Maybe our breastmilk isn't so normal afterall?

S

Scarlett81

New member
it would be interesting if there were a way to test breastmilk's levels to compare. theoretically, i'd say its equally possible that it could be a vitamin deficiency in the milk due to moms cf, or baby's inability to absorb the same vitamins.
my family has tons of what the cf world refers to as symptomatic carriers. people with only one mutation that have asthma, reoccuring resp infections, nasal polyps and surgeries, ect...and just off the top of my head I can think of 2 people that have had diagnosed vitamin deficiency.
I hope your checkup goes well on Tues. I'll be in touch about it!

I'm going to google Rickets as I know little about it.

I also declined the trivisol bc I didn't like the way the A was produced. Its basically a very low quality vitamin and has artificial fillers in it. Id rather wait till shes older and give her a good quality multi. And I hold out hope that our milk has all nature intended baby to need. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

Scarlett81

New member
it would be interesting if there were a way to test breastmilk's levels to compare. theoretically, i'd say its equally possible that it could be a vitamin deficiency in the milk due to moms cf, or baby's inability to absorb the same vitamins.
my family has tons of what the cf world refers to as symptomatic carriers. people with only one mutation that have asthma, reoccuring resp infections, nasal polyps and surgeries, ect...and just off the top of my head I can think of 2 people that have had diagnosed vitamin deficiency.
I hope your checkup goes well on Tues. I'll be in touch about it!

I'm going to google Rickets as I know little about it.

I also declined the trivisol bc I didn't like the way the A was produced. Its basically a very low quality vitamin and has artificial fillers in it. Id rather wait till shes older and give her a good quality multi. And I hold out hope that our milk has all nature intended baby to need. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

Scarlett81

New member
it would be interesting if there were a way to test breastmilk's levels to compare. theoretically, i'd say its equally possible that it could be a vitamin deficiency in the milk due to moms cf, or baby's inability to absorb the same vitamins.
my family has tons of what the cf world refers to as symptomatic carriers. people with only one mutation that have asthma, reoccuring resp infections, nasal polyps and surgeries, ect...and just off the top of my head I can think of 2 people that have had diagnosed vitamin deficiency.
I hope your checkup goes well on Tues. I'll be in touch about it!

I'm going to google Rickets as I know little about it.

I also declined the trivisol bc I didn't like the way the A was produced. Its basically a very low quality vitamin and has artificial fillers in it. Id rather wait till shes older and give her a good quality multi. And I hold out hope that our milk has all nature intended baby to need. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

Scarlett81

New member
it would be interesting if there were a way to test breastmilk's levels to compare. theoretically, i'd say its equally possible that it could be a vitamin deficiency in the milk due to moms cf, or baby's inability to absorb the same vitamins.
my family has tons of what the cf world refers to as symptomatic carriers. people with only one mutation that have asthma, reoccuring resp infections, nasal polyps and surgeries, ect...and just off the top of my head I can think of 2 people that have had diagnosed vitamin deficiency.
I hope your checkup goes well on Tues. I'll be in touch about it!

I'm going to google Rickets as I know little about it.

I also declined the trivisol bc I didn't like the way the A was produced. Its basically a very low quality vitamin and has artificial fillers in it. Id rather wait till shes older and give her a good quality multi. And I hold out hope that our milk has all nature intended baby to need. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

Scarlett81

New member
it would be interesting if there were a way to test breastmilk's levels to compare. theoretically, i'd say its equally possible that it could be a vitamin deficiency in the milk due to moms cf, or baby's inability to absorb the same vitamins.
my family has tons of what the cf world refers to as symptomatic carriers. people with only one mutation that have asthma, reoccuring resp infections, nasal polyps and surgeries, ect...and just off the top of my head I can think of 2 people that have had diagnosed vitamin deficiency.
I hope your checkup goes well on Tues. I'll be in touch about it!

I'm going to google Rickets as I know little about it.

