Is it just me...or

C

crystalina0814

New member
I know for me personally- I have always been a fairly healthy CF'er. High FEV1 (80s-90s) and going at least a year or 2 in between clean-outs. I have never had much trouble, until this past October. I have been sick non-stop. On antibiotics almost constantly and I just finished my 3rd 5 week round of IVs.

My FEV1 dropped to an all time low of 51% and it has been a struggle to get it up to the high 60s ( this past week I finally saw a 71%).

I sure hope with spring well on it's way and summer around the corner...things will change. I don't really know how much more of this we can take!! So many have had such a difficult winter!
 
C

crystalina0814

New member
I know for me personally- I have always been a fairly healthy CF'er. High FEV1 (80s-90s) and going at least a year or 2 in between clean-outs. I have never had much trouble, until this past October. I have been sick non-stop. On antibiotics almost constantly and I just finished my 3rd 5 week round of IVs.

My FEV1 dropped to an all time low of 51% and it has been a struggle to get it up to the high 60s ( this past week I finally saw a 71%).

I sure hope with spring well on it's way and summer around the corner...things will change. I don't really know how much more of this we can take!! So many have had such a difficult winter!
 
C

crystalina0814

New member
I know for me personally- I have always been a fairly healthy CF'er. High FEV1 (80s-90s) and going at least a year or 2 in between clean-outs. I have never had much trouble, until this past October. I have been sick non-stop. On antibiotics almost constantly and I just finished my 3rd 5 week round of IVs.

My FEV1 dropped to an all time low of 51% and it has been a struggle to get it up to the high 60s ( this past week I finally saw a 71%).

I sure hope with spring well on it's way and summer around the corner...things will change. I don't really know how much more of this we can take!! So many have had such a difficult winter!
 
C

crystalina0814

New member
I know for me personally- I have always been a fairly healthy CF'er. High FEV1 (80s-90s) and going at least a year or 2 in between clean-outs. I have never had much trouble, until this past October. I have been sick non-stop. On antibiotics almost constantly and I just finished my 3rd 5 week round of IVs.

My FEV1 dropped to an all time low of 51% and it has been a struggle to get it up to the high 60s ( this past week I finally saw a 71%).

I sure hope with spring well on it's way and summer around the corner...things will change. I don't really know how much more of this we can take!! So many have had such a difficult winter!
 
C

crystalina0814

New member
I know for me personally- I have always been a fairly healthy CF'er. High FEV1 (80s-90s) and going at least a year or 2 in between clean-outs. I have never had much trouble, until this past October. I have been sick non-stop. On antibiotics almost constantly and I just finished my 3rd 5 week round of IVs.
<br />
<br />My FEV1 dropped to an all time low of 51% and it has been a struggle to get it up to the high 60s ( this past week I finally saw a 71%).
<br />
<br />I sure hope with spring well on it's way and summer around the corner...things will change. I don't really know how much more of this we can take!! So many have had such a difficult winter!
 
M

MCGrad2006

Guest
I agree that the weather/bad bugs in the air have had a huge impact on me. I like most of you, have been sick almost non stop since October. I have had probably 7 colds since then...most of the requiring oral abx (and once on IVs).

I also think that more people have joined these forums in the last few years so we have a closer knit community. So that when someone dies...more of us know about it, its more out in the open...whereas in the past you maybe heard of people you knew...it was not so public. Does that make sense?

Heather, I think you are right in saying <div class="FTQUOTE"><begin quote>Every time someone else passes, my husband questions what I'm doing to myself coming here only to be heartbroken with the losses -- but how can we not, I get way more than I lose. </end quote></div>

I have found so much comfort and support in this community, I wouldn't have it any other way. Yes its extremely sad when someone in the community dies, but I think in my opinion it has helped me to work harder and to have had those people in my life (even just online) has enriched my life. "It's better to have loved and lost, than never to have loved at all."
 
M

MCGrad2006

Guest
I agree that the weather/bad bugs in the air have had a huge impact on me. I like most of you, have been sick almost non stop since October. I have had probably 7 colds since then...most of the requiring oral abx (and once on IVs).

I also think that more people have joined these forums in the last few years so we have a closer knit community. So that when someone dies...more of us know about it, its more out in the open...whereas in the past you maybe heard of people you knew...it was not so public. Does that make sense?

