Kalydeco - liver enzymes are elevated *UPDATE*

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TreasureGoddess

Member
Excellent news! Glad your son's levels are back in a good range. You may want to ask your doctor about going back on ursodial. I have been told that it helps the liver function and even when levels are normal it's good to keep going....not sure about that as if you don't need a med, it's sure nice to be able to stop one of the bajillions our kids have to take.
 
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TreasureGoddess

Member
Excellent news! Glad your son's levels are back in a good range. You may want to ask your doctor about going back on ursodial. I have been told that it helps the liver function and even when levels are normal it's good to keep going....not sure about that as if you don't need a med, it's sure nice to be able to stop one of the bajillions our kids have to take.
 
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Tom

New member
Our doc did discuss Urso again, but as of right now he is not going back on it. At this point, my son is only taking Kalydeco and enzymes. All other CF meds are not being prescribed unless needed (Pulmozyme, hypertonic saline, antibiotics, etc).
 
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Tom

New member
Our doc did discuss Urso again, but as of right now he is not going back on it. At this point, my son is only taking Kalydeco and enzymes. All other CF meds are not being prescribed unless needed (Pulmozyme, hypertonic saline, antibiotics, etc).
 
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trw144

New member
Also bare in mind that dosing was split between 3 groups (200,400,600mg) and in the conference call they said the 600mg dose had "a more consistent and more robust effect as compared to other doses". This is where I see the main hope in the results.
 
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