Just found out my son needs a lung transplant.

[DannysMom]

My doctor told me yesterday that we should look into getting my son Danny (11) on the transplant list for lungs. We always new this would happen but did not expect it so soon.

Has anyone gone through Childrens hospital in Phili for a transplant? What is the recovery? How long are you on the list? While we are waiting for the transplant, do I send him to school or should I consider home schooling?

I have been reading alot about it through the cf website and CHOP transplant website.

I would love to hear from someone who is either Dannys age or a mom of a young child who has had a transplant.

 

[DannysMom]

My doctor told me yesterday that we should look into getting my son Danny (11) on the transplant list for lungs. We always new this would happen but did not expect it so soon.

Has anyone gone through Childrens hospital in Phili for a transplant? What is the recovery? How long are you on the list? While we are waiting for the transplant, do I send him to school or should I consider home schooling?

I have been reading alot about it through the cf website and CHOP transplant website.

I would love to hear from someone who is either Dannys age or a mom of a young child who has had a transplant.

 

[DannysMom]

My doctor told me yesterday that we should look into getting my son Danny (11) on the transplant list for lungs. We always new this would happen but did not expect it so soon.

Has anyone gone through Childrens hospital in Phili for a transplant? What is the recovery? How long are you on the list? While we are waiting for the transplant, do I send him to school or should I consider home schooling?

I have been reading alot about it through the cf website and CHOP transplant website.

I would love to hear from someone who is either Dannys age or a mom of a young child who has had a transplant.

 

[DannysMom]

My doctor told me yesterday that we should look into getting my son Danny (11) on the transplant list for lungs. We always new this would happen but did not expect it so soon.

Has anyone gone through Childrens hospital in Phili for a transplant? What is the recovery? How long are you on the list? While we are waiting for the transplant, do I send him to school or should I consider home schooling?

I have been reading alot about it through the cf website and CHOP transplant website.

I would love to hear from someone who is either Dannys age or a mom of a young child who has had a transplant.

 

[DannysMom]

My doctor told me yesterday that we should look into getting my son Danny (11) on the transplant list for lungs. We always new this would happen but did not expect it so soon.
<br />
<br />Has anyone gone through Childrens hospital in Phili for a transplant? What is the recovery? How long are you on the list? While we are waiting for the transplant, do I send him to school or should I consider home schooling?
<br />
<br />I have been reading alot about it through the cf website and CHOP transplant website.
<br />
<br />I would love to hear from someone who is either Dannys age or a mom of a young child who has had a transplant.
<br />
<br />

 

[ashmomo]

I'm so sorry it has come to this so early in his life <img src="i/expressions/face-icon-small-blush.gif" border="0">(
I am no help and have no advice, sorry! My girls are quite young yet.

I just wanted to wish you guys the best of luck in this journey. I hope everything goes well.

I just can't even imagine what you are going through right now.

Good luck <img src="i/expressions/face-icon-small-blush.gif" border="0">)

 

[ashmomo]

I'm so sorry it has come to this so early in his life <img src="i/expressions/face-icon-small-blush.gif" border="0">(
I am no help and have no advice, sorry! My girls are quite young yet.

I just wanted to wish you guys the best of luck in this journey. I hope everything goes well.

I just can't even imagine what you are going through right now.

Good luck <img src="i/expressions/face-icon-small-blush.gif" border="0">)

 

[ashmomo]

I'm so sorry it has come to this so early in his life <img src="i/expressions/face-icon-small-blush.gif" border="0">(
I am no help and have no advice, sorry! My girls are quite young yet.

I just wanted to wish you guys the best of luck in this journey. I hope everything goes well.

I just can't even imagine what you are going through right now.

Good luck <img src="i/expressions/face-icon-small-blush.gif" border="0">)

 

[ashmomo]

I'm so sorry it has come to this so early in his life <img src="i/expressions/face-icon-small-blush.gif" border="0">(
I am no help and have no advice, sorry! My girls are quite young yet.

I just wanted to wish you guys the best of luck in this journey. I hope everything goes well.

I just can't even imagine what you are going through right now.

Good luck <img src="i/expressions/face-icon-small-blush.gif" border="0">)

 

[ashmomo]

I'm so sorry it has come to this so early in his life <img src="i/expressions/face-icon-small-blush.gif" border="0">(
<br />I am no help and have no advice, sorry! My girls are quite young yet.
<br />
<br />I just wanted to wish you guys the best of luck in this journey. I hope everything goes well.
<br />
<br />I just can't even imagine what you are going through right now.
<br />
<br />Good luck <img src="i/expressions/face-icon-small-blush.gif" border="0">)

 

[Cherylwithone]

You should try and contact Victoria. She is Garrens mom. He was just 7 when is got his. Her screen name is vmhoward.

I think she is a really great person and would be able to tell you what it is like for a child and what to expect.

Sorry that your son is having to deal with this at such
a young age.

 

[Cherylwithone]

You should try and contact Victoria. She is Garrens mom. He was just 7 when is got his. Her screen name is vmhoward.

