PepperKitty
New member
Hi Pam,
For years I have passed large stones about every 7-10 months & I hate it! I have always had a lot of pain with my CF, but kidney stone pain is the worst. My heart breaks for your son. No one should have to experience that kind of pain, esp at such a young age. I hope the doctors are successful at preventing them.
My stones are calcium/oxalate so I eat a strict low oxalate diet & try to drink lots of water. A low salt diet is normally recommended, but with CF that's dangerous! I started a combination of potassium citrate & Tums 2 months ago, but don't know if it's working yet. I hope it doesn't hurt my bones since I have boarderline osteoporosis already.
I had lithotripsy only once, for the rest of my stones I took FloMax. On average it has taken 7 days before passing a stone. My largest stone was 6.4mm. It took me 11 days to finally pass it! I wish I'd had lithotripsy done, but the doctor was on vacation. I also get a lot of "stone chips" that only hurt mildly to pass.
I wish you & your son the best!
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Faith 35w/CFDD508
For years I have passed large stones about every 7-10 months & I hate it! I have always had a lot of pain with my CF, but kidney stone pain is the worst. My heart breaks for your son. No one should have to experience that kind of pain, esp at such a young age. I hope the doctors are successful at preventing them.
My stones are calcium/oxalate so I eat a strict low oxalate diet & try to drink lots of water. A low salt diet is normally recommended, but with CF that's dangerous! I started a combination of potassium citrate & Tums 2 months ago, but don't know if it's working yet. I hope it doesn't hurt my bones since I have boarderline osteoporosis already.
I had lithotripsy only once, for the rest of my stones I took FloMax. On average it has taken 7 days before passing a stone. My largest stone was 6.4mm. It took me 11 days to finally pass it! I wish I'd had lithotripsy done, but the doctor was on vacation. I also get a lot of "stone chips" that only hurt mildly to pass.
I wish you & your son the best!
--------------------
Faith 35w/CFDD508