so who on here has experienced kidney stones? last wednesday i started experiencing pain in my left lower back and pressure when i would use the bathroom. i went to small clinic in my town and saw a nurse practioner. he took a urine sample said there was blood in my urine and it sounded to be kidney stones. well monday i called my family dr. and went in. i had a ct scan done and it came back with stones. today i saw an urologist and i have a 4 mm stone in my left kidney and a 6mm in my uterer by my bladder. the pain has eased. and i think i would have noticed if i passed a 6mm stone. i mean thats like the size of a pencil eraser. she said there is a possibility it has lodged itself up against my bladder. i had an x-ray done today to see if she could see it. if she can see it on the x-ray i will take meds and hoepfully pass it, or she will have to go in and remove it. ughhhh!!!!
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kidney stones
- Thread starter hbollotte
- Start date
so who on here has experienced kidney stones? last wednesday i started experiencing pain in my left lower back and pressure when i would use the bathroom. i went to small clinic in my town and saw a nurse practioner. he took a urine sample said there was blood in my urine and it sounded to be kidney stones. well monday i called my family dr. and went in. i had a ct scan done and it came back with stones. today i saw an urologist and i have a 4 mm stone in my left kidney and a 6mm in my uterer by my bladder. the pain has eased. and i think i would have noticed if i passed a 6mm stone. i mean thats like the size of a pencil eraser. she said there is a possibility it has lodged itself up against my bladder. i had an x-ray done today to see if she could see it. if she can see it on the x-ray i will take meds and hoepfully pass it, or she will have to go in and remove it. ughhhh!!!!
so who on here has experienced kidney stones? last wednesday i started experiencing pain in my left lower back and pressure when i would use the bathroom. i went to small clinic in my town and saw a nurse practioner. he took a urine sample said there was blood in my urine and it sounded to be kidney stones. well monday i called my family dr. and went in. i had a ct scan done and it came back with stones. today i saw an urologist and i have a 4 mm stone in my left kidney and a 6mm in my uterer by my bladder. the pain has eased. and i think i would have noticed if i passed a 6mm stone. i mean thats like the size of a pencil eraser. she said there is a possibility it has lodged itself up against my bladder. i had an x-ray done today to see if she could see it. if she can see it on the x-ray i will take meds and hoepfully pass it, or she will have to go in and remove it. ughhhh!!!!
Hi Haley
I have had several stones. Most I passed but last March they had to go in and remove it but it was about 10mm. Did they give you a strainer to strain your urine? My pain was not constant, it would come and go. I hope you pass it and don't have to have surgery but if you do it wasn't bad at all.
I also work for a urologist if you have any other questions.
Drink lots of water!!!
I have had several stones. Most I passed but last March they had to go in and remove it but it was about 10mm. Did they give you a strainer to strain your urine? My pain was not constant, it would come and go. I hope you pass it and don't have to have surgery but if you do it wasn't bad at all.
I also work for a urologist if you have any other questions.
Drink lots of water!!!
Hi Haley
I have had several stones. Most I passed but last March they had to go in and remove it but it was about 10mm. Did they give you a strainer to strain your urine? My pain was not constant, it would come and go. I hope you pass it and don't have to have surgery but if you do it wasn't bad at all.
I also work for a urologist if you have any other questions.
Drink lots of water!!!
I have had several stones. Most I passed but last March they had to go in and remove it but it was about 10mm. Did they give you a strainer to strain your urine? My pain was not constant, it would come and go. I hope you pass it and don't have to have surgery but if you do it wasn't bad at all.
I also work for a urologist if you have any other questions.
Drink lots of water!!!
Hi Haley
<br />
<br />I have had several stones. Most I passed but last March they had to go in and remove it but it was about 10mm. Did they give you a strainer to strain your urine? My pain was not constant, it would come and go. I hope you pass it and don't have to have surgery but if you do it wasn't bad at all.
<br />
<br />I also work for a urologist if you have any other questions.
<br />
<br />Drink lots of water!!!
<br />
<br />I have had several stones. Most I passed but last March they had to go in and remove it but it was about 10mm. Did they give you a strainer to strain your urine? My pain was not constant, it would come and go. I hope you pass it and don't have to have surgery but if you do it wasn't bad at all.
<br />
<br />I also work for a urologist if you have any other questions.
<br />
<br />Drink lots of water!!!
rubyroselee
New member
Hi Haley,
Kidney stones are fairly common in CF, something like 10 or 20% of people get them. I have had them for over 10 years now. I just recently underwent 2 lithotripsy procedures that took care of my 7 and 8mm stones (my biggest ones yet). Usually if they are 6mm or larger they will have to do lithotripsy.
