Late Diagnosis

Simba15

Simba15

Member
I was diagnosed at age 50 after going to many many many doctors my whole life and no one ever even considering testing me for it!
 
4

4Him2000

New member
did I mention I wake up sometimes and my arms ar numb and tingling . I have tried sleeping in different positions and does not make a difference when it happens.
 
4

4Him2000

New member
did I mention I wake up sometimes and my arms ar numb and tingling . I have tried sleeping in different positions and does not make a difference when it happens.
 
4

4Him2000

New member
did I mention I wake up sometimes and my arms ar numb and tingling . I have tried sleeping in different positions and does not make a difference when it happens.
 
C

CFtori

New member
I was diagnosed with CF Delta 508 at 7 and I'm 13 almost 14. My PFTs are in their middle 80s usually. I have been having trouble keeping weight recently; I lost 5 lbs in just one day. I have been having trouble breathing too. Maybe time for another hospitalization? My PFTs could be in the 60s right now. I wouldn't be surprised. Good luck to all <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
C

CFtori

New member
I was diagnosed with CF Delta 508 at 7 and I'm 13 almost 14. My PFTs are in their middle 80s usually. I have been having trouble keeping weight recently; I lost 5 lbs in just one day. I have been having trouble breathing too. Maybe time for another hospitalization? My PFTs could be in the 60s right now. I wouldn't be surprised. Good luck to all <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
C

CFtori

New member
I was diagnosed with CF Delta 508 at 7 and I'm 13 almost 14. My PFTs are in their middle 80s usually. I have been having trouble keeping weight recently; I lost 5 lbs in just one day. I have been having trouble breathing too. Maybe time for another hospitalization? My PFTs could be in the 60s right now. I wouldn't be surprised. Good luck to all <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
F

fallenarches

New member
For those diagnosed late, are you underweight or maybe not as tall as you should be? We took our daughter to our GP yesterday to do labs for everything but CF. She kept coming back to the fact that DD is normal weight and height and really didn't think CF was a possibility. It would be fantastic if that is true but from looking around the web, that doesn't seem to be a determining factor for people diagnosed later. Our DD is 16.
 
F

fallenarches

New member
For those diagnosed late, are you underweight or maybe not as tall as you should be? We took our daughter to our GP yesterday to do labs for everything but CF. She kept coming back to the fact that DD is normal weight and height and really didn't think CF was a possibility. It would be fantastic if that is true but from looking around the web, that doesn't seem to be a determining factor for people diagnosed later. Our DD is 16.
 
F

fallenarches

New member
For those diagnosed late, are you underweight or maybe not as tall as you should be? We took our daughter to our GP yesterday to do labs for everything but CF. She kept coming back to the fact that DD is normal weight and height and really didn't think CF was a possibility. It would be fantastic if that is true but from looking around the web, that doesn't seem to be a determining factor for people diagnosed later. Our DD is 16.
 
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