Just curious

[DarbSkull]

This is a really interesting topic Brandon. I have so many thoughts about it. I'll see if I can make them make sense.


First, I wasn't diagnosed when I was your age, but I still had trouble making relationships last. One of my previous doctors used to always say, "Remember, you can get sick and it not have anything to do with CF." I think sometimes we forget that we can have normal-people problems too. Lots of people have trouble committing, CF might just be an excuse for you. My excuse was always, "If I know it's not going to be forever, why should I waste any time now..." I think it might get easier for you later when you are more emotionally ready. That's probably not a relevant response, but just something to consider.


Next, consider a support group. If you care about someone and they care about you, you help each other with their burdens. I know I wouldn't be nearly as healthy as I am right now without my wife nagging me to eat and do my treatments. Plus I would like to think that I have helped her through some difficult times as well. I think we have both benefited greatly from our relationship together.


Also, consider the other problems you could have. I don't know you very well, but I'm willing to bet you're not abusive, alcoholic, drug addicted (other than those prescribed of course), or otherwise an unpleasant person to be around. You could have a completely different and I say worse set of burdens to bear. Any woman out there could do much worse than to shack up with you!
<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[DarbSkull]

This is a really interesting topic Brandon. I have so many thoughts about it. I'll see if I can make them make sense.


First, I wasn't diagnosed when I was your age, but I still had trouble making relationships last. One of my previous doctors used to always say, "Remember, you can get sick and it not have anything to do with CF." I think sometimes we forget that we can have normal-people problems too. Lots of people have trouble committing, CF might just be an excuse for you. My excuse was always, "If I know it's not going to be forever, why should I waste any time now..." I think it might get easier for you later when you are more emotionally ready. That's probably not a relevant response, but just something to consider.


Next, consider a support group. If you care about someone and they care about you, you help each other with their burdens. I know I wouldn't be nearly as healthy as I am right now without my wife nagging me to eat and do my treatments. Plus I would like to think that I have helped her through some difficult times as well. I think we have both benefited greatly from our relationship together.


Also, consider the other problems you could have. I don't know you very well, but I'm willing to bet you're not abusive, alcoholic, drug addicted (other than those prescribed of course), or otherwise an unpleasant person to be around. You could have a completely different and I say worse set of burdens to bear. Any woman out there could do much worse than to shack up with you!
<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[DarbSkull]

This is a really interesting topic Brandon. I have so many thoughts about it. I'll see if I can make them make sense.


First, I wasn't diagnosed when I was your age, but I still had trouble making relationships last. One of my previous doctors used to always say, "Remember, you can get sick and it not have anything to do with CF." I think sometimes we forget that we can have normal-people problems too. Lots of people have trouble committing, CF might just be an excuse for you. My excuse was always, "If I know it's not going to be forever, why should I waste any time now..." I think it might get easier for you later when you are more emotionally ready. That's probably not a relevant response, but just something to consider.


Next, consider a support group. If you care about someone and they care about you, you help each other with their burdens. I know I wouldn't be nearly as healthy as I am right now without my wife nagging me to eat and do my treatments. Plus I would like to think that I have helped her through some difficult times as well. I think we have both benefited greatly from our relationship together.


Also, consider the other problems you could have. I don't know you very well, but I'm willing to bet you're not abusive, alcoholic, drug addicted (other than those prescribed of course), or otherwise an unpleasant person to be around. You could have a completely different and I say worse set of burdens to bear. Any woman out there could do much worse than to shack up with you!
<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[julie]

My husband isn't very open about his CF, only a select few know about it. I know he has a hard time telling others and sometimes a hard time discussing it with friends and family. But he's getting better at talking about it.

I personally think it will feel right when you are with the right person. He didn't seem to struggle *too* much when he first told me. It was hard for him of course, but I love him so much that nothing really would have made a difference. it of course prompted me to do some research and come back to him with a lot of questions.

The reality of the situation is that there are going to be a number of people you encounter (intimately or not) who are going to struggle to accept the CF aspect, or who are uncomfortable. That's just the unfortunate reality of it. But I do personally feel it will be easier (not easy, but easier) with the right person.

I know I'm not a CFer so I'm not sure if this helps you or not, but I thought I'd share my perspective.

 

[julie]

My husband isn't very open about his CF, only a select few know about it. I know he has a hard time telling others and sometimes a hard time discussing it with friends and family. But he's getting better at talking about it.

I personally think it will feel right when you are with the right person. He didn't seem to struggle *too* much when he first told me. It was hard for him of course, but I love him so much that nothing really would have made a difference. it of course prompted me to do some research and come back to him with a lot of questions.

The reality of the situation is that there are going to be a number of people you encounter (intimately or not) who are going to struggle to accept the CF aspect, or who are uncomfortable. That's just the unfortunate reality of it. But I do personally feel it will be easier (not easy, but easier) with the right person.

I know I'm not a CFer so I'm not sure if this helps you or not, but I thought I'd share my perspective.

 

[julie]

My husband isn't very open about his CF, only a select few know about it. I know he has a hard time telling others and sometimes a hard time discussing it with friends and family. But he's getting better at talking about it.

I personally think it will feel right when you are with the right person. He didn't seem to struggle *too* much when he first told me. It was hard for him of course, but I love him so much that nothing really would have made a difference. it of course prompted me to do some research and come back to him with a lot of questions.

The reality of the situation is that there are going to be a number of people you encounter (intimately or not) who are going to struggle to accept the CF aspect, or who are uncomfortable. That's just the unfortunate reality of it. But I do personally feel it will be easier (not easy, but easier) with the right person.

I know I'm not a CFer so I'm not sure if this helps you or not, but I thought I'd share my perspective.