Is this answer?

J

junebugsmommy

New member
Thank you both for your thoughts and kind words. Today, despite sickness and fatigue, I took my son to the count fair. I love to see his face when he discovers something new, when spends time with my nieces, or when he realizes he can have a blast despite feeling terrible.

I know he needs these moments and so do I, but I cannot help bu take offense everytime someone says "take care of our boy" or "does he need..." "should you..." I think I am touchy because I am comepletely unsure what the right thing is, what I SHOULD be doing. I don't know if I am making any sense... but I pray that we are able to test him this week, I need to be able to test him this week. If the answer is yes then we have a name and we can get started attacking for health... and if the answer is no then I can stop worrying about this giant and begin searching for the real giant.

Stacey, I love the quote you have on your post. It really gave me some direction in knowing that I am doing exactly what my son needs. He needs to believe that he is fine... he needs to live in a world where he (for now) doesn't know how sick he really is.

Thank you again I hope I am in the wrong place talking to you all. But even if my son isn't a CFer every mother with an ill child needs a place to go and talk to other moms who understand no matter the diagnosis.

warmly,
Robin
 
J

junebugsmommy

New member
Thank you both for your thoughts and kind words. Today, despite sickness and fatigue, I took my son to the count fair. I love to see his face when he discovers something new, when spends time with my nieces, or when he realizes he can have a blast despite feeling terrible.

I know he needs these moments and so do I, but I cannot help bu take offense everytime someone says "take care of our boy" or "does he need..." "should you..." I think I am touchy because I am comepletely unsure what the right thing is, what I SHOULD be doing. I don't know if I am making any sense... but I pray that we are able to test him this week, I need to be able to test him this week. If the answer is yes then we have a name and we can get started attacking for health... and if the answer is no then I can stop worrying about this giant and begin searching for the real giant.

Stacey, I love the quote you have on your post. It really gave me some direction in knowing that I am doing exactly what my son needs. He needs to believe that he is fine... he needs to live in a world where he (for now) doesn't know how sick he really is.

Thank you again I hope I am in the wrong place talking to you all. But even if my son isn't a CFer every mother with an ill child needs a place to go and talk to other moms who understand no matter the diagnosis.

warmly,
Robin
 
J

junebugsmommy

New member
Thank you both for your thoughts and kind words. Today, despite sickness and fatigue, I took my son to the count fair. I love to see his face when he discovers something new, when spends time with my nieces, or when he realizes he can have a blast despite feeling terrible.

I know he needs these moments and so do I, but I cannot help bu take offense everytime someone says "take care of our boy" or "does he need..." "should you..." I think I am touchy because I am comepletely unsure what the right thing is, what I SHOULD be doing. I don't know if I am making any sense... but I pray that we are able to test him this week, I need to be able to test him this week. If the answer is yes then we have a name and we can get started attacking for health... and if the answer is no then I can stop worrying about this giant and begin searching for the real giant.

Stacey, I love the quote you have on your post. It really gave me some direction in knowing that I am doing exactly what my son needs. He needs to believe that he is fine... he needs to live in a world where he (for now) doesn't know how sick he really is.

Thank you again I hope I am in the wrong place talking to you all. But even if my son isn't a CFer every mother with an ill child needs a place to go and talk to other moms who understand no matter the diagnosis.

warmly,
Robin
 
J

junebugsmommy

New member
Thank you both for your thoughts and kind words. Today, despite sickness and fatigue, I took my son to the count fair. I love to see his face when he discovers something new, when spends time with my nieces, or when he realizes he can have a blast despite feeling terrible.

I know he needs these moments and so do I, but I cannot help bu take offense everytime someone says "take care of our boy" or "does he need..." "should you..." I think I am touchy because I am comepletely unsure what the right thing is, what I SHOULD be doing. I don't know if I am making any sense... but I pray that we are able to test him this week, I need to be able to test him this week. If the answer is yes then we have a name and we can get started attacking for health... and if the answer is no then I can stop worrying about this giant and begin searching for the real giant.

Stacey, I love the quote you have on your post. It really gave me some direction in knowing that I am doing exactly what my son needs. He needs to believe that he is fine... he needs to live in a world where he (for now) doesn't know how sick he really is.

Thank you again I hope I am in the wrong place talking to you all. But even if my son isn't a CFer every mother with an ill child needs a place to go and talk to other moms who understand no matter the diagnosis.

warmly,
Robin
 
J

junebugsmommy

New member
Thank you both for your thoughts and kind words. Today, despite sickness and fatigue, I took my son to the count fair. I love to see his face when he discovers something new, when spends time with my nieces, or when he realizes he can have a blast despite feeling terrible.
<br />
<br />I know he needs these moments and so do I, but I cannot help bu take offense everytime someone says "take care of our boy" or "does he need..." "should you..." I think I am touchy because I am comepletely unsure what the right thing is, what I SHOULD be doing. I don't know if I am making any sense... but I pray that we are able to test him this week, I need to be able to test him this week. If the answer is yes then we have a name and we can get started attacking for health... and if the answer is no then I can stop worrying about this giant and begin searching for the real giant.
<br />
<br />Stacey, I love the quote you have on your post. It really gave me some direction in knowing that I am doing exactly what my son needs. He needs to believe that he is fine... he needs to live in a world where he (for now) doesn't know how sick he really is.
<br />
<br />Thank you again I hope I am in the wrong place talking to you all. But even if my son isn't a CFer every mother with an ill child needs a place to go and talk to other moms who understand no matter the diagnosis.
<br />
<br />warmly,
<br />Robin
 
Z

zeeannie

Guest
Hang in there. However it turns out things will calm down and you can catch your breath. Anyway, that's what it seems like, but maybe we just get really good at juggling everything we have to deal with! Either way, you'll get the hang of it. Hope you get some news soon so you can start working on it. Keep us posted.
 
