It's been a year since we found out.....

Rebjane

Super Moderator
I think how you are feeling is very normal. I remember when I was pregnant with Maggie I found out she had CF, it was September. I kept hoping that the answer would be she did not have CF; I felt sooo angry; like we were being punished for some wierd reason. It does get easier as time goes by. Everyonce in a while I'll get hit out of the blue, like a slap in the face that she has CF. Last year; for Mother's day, at her nursery school they had a mother's day tea. It was supposed to be very special; fancy tea cups, cookies, a thank you for being my mom. The children sang this song in front of us about Thank you for all you do for me; like tuck me in , read me a story, etc...I felt taken aback..Full of emotion.. maggie thanking me for being her mom. When all I feel I do to her is treamtent after treatment, pills, sprays, hold down for sputums. Ya know the deal. I felt that anger come back at this Mother's day tea, the unfairness of it all. It suprised me that the anger was still there. But on a day to day basis; it gets easier.
 

Rebjane

Super Moderator
I think how you are feeling is very normal. I remember when I was pregnant with Maggie I found out she had CF, it was September. I kept hoping that the answer would be she did not have CF; I felt sooo angry; like we were being punished for some wierd reason. It does get easier as time goes by. Everyonce in a while I'll get hit out of the blue, like a slap in the face that she has CF. Last year; for Mother's day, at her nursery school they had a mother's day tea. It was supposed to be very special; fancy tea cups, cookies, a thank you for being my mom. The children sang this song in front of us about Thank you for all you do for me; like tuck me in , read me a story, etc...I felt taken aback..Full of emotion.. maggie thanking me for being her mom. When all I feel I do to her is treamtent after treatment, pills, sprays, hold down for sputums. Ya know the deal. I felt that anger come back at this Mother's day tea, the unfairness of it all. It suprised me that the anger was still there. But on a day to day basis; it gets easier.
 

Rebjane

Super Moderator
I think how you are feeling is very normal. I remember when I was pregnant with Maggie I found out she had CF, it was September. I kept hoping that the answer would be she did not have CF; I felt sooo angry; like we were being punished for some wierd reason. It does get easier as time goes by. Everyonce in a while I'll get hit out of the blue, like a slap in the face that she has CF. Last year; for Mother's day, at her nursery school they had a mother's day tea. It was supposed to be very special; fancy tea cups, cookies, a thank you for being my mom. The children sang this song in front of us about Thank you for all you do for me; like tuck me in , read me a story, etc...I felt taken aback..Full of emotion.. maggie thanking me for being her mom. When all I feel I do to her is treamtent after treatment, pills, sprays, hold down for sputums. Ya know the deal. I felt that anger come back at this Mother's day tea, the unfairness of it all. It suprised me that the anger was still there. But on a day to day basis; it gets easier.
 

Rebjane

Super Moderator
I think how you are feeling is very normal. I remember when I was pregnant with Maggie I found out she had CF, it was September. I kept hoping that the answer would be she did not have CF; I felt sooo angry; like we were being punished for some wierd reason. It does get easier as time goes by. Everyonce in a while I'll get hit out of the blue, like a slap in the face that she has CF. Last year; for Mother's day, at her nursery school they had a mother's day tea. It was supposed to be very special; fancy tea cups, cookies, a thank you for being my mom. The children sang this song in front of us about Thank you for all you do for me; like tuck me in , read me a story, etc...I felt taken aback..Full of emotion.. maggie thanking me for being her mom. When all I feel I do to her is treamtent after treatment, pills, sprays, hold down for sputums. Ya know the deal. I felt that anger come back at this Mother's day tea, the unfairness of it all. It suprised me that the anger was still there. But on a day to day basis; it gets easier.
 

