Kids born to parents with CF

Skye · May 2, 2008

I know.....I am not a young 'en; but, I wanted to say something. I have an 8 year old daughter and she was "unplanned"...I actually thought I would never have children and oops here she is. That being said, I really think it depends a lot on how a child has been raised and what tools they are given to handle any kind of adversity in life. Life has some pretty big obstacles for everyone and I don't think a child has a right to be disrespectful to a parent no matter how afraid or mad they may be. My mother died of cancer around the time that I was about 24. I had a younger brother who was about 10 at the time and still spending all of his time with Mom. He was never disrespectful to her or angry though she had him late in life and took many risks to have him. I guess what I am trying to say is that there are a LOT of volatile parent child relationships regardless of the health of the parent and to put all of the blame on CF when a child lashes out is probably not very accurate.... there is probably a lot more going on in the way that child may have been raised.

I absolutely do respect anyone's right to have a child or not have a child! It is not an easy thing to do<img src="i/expressions/face-icon-small-smile.gif" border="0">

On another note, I never try to predict my own demise. I would never make a statement like "I will probably not be here to see her get married". How does that serve my spirit or my fight to tell myself that I should prepare the cedar box. If I had prepared the cedar box like they thought I should years ago, I'd be in the ground now. It is just my own personal belief, and I know some will disagree, but I believe there is great power in the words we speak over our lives. That philosophy has served me well and I'm stickin to it. If nothing else, it's a heck of a lot more fun<img src="i/expressions/face-icon-small-smile.gif" border="0"> I do understand; however, that others may found comfort in a different perspective. Mine has always been that I will live a full life and dang I guess I'm over half way there.

Skye · May 2, 2008

I know.....I am not a young 'en; but, I wanted to say something. I have an 8 year old daughter and she was "unplanned"...I actually thought I would never have children and oops here she is. That being said, I really think it depends a lot on how a child has been raised and what tools they are given to handle any kind of adversity in life. Life has some pretty big obstacles for everyone and I don't think a child has a right to be disrespectful to a parent no matter how afraid or mad they may be. My mother died of cancer around the time that I was about 24. I had a younger brother who was about 10 at the time and still spending all of his time with Mom. He was never disrespectful to her or angry though she had him late in life and took many risks to have him. I guess what I am trying to say is that there are a LOT of volatile parent child relationships regardless of the health of the parent and to put all of the blame on CF when a child lashes out is probably not very accurate.... there is probably a lot more going on in the way that child may have been raised.

I absolutely do respect anyone's right to have a child or not have a child! It is not an easy thing to do<img src="i/expressions/face-icon-small-smile.gif" border="0">

On another note, I never try to predict my own demise. I would never make a statement like "I will probably not be here to see her get married". How does that serve my spirit or my fight to tell myself that I should prepare the cedar box. If I had prepared the cedar box like they thought I should years ago, I'd be in the ground now. It is just my own personal belief, and I know some will disagree, but I believe there is great power in the words we speak over our lives. That philosophy has served me well and I'm stickin to it. If nothing else, it's a heck of a lot more fun<img src="i/expressions/face-icon-small-smile.gif" border="0"> I do understand; however, that others may found comfort in a different perspective. Mine has always been that I will live a full life and dang I guess I'm over half way there.

Skye · May 2, 2008

I know.....I am not a young 'en; but, I wanted to say something. I have an 8 year old daughter and she was "unplanned"...I actually thought I would never have children and oops here she is. That being said, I really think it depends a lot on how a child has been raised and what tools they are given to handle any kind of adversity in life. Life has some pretty big obstacles for everyone and I don't think a child has a right to be disrespectful to a parent no matter how afraid or mad they may be. My mother died of cancer around the time that I was about 24. I had a younger brother who was about 10 at the time and still spending all of his time with Mom. He was never disrespectful to her or angry though she had him late in life and took many risks to have him. I guess what I am trying to say is that there are a LOT of volatile parent child relationships regardless of the health of the parent and to put all of the blame on CF when a child lashes out is probably not very accurate.... there is probably a lot more going on in the way that child may have been raised.

I absolutely do respect anyone's right to have a child or not have a child! It is not an easy thing to do<img src="i/expressions/face-icon-small-smile.gif" border="0">

On another note, I never try to predict my own demise. I would never make a statement like "I will probably not be here to see her get married". How does that serve my spirit or my fight to tell myself that I should prepare the cedar box. If I had prepared the cedar box like they thought I should years ago, I'd be in the ground now. It is just my own personal belief, and I know some will disagree, but I believe there is great power in the words we speak over our lives. That philosophy has served me well and I'm stickin to it. If nothing else, it's a heck of a lot more fun<img src="i/expressions/face-icon-small-smile.gif" border="0"> I do understand; however, that others may found comfort in a different perspective. Mine has always been that I will live a full life and dang I guess I'm over half way there.

