Is sweat testing

anonymous

New member
the only way to test for CF in newborns? My daughter is a carrier and her newborn son has tested as a carrier. They are going to do a sweat test, I am just curious if that is the only way to test?
 

anonymous

New member
the only way to test for CF in newborns? My daughter is a carrier and her newborn son has tested as a carrier. They are going to do a sweat test, I am just curious if that is the only way to test?
 

anonymous

New member
the only way to test for CF in newborns? My daughter is a carrier and her newborn son has tested as a carrier. They are going to do a sweat test, I am just curious if that is the only way to test?
 

anonymous

New member
i am the daughter of the first post, and i was wondering which would be easier to do...and how accurate it would be in a 8 week preemie...hes got some of the symptoms, or atleast one that i know of so far, and thats the meconium plug...and with having that, is it a sure sign that hes got cf? ive tried to look up information on it, and i only found the basics about it...im just glad that my mom found this site...
 

anonymous

New member
i am the daughter of the first post, and i was wondering which would be easier to do...and how accurate it would be in a 8 week preemie...hes got some of the symptoms, or atleast one that i know of so far, and thats the meconium plug...and with having that, is it a sure sign that hes got cf? ive tried to look up information on it, and i only found the basics about it...im just glad that my mom found this site...
 

anonymous

New member
i am the daughter of the first post, and i was wondering which would be easier to do...and how accurate it would be in a 8 week preemie...hes got some of the symptoms, or atleast one that i know of so far, and thats the meconium plug...and with having that, is it a sure sign that hes got cf? ive tried to look up information on it, and i only found the basics about it...im just glad that my mom found this site...
 

Chaggie

New member
While they might be easier and produce quick results sweat tests aren't usually done for newborns under 6 lbs. A genetic tet is about 2-4 weeks for a turn around
 

Chaggie

New member
While they might be easier and produce quick results sweat tests aren't usually done for newborns under 6 lbs. A genetic tet is about 2-4 weeks for a turn around
 

Chaggie

New member
While they might be easier and produce quick results sweat tests aren't usually done for newborns under 6 lbs. A genetic tet is about 2-4 weeks for a turn around
 

anonymous

New member
My son was diagnosed at 3 weeks of age. They tested him by a blood test as infants that young usually don't sweat enough for the test. We had the results back within 5 days...........I'll never forget that day!

Good Luck!
 

anonymous

New member
My son was diagnosed at 3 weeks of age. They tested him by a blood test as infants that young usually don't sweat enough for the test. We had the results back within 5 days...........I'll never forget that day!

Good Luck!
 

anonymous

New member
My son was diagnosed at 3 weeks of age. They tested him by a blood test as infants that young usually don't sweat enough for the test. We had the results back within 5 days...........I'll never forget that day!

Good Luck!
 

anonymous

New member
well hes over 6lbs now...hes 5 weeks old...ok, so i should ask his doctor about blood testing...luckly, we go in tomorrow...
 

anonymous

New member
well hes over 6lbs now...hes 5 weeks old...ok, so i should ask his doctor about blood testing...luckly, we go in tomorrow...
 

anonymous

New member
well hes over 6lbs now...hes 5 weeks old...ok, so i should ask his doctor about blood testing...luckly, we go in tomorrow...
 

anonymous

New member
Push for the genetic blood test -- get the full test over 1300 or 1400 mutation -- don't let them do only a screening for 39 or 89 mutations -- it's too easy to miss them -- that's way too many to not be looking for.

Unfortunately it will take longer to get the results.

You could also ask for the fecal elastase fat test, just for the sake of knowing -- it would still take about a week (I think) and would show if he is pancreatic sufficient or not.

You can check out my blog page (link at the bottom) for some basic info about sweat tests and genetic test -- not exactly what your problem is at the moment but it would be good to know about just in case they say the sweat test is normal.
 

anonymous

New member
Push for the genetic blood test -- get the full test over 1300 or 1400 mutation -- don't let them do only a screening for 39 or 89 mutations -- it's too easy to miss them -- that's way too many to not be looking for.

Unfortunately it will take longer to get the results.

You could also ask for the fecal elastase fat test, just for the sake of knowing -- it would still take about a week (I think) and would show if he is pancreatic sufficient or not.

You can check out my blog page (link at the bottom) for some basic info about sweat tests and genetic test -- not exactly what your problem is at the moment but it would be good to know about just in case they say the sweat test is normal.
 
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