Is there a connection with cfers and insomnia?

[Diane]

I think a lot of it has to do with where you are at lung wise, but i do not think it is a specific part of cf. When i had great lung function i slept like a baby. Most times i still do even with my lung function being the lowest its ever been. But i notice when i have an exacerbation i will have problems with waking up to cough, taking longer to fall sleep due to coughing, stuff like that.
In my opinion just because someone with cf has a certain symptom (same symptoms that millions of healthy people do) doesnt automatically mean that it is cf related .

 

[Diane]

I think a lot of it has to do with where you are at lung wise, but i do not think it is a specific part of cf. When i had great lung function i slept like a baby. Most times i still do even with my lung function being the lowest its ever been. But i notice when i have an exacerbation i will have problems with waking up to cough, taking longer to fall sleep due to coughing, stuff like that.
In my opinion just because someone with cf has a certain symptom (same symptoms that millions of healthy people do) doesnt automatically mean that it is cf related .

 

[Diane]

I think a lot of it has to do with where you are at lung wise, but i do not think it is a specific part of cf. When i had great lung function i slept like a baby. Most times i still do even with my lung function being the lowest its ever been. But i notice when i have an exacerbation i will have problems with waking up to cough, taking longer to fall sleep due to coughing, stuff like that.
In my opinion just because someone with cf has a certain symptom (same symptoms that millions of healthy people do) doesnt automatically mean that it is cf related .

 

[Diane]

I think a lot of it has to do with where you are at lung wise, but i do not think it is a specific part of cf. When i had great lung function i slept like a baby. Most times i still do even with my lung function being the lowest its ever been. But i notice when i have an exacerbation i will have problems with waking up to cough, taking longer to fall sleep due to coughing, stuff like that.
In my opinion just because someone with cf has a certain symptom (same symptoms that millions of healthy people do) doesnt automatically mean that it is cf related .

 

[Diane]

I think a lot of it has to do with where you are at lung wise, but i do not think it is a specific part of cf. When i had great lung function i slept like a baby. Most times i still do even with my lung function being the lowest its ever been. But i notice when i have an exacerbation i will have problems with waking up to cough, taking longer to fall sleep due to coughing, stuff like that.
<br />In my opinion just because someone with cf has a certain symptom (same symptoms that millions of healthy people do) doesnt automatically mean that it is cf related .

 

[Kristen]

The only way CF affects my sleep (that I know of) is if I am sick or from constant annoying post nasal drip. It took me two hours to fall asleep last night because the drainage was so bad. I am a very light sleeper, though, and have always had issues sleeping. But I never thought they were CF related. ::<img src="i/expressions/face-icon-small-blush.gif" border="0">ff to read the article:::

 

[Kristen]

The only way CF affects my sleep (that I know of) is if I am sick or from constant annoying post nasal drip. It took me two hours to fall asleep last night because the drainage was so bad. I am a very light sleeper, though, and have always had issues sleeping. But I never thought they were CF related. ::<img src="i/expressions/face-icon-small-blush.gif" border="0">ff to read the article:::

 

[Kristen]

The only way CF affects my sleep (that I know of) is if I am sick or from constant annoying post nasal drip. It took me two hours to fall asleep last night because the drainage was so bad. I am a very light sleeper, though, and have always had issues sleeping. But I never thought they were CF related. ::<img src="i/expressions/face-icon-small-blush.gif" border="0">ff to read the article:::

 

[Kristen]

The only way CF affects my sleep (that I know of) is if I am sick or from constant annoying post nasal drip. It took me two hours to fall asleep last night because the drainage was so bad. I am a very light sleeper, though, and have always had issues sleeping. But I never thought they were CF related. ::<img src="i/expressions/face-icon-small-blush.gif" border="0">ff to read the article:::

 

[Kristen]

The only way CF affects my sleep (that I know of) is if I am sick or from constant annoying post nasal drip. It took me two hours to fall asleep last night because the drainage was so bad. I am a very light sleeper, though, and have always had issues sleeping. But I never thought they were CF related. ::<img src="i/expressions/face-icon-small-blush.gif" border="0">ff to read the article:::

 

[Sweetness81]