Skye · May 2, 2008

I know.....I am not a young 'en; but, I wanted to say something. I have an 8 year old daughter and she was "unplanned"...I actually thought I would never have children and oops here she is. That being said, I really think it depends a lot on how a child has been raised and what tools they are given to handle any kind of adversity in life. Life has some pretty big obstacles for everyone and I don't think a child has a right to be disrespectful to a parent no matter how afraid or mad they may be. My mother died of cancer around the time that I was about 24. I had a younger brother who was about 10 at the time and still spending all of his time with Mom. He was never disrespectful to her or angry though she had him late in life and took many risks to have him. I guess what I am trying to say is that there are a LOT of volatile parent child relationships regardless of the health of the parent and to put all of the blame on CF when a child lashes out is probably not very accurate.... there is probably a lot more going on in the way that child may have been raised.

I absolutely do respect anyone's right to have a child or not have a child! It is not an easy thing to do<img src="i/expressions/face-icon-small-smile.gif" border="0">

On another note, I never try to predict my own demise. I would never make a statement like "I will probably not be here to see her get married". How does that serve my spirit or my fight to tell myself that I should prepare the cedar box. If I had prepared the cedar box like they thought I should years ago, I'd be in the ground now. It is just my own personal belief, and I know some will disagree, but I believe there is great power in the words we speak over our lives. That philosophy has served me well and I'm stickin to it. If nothing else, it's a heck of a lot more fun<img src="i/expressions/face-icon-small-smile.gif" border="0"> I do understand; however, that others may found comfort in a different perspective. Mine has always been that I will live a full life and dang I guess I'm over half way there.

Skye · May 2, 2008

I know.....I am not a young 'en; but, I wanted to say something. I have an 8 year old daughter and she was "unplanned"...I actually thought I would never have children and oops here she is. That being said, I really think it depends a lot on how a child has been raised and what tools they are given to handle any kind of adversity in life. Life has some pretty big obstacles for everyone and I don't think a child has a right to be disrespectful to a parent no matter how afraid or mad they may be. My mother died of cancer around the time that I was about 24. I had a younger brother who was about 10 at the time and still spending all of his time with Mom. He was never disrespectful to her or angry though she had him late in life and took many risks to have him. I guess what I am trying to say is that there are a LOT of volatile parent child relationships regardless of the health of the parent and to put all of the blame on CF when a child lashes out is probably not very accurate.... there is probably a lot more going on in the way that child may have been raised.
 
 I absolutely do respect anyone's right to have a child or not have a child! It is not an easy thing to do<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
 On another note, I never try to predict my own demise. I would never make a statement like "I will probably not be here to see her get married". How does that serve my spirit or my fight to tell myself that I should prepare the cedar box. If I had prepared the cedar box like they thought I should years ago, I'd be in the ground now. It is just my own personal belief, and I know some will disagree, but I believe there is great power in the words we speak over our lives. That philosophy has served me well and I'm stickin to it. If nothing else, it's a heck of a lot more fun<img src="i/expressions/face-icon-small-smile.gif" border="0"> I do understand; however, that others may found comfort in a different perspective. Mine has always been that I will live a full life and dang I guess I'm over half way there.

mamerth · May 2, 2008

My son has had a fairly normal childhood despite my CF. He deals with my fatigue very well and when I get sick he is the best. We have fun when I am sick-- watch movies, play games. He gets my attention 100% when I am sick except for when I take a nap. He has missed a few birthday parties this winter due to my lousy immune system but he doesn't seem to mind. We do other fun things to make it up to him.

The one thing different from my son-- he knows how to do housework. He can do his own laundry, make a sandwich and vacuum.

I grew up with a parent with cancer-- he died when I was 11. I don't think I am screwed up due to my father's sickness and death. I don't think my son will be screwed up by my sickness. I think my son is way more understanding of others due to my sickness. He knows that some people have disabilities, different limitations and do treatments and take medications. He proudly tells others his Mamma has CF.

He does normal little boy stuff-- plays outside, builds with Legos, throw temper tantrums, has a dog, has a few guy friends, has a girlfriends, loves school and loves body functions. The only thing unique about him is that he is homeschooled-- limits the germs that enter our home.

