Mistaken CF

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LilStrawberyShortness

New member
Hey, just wanted to start another light hearted fourm thinggie <img src="i/expressions/face-icon-small-happy.gif" border="0">

have you ever just told someone you have CF or (Cystic Fibrosis) and they take it the wrong way?

I know people used to think i have AIDS and stuff <img src="i/expressions/face-icon-small-sad.gif" border="0">
 
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Siobhan1985

New member
i've had someone think i had M.S. before! Completely different to C.F. but think they just remembered it was initials of something so went with the first illness that came to mind!
 
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Starfall99

New member
I've gotten the MS confusion too, don't know what was up with that.

One time when the whole anthrax scare was going on I was in a store and was coughing, and a guy nearby looked up and smirked and said "Anthrax?" <img src="i/expressions/face-icon-small-wink.gif" border="0">
 
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LilStrawberyShortness

New member
-shakes my head- i dont get it...maybe they should and maybe they shouldnt..but they people almost ALWAYS seem to know what Asthma is and what AIDs is...why dont they ever know what Cystic Fibrosis is? and i HATE explaining to people cause i dont know what they will think...they should like...teach it in schools or something -shrugs-
 
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anonymous

New member
I get the asthma thing, even some saying asthma is worse cus i dont have "attacks"...Its up to us to get the word out its hard but even telling one person is a start.
 
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ClashPunk82

New member
Ya the asthma I get a lot. I tell people I have CF and they say oh ya I know how you feel I have asthma! <img src="i/expressions/face-icon-small-happy.gif" border="0">

Nicole 22 CF
 
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anonymous

New member
I've had people think I had MS (don't know why) and when I was in high school, alot of people would say " I hear you have some wierd disease or something", sometimes they were trying to be rude, others they weren't. When I'd explain it they always felt like jerks.
Debbie
23 w/ CF
 
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LilStrawberyShortness

New member
psh...people used to make fun of me for it and when i ended up crying they wouldnt care but what do you expect? now...people know it like...some cases shortens your life-span and they make fun of me for that and are like "yeah go kill yourself your going to end up dieing soon enough anyways" <img src="i/expressions/face-icon-small-sad.gif" border="0">
 
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anonymous

New member
You would think there would be more education about CF in schools, afterall, it is the NUMBER ONE GENETIC KILLER!!!
Debbie
23 w/ CF
 
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2sickkids

Guest
People ask if it's a cyst disorder and one of my aunts asked if that makes them my kids "stupid" pple always ask when they will out grow it. Most ppl just don't know much about that don't directly affect them. Thats why I always explain. My grandma didn't know about my kids my parents told her they "just have stomach problems". I said something about it and she had no idea.
 
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Kaitsmom

Guest
yes alot of people (used to be alot of family members) seemed to treat kaits disease as if it were not really anything to be concerned about and that she too would someday grow out of it (like asthma) I think that if people would be more willing to learn about CF they would understand alot better how bad this can be.

thanks
kaitsmom<img src="i/expressions/rose.gif" border="0">
 
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Mockingbird

New member
You're all probably going to hate me, but when i don't really have time to explain CF to someone, I just tell them it's sorta like asthma. =-) I know they are completely different, but it's just something simple so people that people can recognize so they'll understand why i'm coughing or breathing through a neb. When people see me taking enzymes, I just tell them I have trouble digesting my food. =-) Of course, every once in a while, Someone will be talking about CF and they'll say it's just like asthma, and I'll say "Not really" Then they're all like, "But you said it was!" Then I have to admit that I lied. =-)

Jarod
22 w/cf
 
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shamrock

New member
Yeah Jarod I have to agree. Someone would say "oh thats a terrible cough you have there, have you got asthma?" Id end up just saying yeah..sort of! And like that if someone asked what it was I'd just say its kind of like asthma <img src="i/expressions/face-icon-small-blush.gif" border="0">
 
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jaime

New member
One time years ago I had just gotten out of the hospital and I saw someone I knew, she asked me why I was in the hospital and I told her I had CF and was sick. She thought I meant Chronic Fatigue. She was really embarassed when I told her what CF really meant.

It is really irritating when people try to downplay it and act like its no big deal.
 
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LilStrawberyShortness

New member
lol Jarod..i do the same things when im in a bad mood or if i just plain out dont like the person cause i mean, if they dont care about me, why do they all of a sudden care about the REAL me? oO exactly lol
 
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