mysticrose
New member
<P>Wierd question time. Is joint pain in a slow growing 13 yr old part of CF?</P>
<P></P>
<P>My DD with CF for almost a year now has been having random joint pain. Her knee has swelled up about twice it's original size twice. This last time she was not able to put any weight on it at all.Before this happened her wrist was hurting too.I have taken her to the pediatrician, who sent us to the Orthopedic clinic.They claimed she has Superior Plicas Syndrom (SP) basically she has a fluid sac above the knee that can cause it to swell. Over the summer it would become inflamed but she could manage with it. </P>
<P>Last week she couldn't bear any weight on her leg so I took her back to the Ped. Before all this happened with her knee her hips were hurting her as well. We have ruled out injury, infection and apparently the blood test for arthritis came back negative as well. </P>
<P>So he is now sending her to see a rheumatologist to see if there is something with the joints. </P>
<P>When I called earlier today to find out the test results the nurse said we were going to see the CF doc to rule out any CF causes. Mind you we already had this appt set up for CF clinic anyways so.. We have spoken to the CF docs about this already and they had no clue what was causing the issues.</P>
<P>Her appt is the 17th of next month. The soonest I could get her into the rheumatologist was the 25th of next month. </P>
<P>Honestly I am just exhausted and feel so frazzled by the whole ordeal. The CF clinic has been checking her vitamins so I'm guessing those aren't it. She isn't on any kind of steroid. Am I missing something here as far as possible CF involvment?</P>
<P>Just curious if this might be some part of the disease that rarely happens to it isn't discussed as much or could we be looking at something totally different?</P>
<P></P>
<P>Jen mom to 4 kiddos. 3 w/cf and 1 lucky little red head.</P>
<P></P>
<P>My DD with CF for almost a year now has been having random joint pain. Her knee has swelled up about twice it's original size twice. This last time she was not able to put any weight on it at all.Before this happened her wrist was hurting too.I have taken her to the pediatrician, who sent us to the Orthopedic clinic.They claimed she has Superior Plicas Syndrom (SP) basically she has a fluid sac above the knee that can cause it to swell. Over the summer it would become inflamed but she could manage with it. </P>
<P>Last week she couldn't bear any weight on her leg so I took her back to the Ped. Before all this happened with her knee her hips were hurting her as well. We have ruled out injury, infection and apparently the blood test for arthritis came back negative as well. </P>
<P>So he is now sending her to see a rheumatologist to see if there is something with the joints. </P>
<P>When I called earlier today to find out the test results the nurse said we were going to see the CF doc to rule out any CF causes. Mind you we already had this appt set up for CF clinic anyways so.. We have spoken to the CF docs about this already and they had no clue what was causing the issues.</P>
<P>Her appt is the 17th of next month. The soonest I could get her into the rheumatologist was the 25th of next month. </P>
<P>Honestly I am just exhausted and feel so frazzled by the whole ordeal. The CF clinic has been checking her vitamins so I'm guessing those aren't it. She isn't on any kind of steroid. Am I missing something here as far as possible CF involvment?</P>
<P>Just curious if this might be some part of the disease that rarely happens to it isn't discussed as much or could we be looking at something totally different?</P>
<P></P>
<P>Jen mom to 4 kiddos. 3 w/cf and 1 lucky little red head.</P>