Just need a little advice really

[AliceT]

My other half has CF, and he's 18 years old and has reached a point in his life where he wants to have more independence with his care as his parents do pretty much everything for him.

I'm quite clueless and don't want to ask him too many questions, but he's said he has real trouble remembering the amount of pills etc to take.

I just wondered if anybody else had been through something similar and could give me some advice about how to gain more independence and how to remember amounts etc that I could pass onto him, that would be so wonderful

Alice

xxxx

 

[AliceT]

My other half has CF, and he's 18 years old and has reached a point in his life where he wants to have more independence with his care as his parents do pretty much everything for him.

I'm quite clueless and don't want to ask him too many questions, but he's said he has real trouble remembering the amount of pills etc to take.

I just wondered if anybody else had been through something similar and could give me some advice about how to gain more independence and how to remember amounts etc that I could pass onto him, that would be so wonderful

Alice

xxxx

 

[AliceT]

My other half has CF, and he's 18 years old and has reached a point in his life where he wants to have more independence with his care as his parents do pretty much everything for him.

I'm quite clueless and don't want to ask him too many questions, but he's said he has real trouble remembering the amount of pills etc to take.

I just wondered if anybody else had been through something similar and could give me some advice about how to gain more independence and how to remember amounts etc that I could pass onto him, that would be so wonderful

Alice

xxxx

 

[AliceT]

My other half has CF, and he's 18 years old and has reached a point in his life where he wants to have more independence with his care as his parents do pretty much everything for him.

I'm quite clueless and don't want to ask him too many questions, but he's said he has real trouble remembering the amount of pills etc to take.

I just wondered if anybody else had been through something similar and could give me some advice about how to gain more independence and how to remember amounts etc that I could pass onto him, that would be so wonderful

Alice

xxxx

 

[AliceT]

My other half has CF, and he's 18 years old and has reached a point in his life where he wants to have more independence with his care as his parents do pretty much everything for him.
<br />
<br />I'm quite clueless and don't want to ask him too many questions, but he's said he has real trouble remembering the amount of pills etc to take.
<br />
<br />I just wondered if anybody else had been through something similar and could give me some advice about how to gain more independence and how to remember amounts etc that I could pass onto him, that would be so wonderful
<br />
<br />Alice
<br />
<br />xxxx

 

[lightNlife]

Hi Alice,
I don't see why it is a problem about how many pills to take (unless you're talking about enzymes, which can be tricky.) Every prescription bottle has written on it how much of the medication to take and when.

One thing I used to do to keep track was make a list of my meds and their quantities as a spreadsheet in Excell. The columns I had were Medication, Time, and quantity, and then 7 blank columns where I could put checkmarks for whether I did it or not. I kept the list taped inside the cabinet where I kept the meds. That way every time I took it, I could check it off.

Sorry if that sounds rather basic, but sometimes basic works best when you're just starting out.

Kudos to your other half for wanting to take responsibility for himself. It's such an important part of life with CF to be able to do that.

Oh, I almost forgot, As for the enzymes and how many to take, my rule is if it's a homecooked meal, take whatever amount the doctor has prescribed (for me it's four with meals, 2 with snacks) if I'm eating fast food, I go all the way up to 7. For a meal at a nice restaurant, which usually has less fat than fast food, I take 5 pills.

 

[lightNlife]

Hi Alice,
I don't see why it is a problem about how many pills to take (unless you're talking about enzymes, which can be tricky.) Every prescription bottle has written on it how much of the medication to take and when.

One thing I used to do to keep track was make a list of my meds and their quantities as a spreadsheet in Excell. The columns I had were Medication, Time, and quantity, and then 7 blank columns where I could put checkmarks for whether I did it or not. I kept the list taped inside the cabinet where I kept the meds. That way every time I took it, I could check it off.

Sorry if that sounds rather basic, but sometimes basic works best when you're just starting out.

Kudos to your other half for wanting to take responsibility for himself. It's such an important part of life with CF to be able to do that.

Oh, I almost forgot, As for the enzymes and how many to take, my rule is if it's a homecooked meal, take whatever amount the doctor has prescribed (for me it's four with meals, 2 with snacks) if I'm eating fast food, I go all the way up to 7. For a meal at a nice restaurant, which usually has less fat than fast food, I take 5 pills.