They are definitely not fun to deal with. I've been in the ER one time for pain related to stones. The only thing that stinks is that there hasn't been much research done on CF-related kidney stones, so I don't know if anyone really knows why we get them or how we can prevent them - because I'm sure it has something to do with our absorption/digestion issues.
Good luck and I hope you don't experience too much pain from them. PM me if you have any specific questions.
Kidney stones are fairly common in CF, something like 10 or 20% of people get them. I have had them for over 10 years now. I just recently underwent 2 lithotripsy procedures that took care of my 7 and 8mm stones (my biggest ones yet). Usually if they are 6mm or larger they will have to do lithotripsy.
They are definitely not fun to deal with. I've been in the ER one time for pain related to stones. The only thing that stinks is that there hasn't been much research done on CF-related kidney stones, so I don't know if anyone really knows why we get them or how we can prevent them - because I'm sure it has something to do with our absorption/digestion issues.
Good luck and I hope you don't experience too much pain from them. PM me if you have any specific questions.
rubyroselee
New member
Hi Haley,
Kidney stones are fairly common in CF, something like 10 or 20% of people get them. I have had them for over 10 years now. I just recently underwent 2 lithotripsy procedures that took care of my 7 and 8mm stones (my biggest ones yet). Usually if they are 6mm or larger they will have to do lithotripsy.
They are definitely not fun to deal with. I've been in the ER one time for pain related to stones. The only thing that stinks is that there hasn't been much research done on CF-related kidney stones, so I don't know if anyone really knows why we get them or how we can prevent them - because I'm sure it has something to do with our absorption/digestion issues.
Good luck and I hope you don't experience too much pain from them. PM me if you have any specific questions.
Kidney stones are fairly common in CF, something like 10 or 20% of people get them. I have had them for over 10 years now. I just recently underwent 2 lithotripsy procedures that took care of my 7 and 8mm stones (my biggest ones yet). Usually if they are 6mm or larger they will have to do lithotripsy.
They are definitely not fun to deal with. I've been in the ER one time for pain related to stones. The only thing that stinks is that there hasn't been much research done on CF-related kidney stones, so I don't know if anyone really knows why we get them or how we can prevent them - because I'm sure it has something to do with our absorption/digestion issues.
Good luck and I hope you don't experience too much pain from them. PM me if you have any specific questions.
rubyroselee
New member
Hi Haley,
<br />
<br />Kidney stones are fairly common in CF, something like 10 or 20% of people get them. I have had them for over 10 years now. I just recently underwent 2 lithotripsy procedures that took care of my 7 and 8mm stones (my biggest ones yet). Usually if they are 6mm or larger they will have to do lithotripsy.
<br />
<br />They are definitely not fun to deal with. I've been in the ER one time for pain related to stones. The only thing that stinks is that there hasn't been much research done on CF-related kidney stones, so I don't know if anyone really knows why we get them or how we can prevent them - because I'm sure it has something to do with our absorption/digestion issues.
<br />
<br />Good luck and I hope you don't experience too much pain from them. PM me if you have any specific questions.
<br />
<br />Kidney stones are fairly common in CF, something like 10 or 20% of people get them. I have had them for over 10 years now. I just recently underwent 2 lithotripsy procedures that took care of my 7 and 8mm stones (my biggest ones yet). Usually if they are 6mm or larger they will have to do lithotripsy.
<br />
<br />They are definitely not fun to deal with. I've been in the ER one time for pain related to stones. The only thing that stinks is that there hasn't been much research done on CF-related kidney stones, so I don't know if anyone really knows why we get them or how we can prevent them - because I'm sure it has something to do with our absorption/digestion issues.
<br />
<br />Good luck and I hope you don't experience too much pain from them. PM me if you have any specific questions.
krisjohn53223
New member
I just recently was diagnosed with stones as well. I thought I had a bladder infection but it was a stone. I happened to be at work when I passed the first one. I felt so much vaginal pain and since I work in a hospital I grabbed a strainer and sure enough I passed my first stone. That one was 5x6mm. Then I ended up in the ER with my second one because I felt like I was in labor. The ER sent me home and said they couldn't figure out what was wrong with me...I passed a 8mm stone the next day! When I took it in for analyzes they said they had never seen one that big passed on it's own. No wonder it hurt so bad!! I had a bunch of scans done and I still have a 1.2cm stone in my left kidney!! Obviously I can't pass that one. However it is to low in the kidney to break up with lithostripsy so they want to go up my urethra with a scope, break it up in there and then pick out the pieces! I have been putting it off!