I think she is a really great person and would be able to tell you what it is like for a child and what to expect.

Sorry that your son is having to deal with this at such
a young age.

 

[Cherylwithone]

You should try and contact Victoria. She is Garrens mom. He was just 7 when is got his. Her screen name is vmhoward.

I think she is a really great person and would be able to tell you what it is like for a child and what to expect.

Sorry that your son is having to deal with this at such
a young age.

 

[Cherylwithone]

You should try and contact Victoria. She is Garrens mom. He was just 7 when is got his. Her screen name is vmhoward.

I think she is a really great person and would be able to tell you what it is like for a child and what to expect.

Sorry that your son is having to deal with this at such
a young age.

 

[Cherylwithone]

You should try and contact Victoria. She is Garrens mom. He was just 7 when is got his. Her screen name is vmhoward.
<br />
<br />I think she is a really great person and would be able to tell you what it is like for a child and what to expect.
<br />
<br />Sorry that your son is having to deal with this at such
<br />a young age.

 

[Liza]

Hi, I agree with Cheryl. You need to talk with Victoria. In the mean time, If your son is able to go to school he should. It will help him to have some normalcy while waiting because no matter what the age, that is the hardest part.

My daughter was in her second year of college when we had to pack up and relocate to CA for her to be listed. We didn't know anyone, barely knew the couple that so generously opened up their home to us and Anna had to withdraw from her classes three months before she was listed. So there we were trying to find things to occupy our time other than doctor's appointments, because believe it or not, they didn't take up enough of our time.

It is a tough journey but so worth it in the end. Good luck with all that lies ahead. Attend support group if they offer it, it can be a lifesaver, whether it is for adults or children and if they offer a caregivers support group attend that as well if you can. Hugs and prayers to you from a mom who's been there.

 

[Liza]

Hi, I agree with Cheryl. You need to talk with Victoria. In the mean time, If your son is able to go to school he should. It will help him to have some normalcy while waiting because no matter what the age, that is the hardest part.

My daughter was in her second year of college when we had to pack up and relocate to CA for her to be listed. We didn't know anyone, barely knew the couple that so generously opened up their home to us and Anna had to withdraw from her classes three months before she was listed. So there we were trying to find things to occupy our time other than doctor's appointments, because believe it or not, they didn't take up enough of our time.

It is a tough journey but so worth it in the end. Good luck with all that lies ahead. Attend support group if they offer it, it can be a lifesaver, whether it is for adults or children and if they offer a caregivers support group attend that as well if you can. Hugs and prayers to you from a mom who's been there.

 

[Liza]

Hi, I agree with Cheryl. You need to talk with Victoria. In the mean time, If your son is able to go to school he should. It will help him to have some normalcy while waiting because no matter what the age, that is the hardest part.

My daughter was in her second year of college when we had to pack up and relocate to CA for her to be listed. We didn't know anyone, barely knew the couple that so generously opened up their home to us and Anna had to withdraw from her classes three months before she was listed. So there we were trying to find things to occupy our time other than doctor's appointments, because believe it or not, they didn't take up enough of our time.

It is a tough journey but so worth it in the end. Good luck with all that lies ahead. Attend support group if they offer it, it can be a lifesaver, whether it is for adults or children and if they offer a caregivers support group attend that as well if you can. Hugs and prayers to you from a mom who's been there.

 

[Liza]

Hi, I agree with Cheryl. You need to talk with Victoria. In the mean time, If your son is able to go to school he should. It will help him to have some normalcy while waiting because no matter what the age, that is the hardest part.

My daughter was in her second year of college when we had to pack up and relocate to CA for her to be listed. We didn't know anyone, barely knew the couple that so generously opened up their home to us and Anna had to withdraw from her classes three months before she was listed. So there we were trying to find things to occupy our time other than doctor's appointments, because believe it or not, they didn't take up enough of our time.

It is a tough journey but so worth it in the end. Good luck with all that lies ahead. Attend support group if they offer it, it can be a lifesaver, whether it is for adults or children and if they offer a caregivers support group attend that as well if you can. Hugs and prayers to you from a mom who's been there.

 

[Liza]

Hi, I agree with Cheryl. You need to talk with Victoria. In the mean time, If your son is able to go to school he should. It will help him to have some normalcy while waiting because no matter what the age, that is the hardest part.
<br />
<br />My daughter was in her second year of college when we had to pack up and relocate to CA for her to be listed. We didn't know anyone, barely knew the couple that so generously opened up their home to us and Anna had to withdraw from her classes three months before she was listed. So there we were trying to find things to occupy our time other than doctor's appointments, because believe it or not, they didn't take up enough of our time.
<br />
<br />It is a tough journey but so worth it in the end. Good luck with all that lies ahead. Attend support group if they offer it, it can be a lifesaver, whether it is for adults or children and if they offer a caregivers support group attend that as well if you can. Hugs and prayers to you from a mom who's been there.