I guess what I am say is: a kid with a parent with CF can live a normal, happy life.

mamerth · May 2, 2008

My son has had a fairly normal childhood despite my CF. He deals with my fatigue very well and when I get sick he is the best. We have fun when I am sick-- watch movies, play games. He gets my attention 100% when I am sick except for when I take a nap. He has missed a few birthday parties this winter due to my lousy immune system but he doesn't seem to mind. We do other fun things to make it up to him.

The one thing different from my son-- he knows how to do housework. He can do his own laundry, make a sandwich and vacuum.

I grew up with a parent with cancer-- he died when I was 11. I don't think I am screwed up due to my father's sickness and death. I don't think my son will be screwed up by my sickness. I think my son is way more understanding of others due to my sickness. He knows that some people have disabilities, different limitations and do treatments and take medications. He proudly tells others his Mamma has CF.

He does normal little boy stuff-- plays outside, builds with Legos, throw temper tantrums, has a dog, has a few guy friends, has a girlfriends, loves school and loves body functions. The only thing unique about him is that he is homeschooled-- limits the germs that enter our home.

I guess what I am say is: a kid with a parent with CF can live a normal, happy life.

mamerth · May 2, 2008

My son has had a fairly normal childhood despite my CF. He deals with my fatigue very well and when I get sick he is the best. We have fun when I am sick-- watch movies, play games. He gets my attention 100% when I am sick except for when I take a nap. He has missed a few birthday parties this winter due to my lousy immune system but he doesn't seem to mind. We do other fun things to make it up to him.

The one thing different from my son-- he knows how to do housework. He can do his own laundry, make a sandwich and vacuum.

I grew up with a parent with cancer-- he died when I was 11. I don't think I am screwed up due to my father's sickness and death. I don't think my son will be screwed up by my sickness. I think my son is way more understanding of others due to my sickness. He knows that some people have disabilities, different limitations and do treatments and take medications. He proudly tells others his Mamma has CF.

He does normal little boy stuff-- plays outside, builds with Legos, throw temper tantrums, has a dog, has a few guy friends, has a girlfriends, loves school and loves body functions. The only thing unique about him is that he is homeschooled-- limits the germs that enter our home.

I guess what I am say is: a kid with a parent with CF can live a normal, happy life.

mamerth · May 2, 2008

My son has had a fairly normal childhood despite my CF. He deals with my fatigue very well and when I get sick he is the best. We have fun when I am sick-- watch movies, play games. He gets my attention 100% when I am sick except for when I take a nap. He has missed a few birthday parties this winter due to my lousy immune system but he doesn't seem to mind. We do other fun things to make it up to him.

The one thing different from my son-- he knows how to do housework. He can do his own laundry, make a sandwich and vacuum.

I grew up with a parent with cancer-- he died when I was 11. I don't think I am screwed up due to my father's sickness and death. I don't think my son will be screwed up by my sickness. I think my son is way more understanding of others due to my sickness. He knows that some people have disabilities, different limitations and do treatments and take medications. He proudly tells others his Mamma has CF.

He does normal little boy stuff-- plays outside, builds with Legos, throw temper tantrums, has a dog, has a few guy friends, has a girlfriends, loves school and loves body functions. The only thing unique about him is that he is homeschooled-- limits the germs that enter our home.

I guess what I am say is: a kid with a parent with CF can live a normal, happy life.

mamerth · May 2, 2008

My son has had a fairly normal childhood despite my CF. He deals with my fatigue very well and when I get sick he is the best. We have fun when I am sick-- watch movies, play games. He gets my attention 100% when I am sick except for when I take a nap. He has missed a few birthday parties this winter due to my lousy immune system but he doesn't seem to mind. We do other fun things to make it up to him.
 
 The one thing different from my son-- he knows how to do housework. He can do his own laundry, make a sandwich and vacuum.
 
 I grew up with a parent with cancer-- he died when I was 11. I don't think I am screwed up due to my father's sickness and death. I don't think my son will be screwed up by my sickness. I think my son is way more understanding of others due to my sickness. He knows that some people have disabilities, different limitations and do treatments and take medications. He proudly tells others his Mamma has CF.
 
 He does normal little boy stuff-- plays outside, builds with Legos, throw temper tantrums, has a dog, has a few guy friends, has a girlfriends, loves school and loves body functions. The only thing unique about him is that he is homeschooled-- limits the germs that enter our home.
 
