looking for help =/

A

anjules234

New member
i am a 14 year old girl and when i was i 11 my mom died of CF...i want information on how i could help people to understand what CF is....when someone askes me what did your mom die from and i say cystic fibrosis they look at me like i am crazy....i dont think that the public is well infomed about this disease....i want to help!...if any one knows a way for me to get information out there...so the community understands please help me!!....every one knows the pain and suffering of cancer and these other dieases..i just want people to understand this one to.....thank you for listening...i could use all the help i could get right now...sincerly julianna


p.s. i allready visited cff.org && got valuable information =)...but any others sites would help a lot =)
 
A

anjules234

New member
i am a 14 year old girl and when i was i 11 my mom died of CF...i want information on how i could help people to understand what CF is....when someone askes me what did your mom die from and i say cystic fibrosis they look at me like i am crazy....i dont think that the public is well infomed about this disease....i want to help!...if any one knows a way for me to get information out there...so the community understands please help me!!....every one knows the pain and suffering of cancer and these other dieases..i just want people to understand this one to.....thank you for listening...i could use all the help i could get right now...sincerly julianna


p.s. i allready visited cff.org && got valuable information =)...but any others sites would help a lot =)
 
A

anjules234

New member
i am a 14 year old girl and when i was i 11 my mom died of CF...i want information on how i could help people to understand what CF is....when someone askes me what did your mom die from and i say cystic fibrosis they look at me like i am crazy....i dont think that the public is well infomed about this disease....i want to help!...if any one knows a way for me to get information out there...so the community understands please help me!!....every one knows the pain and suffering of cancer and these other dieases..i just want people to understand this one to.....thank you for listening...i could use all the help i could get right now...sincerly julianna


p.s. i allready visited cff.org && got valuable information =)...but any others sites would help a lot =)
 
A

anjules234

New member
i am a 14 year old girl and when i was i 11 my mom died of CF...i want information on how i could help people to understand what CF is....when someone askes me what did your mom die from and i say cystic fibrosis they look at me like i am crazy....i dont think that the public is well infomed about this disease....i want to help!...if any one knows a way for me to get information out there...so the community understands please help me!!....every one knows the pain and suffering of cancer and these other dieases..i just want people to understand this one to.....thank you for listening...i could use all the help i could get right now...sincerly julianna


p.s. i allready visited cff.org && got valuable information =)...but any others sites would help a lot =)
 
A

anjules234

New member
i am a 14 year old girl and when i was i 11 my mom died of CF...i want information on how i could help people to understand what CF is....when someone askes me what did your mom die from and i say cystic fibrosis they look at me like i am crazy....i dont think that the public is well infomed about this disease....i want to help!...if any one knows a way for me to get information out there...so the community understands please help me!!....every one knows the pain and suffering of cancer and these other dieases..i just want people to understand this one to.....thank you for listening...i could use all the help i could get right now...sincerly julianna


p.s. i allready visited cff.org && got valuable information =)...but any others sites would help a lot =)
 
M

Momtana

New member
thank you for wanting to share what you know about CF with others ...... sometimes I shorten the discussion and say I have lung disease, but people seem to want to know more ..... but explaining CF is very involved. Let us know what you find.
I am so sorry that your mother is gone.
 
M

Momtana

New member
thank you for wanting to share what you know about CF with others ...... sometimes I shorten the discussion and say I have lung disease, but people seem to want to know more ..... but explaining CF is very involved. Let us know what you find.
I am so sorry that your mother is gone.
 
M

Momtana

New member
thank you for wanting to share what you know about CF with others ...... sometimes I shorten the discussion and say I have lung disease, but people seem to want to know more ..... but explaining CF is very involved. Let us know what you find.
I am so sorry that your mother is gone.
 
M

Momtana

New member
thank you for wanting to share what you know about CF with others ...... sometimes I shorten the discussion and say I have lung disease, but people seem to want to know more ..... but explaining CF is very involved. Let us know what you find.
I am so sorry that your mother is gone.
 
M

Momtana

New member
thank you for wanting to share what you know about CF with others ...... sometimes I shorten the discussion and say I have lung disease, but people seem to want to know more ..... but explaining CF is very involved. Let us know what you find.
I am so sorry that your mother is gone.
 
M

missT

Member
I think its so sweet that you are trying to spread the word. I still have people look at me like I am crazy when I tell them I have CF. All they really have to do is google "CF" its all there. What I think would be great is if you got involved in the Great Strides...It makes me feel really wonderful to be donating and walking..also I make sure to collect from all my friends who are so curious about CF.<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
M

missT

Member
I think its so sweet that you are trying to spread the word. I still have people look at me like I am crazy when I tell them I have CF. All they really have to do is google "CF" its all there. What I think would be great is if you got involved in the Great Strides...It makes me feel really wonderful to be donating and walking..also I make sure to collect from all my friends who are so curious about CF.<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
M

missT

Member
I think its so sweet that you are trying to spread the word. I still have people look at me like I am crazy when I tell them I have CF. All they really have to do is google "CF" its all there. What I think would be great is if you got involved in the Great Strides...It makes me feel really wonderful to be donating and walking..also I make sure to collect from all my friends who are so curious about CF.<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
M

