Kidney Stones

JenDiS · Dec 3, 2008

I had a couple of kidney stones in there for who knows how long...only one dropped so im waiting for the other to also...

I was told they can be in there for a long time until the drop...

Im sorry that your son has to endure that kinda pain...It was agonizing for me and im 20! let along a 9 year old child going through that...I hope he had some kinda good pain medication...

JenDiS · Dec 3, 2008

I had a couple of kidney stones in there for who knows how long...only one dropped so im waiting for the other to also...

I was told they can be in there for a long time until the drop...

Im sorry that your son has to endure that kinda pain...It was agonizing for me and im 20! let along a 9 year old child going through that...I hope he had some kinda good pain medication...

JenDiS · Dec 3, 2008

I had a couple of kidney stones in there for who knows how long...only one dropped so im waiting for the other to also...

I was told they can be in there for a long time until the drop...

Im sorry that your son has to endure that kinda pain...It was agonizing for me and im 20! let along a 9 year old child going through that...I hope he had some kinda good pain medication...

JenDiS · Dec 3, 2008

I had a couple of kidney stones in there for who knows how long...only one dropped so im waiting for the other to also...

I was told they can be in there for a long time until the drop...

Im sorry that your son has to endure that kinda pain...It was agonizing for me and im 20! let along a 9 year old child going through that...I hope he had some kinda good pain medication...

JenDiS · Dec 3, 2008

I had a couple of kidney stones in there for who knows how long...only one dropped so im waiting for the other to also...
 
 I was told they can be in there for a long time until the drop...
 
 Im sorry that your son has to endure that kinda pain...It was agonizing for me and im 20! let along a 9 year old child going through that...I hope he had some kinda good pain medication...

Buckeye · Dec 3, 2008

Thanks for the all the info.Alyssa - I saw that you mentioned mis-diagnosises. When I first took him into the ER they ran numerous tests and x-rays and finally admitted him because they said he was constipated. Now just a month before we had been told he was upset and crying because he was constipated and it ended up he had a broken leg!!!, so I was not happy with their answer. I told every single doctor, nurse and child life lady that walked into my son's room that poop was not causing this amount of pain. Everyone tried to assure me that it really could be painful to be constipated. Finally I had had it with them pumping him full or Miralax and giving him enemas all the while with him screaming, so I insisted they do an x-ray to totally rule out the "constipation" diagnosis and move on to finding out what was really wrong with him. That's when they saw the kidney stones. I have no idea why they didn't see them on the previous x-ray that made them think he was constipated.Two of those stones were 3 mm and one was 2 mm and they said they don't try to break them up unless they are 5 mm or larger and they just were going to wait until they passed on their own. An actual stone never really passed though, but there was a white-ish looking sediment at one point. I had asked the nurse if that could be the stones and she said no and just cleaned up the sediment. Then later that night I asked the doctor about the sediment and he was upset the nurse didn't keep a sample of it for testing. So it was never tested. They did test his urine though and said it was high in calcium so they thought it was probably a calcium stone.The doctor in the hospital did mention the Citrate, but my son has low bone density (hence the broken leg the month before) and the Citrate can cause low bone density, so not sure if they are going to put him on that or not. We see a Nephrologist on December 19th so hopefully he will have answers for us and a game plan to stop the stones from happening. Because if I have to pick kidney stones or broken bones I don't know which one I would pick<img src="i/expressions/face-icon-small-confused.gif" border="0">.

