Kidney Stones

P

PepperKitty

New member
Hi Pam,
For years I have passed large stones about every 7-10 months & I hate it! I have always had a lot of pain with my CF, but kidney stone pain is the worst. My heart breaks for your son. No one should have to experience that kind of pain, esp at such a young age. I hope the doctors are successful at preventing them.



My stones are calcium/oxalate so I eat a strict low oxalate diet & try to drink lots of water. A low salt diet is normally recommended, but with CF that's dangerous! I started a combination of potassium citrate & Tums 2 months ago, but don't know if it's working yet. I hope it doesn't hurt my bones since I have boarderline osteoporosis already.



I had lithotripsy only once, for the rest of my stones I took FloMax. On average it has taken 7 days before passing a stone. My largest stone was 6.4mm. It took me 11 days to finally pass it! I wish I'd had lithotripsy done, but the doctor was on vacation. I also get a lot of "stone chips" that only hurt mildly to pass.

I wish you & your son the best!


--------------------
Faith 35w/CFDD508
 
P

PepperKitty

New member
Hi Pam,
For years I have passed large stones about every 7-10 months & I hate it! I have always had a lot of pain with my CF, but kidney stone pain is the worst. My heart breaks for your son. No one should have to experience that kind of pain, esp at such a young age. I hope the doctors are successful at preventing them.



My stones are calcium/oxalate so I eat a strict low oxalate diet & try to drink lots of water. A low salt diet is normally recommended, but with CF that's dangerous! I started a combination of potassium citrate & Tums 2 months ago, but don't know if it's working yet. I hope it doesn't hurt my bones since I have boarderline osteoporosis already.



I had lithotripsy only once, for the rest of my stones I took FloMax. On average it has taken 7 days before passing a stone. My largest stone was 6.4mm. It took me 11 days to finally pass it! I wish I'd had lithotripsy done, but the doctor was on vacation. I also get a lot of "stone chips" that only hurt mildly to pass.

I wish you & your son the best!


--------------------
Faith 35w/CFDD508
 
P

PepperKitty

New member
Hi Pam,
For years I have passed large stones about every 7-10 months & I hate it! I have always had a lot of pain with my CF, but kidney stone pain is the worst. My heart breaks for your son. No one should have to experience that kind of pain, esp at such a young age. I hope the doctors are successful at preventing them.



My stones are calcium/oxalate so I eat a strict low oxalate diet & try to drink lots of water. A low salt diet is normally recommended, but with CF that's dangerous! I started a combination of potassium citrate & Tums 2 months ago, but don't know if it's working yet. I hope it doesn't hurt my bones since I have boarderline osteoporosis already.



I had lithotripsy only once, for the rest of my stones I took FloMax. On average it has taken 7 days before passing a stone. My largest stone was 6.4mm. It took me 11 days to finally pass it! I wish I'd had lithotripsy done, but the doctor was on vacation. I also get a lot of "stone chips" that only hurt mildly to pass.

I wish you & your son the best!


--------------------
Faith 35w/CFDD508
 
P

PepperKitty

New member
Hi Pam,
For years I have passed large stones about every 7-10 months & I hate it! I have always had a lot of pain with my CF, but kidney stone pain is the worst. My heart breaks for your son. No one should have to experience that kind of pain, esp at such a young age. I hope the doctors are successful at preventing them.



My stones are calcium/oxalate so I eat a strict low oxalate diet & try to drink lots of water. A low salt diet is normally recommended, but with CF that's dangerous! I started a combination of potassium citrate & Tums 2 months ago, but don't know if it's working yet. I hope it doesn't hurt my bones since I have boarderline osteoporosis already.



I had lithotripsy only once, for the rest of my stones I took FloMax. On average it has taken 7 days before passing a stone. My largest stone was 6.4mm. It took me 11 days to finally pass it! I wish I'd had lithotripsy done, but the doctor was on vacation. I also get a lot of "stone chips" that only hurt mildly to pass.

I wish you & your son the best!


--------------------
Faith 35w/CFDD508
 
P

PepperKitty

New member
Hi Pam,
For years I have passed large stones about every 7-10 months & I hate it! I have always had a lot of pain with my CF, but kidney stone pain is the worst. My heart breaks for your son. No one should have to experience that kind of pain, esp at such a young age. I hope the doctors are successful at preventing them.



My stones are calcium/oxalate so I eat a strict low oxalate diet & try to drink lots of water. A low salt diet is normally recommended, but with CF that's dangerous! I started a combination of potassium citrate & Tums 2 months ago, but don't know if it's working yet. I hope it doesn't hurt my bones since I have boarderline osteoporosis already.



I had lithotripsy only once, for the rest of my stones I took FloMax. On average it has taken 7 days before passing a stone. My largest stone was 6.4mm. It took me 11 days to finally pass it! I wish I'd had lithotripsy done, but the doctor was on vacation. I also get a lot of "stone chips" that only hurt mildly to pass.

I wish you & your son the best!


