Mild and Rare Cases...where are you?

[mom2lillian]

mild case just means where your FEV1 is about 80% technically everyoen starts off mild. SOme docs use this term for those of us with 'atypical' diagnosis or prognosis though there really are not guidelines on this.

If you have two mutated genes then you have CF. You can clarify with your ENT what he means by a variant. He probably asked this because you dont fit into the realm of the 'normal' stereotype case--this happens to me all the time with docs questioning my status so I take the opportunity to give them a little lesson on CF 101+ which is just basically me educating htem on the possibilities outside of the 'norm' that they are used to reading about and my case etc.

 

[mom2lillian]

mild case just means where your FEV1 is about 80% technically everyoen starts off mild. SOme docs use this term for those of us with 'atypical' diagnosis or prognosis though there really are not guidelines on this.

If you have two mutated genes then you have CF. You can clarify with your ENT what he means by a variant. He probably asked this because you dont fit into the realm of the 'normal' stereotype case--this happens to me all the time with docs questioning my status so I take the opportunity to give them a little lesson on CF 101+ which is just basically me educating htem on the possibilities outside of the 'norm' that they are used to reading about and my case etc.

 

[lmattaway]

If only I had a nickel for every time I have had to explain CF to a doctor I've seen... <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[lmattaway]

If only I had a nickel for every time I have had to explain CF to a doctor I've seen... <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[lmattaway]

If only I had a nickel for every time I have had to explain CF to a doctor I've seen... <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[lmattaway]

If only I had a nickel for every time I have had to explain CF to a doctor I've seen... <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[lmattaway]

If only I had a nickel for every time I have had to explain CF to a doctor I've seen... <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[lmattaway]

If only I had a nickel for every time I have had to explain CF to a doctor I've seen... <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[KatieNC]

I'd have to agree with Lindsay... running is so much more productive for me than the Vest (not to mention that I HATE that thing!), running helps be cough up more AND makes me happier.
And Lindsay, I totally hear you, sometimes I feel like I don't belong. I'm well educated and on top of my health, but I don't even understand some of the abbreviations that are used on this site! But it still comforts me, there is always someone out there who is older and healthier and that motivates me more than anything.
Congrats on finishing your marathon! I was a cross country runner for years and it has always been a goal of mine.

 

[KatieNC]

I'd have to agree with Lindsay... running is so much more productive for me than the Vest (not to mention that I HATE that thing!), running helps be cough up more AND makes me happier.
And Lindsay, I totally hear you, sometimes I feel like I don't belong. I'm well educated and on top of my health, but I don't even understand some of the abbreviations that are used on this site! But it still comforts me, there is always someone out there who is older and healthier and that motivates me more than anything.
Congrats on finishing your marathon! I was a cross country runner for years and it has always been a goal of mine.

 

[KatieNC]

I'd have to agree with Lindsay... running is so much more productive for me than the Vest (not to mention that I HATE that thing!), running helps be cough up more AND makes me happier.
And Lindsay, I totally hear you, sometimes I feel like I don't belong. I'm well educated and on top of my health, but I don't even understand some of the abbreviations that are used on this site! But it still comforts me, there is always someone out there who is older and healthier and that motivates me more than anything.
Congrats on finishing your marathon! I was a cross country runner for years and it has always been a goal of mine.

 

[KatieNC]

I'd have to agree with Lindsay... running is so much more productive for me than the Vest (not to mention that I HATE that thing!), running helps be cough up more AND makes me happier.
And Lindsay, I totally hear you, sometimes I feel like I don't belong. I'm well educated and on top of my health, but I don't even understand some of the abbreviations that are used on this site! But it still comforts me, there is always someone out there who is older and healthier and that motivates me more than anything.
Congrats on finishing your marathon! I was a cross country runner for years and it has always been a goal of mine.

 

[KatieNC]

I'd have to agree with Lindsay... running is so much more productive for me than the Vest (not to mention that I HATE that thing!), running helps be cough up more AND makes me happier.
And Lindsay, I totally hear you, sometimes I feel like I don't belong. I'm well educated and on top of my health, but I don't even understand some of the abbreviations that are used on this site! But it still comforts me, there is always someone out there who is older and healthier and that motivates me more than anything.
Congrats on finishing your marathon! I was a cross country runner for years and it has always been a goal of mine.

 

[KatieNC]

I'd have to agree with Lindsay... running is so much more productive for me than the Vest (not to mention that I HATE that thing!), running helps be cough up more AND makes me happier.
And Lindsay, I totally hear you, sometimes I feel like I don't belong. I'm well educated and on top of my health, but I don't even understand some of the abbreviations that are used on this site! But it still comforts me, there is always someone out there who is older and healthier and that motivates me more than anything.
Congrats on finishing your marathon! I was a cross country runner for years and it has always been a goal of mine.