Buckeye · Dec 3, 2008

Thanks for the all the info.Alyssa - I saw that you mentioned mis-diagnosises. When I first took him into the ER they ran numerous tests and x-rays and finally admitted him because they said he was constipated. Now just a month before we had been told he was upset and crying because he was constipated and it ended up he had a broken leg!!!, so I was not happy with their answer. I told every single doctor, nurse and child life lady that walked into my son's room that poop was not causing this amount of pain. Everyone tried to assure me that it really could be painful to be constipated. Finally I had had it with them pumping him full or Miralax and giving him enemas all the while with him screaming, so I insisted they do an x-ray to totally rule out the "constipation" diagnosis and move on to finding out what was really wrong with him. That's when they saw the kidney stones. I have no idea why they didn't see them on the previous x-ray that made them think he was constipated.Two of those stones were 3 mm and one was 2 mm and they said they don't try to break them up unless they are 5 mm or larger and they just were going to wait until they passed on their own. An actual stone never really passed though, but there was a white-ish looking sediment at one point. I had asked the nurse if that could be the stones and she said no and just cleaned up the sediment. Then later that night I asked the doctor about the sediment and he was upset the nurse didn't keep a sample of it for testing. So it was never tested. They did test his urine though and said it was high in calcium so they thought it was probably a calcium stone.The doctor in the hospital did mention the Citrate, but my son has low bone density (hence the broken leg the month before) and the Citrate can cause low bone density, so not sure if they are going to put him on that or not. We see a Nephrologist on December 19th so hopefully he will have answers for us and a game plan to stop the stones from happening. Because if I have to pick kidney stones or broken bones I don't know which one I would pick<img src="i/expressions/face-icon-small-confused.gif" border="0">.

Buckeye · Dec 3, 2008

Thanks for the all the info.Alyssa - I saw that you mentioned mis-diagnosises. When I first took him into the ER they ran numerous tests and x-rays and finally admitted him because they said he was constipated. Now just a month before we had been told he was upset and crying because he was constipated and it ended up he had a broken leg!!!, so I was not happy with their answer. I told every single doctor, nurse and child life lady that walked into my son's room that poop was not causing this amount of pain. Everyone tried to assure me that it really could be painful to be constipated. Finally I had had it with them pumping him full or Miralax and giving him enemas all the while with him screaming, so I insisted they do an x-ray to totally rule out the "constipation" diagnosis and move on to finding out what was really wrong with him. That's when they saw the kidney stones. I have no idea why they didn't see them on the previous x-ray that made them think he was constipated.Two of those stones were 3 mm and one was 2 mm and they said they don't try to break them up unless they are 5 mm or larger and they just were going to wait until they passed on their own. An actual stone never really passed though, but there was a white-ish looking sediment at one point. I had asked the nurse if that could be the stones and she said no and just cleaned up the sediment. Then later that night I asked the doctor about the sediment and he was upset the nurse didn't keep a sample of it for testing. So it was never tested. They did test his urine though and said it was high in calcium so they thought it was probably a calcium stone.The doctor in the hospital did mention the Citrate, but my son has low bone density (hence the broken leg the month before) and the Citrate can cause low bone density, so not sure if they are going to put him on that or not. We see a Nephrologist on December 19th so hopefully he will have answers for us and a game plan to stop the stones from happening. Because if I have to pick kidney stones or broken bones I don't know which one I would pick<img src="i/expressions/face-icon-small-confused.gif" border="0">.

Buckeye · Dec 3, 2008

Thanks for the all the info.Alyssa - I saw that you mentioned mis-diagnosises. When I first took him into the ER they ran numerous tests and x-rays and finally admitted him because they said he was constipated. Now just a month before we had been told he was upset and crying because he was constipated and it ended up he had a broken leg!!!, so I was not happy with their answer. I told every single doctor, nurse and child life lady that walked into my son's room that poop was not causing this amount of pain. Everyone tried to assure me that it really could be painful to be constipated. Finally I had had it with them pumping him full or Miralax and giving him enemas all the while with him screaming, so I insisted they do an x-ray to totally rule out the "constipation" diagnosis and move on to finding out what was really wrong with him. That's when they saw the kidney stones. I have no idea why they didn't see them on the previous x-ray that made them think he was constipated.Two of those stones were 3 mm and one was 2 mm and they said they don't try to break them up unless they are 5 mm or larger and they just were going to wait until they passed on their own. An actual stone never really passed though, but there was a white-ish looking sediment at one point. I had asked the nurse if that could be the stones and she said no and just cleaned up the sediment. Then later that night I asked the doctor about the sediment and he was upset the nurse didn't keep a sample of it for testing. So it was never tested. They did test his urine though and said it was high in calcium so they thought it was probably a calcium stone.The doctor in the hospital did mention the Citrate, but my son has low bone density (hence the broken leg the month before) and the Citrate can cause low bone density, so not sure if they are going to put him on that or not. We see a Nephrologist on December 19th so hopefully he will have answers for us and a game plan to stop the stones from happening. Because if I have to pick kidney stones or broken bones I don't know which one I would pick<img src="i/expressions/face-icon-small-confused.gif" border="0">.