--------------------
Faith 35w/CFDD508
 
A

Alyssa

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Buckeye</b></i>

Two of those stones were 3 mm and one was 2 mm and they said they don't try to break them up unless they are 5 mm or larger and they just were going to wait until they passed on their own. </end quote></div>

This is true, however they still could have gone up and gotten them out without the lithotripsy

<div class="FTQUOTE"><begin quote>
They did test his urine though and said it was high in calcium so they thought it was probably a calcium stone. </end quote></div>

yep, probably so.

<div class="FTQUOTE"><begin quote>
The doctor in the hospital did mention the Citrate, but my son has low bone density (hence the broken leg the month before) and the Citrate can cause low bone density, so not sure if they are going to put him on that or not. </end quote></div>

This doesn't sound right to me? Are you referring to Calcium Citrate? Because the best supplement to improve bone density is calcium citrate malate. I would think this would be good for both increasing bone density and help reduce the chance of calcium oxalate stone.




<div class="FTQUOTE"><begin quote>
We see a Nephrologist on December 19th so hopefully he will have answers for us and a game plan to stop the stones from happening. Because if I have to pick kidney stones or broken bones I don't know which one I would pick<img src="i/expressions/face-icon-small-confused.gif" border="0">.</end quote></div>

Seeing a nephrologist is a good thing!
 
A

Alyssa

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Buckeye</b></i>

Two of those stones were 3 mm and one was 2 mm and they said they don't try to break them up unless they are 5 mm or larger and they just were going to wait until they passed on their own. </end quote></div>

This is true, however they still could have gone up and gotten them out without the lithotripsy

<div class="FTQUOTE"><begin quote>
They did test his urine though and said it was high in calcium so they thought it was probably a calcium stone. </end quote></div>

yep, probably so.

<div class="FTQUOTE"><begin quote>
The doctor in the hospital did mention the Citrate, but my son has low bone density (hence the broken leg the month before) and the Citrate can cause low bone density, so not sure if they are going to put him on that or not. </end quote></div>

This doesn't sound right to me? Are you referring to Calcium Citrate? Because the best supplement to improve bone density is calcium citrate malate. I would think this would be good for both increasing bone density and help reduce the chance of calcium oxalate stone.




<div class="FTQUOTE"><begin quote>
We see a Nephrologist on December 19th so hopefully he will have answers for us and a game plan to stop the stones from happening. Because if I have to pick kidney stones or broken bones I don't know which one I would pick<img src="i/expressions/face-icon-small-confused.gif" border="0">.</end quote></div>

Seeing a nephrologist is a good thing!
 
A

Alyssa

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Buckeye</b></i>

Two of those stones were 3 mm and one was 2 mm and they said they don't try to break them up unless they are 5 mm or larger and they just were going to wait until they passed on their own. </end quote></div>

This is true, however they still could have gone up and gotten them out without the lithotripsy

<div class="FTQUOTE"><begin quote>
They did test his urine though and said it was high in calcium so they thought it was probably a calcium stone. </end quote></div>

yep, probably so.

<div class="FTQUOTE"><begin quote>
The doctor in the hospital did mention the Citrate, but my son has low bone density (hence the broken leg the month before) and the Citrate can cause low bone density, so not sure if they are going to put him on that or not. </end quote></div>

This doesn't sound right to me? Are you referring to Calcium Citrate? Because the best supplement to improve bone density is calcium citrate malate. I would think this would be good for both increasing bone density and help reduce the chance of calcium oxalate stone.




<div class="FTQUOTE"><begin quote>
We see a Nephrologist on December 19th so hopefully he will have answers for us and a game plan to stop the stones from happening. Because if I have to pick kidney stones or broken bones I don't know which one I would pick<img src="i/expressions/face-icon-small-confused.gif" border="0">.</end quote></div>

Seeing a nephrologist is a good thing!
 
A

Alyssa

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Buckeye</b></i>

Two of those stones were 3 mm and one was 2 mm and they said they don't try to break them up unless they are 5 mm or larger and they just were going to wait until they passed on their own. </end quote>

This is true, however they still could have gone up and gotten them out without the lithotripsy

<div class="FTQUOTE"><begin quote>
They did test his urine though and said it was high in calcium so they thought it was probably a calcium stone. </end quote>

yep, probably so.

<div class="FTQUOTE"><begin quote>
The doctor in the hospital did mention the Citrate, but my son has low bone density (hence the broken leg the month before) and the Citrate can cause low bone density, so not sure if they are going to put him on that or not. </end quote>

This doesn't sound right to me? Are you referring to Calcium Citrate? Because the best supplement to improve bone density is calcium citrate malate. I would think this would be good for both increasing bone density and help reduce the chance of calcium oxalate stone.




<div class="FTQUOTE"><begin quote>
We see a Nephrologist on December 19th so hopefully he will have answers for us and a game plan to stop the stones from happening. Because if I have to pick kidney stones or broken bones I don't know which one I would pick<img src="i/expressions/face-icon-small-confused.gif" border="0">.</end quote>

Seeing a nephrologist is a good thing!
 