missT

Member
I think its so sweet that you are trying to spread the word. I still have people look at me like I am crazy when I tell them I have CF. All they really have to do is google "CF" its all there. What I think would be great is if you got involved in the Great Strides...It makes me feel really wonderful to be donating and walking..also I make sure to collect from all my friends who are so curious about CF.<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
M

missT

Member
I think its so sweet that you are trying to spread the word. I still have people look at me like I am crazy when I tell them I have CF. All they really have to do is google "CF" its all there. What I think would be great is if you got involved in the Great Strides...It makes me feel really wonderful to be donating and walking..also I make sure to collect from all my friends who are so curious about CF.<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
J

Jem

New member
Hi Julianna (what a beautiful name your parents gave you!) How very inspiring that you want to educate people on cf. I am sure your mom would be very proud that you want to do this. CF is a difficult disease to explain to people because thankfully it is not a very common one but if you have it or a loved one has it it becomes a huge part of your life. Cf affects a number of organs but it is how it damages the lungs that makes it such a devastating disease. Maybe you could do an upcoming school project on cf (my kids have done that) or like missT has suggested getting involved with Great Strides is a wonderful idea. I am sure your extended family and friends would want to support you by joining in.

Maybe you might like to think of gearing your education as you go along in school to becoming a cf doctor/nurse/respiratory tech etc...we cfers could use smart caring individuals like you partnering with us in our care. Whatever you decide to do...I wish you good luck. Let us know how it goes. <img src="i/expressions/heart.gif" border="0">
 
J

Jem

New member
Hi Julianna (what a beautiful name your parents gave you!) How very inspiring that you want to educate people on cf. I am sure your mom would be very proud that you want to do this. CF is a difficult disease to explain to people because thankfully it is not a very common one but if you have it or a loved one has it it becomes a huge part of your life. Cf affects a number of organs but it is how it damages the lungs that makes it such a devastating disease. Maybe you could do an upcoming school project on cf (my kids have done that) or like missT has suggested getting involved with Great Strides is a wonderful idea. I am sure your extended family and friends would want to support you by joining in.

Maybe you might like to think of gearing your education as you go along in school to becoming a cf doctor/nurse/respiratory tech etc...we cfers could use smart caring individuals like you partnering with us in our care. Whatever you decide to do...I wish you good luck. Let us know how it goes. <img src="i/expressions/heart.gif" border="0">
 
J

Jem

New member
Hi Julianna (what a beautiful name your parents gave you!) How very inspiring that you want to educate people on cf. I am sure your mom would be very proud that you want to do this. CF is a difficult disease to explain to people because thankfully it is not a very common one but if you have it or a loved one has it it becomes a huge part of your life. Cf affects a number of organs but it is how it damages the lungs that makes it such a devastating disease. Maybe you could do an upcoming school project on cf (my kids have done that) or like missT has suggested getting involved with Great Strides is a wonderful idea. I am sure your extended family and friends would want to support you by joining in.

Maybe you might like to think of gearing your education as you go along in school to becoming a cf doctor/nurse/respiratory tech etc...we cfers could use smart caring individuals like you partnering with us in our care. Whatever you decide to do...I wish you good luck. Let us know how it goes. <img src="i/expressions/heart.gif" border="0">
 
J

Jem

New member
Hi Julianna (what a beautiful name your parents gave you!) How very inspiring that you want to educate people on cf. I am sure your mom would be very proud that you want to do this. CF is a difficult disease to explain to people because thankfully it is not a very common one but if you have it or a loved one has it it becomes a huge part of your life. Cf affects a number of organs but it is how it damages the lungs that makes it such a devastating disease. Maybe you could do an upcoming school project on cf (my kids have done that) or like missT has suggested getting involved with Great Strides is a wonderful idea. I am sure your extended family and friends would want to support you by joining in.

Maybe you might like to think of gearing your education as you go along in school to becoming a cf doctor/nurse/respiratory tech etc...we cfers could use smart caring individuals like you partnering with us in our care. Whatever you decide to do...I wish you good luck. Let us know how it goes. <img src="i/expressions/heart.gif" border="0">
 
J

Jem

New member
Hi Julianna (what a beautiful name your parents gave you!) How very inspiring that you want to educate people on cf. I am sure your mom would be very proud that you want to do this. CF is a difficult disease to explain to people because thankfully it is not a very common one but if you have it or a loved one has it it becomes a huge part of your life. Cf affects a number of organs but it is how it damages the lungs that makes it such a devastating disease. Maybe you could do an upcoming school project on cf (my kids have done that) or like missT has suggested getting involved with Great Strides is a wonderful idea. I am sure your extended family and friends would want to support you by joining in.

Maybe you might like to think of gearing your education as you go along in school to becoming a cf doctor/nurse/respiratory tech etc...we cfers could use smart caring individuals like you partnering with us in our care. Whatever you decide to do...I wish you good luck. Let us know how it goes. <img src="i/expressions/heart.gif" border="0">
 
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