I was just reading about how lucky number 13 was and how It made me have goose bumps, I was telling my husband about her story....OMG I did not expect this at all !! My deepest sorrow goes out to Lilith and her family....May you rest in peace and breathe free, You were such an inspiration to all of us.... God bless you!IF I JUST HAD ALL THE MONEY IN THE WORLD I WOULD FIND A CURE FOR THIS HORRIBLE HORRIBLE DISEASE!!