Men with CF

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Kristen

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>manyx</b></i>

So you already have 2 children, but you want more?
Don't you know the world will be overpopulated soon and the natural resources will run out? Can't you stop being ignorant and selfish for a second and start thinking that you aren't doing anyone any good by making babies like a factory, especially potentially defective ones?
I have CF because when I was born there was no way for my parents to know beforehand if their children will have CF or not, and they probably didn't even know they were carriers , but I would have hated them if I thought they knew but still had children.

You're potentially condemning them to a life of having children with a horrible genetic disorder-- think about that. If they ever want to have children, it will NEVER be a simple, natural, beautiful process for them. They will always have to worry, or go through lengthy genetic testing, or be unable to have children with their chosen partner. If given the choice, I don't think anyone would choose that life. You have to think about what these potential people would want-- not your own selfish desire to have MORE children.</end quote><br><br>One post on this forum, and it's extremely inflammatory? I smell a troll. <br>
 
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SarahProcter

Guest
Speaking as a carrier, not a person with CF, I am quite glad that I was born -- manyx indicates that a person would hate to have a life where they could not reproduce without genetic testing and/or worry and/or IVF/PGD etc. As a person with that life, I personally do not hate my life and am glad that I was born. Just another voice because it seems like manyx may not realize that these are very personal feelings, rather than objective absolutes that are the same for everyone.
 
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SarahProcter

Guest
Speaking as a carrier, not a person with CF, I am quite glad that I was born -- manyx indicates that a person would hate to have a life where they could not reproduce without genetic testing and/or worry and/or IVF/PGD etc. As a person with that life, I personally do not hate my life and am glad that I was born. Just another voice because it seems like manyx may not realize that these are very personal feelings, rather than objective absolutes that are the same for everyone.
 
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SarahProcter

Guest
Speaking as a carrier, not a person with CF, I am quite glad that I was born -- manyx indicates that a person would hate to have a life where they could not reproduce without genetic testing and/or worry and/or IVF/PGD etc. As a person with that life, I personally do not hate my life and am glad that I was born. Just another voice because it seems like manyx may not realize that these are very personal feelings, rather than objective absolutes that are the same for everyone.
 
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dasjsmum

New member
I think that you should go ahead and have children if possible. It is entirely your decision. Apparently as someone stated above you can have sperm taken from your husband and you would have to undergo an IVF procedure.

It's ridiculous to think that having a child who is a carrier should be a reason not to have children....sounds like some kind of Arian nation....'lets get rid of the genetic misfits'....oh okay, lets also not have children who may be gentically predisposed to heart attack, or diabetes, or cancer etc.

Your husband can have children but most likely not without medical intervention for you both (because as someone said, the vas deferens is usually missing with cf males). If you are both prepared to undergo the procedures go for it <img src="i/expressions/face-icon-small-smile.gif" border="0">

I would also encourage you to ignore the post above regarding over populating the world (I have four children oh dear).
 
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dasjsmum

New member
I think that you should go ahead and have children if possible. It is entirely your decision. Apparently as someone stated above you can have sperm taken from your husband and you would have to undergo an IVF procedure.

It's ridiculous to think that having a child who is a carrier should be a reason not to have children....sounds like some kind of Arian nation....'lets get rid of the genetic misfits'....oh okay, lets also not have children who may be gentically predisposed to heart attack, or diabetes, or cancer etc.

Your husband can have children but most likely not without medical intervention for you both (because as someone said, the vas deferens is usually missing with cf males). If you are both prepared to undergo the procedures go for it <img src="i/expressions/face-icon-small-smile.gif" border="0">

I would also encourage you to ignore the post above regarding over populating the world (I have four children oh dear).
 
D

dasjsmum

New member
I think that you should go ahead and have children if possible. It is entirely your decision. Apparently as someone stated above you can have sperm taken from your husband and you would have to undergo an IVF procedure.

It's ridiculous to think that having a child who is a carrier should be a reason not to have children....sounds like some kind of Arian nation....'lets get rid of the genetic misfits'....oh okay, lets also not have children who may be gentically predisposed to heart attack, or diabetes, or cancer etc.

Your husband can have children but most likely not without medical intervention for you both (because as someone said, the vas deferens is usually missing with cf males). If you are both prepared to undergo the procedures go for it <img src="i/expressions/face-icon-small-smile.gif" border="0">

I would also encourage you to ignore the post above regarding over populating the world (I have four children oh dear).
 