 

[lightNlife]

Hi Alice,
I don't see why it is a problem about how many pills to take (unless you're talking about enzymes, which can be tricky.) Every prescription bottle has written on it how much of the medication to take and when.

One thing I used to do to keep track was make a list of my meds and their quantities as a spreadsheet in Excell. The columns I had were Medication, Time, and quantity, and then 7 blank columns where I could put checkmarks for whether I did it or not. I kept the list taped inside the cabinet where I kept the meds. That way every time I took it, I could check it off.

Sorry if that sounds rather basic, but sometimes basic works best when you're just starting out.

Kudos to your other half for wanting to take responsibility for himself. It's such an important part of life with CF to be able to do that.

Oh, I almost forgot, As for the enzymes and how many to take, my rule is if it's a homecooked meal, take whatever amount the doctor has prescribed (for me it's four with meals, 2 with snacks) if I'm eating fast food, I go all the way up to 7. For a meal at a nice restaurant, which usually has less fat than fast food, I take 5 pills.

 

[lightNlife]

Hi Alice,
I don't see why it is a problem about how many pills to take (unless you're talking about enzymes, which can be tricky.) Every prescription bottle has written on it how much of the medication to take and when.

One thing I used to do to keep track was make a list of my meds and their quantities as a spreadsheet in Excell. The columns I had were Medication, Time, and quantity, and then 7 blank columns where I could put checkmarks for whether I did it or not. I kept the list taped inside the cabinet where I kept the meds. That way every time I took it, I could check it off.

Sorry if that sounds rather basic, but sometimes basic works best when you're just starting out.

Kudos to your other half for wanting to take responsibility for himself. It's such an important part of life with CF to be able to do that.

Oh, I almost forgot, As for the enzymes and how many to take, my rule is if it's a homecooked meal, take whatever amount the doctor has prescribed (for me it's four with meals, 2 with snacks) if I'm eating fast food, I go all the way up to 7. For a meal at a nice restaurant, which usually has less fat than fast food, I take 5 pills.

 

[lightNlife]

Hi Alice,
<br />I don't see why it is a problem about how many pills to take (unless you're talking about enzymes, which can be tricky.) Every prescription bottle has written on it how much of the medication to take and when.
<br />
<br />One thing I used to do to keep track was make a list of my meds and their quantities as a spreadsheet in Excell. The columns I had were Medication, Time, and quantity, and then 7 blank columns where I could put checkmarks for whether I did it or not. I kept the list taped inside the cabinet where I kept the meds. That way every time I took it, I could check it off.
<br />
<br />Sorry if that sounds rather basic, but sometimes basic works best when you're just starting out.
<br />
<br />Kudos to your other half for wanting to take responsibility for himself. It's such an important part of life with CF to be able to do that.
<br />
<br />Oh, I almost forgot, As for the enzymes and how many to take, my rule is if it's a homecooked meal, take whatever amount the doctor has prescribed (for me it's four with meals, 2 with snacks) if I'm eating fast food, I go all the way up to 7. For a meal at a nice restaurant, which usually has less fat than fast food, I take 5 pills.
<br />

 

[AliceT]

Thanks!

I just asked him and it is his enzymes he struggles with most, I didnt really understand how he could have confused the doses but now I completely do (im type 1 diabetic and have to do a similar sort of thing with my insulin with food) so hopefully that means I can be more helpful with things...

Thank you so much <img src="i/expressions/face-icon-small-smile.gif" border="0"> xxxx

 

[AliceT]

Thanks!

I just asked him and it is his enzymes he struggles with most, I didnt really understand how he could have confused the doses but now I completely do (im type 1 diabetic and have to do a similar sort of thing with my insulin with food) so hopefully that means I can be more helpful with things...

Thank you so much <img src="i/expressions/face-icon-small-smile.gif" border="0"> xxxx

 

[AliceT]

Thanks!

I just asked him and it is his enzymes he struggles with most, I didnt really understand how he could have confused the doses but now I completely do (im type 1 diabetic and have to do a similar sort of thing with my insulin with food) so hopefully that means I can be more helpful with things...

