well i got put on the list before they started using the score system, i was on the wait list. a couple years after i listed they changed it so i went from being frozen at the top to the bottom. they never gave me numbers and i didnt know much about the numbers. but i can tell you that when i was transplanted, i was basically top of the country or at least the area i was in. i was lifeflighted to my center on a vent, in a comma while my organs shut down with severe pnemonia, cepacia, and a co2 level well above 140. if that helps clear it up.
i was actually so bad that when lungs came in they debated not to transplant me cuz i was too sick but they knew i probably would not survive on the vent long enough to wait for the next set. they decided to go figuring it was my best chance.