Buckeye · Dec 3, 2008

Thanks for the all the info.Alyssa - I saw that you mentioned mis-diagnosises. When I first took him into the ER they ran numerous tests and x-rays and finally admitted him because they said he was constipated. Now just a month before we had been told he was upset and crying because he was constipated and it ended up he had a broken leg!!!, so I was not happy with their answer. I told every single doctor, nurse and child life lady that walked into my son's room that poop was not causing this amount of pain. Everyone tried to assure me that it really could be painful to be constipated. Finally I had had it with them pumping him full or Miralax and giving him enemas all the while with him screaming, so I insisted they do an x-ray to totally rule out the "constipation" diagnosis and move on to finding out what was really wrong with him. That's when they saw the kidney stones. I have no idea why they didn't see them on the previous x-ray that made them think he was constipated.Two of those stones were 3 mm and one was 2 mm and they said they don't try to break them up unless they are 5 mm or larger and they just were going to wait until they passed on their own. An actual stone never really passed though, but there was a white-ish looking sediment at one point. I had asked the nurse if that could be the stones and she said no and just cleaned up the sediment. Then later that night I asked the doctor about the sediment and he was upset the nurse didn't keep a sample of it for testing. So it was never tested. They did test his urine though and said it was high in calcium so they thought it was probably a calcium stone.The doctor in the hospital did mention the Citrate, but my son has low bone density (hence the broken leg the month before) and the Citrate can cause low bone density, so not sure if they are going to put him on that or not. We see a Nephrologist on December 19th so hopefully he will have answers for us and a game plan to stop the stones from happening. Because if I have to pick kidney stones or broken bones I don't know which one I would pick<img src="i/expressions/face-icon-small-confused.gif" border="0">.

rubyroselee · Dec 3, 2008

Hi Pam,

I also have a history of kidney stones. One of my CF doctors once told me that they are looking into kidney stones being another one of those things that happens with CF due to our nutritional problems and that throwing stuff off and causing kidney stones. I guess something like 20% of CFers get them, which is quite a high percentage. Another great thing about having CF! <img src="i/expressions/face-icon-small-smile.gif" border="0">

I started with the stones when I was in my late teens. I had no pain just blood in the urine. I just had regular checkups for them for a few years because they caused me no pain at all. I ended up passing all of them (a total of 5) and I only had severe pain with one of them. They were between 2-3 mm. I went to the ER for the painful one for some pain meds, but otherwise passed the others with minimal pain. The last kidney stone pain I felt was when I was pregnant last year. I have not been for a followup in a couple years because they have not bothered me for a long time (I should probably go though!).

I know it's scary not to know when the next pain episode will hit, but most of mine were not that bad. But being that he's just a little guy it might hurt worse for him. I'm sorry he has them so young <img src="i/expressions/face-icon-small-sad.gif" border="0"> But maybe they can do one of the procedures on him to break the stone up or remove it so it's easier for him. Good luck.

rubyroselee · Dec 3, 2008

Hi Pam,

I also have a history of kidney stones. One of my CF doctors once told me that they are looking into kidney stones being another one of those things that happens with CF due to our nutritional problems and that throwing stuff off and causing kidney stones. I guess something like 20% of CFers get them, which is quite a high percentage. Another great thing about having CF! <img src="i/expressions/face-icon-small-smile.gif" border="0">

I started with the stones when I was in my late teens. I had no pain just blood in the urine. I just had regular checkups for them for a few years because they caused me no pain at all. I ended up passing all of them (a total of 5) and I only had severe pain with one of them. They were between 2-3 mm. I went to the ER for the painful one for some pain meds, but otherwise passed the others with minimal pain. The last kidney stone pain I felt was when I was pregnant last year. I have not been for a followup in a couple years because they have not bothered me for a long time (I should probably go though!).