A

Alyssa

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Buckeye</b></i>
<br />
<br />Two of those stones were 3 mm and one was 2 mm and they said they don't try to break them up unless they are 5 mm or larger and they just were going to wait until they passed on their own. </end quote>
<br />
<br />This is true, however they still could have gone up and gotten them out without the lithotripsy
<br />
<br /><div class="FTQUOTE"><begin quote>
<br />They did test his urine though and said it was high in calcium so they thought it was probably a calcium stone. </end quote>
<br />
<br />yep, probably so.
<br />
<br /><div class="FTQUOTE"><begin quote>
<br />The doctor in the hospital did mention the Citrate, but my son has low bone density (hence the broken leg the month before) and the Citrate can cause low bone density, so not sure if they are going to put him on that or not. </end quote>
<br />
<br />This doesn't sound right to me? Are you referring to Calcium Citrate? Because the best supplement to improve bone density is calcium citrate malate. I would think this would be good for both increasing bone density and help reduce the chance of calcium oxalate stone.
<br />
<br />
<br />
<br />
<br /><div class="FTQUOTE"><begin quote>
<br /> We see a Nephrologist on December 19th so hopefully he will have answers for us and a game plan to stop the stones from happening. Because if I have to pick kidney stones or broken bones I don't know which one I would pick<img src="i/expressions/face-icon-small-confused.gif" border="0">.</end quote>
<br />
<br />Seeing a nephrologist is a good thing!
<br />
<br />
 
M

MurrensMama

New member
Both my sister and I have had numerous kidney stones. She found a product called Uriflow from kidneysite.com that is a gelcap you take when you think you have a stone. It dissolves the stone into gravel that passes painlessly. She said it usually works in 24 hours. I haven't had a stone since she found this, but if I get another one, I'll definitely try it.

People with CF get stones with greater frequency because of malabsorbtion. The stones can be analyzed as to their composition and then dietary recommendations can be made, but they are not as effective a remedy for people with CF because of our malabsorbtion issues.

It is usually said "once a stone maker always a stone maker" but after having passed half a dozen over several years, I haven't had one in 7 years. I started taking a supplement called Reliv and it really improved my overall health including stopping my stone-making.
 
M

MurrensMama

New member
Both my sister and I have had numerous kidney stones. She found a product called Uriflow from kidneysite.com that is a gelcap you take when you think you have a stone. It dissolves the stone into gravel that passes painlessly. She said it usually works in 24 hours. I haven't had a stone since she found this, but if I get another one, I'll definitely try it.

People with CF get stones with greater frequency because of malabsorbtion. The stones can be analyzed as to their composition and then dietary recommendations can be made, but they are not as effective a remedy for people with CF because of our malabsorbtion issues.

It is usually said "once a stone maker always a stone maker" but after having passed half a dozen over several years, I haven't had one in 7 years. I started taking a supplement called Reliv and it really improved my overall health including stopping my stone-making.
 
M

MurrensMama

New member
Both my sister and I have had numerous kidney stones. She found a product called Uriflow from kidneysite.com that is a gelcap you take when you think you have a stone. It dissolves the stone into gravel that passes painlessly. She said it usually works in 24 hours. I haven't had a stone since she found this, but if I get another one, I'll definitely try it.

People with CF get stones with greater frequency because of malabsorbtion. The stones can be analyzed as to their composition and then dietary recommendations can be made, but they are not as effective a remedy for people with CF because of our malabsorbtion issues.

It is usually said "once a stone maker always a stone maker" but after having passed half a dozen over several years, I haven't had one in 7 years. I started taking a supplement called Reliv and it really improved my overall health including stopping my stone-making.
 
M

MurrensMama

New member
Both my sister and I have had numerous kidney stones. She found a product called Uriflow from kidneysite.com that is a gelcap you take when you think you have a stone. It dissolves the stone into gravel that passes painlessly. She said it usually works in 24 hours. I haven't had a stone since she found this, but if I get another one, I'll definitely try it.

People with CF get stones with greater frequency because of malabsorbtion. The stones can be analyzed as to their composition and then dietary recommendations can be made, but they are not as effective a remedy for people with CF because of our malabsorbtion issues.

It is usually said "once a stone maker always a stone maker" but after having passed half a dozen over several years, I haven't had one in 7 years. I started taking a supplement called Reliv and it really improved my overall health including stopping my stone-making.
 
M

MurrensMama

New member
Both my sister and I have had numerous kidney stones. She found a product called Uriflow from kidneysite.com that is a gelcap you take when you think you have a stone. It dissolves the stone into gravel that passes painlessly. She said it usually works in 24 hours. I haven't had a stone since she found this, but if I get another one, I'll definitely try it.
<br />
<br />People with CF get stones with greater frequency because of malabsorbtion. The stones can be analyzed as to their composition and then dietary recommendations can be made, but they are not as effective a remedy for people with CF because of our malabsorbtion issues.
<br />
<br />It is usually said "once a stone maker always a stone maker" but after having passed half a dozen over several years, I haven't had one in 7 years. I started taking a supplement called Reliv and it really improved my overall health including stopping my stone-making.
 
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