I also declined the trivisol bc I didn't like the way the A was produced. Its basically a very low quality vitamin and has artificial fillers in it. Id rather wait till shes older and give her a good quality multi. And I hold out hope that our milk has all nature intended baby to need. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
K

Keepercjr

Guest
Lauren

Sorry Isaac is low in Vit D. I do think it is a huge step to go from "I have CF and my baby is deficient in vit D" to "women with CF may have BM deficient in Vit D".

I hope you can get his D levels up soon. There was a discussion recently on the yahoo group "CF Nutrition" about vit D supplementation and the best ways to go about it. (A CF toddler was deficient in D). Here is one of the responses (I know the malabsorbtion and med parts part don't apply):


"I'm not sure how much magnesium you're giving him daily but perhaps
he's still deficient depending on the magnesium-depleting meds he
takes daily, and depending on his level of malabsorption.

Below are some articles that suggest Mg-deficiency creates Vitamin D
resistance. Mg helps the parathyroid process vitamin D.

1976 PDF Article from American Journal of Clinical Nutrition
<a target=_blank class=ftalternatingbarlinklarge href="http://www.ajcn.org/cgi/reprint/29/8/854.pdf
">http://www.ajcn.org/cgi/reprint/29/8/854.pdf
</a>
1985 Abstract from Journal of Clinical Endocrinology and Metabolism
<a target=_blank class=ftalternatingbarlinklarge href="http://jcem.endojournals.org/cgi/content/abstract/61/5/933
">http://jcem.endojournals.org/c...ent/abstract/61/5/933
</a>
1992 abstract from (I think) a pediatric hospital in Geneva,
Switzerland
<a target=_blank class=ftalternatingbarlinklarge href="http://www.ncbi.nlm.nih.gov/sites/entrez?
">http://www.ncbi.nlm.nih.gov/sites/entrez?
</a>cmd=Retrieve&db=PubMed&list_uids=1331782&dopt=AbstractPlus

Also, you may want to switch to a supplement that contains boron.
Boron helps recalify bones but it also appears to raise vitamin D
levels.

For an easy-to-read explanation go to this site:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.vibranthealth.us/phyto-b-brief.html">http://www.vibranthealth.us/phyto-b-brief.html</a> and scroll down
to "What Boron Does."
 
K

Keepercjr

Guest
Lauren

Sorry Isaac is low in Vit D. I do think it is a huge step to go from "I have CF and my baby is deficient in vit D" to "women with CF may have BM deficient in Vit D".

I hope you can get his D levels up soon. There was a discussion recently on the yahoo group "CF Nutrition" about vit D supplementation and the best ways to go about it. (A CF toddler was deficient in D). Here is one of the responses (I know the malabsorbtion and med parts part don't apply):


"I'm not sure how much magnesium you're giving him daily but perhaps
he's still deficient depending on the magnesium-depleting meds he
takes daily, and depending on his level of malabsorption.

Below are some articles that suggest Mg-deficiency creates Vitamin D
resistance. Mg helps the parathyroid process vitamin D.

1976 PDF Article from American Journal of Clinical Nutrition
<a target=_blank class=ftalternatingbarlinklarge href="http://www.ajcn.org/cgi/reprint/29/8/854.pdf
">http://www.ajcn.org/cgi/reprint/29/8/854.pdf
</a>
1985 Abstract from Journal of Clinical Endocrinology and Metabolism
<a target=_blank class=ftalternatingbarlinklarge href="http://jcem.endojournals.org/cgi/content/abstract/61/5/933
">http://jcem.endojournals.org/c...ent/abstract/61/5/933
</a>
1992 abstract from (I think) a pediatric hospital in Geneva,
Switzerland
<a target=_blank class=ftalternatingbarlinklarge href="http://www.ncbi.nlm.nih.gov/sites/entrez?
">http://www.ncbi.nlm.nih.gov/sites/entrez?
</a>cmd=Retrieve&db=PubMed&list_uids=1331782&dopt=AbstractPlus

Also, you may want to switch to a supplement that contains boron.
Boron helps recalify bones but it also appears to raise vitamin D
levels.