krisjohn53223
New member
I just recently was diagnosed with stones as well. I thought I had a bladder infection but it was a stone. I happened to be at work when I passed the first one. I felt so much vaginal pain and since I work in a hospital I grabbed a strainer and sure enough I passed my first stone. That one was 5x6mm. Then I ended up in the ER with my second one because I felt like I was in labor. The ER sent me home and said they couldn't figure out what was wrong with me...I passed a 8mm stone the next day! When I took it in for analyzes they said they had never seen one that big passed on it's own. No wonder it hurt so bad!! I had a bunch of scans done and I still have a 1.2cm stone in my left kidney!! Obviously I can't pass that one. However it is to low in the kidney to break up with lithostripsy so they want to go up my urethra with a scope, break it up in there and then pick out the pieces! I have been putting it off!
krisjohn53223
New member
I just recently was diagnosed with stones as well. I thought I had a bladder infection but it was a stone. I happened to be at work when I passed the first one. I felt so much vaginal pain and since I work in a hospital I grabbed a strainer and sure enough I passed my first stone. That one was 5x6mm. Then I ended up in the ER with my second one because I felt like I was in labor. The ER sent me home and said they couldn't figure out what was wrong with me...I passed a 8mm stone the next day! When I took it in for analyzes they said they had never seen one that big passed on it's own. No wonder it hurt so bad!! I had a bunch of scans done and I still have a 1.2cm stone in my left kidney!! Obviously I can't pass that one. However it is to low in the kidney to break up with lithostripsy so they want to go up my urethra with a scope, break it up in there and then pick out the pieces! I have been putting it off!
I had 2 stones in the past, which I passed with little discomfort. But right now I have a humongous stone in my left kidney (1.7 cm). The pain is excruciating to say the least, but it comes and goes. It feels like someone has their hand in my side and is twisting it. Since I am prone to kidney stones, like Leah I think they have alot to do with digestion issues. Maybe taking a large amount of enzymes has something to do with it? Through trial and error, I have found that certain medications/supplements cause the stone to move, hence pain.
I was taking a supplement for my hips, and it works magnificently, except that it causes my kidney stone to act up. It's called Flexcin.
I have also found that Stontium, for bones, exasperates the stone, as does CitraCal, but ONLY Citralcal with Genistein, regular CitraCal works fine. Large doses of Vitamin E, and fish oil also cause pain.
I was taking a supplement for my hips, and it works magnificently, except that it causes my kidney stone to act up. It's called Flexcin.
I have also found that Stontium, for bones, exasperates the stone, as does CitraCal, but ONLY Citralcal with Genistein, regular CitraCal works fine. Large doses of Vitamin E, and fish oil also cause pain.
I had 2 stones in the past, which I passed with little discomfort. But right now I have a humongous stone in my left kidney (1.7 cm). The pain is excruciating to say the least, but it comes and goes. It feels like someone has their hand in my side and is twisting it. Since I am prone to kidney stones, like Leah I think they have alot to do with digestion issues. Maybe taking a large amount of enzymes has something to do with it? Through trial and error, I have found that certain medications/supplements cause the stone to move, hence pain.
I was taking a supplement for my hips, and it works magnificently, except that it causes my kidney stone to act up. It's called Flexcin.
I have also found that Stontium, for bones, exasperates the stone, as does CitraCal, but ONLY Citralcal with Genistein, regular CitraCal works fine. Large doses of Vitamin E, and fish oil also cause pain.
I was taking a supplement for my hips, and it works magnificently, except that it causes my kidney stone to act up. It's called Flexcin.
I have also found that Stontium, for bones, exasperates the stone, as does CitraCal, but ONLY Citralcal with Genistein, regular CitraCal works fine. Large doses of Vitamin E, and fish oil also cause pain.
I had 2 stones in the past, which I passed with little discomfort. But right now I have a humongous stone in my left kidney (1.7 cm). The pain is excruciating to say the least, but it comes and goes. It feels like someone has their hand in my side and is twisting it. Since I am prone to kidney stones, like Leah I think they have alot to do with digestion issues. Maybe taking a large amount of enzymes has something to do with it? Through trial and error, I have found that certain medications/supplements cause the stone to move, hence pain.
<br />I was taking a supplement for my hips, and it works magnificently, except that it causes my kidney stone to act up. It's called Flexcin.
<br />
<br />I have also found that Stontium, for bones, exasperates the stone, as does CitraCal, but ONLY Citralcal with Genistein, regular CitraCal works fine. Large doses of Vitamin E, and fish oil also cause pain.
<br />I was taking a supplement for my hips, and it works magnificently, except that it causes my kidney stone to act up. It's called Flexcin.
<br />
<br />I have also found that Stontium, for bones, exasperates the stone, as does CitraCal, but ONLY Citralcal with Genistein, regular CitraCal works fine. Large doses of Vitamin E, and fish oil also cause pain.