Heather, I think you are right in saying <div class="FTQUOTE"><begin quote>Every time someone else passes, my husband questions what I'm doing to myself coming here only to be heartbroken with the losses -- but how can we not, I get way more than I lose. </end quote></div>

I have found so much comfort and support in this community, I wouldn't have it any other way. Yes its extremely sad when someone in the community dies, but I think in my opinion it has helped me to work harder and to have had those people in my life (even just online) has enriched my life. "It's better to have loved and lost, than never to have loved at all."
 
M

MCGrad2006

Guest
I agree that the weather/bad bugs in the air have had a huge impact on me. I like most of you, have been sick almost non stop since October. I have had probably 7 colds since then...most of the requiring oral abx (and once on IVs).

I also think that more people have joined these forums in the last few years so we have a closer knit community. So that when someone dies...more of us know about it, its more out in the open...whereas in the past you maybe heard of people you knew...it was not so public. Does that make sense?

Heather, I think you are right in saying <div class="FTQUOTE"><begin quote>Every time someone else passes, my husband questions what I'm doing to myself coming here only to be heartbroken with the losses -- but how can we not, I get way more than I lose. </end quote></div>

I have found so much comfort and support in this community, I wouldn't have it any other way. Yes its extremely sad when someone in the community dies, but I think in my opinion it has helped me to work harder and to have had those people in my life (even just online) has enriched my life. "It's better to have loved and lost, than never to have loved at all."
 
M

MCGrad2006

Guest
I agree that the weather/bad bugs in the air have had a huge impact on me. I like most of you, have been sick almost non stop since October. I have had probably 7 colds since then...most of the requiring oral abx (and once on IVs).

I also think that more people have joined these forums in the last few years so we have a closer knit community. So that when someone dies...more of us know about it, its more out in the open...whereas in the past you maybe heard of people you knew...it was not so public. Does that make sense?

Heather, I think you are right in saying <div class="FTQUOTE"><begin quote>Every time someone else passes, my husband questions what I'm doing to myself coming here only to be heartbroken with the losses -- but how can we not, I get way more than I lose. </end quote>

I have found so much comfort and support in this community, I wouldn't have it any other way. Yes its extremely sad when someone in the community dies, but I think in my opinion it has helped me to work harder and to have had those people in my life (even just online) has enriched my life. "It's better to have loved and lost, than never to have loved at all."
 
M

MCGrad2006

Guest
I agree that the weather/bad bugs in the air have had a huge impact on me. I like most of you, have been sick almost non stop since October. I have had probably 7 colds since then...most of the requiring oral abx (and once on IVs).
<br />
<br />I also think that more people have joined these forums in the last few years so we have a closer knit community. So that when someone dies...more of us know about it, its more out in the open...whereas in the past you maybe heard of people you knew...it was not so public. Does that make sense?
<br />
<br />Heather, I think you are right in saying <div class="FTQUOTE"><begin quote>Every time someone else passes, my husband questions what I'm doing to myself coming here only to be heartbroken with the losses -- but how can we not, I get way more than I lose. </end quote>
<br />
<br />I have found so much comfort and support in this community, I wouldn't have it any other way. Yes its extremely sad when someone in the community dies, but I think in my opinion it has helped me to work harder and to have had those people in my life (even just online) has enriched my life. "It's better to have loved and lost, than never to have loved at all."
 
C

Cherylwithone

Guest
I agree with what everyone is saying. I guess because Malora has been sick on and off since October and this year has been worse then in the past. I guess some of what I am feeling is fear for her yet, I am angry because it feels like every step forward we go back two. Caitlin your correct in saying that we do have more coming to this site.

I find that a blessing. Nothing is worse then feeling alone
in a battle but, with everyone here for support it does make
it better to deal with.
 
C

Cherylwithone

Guest
I agree with what everyone is saying. I guess because Malora has been sick on and off since October and this year has been worse then in the past. I guess some of what I am feeling is fear for her yet, I am angry because it feels like every step forward we go back two. Caitlin your correct in saying that we do have more coming to this site.

I find that a blessing. Nothing is worse then feeling alone
in a battle but, with everyone here for support it does make
it better to deal with.
 
C

Cherylwithone

Guest
I agree with what everyone is saying. I guess because Malora has been sick on and off since October and this year has been worse then in the past. I guess some of what I am feeling is fear for her yet, I am angry because it feels like every step forward we go back two. Caitlin your correct in saying that we do have more coming to this site.

I find that a blessing. Nothing is worse then feeling alone
in a battle but, with everyone here for support it does make
it better to deal with.
 
C

Cherylwithone

Guest
I agree with what everyone is saying. I guess because Malora has been sick on and off since October and this year has been worse then in the past. I guess some of what I am feeling is fear for her yet, I am angry because it feels like every step forward we go back two. Caitlin your correct in saying that we do have more coming to this site.