For an easy-to-read explanation go to this site:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.vibranthealth.us/phyto-b-brief.html">http://www.vibranthealth.us/phyto-b-brief.html</a> and scroll down
to "What Boron Does."
 
K

Keepercjr

Guest
Lauren

Sorry Isaac is low in Vit D. I do think it is a huge step to go from "I have CF and my baby is deficient in vit D" to "women with CF may have BM deficient in Vit D".

I hope you can get his D levels up soon. There was a discussion recently on the yahoo group "CF Nutrition" about vit D supplementation and the best ways to go about it. (A CF toddler was deficient in D). Here is one of the responses (I know the malabsorbtion and med parts part don't apply):


"I'm not sure how much magnesium you're giving him daily but perhaps
he's still deficient depending on the magnesium-depleting meds he
takes daily, and depending on his level of malabsorption.

Below are some articles that suggest Mg-deficiency creates Vitamin D
resistance. Mg helps the parathyroid process vitamin D.

1976 PDF Article from American Journal of Clinical Nutrition
<a target=_blank class=ftalternatingbarlinklarge href="http://www.ajcn.org/cgi/reprint/29/8/854.pdf
">http://www.ajcn.org/cgi/reprint/29/8/854.pdf
</a>
1985 Abstract from Journal of Clinical Endocrinology and Metabolism
<a target=_blank class=ftalternatingbarlinklarge href="http://jcem.endojournals.org/cgi/content/abstract/61/5/933
">http://jcem.endojournals.org/c...ent/abstract/61/5/933
</a>
1992 abstract from (I think) a pediatric hospital in Geneva,
Switzerland
<a target=_blank class=ftalternatingbarlinklarge href="http://www.ncbi.nlm.nih.gov/sites/entrez?
">http://www.ncbi.nlm.nih.gov/sites/entrez?
</a>cmd=Retrieve&db=PubMed&list_uids=1331782&dopt=AbstractPlus

Also, you may want to switch to a supplement that contains boron.
Boron helps recalify bones but it also appears to raise vitamin D
levels.

For an easy-to-read explanation go to this site:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.vibranthealth.us/phyto-b-brief.html">http://www.vibranthealth.us/phyto-b-brief.html</a> and scroll down
to "What Boron Does."
 
K

Keepercjr

Guest
Lauren

Sorry Isaac is low in Vit D. I do think it is a huge step to go from "I have CF and my baby is deficient in vit D" to "women with CF may have BM deficient in Vit D".

I hope you can get his D levels up soon. There was a discussion recently on the yahoo group "CF Nutrition" about vit D supplementation and the best ways to go about it. (A CF toddler was deficient in D). Here is one of the responses (I know the malabsorbtion and med parts part don't apply):


"I'm not sure how much magnesium you're giving him daily but perhaps
he's still deficient depending on the magnesium-depleting meds he
takes daily, and depending on his level of malabsorption.

Below are some articles that suggest Mg-deficiency creates Vitamin D
resistance. Mg helps the parathyroid process vitamin D.

1976 PDF Article from American Journal of Clinical Nutrition
<a target=_blank class=ftalternatingbarlinklarge href="http://www.ajcn.org/cgi/reprint/29/8/854.pdf
">http://www.ajcn.org/cgi/reprint/29/8/854.pdf
</a>
1985 Abstract from Journal of Clinical Endocrinology and Metabolism
<a target=_blank class=ftalternatingbarlinklarge href="http://jcem.endojournals.org/cgi/content/abstract/61/5/933
">http://jcem.endojournals.org/c...ent/abstract/61/5/933
</a>
1992 abstract from (I think) a pediatric hospital in Geneva,
Switzerland
<a target=_blank class=ftalternatingbarlinklarge href="http://www.ncbi.nlm.nih.gov/sites/entrez?
">http://www.ncbi.nlm.nih.gov/sites/entrez?
</a>cmd=Retrieve&db=PubMed&list_uids=1331782&dopt=AbstractPlus

Also, you may want to switch to a supplement that contains boron.
Boron helps recalify bones but it also appears to raise vitamin D
levels.

