Hi All
sorry i didn't post this past few days. I've been in the hospital. My lungfunction is still all over the place. Sometimes it's between the ranges of what is considered ok but sometimes it's lower.. So i was admitted on friday but send to the hotel yesterday (sunday) because the hotel was already booked for me to stay in from sunday. I have my 6 month post tx tests this week so will be staying till thursday. I could go to the hotel cause i don't get any extra treatment and they just wanted to monitor me, when something is up i only have to cross the street to be in the ER.
No news means good news about Marie, you are right Laura.
She is still doing ok. I haven't talked to her for a few days but did get plenty of messages hehe. She still has problems sleeping but she was given extra sleeping meds yesterday, so hopefully she's had a better night. She has something with her legs but they think that is related to the epidural she in her back for the painmanagement, hopefully that will get better too. She is on cpap sometimes, she told me yesterday, that gave me a bit of a scare.. But all was ok, it's to help the lungs expand more she said. She hates the thing but if it helps<img src="i/expressions/face-icon-small-smile.gif" border="0">
Can't think of other news now.. I'lll try to post again when i know something.
Laura, Manda, ehm anyone <img src="i/expressions/face-icon-small-wink.gif" border="0">could you maybe post this update on cf2chat?
Thanks!
Love, Marjolein