A

alegris

Guest
<br>Frig, it's posts like this that deter me from resonding as often as I would like. The guy just asked a question. That's all. Can't we answer him without flying off the handle and preaching about what we believe is right or wrong? Frig!So anyways, to answer the original question, I have never heard of a male with the DDF508 mutations fathering a child naturally due to the whole absence of the vas deferens thing. However I have heard of aCF patientat the clinic I used to attend having children naturally. He did however have two of the less severe gene mutations. I'm not sure which ones but it is definitely possible.
 
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alegris

Guest
<br>Frig, it's posts like this that deter me from resonding as often as I would like. The guy just asked a question. That's all. Can't we answer him without flying off the handle and preaching about what we believe is right or wrong? Frig!So anyways, to answer the original question, I have never heard of a male with the DDF508 mutations fathering a child naturally due to the whole absence of the vas deferens thing. However I have heard of aCF patientat the clinic I used to attend having children naturally. He did however have two of the less severe gene mutations. I'm not sure which ones but it is definitely possible.
 
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alegris

Guest
<br>Frig, it's posts like this that deter me from resonding as often as I would like. The guy just asked a question. That's all. Can't we answer him without flying off the handle and preaching about what we believe is right or wrong? Frig!So anyways, to answer the original question, I have never heard of a male with the DDF508 mutations fathering a child naturally due to the whole absence of the vas deferens thing. However I have heard of aCF patientat the clinic I used to attend having children naturally. He did however have two of the less severe gene mutations. I'm not sure which ones but it is definitely possible.
 
J

julie

New member
There was a man on this site, Steve who had DDF508 and fathered a child naturally.

the statistic is 98% of men with CF have congenital bilateral absence of the vas deferens (CBAVD).

There are several sperm retrieval methods used, the most expensive being MESA and the cheapest (and one we used) called NSA (non surgical sperm aspiration).

Before you pay $$$$ to see a urologist, have your FAMILY PRACTICE DOCTOR run a semen sample... most fp offices do this.

Hope this helps, and feel free to email me with any IVF procedure questions!
 
J

julie

New member
There was a man on this site, Steve who had DDF508 and fathered a child naturally.

the statistic is 98% of men with CF have congenital bilateral absence of the vas deferens (CBAVD).

There are several sperm retrieval methods used, the most expensive being MESA and the cheapest (and one we used) called NSA (non surgical sperm aspiration).

Before you pay $$$$ to see a urologist, have your FAMILY PRACTICE DOCTOR run a semen sample... most fp offices do this.

Hope this helps, and feel free to email me with any IVF procedure questions!
 
J

julie

New member
There was a man on this site, Steve who had DDF508 and fathered a child naturally.

the statistic is 98% of men with CF have congenital bilateral absence of the vas deferens (CBAVD).

There are several sperm retrieval methods used, the most expensive being MESA and the cheapest (and one we used) called NSA (non surgical sperm aspiration).

Before you pay $$$$ to see a urologist, have your FAMILY PRACTICE DOCTOR run a semen sample... most fp offices do this.

Hope this helps, and feel free to email me with any IVF procedure questions!
 
A

Allansarmy

Guest
I know of 2 men that are friends my wife and myself. I am unsure which mutations they have, 1 has a double lung transplant and they both have children in the natural since. I know its a rare occurrence which I found out in a waiting room from a woman in the CF waiting room, which found it important to share this with me. But its still possible. I see Havoc's point of view as well, but in the end it will be up to the parents if they want to bring life into the world or not.
 
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Allansarmy

Guest
I know of 2 men that are friends my wife and myself. I am unsure which mutations they have, 1 has a double lung transplant and they both have children in the natural since. I know its a rare occurrence which I found out in a waiting room from a woman in the CF waiting room, which found it important to share this with me. But its still possible. I see Havoc's point of view as well, but in the end it will be up to the parents if they want to bring life into the world or not.
 
A

Allansarmy

Guest
I know of 2 men that are friends my wife and myself. I am unsure which mutations they have, 1 has a double lung transplant and they both have children in the natural since. I know its a rare occurrence which I found out in a waiting room from a woman in the CF waiting room, which found it important to share this with me. But its still possible. I see Havoc's point of view as well, but in the end it will be up to the parents if they want to bring life into the world or not.
 
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cfgf28

Guest
Thanks Everyone for your answers!!! if we do decide to try I'll let ya know how it goes...
 
C

cfgf28

Guest
Thanks Everyone for your answers!!! if we do decide to try I'll let ya know how it goes...
 
C

cfgf28

Guest
Thanks Everyone for your answers!!! if we do decide to try I'll let ya know how it goes...
 
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