For an easy-to-read explanation go to this site:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.vibranthealth.us/phyto-b-brief.html">http://www.vibranthealth.us/phyto-b-brief.html</a> and scroll down
to "What Boron Does."
 
K

Keepercjr

Guest
Lauren

Sorry Isaac is low in Vit D. I do think it is a huge step to go from "I have CF and my baby is deficient in vit D" to "women with CF may have BM deficient in Vit D".

I hope you can get his D levels up soon. There was a discussion recently on the yahoo group "CF Nutrition" about vit D supplementation and the best ways to go about it. (A CF toddler was deficient in D). Here is one of the responses (I know the malabsorbtion and med parts part don't apply):


"I'm not sure how much magnesium you're giving him daily but perhaps
he's still deficient depending on the magnesium-depleting meds he
takes daily, and depending on his level of malabsorption.

Below are some articles that suggest Mg-deficiency creates Vitamin D
resistance. Mg helps the parathyroid process vitamin D.

1976 PDF Article from American Journal of Clinical Nutrition
<a target=_blank class=ftalternatingbarlinklarge href="http://www.ajcn.org/cgi/reprint/29/8/854.pdf
">http://www.ajcn.org/cgi/reprint/29/8/854.pdf
</a>
1985 Abstract from Journal of Clinical Endocrinology and Metabolism
<a target=_blank class=ftalternatingbarlinklarge href="http://jcem.endojournals.org/cgi/content/abstract/61/5/933
">http://jcem.endojournals.org/c...ent/abstract/61/5/933
</a>
1992 abstract from (I think) a pediatric hospital in Geneva,
Switzerland
<a target=_blank class=ftalternatingbarlinklarge href="http://www.ncbi.nlm.nih.gov/sites/entrez?
">http://www.ncbi.nlm.nih.gov/sites/entrez?
</a>cmd=Retrieve&db=PubMed&list_uids=1331782&dopt=AbstractPlus

Also, you may want to switch to a supplement that contains boron.
Boron helps recalify bones but it also appears to raise vitamin D
levels.

For an easy-to-read explanation go to this site:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.vibranthealth.us/phyto-b-brief.html">http://www.vibranthealth.us/phyto-b-brief.html</a> and scroll down
to "What Boron Does."
 
L

LouLou

New member
Caroline, When you say "a huge step" do you mean for me emotionally or the concept in general? I personally don't think it would be "a huge step" considering 1) most bm is low in Vit D and 2) how many cf mom's do you know that have had their bm vitamin levels checked?

Great links. Thanks for the advice. I seem to be one step ahead of all medical problems lately which I guess I should be happy about but I can't wait to stop making "discoveries."
 
L

LouLou

New member
Caroline, When you say "a huge step" do you mean for me emotionally or the concept in general? I personally don't think it would be "a huge step" considering 1) most bm is low in Vit D and 2) how many cf mom's do you know that have had their bm vitamin levels checked?

Great links. Thanks for the advice. I seem to be one step ahead of all medical problems lately which I guess I should be happy about but I can't wait to stop making "discoveries."
 
L

LouLou

New member
Caroline, When you say "a huge step" do you mean for me emotionally or the concept in general? I personally don't think it would be "a huge step" considering 1) most bm is low in Vit D and 2) how many cf mom's do you know that have had their bm vitamin levels checked?

Great links. Thanks for the advice. I seem to be one step ahead of all medical problems lately which I guess I should be happy about but I can't wait to stop making "discoveries."
 
L

LouLou

New member
Caroline, When you say "a huge step" do you mean for me emotionally or the concept in general? I personally don't think it would be "a huge step" considering 1) most bm is low in Vit D and 2) how many cf mom's do you know that have had their bm vitamin levels checked?