I find that a blessing. Nothing is worse then feeling alone
in a battle but, with everyone here for support it does make
it better to deal with.
 
C

Cherylwithone

Guest
I agree with what everyone is saying. I guess because Malora has been sick on and off since October and this year has been worse then in the past. I guess some of what I am feeling is fear for her yet, I am angry because it feels like every step forward we go back two. Caitlin your correct in saying that we do have more coming to this site.
<br />
<br />I find that a blessing. Nothing is worse then feeling alone
<br />in a battle but, with everyone here for support it does make
<br />it better to deal with.
 
S

Skye

New member
I haven't seen anyone mention H1N1....forgive me if that was already mentioned. I think that was just sooo difficult for everyone. This has been a hard hard year though. I just went to my first CF funeral EVER last weekend. It was related to a 2nd lung transplant and not an exacerbation or other. Just a difficult year!

I am just grateful for those that have recovered from H1N1 or who made it through a difficult hospital stay. I am grateful for those who have been listed for lungs and are staying stable while they wait. I am grateful for a friend I have who is celebrating her 4th anniversary with new lungs. I just saw her today and she looks so BEAUTIFUL and HAPPY. I have another friend who is celebrating her 2nd anniversary with new lungs. I am just so appreciative for some of the good things that are happening while still remembering those we have lost this year. I just care so much about this community.
 
S

Skye

New member
I haven't seen anyone mention H1N1....forgive me if that was already mentioned. I think that was just sooo difficult for everyone. This has been a hard hard year though. I just went to my first CF funeral EVER last weekend. It was related to a 2nd lung transplant and not an exacerbation or other. Just a difficult year!

I am just grateful for those that have recovered from H1N1 or who made it through a difficult hospital stay. I am grateful for those who have been listed for lungs and are staying stable while they wait. I am grateful for a friend I have who is celebrating her 4th anniversary with new lungs. I just saw her today and she looks so BEAUTIFUL and HAPPY. I have another friend who is celebrating her 2nd anniversary with new lungs. I am just so appreciative for some of the good things that are happening while still remembering those we have lost this year. I just care so much about this community.
 
S

Skye

New member
I haven't seen anyone mention H1N1....forgive me if that was already mentioned. I think that was just sooo difficult for everyone. This has been a hard hard year though. I just went to my first CF funeral EVER last weekend. It was related to a 2nd lung transplant and not an exacerbation or other. Just a difficult year!

I am just grateful for those that have recovered from H1N1 or who made it through a difficult hospital stay. I am grateful for those who have been listed for lungs and are staying stable while they wait. I am grateful for a friend I have who is celebrating her 4th anniversary with new lungs. I just saw her today and she looks so BEAUTIFUL and HAPPY. I have another friend who is celebrating her 2nd anniversary with new lungs. I am just so appreciative for some of the good things that are happening while still remembering those we have lost this year. I just care so much about this community.
 
S

Skye

New member
I haven't seen anyone mention H1N1....forgive me if that was already mentioned. I think that was just sooo difficult for everyone. This has been a hard hard year though. I just went to my first CF funeral EVER last weekend. It was related to a 2nd lung transplant and not an exacerbation or other. Just a difficult year!

I am just grateful for those that have recovered from H1N1 or who made it through a difficult hospital stay. I am grateful for those who have been listed for lungs and are staying stable while they wait. I am grateful for a friend I have who is celebrating her 4th anniversary with new lungs. I just saw her today and she looks so BEAUTIFUL and HAPPY. I have another friend who is celebrating her 2nd anniversary with new lungs. I am just so appreciative for some of the good things that are happening while still remembering those we have lost this year. I just care so much about this community.
 
S

Skye

New member
I haven't seen anyone mention H1N1....forgive me if that was already mentioned. I think that was just sooo difficult for everyone. This has been a hard hard year though. I just went to my first CF funeral EVER last weekend. It was related to a 2nd lung transplant and not an exacerbation or other. Just a difficult year!
<br />
<br />I am just grateful for those that have recovered from H1N1 or who made it through a difficult hospital stay. I am grateful for those who have been listed for lungs and are staying stable while they wait. I am grateful for a friend I have who is celebrating her 4th anniversary with new lungs. I just saw her today and she looks so BEAUTIFUL and HAPPY. I have another friend who is celebrating her 2nd anniversary with new lungs. I am just so appreciative for some of the good things that are happening while still remembering those we have lost this year. I just care so much about this community.
 
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