More kids?

dmarie781 · Dec 1, 2009

Personally I say no way. I love my daughter with all my heart and every breath I take, but to see all the hardships she endures and knowingly have another child to put through this and take that chance, no way. My daughter is 14 and it was pretty smooth sailing for about 12 years. Now it gets harder every year. This year alone we have had three hospitalizations. That means stress on the family because of the illness as well as finicial stress.
We do have 2 non CF children, so that may play a factor in my feelings.
If she was my first I would of looked at adopting.
So many children, so few parents.

dmarie781 · Dec 1, 2009

Personally I say no way. I love my daughter with all my heart and every breath I take, but to see all the hardships she endures and knowingly have another child to put through this and take that chance, no way. My daughter is 14 and it was pretty smooth sailing for about 12 years. Now it gets harder every year. This year alone we have had three hospitalizations. That means stress on the family because of the illness as well as finicial stress.
We do have 2 non CF children, so that may play a factor in my feelings.
If she was my first I would of looked at adopting.
So many children, so few parents.

dmarie781 · Dec 1, 2009

Personally I say no way. I love my daughter with all my heart and every breath I take, but to see all the hardships she endures and knowingly have another child to put through this and take that chance, no way. My daughter is 14 and it was pretty smooth sailing for about 12 years. Now it gets harder every year. This year alone we have had three hospitalizations. That means stress on the family because of the illness as well as finicial stress.
We do have 2 non CF children, so that may play a factor in my feelings.
If she was my first I would of looked at adopting.
So many children, so few parents.

dmarie781 · Dec 1, 2009

Personally I say no way. I love my daughter with all my heart and every breath I take, but to see all the hardships she endures and knowingly have another child to put through this and take that chance, no way. My daughter is 14 and it was pretty smooth sailing for about 12 years. Now it gets harder every year. This year alone we have had three hospitalizations. That means stress on the family because of the illness as well as finicial stress.
We do have 2 non CF children, so that may play a factor in my feelings.
If she was my first I would of looked at adopting.
So many children, so few parents.

dmarie781 · Dec 1, 2009

Personally I say no way. I love my daughter with all my heart and every breath I take, but to see all the hardships she endures and knowingly have another child to put through this and take that chance, no way. My daughter is 14 and it was pretty smooth sailing for about 12 years. Now it gets harder every year. This year alone we have had three hospitalizations. That means stress on the family because of the illness as well as finicial stress.
 We do have 2 non CF children, so that may play a factor in my feelings.
 If she was my first I would of looked at adopting.
 So many children, so few parents.

enaj · Dec 4, 2009

I adopted my son knowing he had cf. Before he came home, I figured that with cf that most of the time things would be very normal, and that chest physio would be a pain in butt, and when things were scary they would be really scary. So far, that has all been what I expected. He is an incredible boy and cf may be a companion in this family but it's not driving the car.

When I was walking out of our clinic one day another mum of a cfer said, "We decided to have another child to show our eldest that cf wasn't the worst thing in the world." It was a passing comment and I'm sure this couple gave their decision a lot of thought. It is true, cf is challenging, serious, and heartbreaking but there is a lot more in this life that will break our hearts. A bit of time hanging around the children's hospital taught me that there are far worse conditions that cf.

enaj · Dec 4, 2009

I adopted my son knowing he had cf. Before he came home, I figured that with cf that most of the time things would be very normal, and that chest physio would be a pain in butt, and when things were scary they would be really scary. So far, that has all been what I expected. He is an incredible boy and cf may be a companion in this family but it's not driving the car.

When I was walking out of our clinic one day another mum of a cfer said, "We decided to have another child to show our eldest that cf wasn't the worst thing in the world." It was a passing comment and I'm sure this couple gave their decision a lot of thought. It is true, cf is challenging, serious, and heartbreaking but there is a lot more in this life that will break our hearts. A bit of time hanging around the children's hospital taught me that there are far worse conditions that cf.

enaj · Dec 4, 2009

I adopted my son knowing he had cf. Before he came home, I figured that with cf that most of the time things would be very normal, and that chest physio would be a pain in butt, and when things were scary they would be really scary. So far, that has all been what I expected. He is an incredible boy and cf may be a companion in this family but it's not driving the car.

When I was walking out of our clinic one day another mum of a cfer said, "We decided to have another child to show our eldest that cf wasn't the worst thing in the world." It was a passing comment and I'm sure this couple gave their decision a lot of thought. It is true, cf is challenging, serious, and heartbreaking but there is a lot more in this life that will break our hearts. A bit of time hanging around the children's hospital taught me that there are far worse conditions that cf.

enaj · Dec 4, 2009

I adopted my son knowing he had cf. Before he came home, I figured that with cf that most of the time things would be very normal, and that chest physio would be a pain in butt, and when things were scary they would be really scary. So far, that has all been what I expected. He is an incredible boy and cf may be a companion in this family but it's not driving the car.