I know it's scary not to know when the next pain episode will hit, but most of mine were not that bad. But being that he's just a little guy it might hurt worse for him. I'm sorry he has them so young <img src="i/expressions/face-icon-small-sad.gif" border="0"> But maybe they can do one of the procedures on him to break the stone up or remove it so it's easier for him. Good luck.

rubyroselee · Dec 3, 2008

Hi Pam,

I also have a history of kidney stones. One of my CF doctors once told me that they are looking into kidney stones being another one of those things that happens with CF due to our nutritional problems and that throwing stuff off and causing kidney stones. I guess something like 20% of CFers get them, which is quite a high percentage. Another great thing about having CF! <img src="i/expressions/face-icon-small-smile.gif" border="0">

I started with the stones when I was in my late teens. I had no pain just blood in the urine. I just had regular checkups for them for a few years because they caused me no pain at all. I ended up passing all of them (a total of 5) and I only had severe pain with one of them. They were between 2-3 mm. I went to the ER for the painful one for some pain meds, but otherwise passed the others with minimal pain. The last kidney stone pain I felt was when I was pregnant last year. I have not been for a followup in a couple years because they have not bothered me for a long time (I should probably go though!).

I know it's scary not to know when the next pain episode will hit, but most of mine were not that bad. But being that he's just a little guy it might hurt worse for him. I'm sorry he has them so young <img src="i/expressions/face-icon-small-sad.gif" border="0"> But maybe they can do one of the procedures on him to break the stone up or remove it so it's easier for him. Good luck.

rubyroselee · Dec 3, 2008

Hi Pam,

I also have a history of kidney stones. One of my CF doctors once told me that they are looking into kidney stones being another one of those things that happens with CF due to our nutritional problems and that throwing stuff off and causing kidney stones. I guess something like 20% of CFers get them, which is quite a high percentage. Another great thing about having CF! <img src="i/expressions/face-icon-small-smile.gif" border="0">

I started with the stones when I was in my late teens. I had no pain just blood in the urine. I just had regular checkups for them for a few years because they caused me no pain at all. I ended up passing all of them (a total of 5) and I only had severe pain with one of them. They were between 2-3 mm. I went to the ER for the painful one for some pain meds, but otherwise passed the others with minimal pain. The last kidney stone pain I felt was when I was pregnant last year. I have not been for a followup in a couple years because they have not bothered me for a long time (I should probably go though!).

I know it's scary not to know when the next pain episode will hit, but most of mine were not that bad. But being that he's just a little guy it might hurt worse for him. I'm sorry he has them so young <img src="i/expressions/face-icon-small-sad.gif" border="0"> But maybe they can do one of the procedures on him to break the stone up or remove it so it's easier for him. Good luck.

rubyroselee · Dec 3, 2008

Hi Pam,
 
 I also have a history of kidney stones. One of my CF doctors once told me that they are looking into kidney stones being another one of those things that happens with CF due to our nutritional problems and that throwing stuff off and causing kidney stones. I guess something like 20% of CFers get them, which is quite a high percentage. Another great thing about having CF! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
 I started with the stones when I was in my late teens. I had no pain just blood in the urine. I just had regular checkups for them for a few years because they caused me no pain at all. I ended up passing all of them (a total of 5) and I only had severe pain with one of them. They were between 2-3 mm. I went to the ER for the painful one for some pain meds, but otherwise passed the others with minimal pain. The last kidney stone pain I felt was when I was pregnant last year. I have not been for a followup in a couple years because they have not bothered me for a long time (I should probably go though!).
 
 I know it's scary not to know when the next pain episode will hit, but most of mine were not that bad. But being that he's just a little guy it might hurt worse for him. I'm sorry he has them so young <img src="i/expressions/face-icon-small-sad.gif" border="0"> But maybe they can do one of the procedures on him to break the stone up or remove it so it's easier for him. Good luck.

kfw1963 · Dec 4, 2008