Judging Hurts

ltlhook

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ltlhook</b></i>

I hated the whole cliq thing of school. I could not stand the "you aren't cool enough" crap. I had a few good friends that were by my side. Me having CF was just "normal" to them. I do have a funny story though. I was in 7th grade and there was this boy I liked and he liked me. He was told by someone that I had CF "a disease." He came up to me in the lunch room and said loudly "you didn't tell me you had a disease!" I touched his shoulder and said "yep and now you got it." All of my friends of course were laughing knowing that you can't catch CF. He later learned what it was and that it was a joke. We never dated though.



To help me deal with peoples comments like"she's so skinny, she must be anorexic." I conquered it with jokes. I would shootback with "it's a good thing I don'thave to worry about what I eat and I don't have to make myself throw up to stay skinny." I would "pick" on them like they picked on me. I walked around like I was proud of who I was small, skinny me. I never hid the fact that I had CF. I would say something like "yep can't help it, got CF and that's what CF does." Most people don't know what to do when you are blunt like that. They are thinking you will cower and walk away but I did the opposite, I put it in their face. It helped educate people even if it was in a weird way.



I got sick within the first week of school and ended up doing school at home my senior year so I didn't have to deal with any of that stuff anymore which was nice. I still went to football games and some other school events. I went back to school to walk across the stage for graduation.



I had my 10 year reunion which I planned (and was a nightmare mind you)and some people were surprised I was still alive and that was justice enough for me.



Hang in there and know that you are special and kids are mean. You be you and let the fools make fools of themselves with their comments.</end quote>

Oh yeah I did have a boyfriend from 8th grade all the way through high school. He was a jock and I was no where near the cheerleader. So I had those girls not liking me too...hahaha.
 

ltlhook

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ltlhook</b></i>

I hated the whole cliq thing of school. I could not stand the "you aren't cool enough" crap. I had a few good friends that were by my side. Me having CF was just "normal" to them. I do have a funny story though. I was in 7th grade and there was this boy I liked and he liked me. He was told by someone that I had CF "a disease." He came up to me in the lunch room and said loudly "you didn't tell me you had a disease!" I touched his shoulder and said "yep and now you got it." All of my friends of course were laughing knowing that you can't catch CF. He later learned what it was and that it was a joke. We never dated though.<p>

<p>

To help me deal with peoples comments like"she's so skinny, she must be anorexic." I conquered it with jokes. I would shootback with "it's a good thing I don'thave to worry about what I eat and I don't have to make myself throw up to stay skinny." I would "pick" on them like they picked on me. I walked around like I was proud of who I was small, skinny me. I never hid the fact that I had CF. I would say something like "yep can't help it, got CF and that's what CF does." Most people don't know what to do when you are blunt like that. They are thinking you will cower and walk away but I did the opposite, I put it in their face. It helped educate people even if it was in a weird way.<p>

<p>

I got sick within the first week of school and ended up doing school at home my senior year so I didn't have to deal with any of that stuff anymore which was nice. I still went to football games and some other school events. I went back to school to walk across the stage for graduation.<p>

<p>

I had my 10 year reunion which I planned (and was a nightmare mind you)and some people were surprised I was still alive and that was justice enough for me.<p>

<p>

Hang in there and know that you are special and kids are mean. You be you and let the fools make fools of themselves with their comments.<p></end quote>

Oh yeah I did have a boyfriend from 8th grade all the way through high school. He was a jock and I was no where near the cheerleader. So I had those girls not liking me too...hahaha.
 
P

patrish22

Guest
It really blows my mind that in this day and age that people still act this way with someone with a disability. My daughters put up with alot of crap when they were in high school. I remember one day speaking to their guidance counselor about it and her response was, ..."well you have to understand, most of us here are not really educated on the subject"... Well of course I offered to educate ANYONE who was willing to listen. I even offered to bring in materials for the guidance counselors and it just fell on deaf ears. Hang in there. I know its hard. Its ashame that people just won't listen. Maybe if you ever have to do a presentation for a class this could be your opportunity. Good luck!
 
P

patrish22

Guest
It really blows my mind that in this day and age that people still act this way with someone with a disability. My daughters put up with alot of crap when they were in high school. I remember one day speaking to their guidance counselor about it and her response was, ..."well you have to understand, most of us here are not really educated on the subject"... Well of course I offered to educate ANYONE who was willing to listen. I even offered to bring in materials for the guidance counselors and it just fell on deaf ears. Hang in there. I know its hard. Its ashame that people just won't listen. Maybe if you ever have to do a presentation for a class this could be your opportunity. Good luck!
 
P

patrish22

Guest
<BR>It really blows my mind that in this day and age that people still act this way with someone with a disability. My daughters put up with alot of crap when they were in high school. I remember one day speaking to their guidance counselor about it and her response was, ..."well you have to understand, most of us here are not really educated on the subject"... Well of course I offered to educate ANYONE who was willing to listen. I even offered to bring in materials for the guidance counselors and it just fell on deaf ears. Hang in there. I know its hard. Its ashame that people just won't listen. Maybe if you ever have to do a presentation for a class this could be your opportunity. Good luck!
 

dledwith

New member
in my experience, as people get older and go thru hard times and what not, they become more understanding of others. had a similar experience in high school. college is way better. people are mostly very understanding.

it gets better,

dan
 

dledwith

New member
in my experience, as people get older and go thru hard times and what not, they become more understanding of others. had a similar experience in high school. college is way better. people are mostly very understanding.

it gets better,

dan
 

dledwith

New member
in my experience, as people get older and go thru hard times and what not, they become more understanding of others. had a similar experience in high school. college is way better. people are mostly very understanding.
<br />
<br />it gets better,
<br />
<br />dan
 

Cojean62

New member
Thanks for all the comments everyone! My sophomore year has been going really well actually. I was in the hospital a few weeks ago and went home on a mid-line IV for two weeks. Boy, that was stressful. People at my school were staring at my IV and pointing it out. Unlike last year, that did not bother me. I have made loads of new friends this year and I have learned to stop listening to other people. So, thank you all for the advice and I am proud to announce that I am doing much, much better in school now <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thank you!
 