 I guess what I am say is: a kid with a parent with CF can live a normal, happy life.

kdmr1220 · May 2, 2008

I HAVE 2 BOYS 10 AND 12. I HAVE NOT HELD ANYTHING BACK FROM THEM ABOUT MY CF. MY OLDEST BOY HAS THE MENTALITY OF A 15 YEAR OLD. MY LITTLE GUY IS WORKING ON STILL BEING A KID. THEY COOK, CLEAN, TAKE CARE OF THEMSELVES. WHEN I WAS IN THE HOSPITAL IN MARCH THE DOC TOLD ME I EITHER SLOW DOWN OR NOT SEE MY KIDS GRADUATE. WELL I AM SLOWING DOWN. MY KIDS MEAN EVERYTHING TO ME. THE BOYS ARE NORMAL BOYS CAUSE I DONT LET MY CF EFFECT THEM AND I HAVE A GREAT WIFE WHO TAKES OVER WHEN I AM IN THE HOSPITAL. KIDS WILL BE KIDS AND JUST CAUSE WE HAVE CF WONT CHANGE THAT. YAH WE MAY DIE BEFORE OTHER PARENTS BUT WE HAVE TO CHERRISH THE QUALITY TIME WE HAVE WHEN WE ARE AROUND. MY KIDS KNOW THIS AND HAVE EXCEPTED THIS, DONT LIKE IT THOUGH. I JUST HOPE THEY REALIZE I DID ALL I COULD FOR THEM.

kdmr1220 · May 2, 2008

I HAVE 2 BOYS 10 AND 12. I HAVE NOT HELD ANYTHING BACK FROM THEM ABOUT MY CF. MY OLDEST BOY HAS THE MENTALITY OF A 15 YEAR OLD. MY LITTLE GUY IS WORKING ON STILL BEING A KID. THEY COOK, CLEAN, TAKE CARE OF THEMSELVES. WHEN I WAS IN THE HOSPITAL IN MARCH THE DOC TOLD ME I EITHER SLOW DOWN OR NOT SEE MY KIDS GRADUATE. WELL I AM SLOWING DOWN. MY KIDS MEAN EVERYTHING TO ME. THE BOYS ARE NORMAL BOYS CAUSE I DONT LET MY CF EFFECT THEM AND I HAVE A GREAT WIFE WHO TAKES OVER WHEN I AM IN THE HOSPITAL. KIDS WILL BE KIDS AND JUST CAUSE WE HAVE CF WONT CHANGE THAT. YAH WE MAY DIE BEFORE OTHER PARENTS BUT WE HAVE TO CHERRISH THE QUALITY TIME WE HAVE WHEN WE ARE AROUND. MY KIDS KNOW THIS AND HAVE EXCEPTED THIS, DONT LIKE IT THOUGH. I JUST HOPE THEY REALIZE I DID ALL I COULD FOR THEM.

kdmr1220 · May 2, 2008

I HAVE 2 BOYS 10 AND 12. I HAVE NOT HELD ANYTHING BACK FROM THEM ABOUT MY CF. MY OLDEST BOY HAS THE MENTALITY OF A 15 YEAR OLD. MY LITTLE GUY IS WORKING ON STILL BEING A KID. THEY COOK, CLEAN, TAKE CARE OF THEMSELVES. WHEN I WAS IN THE HOSPITAL IN MARCH THE DOC TOLD ME I EITHER SLOW DOWN OR NOT SEE MY KIDS GRADUATE. WELL I AM SLOWING DOWN. MY KIDS MEAN EVERYTHING TO ME. THE BOYS ARE NORMAL BOYS CAUSE I DONT LET MY CF EFFECT THEM AND I HAVE A GREAT WIFE WHO TAKES OVER WHEN I AM IN THE HOSPITAL. KIDS WILL BE KIDS AND JUST CAUSE WE HAVE CF WONT CHANGE THAT. YAH WE MAY DIE BEFORE OTHER PARENTS BUT WE HAVE TO CHERRISH THE QUALITY TIME WE HAVE WHEN WE ARE AROUND. MY KIDS KNOW THIS AND HAVE EXCEPTED THIS, DONT LIKE IT THOUGH. I JUST HOPE THEY REALIZE I DID ALL I COULD FOR THEM.