Rebjane

Super Moderator
I think how you are feeling is very normal. I remember when I was pregnant with Maggie I found out she had CF, it was September. I kept hoping that the answer would be she did not have CF; I felt sooo angry; like we were being punished for some wierd reason. It does get easier as time goes by. Everyonce in a while I'll get hit out of the blue, like a slap in the face that she has CF. Last year; for Mother's day, at her nursery school they had a mother's day tea. It was supposed to be very special; fancy tea cups, cookies, a thank you for being my mom. The children sang this song in front of us about Thank you for all you do for me; like tuck me in , read me a story, etc...I felt taken aback..Full of emotion.. maggie thanking me for being her mom. When all I feel I do to her is treamtent after treatment, pills, sprays, hold down for sputums. Ya know the deal. I felt that anger come back at this Mother's day tea, the unfairness of it all. It suprised me that the anger was still there. But on a day to day basis; it gets easier.
 

Transplantmommy

New member
I think of the day that Brady (no CF) came home from the hospital every year that it comes around and get a little teary eyed. I know that my doctors did not want me to have him, he was born 7 weeks early weighing 3lbs 5oz (came home weighing 5), and think about everything that I went through to keep him. All of this makes me sad to think about it but it's kind of a happy sad. I know the things that could have gone wrong but think about how if I had listened to the doctors then a perfectly healthy baby would have been aborted! I am so happy that I did everything that I did and kept the baby. I don't know what I would do without Brady now.

I get the same way when it is my transplant anniversary. I know what would have happened if my donor's family didn't donate their loved ones organs. Because of their love for life, they saved me and my family. How could anyone not get teary eyed when something like that comes around?

You're not crazy....at least I don't think that you are!
 

Transplantmommy

New member
I think of the day that Brady (no CF) came home from the hospital every year that it comes around and get a little teary eyed. I know that my doctors did not want me to have him, he was born 7 weeks early weighing 3lbs 5oz (came home weighing 5), and think about everything that I went through to keep him. All of this makes me sad to think about it but it's kind of a happy sad. I know the things that could have gone wrong but think about how if I had listened to the doctors then a perfectly healthy baby would have been aborted! I am so happy that I did everything that I did and kept the baby. I don't know what I would do without Brady now.

I get the same way when it is my transplant anniversary. I know what would have happened if my donor's family didn't donate their loved ones organs. Because of their love for life, they saved me and my family. How could anyone not get teary eyed when something like that comes around?

You're not crazy....at least I don't think that you are!
 

Transplantmommy

New member
I think of the day that Brady (no CF) came home from the hospital every year that it comes around and get a little teary eyed. I know that my doctors did not want me to have him, he was born 7 weeks early weighing 3lbs 5oz (came home weighing 5), and think about everything that I went through to keep him. All of this makes me sad to think about it but it's kind of a happy sad. I know the things that could have gone wrong but think about how if I had listened to the doctors then a perfectly healthy baby would have been aborted! I am so happy that I did everything that I did and kept the baby. I don't know what I would do without Brady now.

I get the same way when it is my transplant anniversary. I know what would have happened if my donor's family didn't donate their loved ones organs. Because of their love for life, they saved me and my family. How could anyone not get teary eyed when something like that comes around?

You're not crazy....at least I don't think that you are!
 

Transplantmommy

New member
I think of the day that Brady (no CF) came home from the hospital every year that it comes around and get a little teary eyed. I know that my doctors did not want me to have him, he was born 7 weeks early weighing 3lbs 5oz (came home weighing 5), and think about everything that I went through to keep him. All of this makes me sad to think about it but it's kind of a happy sad. I know the things that could have gone wrong but think about how if I had listened to the doctors then a perfectly healthy baby would have been aborted! I am so happy that I did everything that I did and kept the baby. I don't know what I would do without Brady now.

I get the same way when it is my transplant anniversary. I know what would have happened if my donor's family didn't donate their loved ones organs. Because of their love for life, they saved me and my family. How could anyone not get teary eyed when something like that comes around?

You're not crazy....at least I don't think that you are!
 