Cojean62

New member
Thanks for all the comments everyone! My sophomore year has been going really well actually. I was in the hospital a few weeks ago and went home on a mid-line IV for two weeks. Boy, that was stressful. People at my school were staring at my IV and pointing it out. Unlike last year, that did not bother me. I have made loads of new friends this year and I have learned to stop listening to other people. So, thank you all for the advice and I am proud to announce that I am doing much, much better in school now <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thank you!
 

Cojean62

New member
Thanks for all the comments everyone! My sophomore year has been going really well actually. I was in the hospital a few weeks ago and went home on a mid-line IV for two weeks. Boy, that was stressful. People at my school were staring at my IV and pointing it out. Unlike last year, that did not bother me. I have made loads of new friends this year and I have learned to stop listening to other people. So, thank you all for the advice and I am proud to announce that I am doing much, much better in school now <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thank you!
 

peter

New member
You sound well composed and of course experience is a good teacher (even a bad experience is a lesson of some sort). Just a question about out of school tutoring though. Was it good or do you think you fell behind a bit? I wonder if there is a need to address the area of prolonged absences from school and how you fare academically? I have read comments of some cfer's thinking the hospitalization or home bound recovery really hurt their study progress. Thanks for starting this post <span style="text-decoration: underline;">last year. Looks to be still relevant and striking a common cord.<br>Peter<br>
 

peter

New member
You sound well composed and of course experience is a good teacher (even a bad experience is a lesson of some sort). Just a question about out of school tutoring though. Was it good or do you think you fell behind a bit? I wonder if there is a need to address the area of prolonged absences from school and how you fare academically? I have read comments of some cfer's thinking the hospitalization or home bound recovery really hurt their study progress. Thanks for starting this post <span style="text-decoration: underline;">last year. Looks to be still relevant and striking a common cord.<br>Peter<br>
 

peter

New member
You sound well composed and of course experience is a good teacher (even a bad experience is a lesson of some sort). Just a question about out of school tutoring though. Was it good or do you think you fell behind a bit? I wonder if there is a need to address the area of prolonged absences from school and how you fare academically? I have read comments of some cfer's thinking the hospitalization or home bound recovery really hurt their study progress. Thanks for starting this post <span style="text-decoration: underline;">last year. Looks to be still relevant and striking a common cord.<br>Peter<br>
 

Cojean62

New member
I haven't had to do tutoring yet but I do have trouble with schoolwork. I'm in collage prep classes so it's understandable that I fall behind every now in then. Luckily I have friends that send me the work and my school has laptops for each student so some of our work is online.
 

Cojean62

New member
I haven't had to do tutoring yet but I do have trouble with schoolwork. I'm in collage prep classes so it's understandable that I fall behind every now in then. Luckily I have friends that send me the work and my school has laptops for each student so some of our work is online.
 

Cojean62

New member
I haven't had to do tutoring yet but I do have trouble with schoolwork. I'm in collage prep classes so it's understandable that I fall behind every now in then. Luckily I have friends that send me the work and my school has laptops for each student so some of our work is online.
 
well... i don't have CF but my best friend does. i have been with her through so much and she gets picked on and judged a lot because of it. she was put on oxygen and she came to me so much in tears because of what ppl said about it. i have seen the pain she goes through on a daily basis but she stays strong and i can truly say that if she were with me right now she would tell me to tell you to keep your head up. stay strong because even though things are hard now, they get brighter in the future. unfortunately she is in need of a double lung transplant and is in Pittsburb waiting
 
well... i don't have CF but my best friend does. i have been with her through so much and she gets picked on and judged a lot because of it. she was put on oxygen and she came to me so much in tears because of what ppl said about it. i have seen the pain she goes through on a daily basis but she stays strong and i can truly say that if she were with me right now she would tell me to tell you to keep your head up. stay strong because even though things are hard now, they get brighter in the future. unfortunately she is in need of a double lung transplant and is in Pittsburb waiting
 

CFRacer

New member
I am a junior in High School currently so I go through this stuff every now and then. Often times when my lungs are kinda junky due to the bad weather, a cold or flu, or something kids sorta make fun of me or yell at me to stay away from them in fear that I am contagious. Every year I have to tell my classmates, 'Hey, I have CF, I am not contagious' and all that. Some people care and then some people, it goes in one ear and out the other.

Really for me, I don't have a problem sharing my story with my battle against CF. I'd rather have people have the facts then make judgements based on me before they know anything. I know that I am posting quite late on this topic but I hope things have gotten better

BTW I am new here so, hello.

Also midnightblack1180, I hope you friend made it through her double lung transplant with success
 
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