kdmr1220 · May 2, 2008

I HAVE 2 BOYS 10 AND 12. I HAVE NOT HELD ANYTHING BACK FROM THEM ABOUT MY CF. MY OLDEST BOY HAS THE MENTALITY OF A 15 YEAR OLD. MY LITTLE GUY IS WORKING ON STILL BEING A KID. THEY COOK, CLEAN, TAKE CARE OF THEMSELVES. WHEN I WAS IN THE HOSPITAL IN MARCH THE DOC TOLD ME I EITHER SLOW DOWN OR NOT SEE MY KIDS GRADUATE. WELL I AM SLOWING DOWN. MY KIDS MEAN EVERYTHING TO ME. THE BOYS ARE NORMAL BOYS CAUSE I DONT LET MY CF EFFECT THEM AND I HAVE A GREAT WIFE WHO TAKES OVER WHEN I AM IN THE HOSPITAL. KIDS WILL BE KIDS AND JUST CAUSE WE HAVE CF WONT CHANGE THAT. YAH WE MAY DIE BEFORE OTHER PARENTS BUT WE HAVE TO CHERRISH THE QUALITY TIME WE HAVE WHEN WE ARE AROUND. MY KIDS KNOW THIS AND HAVE EXCEPTED THIS, DONT LIKE IT THOUGH. I JUST HOPE THEY REALIZE I DID ALL I COULD FOR THEM.

kdmr1220 · May 2, 2008

I HAVE 2 BOYS 10 AND 12. I HAVE NOT HELD ANYTHING BACK FROM THEM ABOUT MY CF. MY OLDEST BOY HAS THE MENTALITY OF A 15 YEAR OLD. MY LITTLE GUY IS WORKING ON STILL BEING A KID. THEY COOK, CLEAN, TAKE CARE OF THEMSELVES. WHEN I WAS IN THE HOSPITAL IN MARCH THE DOC TOLD ME I EITHER SLOW DOWN OR NOT SEE MY KIDS GRADUATE. WELL I AM SLOWING DOWN. MY KIDS MEAN EVERYTHING TO ME. THE BOYS ARE NORMAL BOYS CAUSE I DONT LET MY CF EFFECT THEM AND I HAVE A GREAT WIFE WHO TAKES OVER WHEN I AM IN THE HOSPITAL. KIDS WILL BE KIDS AND JUST CAUSE WE HAVE CF WONT CHANGE THAT. YAH WE MAY DIE BEFORE OTHER PARENTS BUT WE HAVE TO CHERRISH THE QUALITY TIME WE HAVE WHEN WE ARE AROUND. MY KIDS KNOW THIS AND HAVE EXCEPTED THIS, DONT LIKE IT THOUGH. I JUST HOPE THEY REALIZE I DID ALL I COULD FOR THEM.

tara · May 2, 2008

My little guys are not old enough to answer this question themselves. They are very curious and aware when I get sick, especially when I have to go into the hospital. We watch a lot of movies when I'm sick and they seem to understand, never pushing me to do more, when I just need to have a slow day, lying in bed, just tending to them when they need help, which is still quite a bit, as they are only 3.5 years old.

When I get PICC lines they call it "medicine in my arm" and they know they spend a lot of time with relatives who have more energy than mama. But it makes my good days all the more sweet. They never question my vest/neb rituals, in fact they probably think all moms have to do this three times a day. It will be interesting when they figure out their mom is different from their friends' moms. I guess you can say at this age we use distraction as a technique to alleviate their fears of mama being sick. We keep them busy with activities. Their lives go on as normal and mama just stays at home behind sometimes to rest.

As far as what I can expect to see them do in the future, I certainly live like I expect to see it all. From the first day at kindergarten to college graduation to grandbabies. I can't pinpoint when I will die so I don't dwell on it. Everyone is dying from the moment they are born and some of us just have to work extra hard to survive. My whole world was rocked upside down when my dad died suddenly from a heart attack when I was 23 years old. It wasn't "supposed" to happen so as far as I'm concerned, I may as well outlive my own children because that isn't supposed to happen either.

tara · May 2, 2008

My little guys are not old enough to answer this question themselves. They are very curious and aware when I get sick, especially when I have to go into the hospital. We watch a lot of movies when I'm sick and they seem to understand, never pushing me to do more, when I just need to have a slow day, lying in bed, just tending to them when they need help, which is still quite a bit, as they are only 3.5 years old.

When I get PICC lines they call it "medicine in my arm" and they know they spend a lot of time with relatives who have more energy than mama. But it makes my good days all the more sweet. They never question my vest/neb rituals, in fact they probably think all moms have to do this three times a day. It will be interesting when they figure out their mom is different from their friends' moms. I guess you can say at this age we use distraction as a technique to alleviate their fears of mama being sick. We keep them busy with activities. Their lives go on as normal and mama just stays at home behind sometimes to rest.