Wow! I am thankful that I wrote this post. I have gathered so much info. Thank you. I havent really had a time for the last few years where cf didnt affect me, so I wanted to see where everyone else is at. Seems that I am not the only one kinda confused about this issue. Its nice to know that I am not alone. I do take meds to fall asleep. But the psychiatrist kept telling me that she was restricted on what meds she could give me for sleep-aids because of the breathing problems. So I was hoping to get some answers. My pfts were at 78% in this last march. So my breathing is really good. well according to there tests, but when asthma kicks in, its a whole different story. However I am recovering from having pneumonia for the third time this year! So that may contribute to issues I am having. But I am so frustrated by the fact that my cf team cant figure out why I cant sleep. I was hospitalized with a severe cf exacerbation in July '08 for two weeks up at Oregon Health Science University. All 12 dr.s kept giving me pain meds. (morphine, percocet, liquid vicodin, liquid valium, oxycontin, and even trazodone.) but I would wake up the next day feeling more exhausted than the day before. They still cant figure out why I cant sleep that well at night. Even in respiratory isolation. I had kidney failure due to an antibiotic I was given while there. I am really frustrated at the fact that my body isnt responding the way that I want it to. This is getting hard to deal with. The side effects are worse than dealing with health problems themselves. Than I had an EEG a couple years ago that said that my alert/sleep process part of my brain was slowing down. I was told that those results meant that I was literally losing the ability to put myself to sleep at night. Not encouraging thing to hear. But none the less. I just want some answers, and to learn everything that I can to get better. So if anyone has any more suggestions, please let me know. I know that I am missing alot of info about cf and how we are affected by it in our sleep cycles. I'm here for whenever I can either offer help with any questions, or to hear any suggestions that anyone may have. Thank you!

Mary

 

[Sweetness81]

Wow! I am thankful that I wrote this post. I have gathered so much info. Thank you. I havent really had a time for the last few years where cf didnt affect me, so I wanted to see where everyone else is at. Seems that I am not the only one kinda confused about this issue. Its nice to know that I am not alone. I do take meds to fall asleep. But the psychiatrist kept telling me that she was restricted on what meds she could give me for sleep-aids because of the breathing problems. So I was hoping to get some answers. My pfts were at 78% in this last march. So my breathing is really good. well according to there tests, but when asthma kicks in, its a whole different story. However I am recovering from having pneumonia for the third time this year! So that may contribute to issues I am having. But I am so frustrated by the fact that my cf team cant figure out why I cant sleep. I was hospitalized with a severe cf exacerbation in July '08 for two weeks up at Oregon Health Science University. All 12 dr.s kept giving me pain meds. (morphine, percocet, liquid vicodin, liquid valium, oxycontin, and even trazodone.) but I would wake up the next day feeling more exhausted than the day before. They still cant figure out why I cant sleep that well at night. Even in respiratory isolation. I had kidney failure due to an antibiotic I was given while there. I am really frustrated at the fact that my body isnt responding the way that I want it to. This is getting hard to deal with. The side effects are worse than dealing with health problems themselves. Than I had an EEG a couple years ago that said that my alert/sleep process part of my brain was slowing down. I was told that those results meant that I was literally losing the ability to put myself to sleep at night. Not encouraging thing to hear. But none the less. I just want some answers, and to learn everything that I can to get better. So if anyone has any more suggestions, please let me know. I know that I am missing alot of info about cf and how we are affected by it in our sleep cycles. I'm here for whenever I can either offer help with any questions, or to hear any suggestions that anyone may have. Thank you!

Mary

 

[Sweetness81]

Wow! I am thankful that I wrote this post. I have gathered so much info. Thank you. I havent really had a time for the last few years where cf didnt affect me, so I wanted to see where everyone else is at. Seems that I am not the only one kinda confused about this issue. Its nice to know that I am not alone. I do take meds to fall asleep. But the psychiatrist kept telling me that she was restricted on what meds she could give me for sleep-aids because of the breathing problems. So I was hoping to get some answers. My pfts were at 78% in this last march. So my breathing is really good. well according to there tests, but when asthma kicks in, its a whole different story. However I am recovering from having pneumonia for the third time this year! So that may contribute to issues I am having. But I am so frustrated by the fact that my cf team cant figure out why I cant sleep. I was hospitalized with a severe cf exacerbation in July '08 for two weeks up at Oregon Health Science University. All 12 dr.s kept giving me pain meds. (morphine, percocet, liquid vicodin, liquid valium, oxycontin, and even trazodone.) but I would wake up the next day feeling more exhausted than the day before. They still cant figure out why I cant sleep that well at night. Even in respiratory isolation. I had kidney failure due to an antibiotic I was given while there. I am really frustrated at the fact that my body isnt responding the way that I want it to. This is getting hard to deal with. The side effects are worse than dealing with health problems themselves. Than I had an EEG a couple years ago that said that my alert/sleep process part of my brain was slowing down. I was told that those results meant that I was literally losing the ability to put myself to sleep at night. Not encouraging thing to hear. But none the less. I just want some answers, and to learn everything that I can to get better. So if anyone has any more suggestions, please let me know. I know that I am missing alot of info about cf and how we are affected by it in our sleep cycles. I'm here for whenever I can either offer help with any questions, or to hear any suggestions that anyone may have. Thank you!