Thank you so much <img src="i/expressions/face-icon-small-smile.gif" border="0"> xxxx

 

[AliceT]

Thanks!

I just asked him and it is his enzymes he struggles with most, I didnt really understand how he could have confused the doses but now I completely do (im type 1 diabetic and have to do a similar sort of thing with my insulin with food) so hopefully that means I can be more helpful with things...

Thank you so much <img src="i/expressions/face-icon-small-smile.gif" border="0"> xxxx

 

[AliceT]

Thanks!
<br />
<br />I just asked him and it is his enzymes he struggles with most, I didnt really understand how he could have confused the doses but now I completely do (im type 1 diabetic and have to do a similar sort of thing with my insulin with food) so hopefully that means I can be more helpful with things...
<br />
<br />Thank you so much <img src="i/expressions/face-icon-small-smile.gif" border="0"> xxxx

 

[Diane]

One thing i find useful is to carry enzymes with me everywhere i go. That way if i eat on the go, in the car , (which i always do) i am covered. Maybe he could keep some in his car, or you could keep some in your purse for when you are out with him. How many enzymes to take is almost trial and error. Certain things like one slice of pizza versus 2 or 3 slices may require an extra enzyme or two. I only take one enzyme with each meal and snack, but if i have a very large meal or extra fatty meal i will sometimes take 2 enzymes. If i eat something in particular one day and notice loose fatty stools the next day ( sorry for the unpleasant image), then i know next time i have that same meal to take an extra enzyme. I hope this helps a bit.<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Diane]

One thing i find useful is to carry enzymes with me everywhere i go. That way if i eat on the go, in the car , (which i always do) i am covered. Maybe he could keep some in his car, or you could keep some in your purse for when you are out with him. How many enzymes to take is almost trial and error. Certain things like one slice of pizza versus 2 or 3 slices may require an extra enzyme or two. I only take one enzyme with each meal and snack, but if i have a very large meal or extra fatty meal i will sometimes take 2 enzymes. If i eat something in particular one day and notice loose fatty stools the next day ( sorry for the unpleasant image), then i know next time i have that same meal to take an extra enzyme. I hope this helps a bit.<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Diane]

One thing i find useful is to carry enzymes with me everywhere i go. That way if i eat on the go, in the car , (which i always do) i am covered. Maybe he could keep some in his car, or you could keep some in your purse for when you are out with him. How many enzymes to take is almost trial and error. Certain things like one slice of pizza versus 2 or 3 slices may require an extra enzyme or two. I only take one enzyme with each meal and snack, but if i have a very large meal or extra fatty meal i will sometimes take 2 enzymes. If i eat something in particular one day and notice loose fatty stools the next day ( sorry for the unpleasant image), then i know next time i have that same meal to take an extra enzyme. I hope this helps a bit.<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Diane]

One thing i find useful is to carry enzymes with me everywhere i go. That way if i eat on the go, in the car , (which i always do) i am covered. Maybe he could keep some in his car, or you could keep some in your purse for when you are out with him. How many enzymes to take is almost trial and error. Certain things like one slice of pizza versus 2 or 3 slices may require an extra enzyme or two. I only take one enzyme with each meal and snack, but if i have a very large meal or extra fatty meal i will sometimes take 2 enzymes. If i eat something in particular one day and notice loose fatty stools the next day ( sorry for the unpleasant image), then i know next time i have that same meal to take an extra enzyme. I hope this helps a bit.<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Diane]

One thing i find useful is to carry enzymes with me everywhere i go. That way if i eat on the go, in the car , (which i always do) i am covered. Maybe he could keep some in his car, or you could keep some in your purse for when you are out with him. How many enzymes to take is almost trial and error. Certain things like one slice of pizza versus 2 or 3 slices may require an extra enzyme or two. I only take one enzyme with each meal and snack, but if i have a very large meal or extra fatty meal i will sometimes take 2 enzymes. If i eat something in particular one day and notice loose fatty stools the next day ( sorry for the unpleasant image), then i know next time i have that same meal to take an extra enzyme. I hope this helps a bit.<img src="i/expressions/face-icon-small-smile.gif" border="0">