As far as what I can expect to see them do in the future, I certainly live like I expect to see it all. From the first day at kindergarten to college graduation to grandbabies. I can't pinpoint when I will die so I don't dwell on it. Everyone is dying from the moment they are born and some of us just have to work extra hard to survive. My whole world was rocked upside down when my dad died suddenly from a heart attack when I was 23 years old. It wasn't "supposed" to happen so as far as I'm concerned, I may as well outlive my own children because that isn't supposed to happen either.

tara · May 2, 2008

My little guys are not old enough to answer this question themselves. They are very curious and aware when I get sick, especially when I have to go into the hospital. We watch a lot of movies when I'm sick and they seem to understand, never pushing me to do more, when I just need to have a slow day, lying in bed, just tending to them when they need help, which is still quite a bit, as they are only 3.5 years old.

When I get PICC lines they call it "medicine in my arm" and they know they spend a lot of time with relatives who have more energy than mama. But it makes my good days all the more sweet. They never question my vest/neb rituals, in fact they probably think all moms have to do this three times a day. It will be interesting when they figure out their mom is different from their friends' moms. I guess you can say at this age we use distraction as a technique to alleviate their fears of mama being sick. We keep them busy with activities. Their lives go on as normal and mama just stays at home behind sometimes to rest.

As far as what I can expect to see them do in the future, I certainly live like I expect to see it all. From the first day at kindergarten to college graduation to grandbabies. I can't pinpoint when I will die so I don't dwell on it. Everyone is dying from the moment they are born and some of us just have to work extra hard to survive. My whole world was rocked upside down when my dad died suddenly from a heart attack when I was 23 years old. It wasn't "supposed" to happen so as far as I'm concerned, I may as well outlive my own children because that isn't supposed to happen either.

tara · May 2, 2008

My little guys are not old enough to answer this question themselves. They are very curious and aware when I get sick, especially when I have to go into the hospital. We watch a lot of movies when I'm sick and they seem to understand, never pushing me to do more, when I just need to have a slow day, lying in bed, just tending to them when they need help, which is still quite a bit, as they are only 3.5 years old.

When I get PICC lines they call it "medicine in my arm" and they know they spend a lot of time with relatives who have more energy than mama. But it makes my good days all the more sweet. They never question my vest/neb rituals, in fact they probably think all moms have to do this three times a day. It will be interesting when they figure out their mom is different from their friends' moms. I guess you can say at this age we use distraction as a technique to alleviate their fears of mama being sick. We keep them busy with activities. Their lives go on as normal and mama just stays at home behind sometimes to rest.

As far as what I can expect to see them do in the future, I certainly live like I expect to see it all. From the first day at kindergarten to college graduation to grandbabies. I can't pinpoint when I will die so I don't dwell on it. Everyone is dying from the moment they are born and some of us just have to work extra hard to survive. My whole world was rocked upside down when my dad died suddenly from a heart attack when I was 23 years old. It wasn't "supposed" to happen so as far as I'm concerned, I may as well outlive my own children because that isn't supposed to happen either.

tara · May 2, 2008

My little guys are not old enough to answer this question themselves. They are very curious and aware when I get sick, especially when I have to go into the hospital. We watch a lot of movies when I'm sick and they seem to understand, never pushing me to do more, when I just need to have a slow day, lying in bed, just tending to them when they need help, which is still quite a bit, as they are only 3.5 years old.
 
 When I get PICC lines they call it "medicine in my arm" and they know they spend a lot of time with relatives who have more energy than mama. But it makes my good days all the more sweet. They never question my vest/neb rituals, in fact they probably think all moms have to do this three times a day. It will be interesting when they figure out their mom is different from their friends' moms. I guess you can say at this age we use distraction as a technique to alleviate their fears of mama being sick. We keep them busy with activities. Their lives go on as normal and mama just stays at home behind sometimes to rest.
 
 As far as what I can expect to see them do in the future, I certainly live like I expect to see it all. From the first day at kindergarten to college graduation to grandbabies. I can't pinpoint when I will die so I don't dwell on it. Everyone is dying from the moment they are born and some of us just have to work extra hard to survive. My whole world was rocked upside down when my dad died suddenly from a heart attack when I was 23 years old. It wasn't "supposed" to happen so as far as I'm concerned, I may as well outlive my own children because that isn't supposed to happen either.

Kids born to parents with CF

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