Z

zeeannie

Guest
Hang in there. However it turns out things will calm down and you can catch your breath. Anyway, that's what it seems like, but maybe we just get really good at juggling everything we have to deal with! Either way, you'll get the hang of it. Hope you get some news soon so you can start working on it. Keep us posted.
 
Z

zeeannie

Guest
Hang in there. However it turns out things will calm down and you can catch your breath. Anyway, that's what it seems like, but maybe we just get really good at juggling everything we have to deal with! Either way, you'll get the hang of it. Hope you get some news soon so you can start working on it. Keep us posted.
 
Z

zeeannie

Guest
Hang in there. However it turns out things will calm down and you can catch your breath. Anyway, that's what it seems like, but maybe we just get really good at juggling everything we have to deal with! Either way, you'll get the hang of it. Hope you get some news soon so you can start working on it. Keep us posted.
 
Z

zeeannie

Guest
Hang in there. However it turns out things will calm down and you can catch your breath. Anyway, that's what it seems like, but maybe we just get really good at juggling everything we have to deal with! Either way, you'll get the hang of it. Hope you get some news soon so you can start working on it. Keep us posted.
 
J

JazzysMom

New member
Whether he has CF or not.....when you are dealing with the unknown then you are floundering at times.

Doing the best you can with what you know is all you can do & saying that in response to some of the comments is your best bet. I am sure these people mean well, but when you are confused, scared & lost it doesnt help the emotional aspect we go through.

Once you have some answers you will feel more confidant. Being a Mom isnt easy.......worth it, but not always easy!

HUGS
 
J

JazzysMom

New member
Whether he has CF or not.....when you are dealing with the unknown then you are floundering at times.

Doing the best you can with what you know is all you can do & saying that in response to some of the comments is your best bet. I am sure these people mean well, but when you are confused, scared & lost it doesnt help the emotional aspect we go through.

Once you have some answers you will feel more confidant. Being a Mom isnt easy.......worth it, but not always easy!

HUGS
 
J

JazzysMom

New member
Whether he has CF or not.....when you are dealing with the unknown then you are floundering at times.

Doing the best you can with what you know is all you can do & saying that in response to some of the comments is your best bet. I am sure these people mean well, but when you are confused, scared & lost it doesnt help the emotional aspect we go through.

Once you have some answers you will feel more confidant. Being a Mom isnt easy.......worth it, but not always easy!

HUGS
 
J

JazzysMom

New member
Whether he has CF or not.....when you are dealing with the unknown then you are floundering at times.

Doing the best you can with what you know is all you can do & saying that in response to some of the comments is your best bet. I am sure these people mean well, but when you are confused, scared & lost it doesnt help the emotional aspect we go through.

Once you have some answers you will feel more confidant. Being a Mom isnt easy.......worth it, but not always easy!

HUGS
 
J

JazzysMom

New member
Whether he has CF or not.....when you are dealing with the unknown then you are floundering at times.
<br />
<br />Doing the best you can with what you know is all you can do & saying that in response to some of the comments is your best bet. I am sure these people mean well, but when you are confused, scared & lost it doesnt help the emotional aspect we go through.
<br />
<br />Once you have some answers you will feel more confidant. Being a Mom isnt easy.......worth it, but not always easy!
<br />
<br />HUGS
 
J

junebugsmommy

New member
Well we have the sweat test at 8 am tomorrow morning and CTs of sinuses and chest in the afternoon. I must admit I am crazy nervous but I must remember that God has a plan and I am simply along for the ride. (or at least that is what helps me through difficult times). After all God is bigger than the boogieman right? Wow I make silly jokes when I am nervous. Anyway, I will keep everyone posted. Please pray for us.

Robin, John, and Kaden (possible CFer)
 
J

junebugsmommy

New member
Well we have the sweat test at 8 am tomorrow morning and CTs of sinuses and chest in the afternoon. I must admit I am crazy nervous but I must remember that God has a plan and I am simply along for the ride. (or at least that is what helps me through difficult times). After all God is bigger than the boogieman right? Wow I make silly jokes when I am nervous. Anyway, I will keep everyone posted. Please pray for us.

Robin, John, and Kaden (possible CFer)
 
J

junebugsmommy

New member
Well we have the sweat test at 8 am tomorrow morning and CTs of sinuses and chest in the afternoon. I must admit I am crazy nervous but I must remember that God has a plan and I am simply along for the ride. (or at least that is what helps me through difficult times). After all God is bigger than the boogieman right? Wow I make silly jokes when I am nervous. Anyway, I will keep everyone posted. Please pray for us.

Robin, John, and Kaden (possible CFer)
 
J

junebugsmommy

New member
Well we have the sweat test at 8 am tomorrow morning and CTs of sinuses and chest in the afternoon. I must admit I am crazy nervous but I must remember that God has a plan and I am simply along for the ride. (or at least that is what helps me through difficult times). After all God is bigger than the boogieman right? Wow I make silly jokes when I am nervous. Anyway, I will keep everyone posted. Please pray for us.

Robin, John, and Kaden (possible CFer)
 
J

junebugsmommy

New member
Well we have the sweat test at 8 am tomorrow morning and CTs of sinuses and chest in the afternoon. I must admit I am crazy nervous but I must remember that God has a plan and I am simply along for the ride. (or at least that is what helps me through difficult times). After all God is bigger than the boogieman right? Wow I make silly jokes when I am nervous. Anyway, I will keep everyone posted. Please pray for us.
<br />
<br />Robin, John, and Kaden (possible CFer)
 
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