 2010

I don't think its just you, but I've only been doing this CF life for 4 years, so I don't have a ton of perspective.
 
 I do wonder why people are "living longer with CF" and there is now a newborn screen identifying patients earlier and yet the numbers reported of how many CFers in the world or in the country don't seem to change.
 
 The deaths are emotionally reeling, especially when they aren't just statistics, but real people you have come to know for their wisdom, spirit, heart, and humor. Every time someone else passes, my husband questions what I'm doing to myself coming here only to be heartbroken with the losses -- but how can we not, I get way more than I lose.

jbrandonAW · Mar 28, 2010