holmfamily1992
New member
I posted this on another page. My 10 year old is going for his G-Tube operation on Friday and all of us are a bit scared.
This morning while getting ready for school and I was rounding up socks for the boys, my son, out of no where came to me and asked "mamma, am I going to die?" For the first time in my LIFE I was speechless. I just simply told him "no" but also explained that everone dies at some point. We definately didnt have time to sit down and talk and even if we did, Im not sure what I would have said. He must be thinking more and more about this or he wouldnt have said anything. He is the type of kid that doesnt know how to put his feelings into words. When he was bit by a friends dog in the face we had to seek treatment for him because he was a very angry little boy. All he could think was why is this all happening to him. Then we received the news about CF. So for Dylan these past months have been very hard for him. He hated going to treatments and would cry all the way there. I believe that talking to someone he didnt know about his fears actually hindered his healing. We started doing what she would do at home and pulled him out of it.
But this is different. We share his same fears. Is he scared about surgery? Does he know enough about this disease and does he think he may die young? We need help thats for sure. My heart breaks so much for him and I am sure you guys know exactly what I mean. I am sure he looks at the other siblings with CF and wonders why this isnt happening to them?? We have talked about how this is different for everyone and just because they arent going through it now with him doesnt ever mean they wont. BUT it doesnt mean they will either.
This is way to complex for a child to understand. All he knows is that he is sick. Thats how he puts it. My husband and I plan on talking to him on our long drive down state. Thats about the only time when we cant be interupted.
Has anyone had to go through this with your child and what did you say?? How can I talk to him without becoming blubbering fool??
<img src="i/expressions/face-icon-small-sad.gif" border="0"> Tina
This morning while getting ready for school and I was rounding up socks for the boys, my son, out of no where came to me and asked "mamma, am I going to die?" For the first time in my LIFE I was speechless. I just simply told him "no" but also explained that everone dies at some point. We definately didnt have time to sit down and talk and even if we did, Im not sure what I would have said. He must be thinking more and more about this or he wouldnt have said anything. He is the type of kid that doesnt know how to put his feelings into words. When he was bit by a friends dog in the face we had to seek treatment for him because he was a very angry little boy. All he could think was why is this all happening to him. Then we received the news about CF. So for Dylan these past months have been very hard for him. He hated going to treatments and would cry all the way there. I believe that talking to someone he didnt know about his fears actually hindered his healing. We started doing what she would do at home and pulled him out of it.
But this is different. We share his same fears. Is he scared about surgery? Does he know enough about this disease and does he think he may die young? We need help thats for sure. My heart breaks so much for him and I am sure you guys know exactly what I mean. I am sure he looks at the other siblings with CF and wonders why this isnt happening to them?? We have talked about how this is different for everyone and just because they arent going through it now with him doesnt ever mean they wont. BUT it doesnt mean they will either.
This is way to complex for a child to understand. All he knows is that he is sick. Thats how he puts it. My husband and I plan on talking to him on our long drive down state. Thats about the only time when we cant be interupted.
Has anyone had to go through this with your child and what did you say?? How can I talk to him without becoming blubbering fool??
<img src="i/expressions/face-icon-small-sad.gif" border="0"> Tina