Transplantmommy

New member
I think of the day that Brady (no CF) came home from the hospital every year that it comes around and get a little teary eyed. I know that my doctors did not want me to have him, he was born 7 weeks early weighing 3lbs 5oz (came home weighing 5), and think about everything that I went through to keep him. All of this makes me sad to think about it but it's kind of a happy sad. I know the things that could have gone wrong but think about how if I had listened to the doctors then a perfectly healthy baby would have been aborted! I am so happy that I did everything that I did and kept the baby. I don't know what I would do without Brady now.
<br />
<br />I get the same way when it is my transplant anniversary. I know what would have happened if my donor's family didn't donate their loved ones organs. Because of their love for life, they saved me and my family. How could anyone not get teary eyed when something like that comes around?
<br />
<br />You're not crazy....at least I don't think that you are!
 

TobysMom

New member
Awww, my son is only 4-1/2 months old, so I am not sure how I'll feel upon the 1 year anniversary. He was also in the NICU after a meconium ileus, but for 28 days.

It was difficult, but by the 1 year mark, we may just celebrate all the wonderful things that we'll have gotten through for the first year.

But again, cuz im not there yet, i havent a clue how i'll react.

Happy Birthday to your lil' man!
 

TobysMom

New member
Awww, my son is only 4-1/2 months old, so I am not sure how I'll feel upon the 1 year anniversary. He was also in the NICU after a meconium ileus, but for 28 days.

It was difficult, but by the 1 year mark, we may just celebrate all the wonderful things that we'll have gotten through for the first year.

But again, cuz im not there yet, i havent a clue how i'll react.

Happy Birthday to your lil' man!
 

TobysMom

New member
Awww, my son is only 4-1/2 months old, so I am not sure how I'll feel upon the 1 year anniversary. He was also in the NICU after a meconium ileus, but for 28 days.

It was difficult, but by the 1 year mark, we may just celebrate all the wonderful things that we'll have gotten through for the first year.

But again, cuz im not there yet, i havent a clue how i'll react.

Happy Birthday to your lil' man!
 

TobysMom

New member
Awww, my son is only 4-1/2 months old, so I am not sure how I'll feel upon the 1 year anniversary. He was also in the NICU after a meconium ileus, but for 28 days.

It was difficult, but by the 1 year mark, we may just celebrate all the wonderful things that we'll have gotten through for the first year.

But again, cuz im not there yet, i havent a clue how i'll react.

Happy Birthday to your lil' man!
 

TobysMom

New member
Awww, my son is only 4-1/2 months old, so I am not sure how I'll feel upon the 1 year anniversary. He was also in the NICU after a meconium ileus, but for 28 days.
<br />
<br />It was difficult, but by the 1 year mark, we may just celebrate all the wonderful things that we'll have gotten through for the first year.
<br />
<br />But again, cuz im not there yet, i havent a clue how i'll react.
<br />
<br />Happy Birthday to your lil' man!
 

Chilemom

New member
soon will be my first year. I have thought about it a lot. In this year so many things had happen to me, but all and all, i think that we have done a good job, and my life continue something that i thought it would never happend.
congrats you had made the first step.
 

Chilemom

New member
soon will be my first year. I have thought about it a lot. In this year so many things had happen to me, but all and all, i think that we have done a good job, and my life continue something that i thought it would never happend.
congrats you had made the first step.
 

Chilemom

New member
soon will be my first year. I have thought about it a lot. In this year so many things had happen to me, but all and all, i think that we have done a good job, and my life continue something that i thought it would never happend.
congrats you had made the first step.
 

Chilemom

New member
soon will be my first year. I have thought about it a lot. In this year so many things had happen to me, but all and all, i think that we have done a good job, and my life continue something that i thought it would never happend.
congrats you had made the first step.
 

Chilemom

New member
soon will be my first year. I have thought about it a lot. In this year so many things had happen to me, but all and all, i think that we have done a good job, and my life continue something that i thought it would never happend.
<br />congrats you had made the first step.
 
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