Great links. Thanks for the advice. I seem to be one step ahead of all medical problems lately which I guess I should be happy about but I can't wait to stop making "discoveries."
 
L

LouLou

New member
Caroline, When you say "a huge step" do you mean for me emotionally or the concept in general? I personally don't think it would be "a huge step" considering 1) most bm is low in Vit D and 2) how many cf mom's do you know that have had their bm vitamin levels checked?

Great links. Thanks for the advice. I seem to be one step ahead of all medical problems lately which I guess I should be happy about but I can't wait to stop making "discoveries."
 
M

mom2lillian

New member
does anyone know of a way we can get our BM tested? There is a local milk bank here but they wont take mine since I take medicine so even if they did test I bet they wouldnt help me out.

I have had my vitamin levels checked multiple times while BF to make sure it was ok so woudl there be a reason why when my vitamin levels are normal I would not have a 'normal' amount in my breastmilk (which is substandard as mentioned but hopefully not 'less than substandard'). That being said, living in MI I dont get enough sun this time of year so I have been cotinuing to supplement my calcium and vitamin D levels in hopes it will help and on occasions--like maybe 1x week giving trivisol.

Lauren-what are the signs of rickets you have noticed?
 
M

mom2lillian

New member
does anyone know of a way we can get our BM tested? There is a local milk bank here but they wont take mine since I take medicine so even if they did test I bet they wouldnt help me out.

I have had my vitamin levels checked multiple times while BF to make sure it was ok so woudl there be a reason why when my vitamin levels are normal I would not have a 'normal' amount in my breastmilk (which is substandard as mentioned but hopefully not 'less than substandard'). That being said, living in MI I dont get enough sun this time of year so I have been cotinuing to supplement my calcium and vitamin D levels in hopes it will help and on occasions--like maybe 1x week giving trivisol.

Lauren-what are the signs of rickets you have noticed?
 
M

mom2lillian

New member
does anyone know of a way we can get our BM tested? There is a local milk bank here but they wont take mine since I take medicine so even if they did test I bet they wouldnt help me out.

I have had my vitamin levels checked multiple times while BF to make sure it was ok so woudl there be a reason why when my vitamin levels are normal I would not have a 'normal' amount in my breastmilk (which is substandard as mentioned but hopefully not 'less than substandard'). That being said, living in MI I dont get enough sun this time of year so I have been cotinuing to supplement my calcium and vitamin D levels in hopes it will help and on occasions--like maybe 1x week giving trivisol.

Lauren-what are the signs of rickets you have noticed?
 
M

mom2lillian

New member
does anyone know of a way we can get our BM tested? There is a local milk bank here but they wont take mine since I take medicine so even if they did test I bet they wouldnt help me out.

I have had my vitamin levels checked multiple times while BF to make sure it was ok so woudl there be a reason why when my vitamin levels are normal I would not have a 'normal' amount in my breastmilk (which is substandard as mentioned but hopefully not 'less than substandard'). That being said, living in MI I dont get enough sun this time of year so I have been cotinuing to supplement my calcium and vitamin D levels in hopes it will help and on occasions--like maybe 1x week giving trivisol.

Lauren-what are the signs of rickets you have noticed?
 
M

mom2lillian

New member
does anyone know of a way we can get our BM tested? There is a local milk bank here but they wont take mine since I take medicine so even if they did test I bet they wouldnt help me out.

I have had my vitamin levels checked multiple times while BF to make sure it was ok so woudl there be a reason why when my vitamin levels are normal I would not have a 'normal' amount in my breastmilk (which is substandard as mentioned but hopefully not 'less than substandard'). That being said, living in MI I dont get enough sun this time of year so I have been cotinuing to supplement my calcium and vitamin D levels in hopes it will help and on occasions--like maybe 1x week giving trivisol.

Lauren-what are the signs of rickets you have noticed?
 
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