Mary

 

[Sweetness81]

Wow! I am thankful that I wrote this post. I have gathered so much info. Thank you. I havent really had a time for the last few years where cf didnt affect me, so I wanted to see where everyone else is at. Seems that I am not the only one kinda confused about this issue. Its nice to know that I am not alone. I do take meds to fall asleep. But the psychiatrist kept telling me that she was restricted on what meds she could give me for sleep-aids because of the breathing problems. So I was hoping to get some answers. My pfts were at 78% in this last march. So my breathing is really good. well according to there tests, but when asthma kicks in, its a whole different story. However I am recovering from having pneumonia for the third time this year! So that may contribute to issues I am having. But I am so frustrated by the fact that my cf team cant figure out why I cant sleep. I was hospitalized with a severe cf exacerbation in July '08 for two weeks up at Oregon Health Science University. All 12 dr.s kept giving me pain meds. (morphine, percocet, liquid vicodin, liquid valium, oxycontin, and even trazodone.) but I would wake up the next day feeling more exhausted than the day before. They still cant figure out why I cant sleep that well at night. Even in respiratory isolation. I had kidney failure due to an antibiotic I was given while there. I am really frustrated at the fact that my body isnt responding the way that I want it to. This is getting hard to deal with. The side effects are worse than dealing with health problems themselves. Than I had an EEG a couple years ago that said that my alert/sleep process part of my brain was slowing down. I was told that those results meant that I was literally losing the ability to put myself to sleep at night. Not encouraging thing to hear. But none the less. I just want some answers, and to learn everything that I can to get better. So if anyone has any more suggestions, please let me know. I know that I am missing alot of info about cf and how we are affected by it in our sleep cycles. I'm here for whenever I can either offer help with any questions, or to hear any suggestions that anyone may have. Thank you!

Mary

 

[Sweetness81]

Wow! I am thankful that I wrote this post. I have gathered so much info. Thank you. I havent really had a time for the last few years where cf didnt affect me, so I wanted to see where everyone else is at. Seems that I am not the only one kinda confused about this issue. Its nice to know that I am not alone. I do take meds to fall asleep. But the psychiatrist kept telling me that she was restricted on what meds she could give me for sleep-aids because of the breathing problems. So I was hoping to get some answers. My pfts were at 78% in this last march. So my breathing is really good. well according to there tests, but when asthma kicks in, its a whole different story. However I am recovering from having pneumonia for the third time this year! So that may contribute to issues I am having. But I am so frustrated by the fact that my cf team cant figure out why I cant sleep. I was hospitalized with a severe cf exacerbation in July '08 for two weeks up at Oregon Health Science University. All 12 dr.s kept giving me pain meds. (morphine, percocet, liquid vicodin, liquid valium, oxycontin, and even trazodone.) but I would wake up the next day feeling more exhausted than the day before. They still cant figure out why I cant sleep that well at night. Even in respiratory isolation. I had kidney failure due to an antibiotic I was given while there. I am really frustrated at the fact that my body isnt responding the way that I want it to. This is getting hard to deal with. The side effects are worse than dealing with health problems themselves. Than I had an EEG a couple years ago that said that my alert/sleep process part of my brain was slowing down. I was told that those results meant that I was literally losing the ability to put myself to sleep at night. Not encouraging thing to hear. But none the less. I just want some answers, and to learn everything that I can to get better. So if anyone has any more suggestions, please let me know. I know that I am missing alot of info about cf and how we are affected by it in our sleep cycles. I'm here for whenever I can either offer help with any questions, or to hear any suggestions that anyone may have. Thank you!
<br />
<br />Mary