When I was walking out of our clinic one day another mum of a cfer said, "We decided to have another child to show our eldest that cf wasn't the worst thing in the world." It was a passing comment and I'm sure this couple gave their decision a lot of thought. It is true, cf is challenging, serious, and heartbreaking but there is a lot more in this life that will break our hearts. A bit of time hanging around the children's hospital taught me that there are far worse conditions that cf.

enaj · Dec 4, 2009

I adopted my son knowing he had cf. Before he came home, I figured that with cf that most of the time things would be very normal, and that chest physio would be a pain in butt, and when things were scary they would be really scary. So far, that has all been what I expected. He is an incredible boy and cf may be a companion in this family but it's not driving the car.
 
 When I was walking out of our clinic one day another mum of a cfer said, "We decided to have another child to show our eldest that cf wasn't the worst thing in the world." It was a passing comment and I'm sure this couple gave their decision a lot of thought. It is true, cf is challenging, serious, and heartbreaking but there is a lot more in this life that will break our hearts. A bit of time hanging around the children's hospital taught me that there are far worse conditions that cf.

CFHockeyMom · Dec 7, 2009

Getting input from parents of young CFers may not be your best course of action. Remember CF is a progressive disease, therefore parents of young children may paint a more optimisitc picture than those parents that have seen CF through all it's phases. I'm not saying to completely discount their opinions but a weighting factor is certainly in order.

It is true that your next child may not have CF at all, however, the possibility exists and that is what you have to prepare for. After all people don't "prepare" for the best case scenario only the worst. That said, you need to know if you, your spouse, your older child, and your family can handle CF and all it brings emotionally and financially. Having a CF child is hard, don't kid yourself.

I've met many CF parents on here and through our clinic that have burried their infants, toddlers, and children.

Some will argue that even with a non-CF child, you cannot predict the future. There are no guarantees. This is true, however, in those cases the risk was unkown ahead of time. You have knowledge/information on your side. Use it wisely.

CFHockeyMom · Dec 7, 2009

Getting input from parents of young CFers may not be your best course of action. Remember CF is a progressive disease, therefore parents of young children may paint a more optimisitc picture than those parents that have seen CF through all it's phases. I'm not saying to completely discount their opinions but a weighting factor is certainly in order.

It is true that your next child may not have CF at all, however, the possibility exists and that is what you have to prepare for. After all people don't "prepare" for the best case scenario only the worst. That said, you need to know if you, your spouse, your older child, and your family can handle CF and all it brings emotionally and financially. Having a CF child is hard, don't kid yourself.

I've met many CF parents on here and through our clinic that have burried their infants, toddlers, and children.

Some will argue that even with a non-CF child, you cannot predict the future. There are no guarantees. This is true, however, in those cases the risk was unkown ahead of time. You have knowledge/information on your side. Use it wisely.

CFHockeyMom · Dec 7, 2009

Getting input from parents of young CFers may not be your best course of action. Remember CF is a progressive disease, therefore parents of young children may paint a more optimisitc picture than those parents that have seen CF through all it's phases. I'm not saying to completely discount their opinions but a weighting factor is certainly in order.

It is true that your next child may not have CF at all, however, the possibility exists and that is what you have to prepare for. After all people don't "prepare" for the best case scenario only the worst. That said, you need to know if you, your spouse, your older child, and your family can handle CF and all it brings emotionally and financially. Having a CF child is hard, don't kid yourself.

I've met many CF parents on here and through our clinic that have burried their infants, toddlers, and children.

Some will argue that even with a non-CF child, you cannot predict the future. There are no guarantees. This is true, however, in those cases the risk was unkown ahead of time. You have knowledge/information on your side. Use it wisely.

CFHockeyMom · Dec 7, 2009

Getting input from parents of young CFers may not be your best course of action. Remember CF is a progressive disease, therefore parents of young children may paint a more optimisitc picture than those parents that have seen CF through all it's phases. I'm not saying to completely discount their opinions but a weighting factor is certainly in order.

It is true that your next child may not have CF at all, however, the possibility exists and that is what you have to prepare for. After all people don't "prepare" for the best case scenario only the worst. That said, you need to know if you, your spouse, your older child, and your family can handle CF and all it brings emotionally and financially. Having a CF child is hard, don't kid yourself.

I've met many CF parents on here and through our clinic that have burried their infants, toddlers, and children.

Some will argue that even with a non-CF child, you cannot predict the future. There are no guarantees. This is true, however, in those cases the risk was unkown ahead of time. You have knowledge/information on your side. Use it wisely.

CFHockeyMom · Dec 7, 2009

Getting input from parents of young CFers may not be your best course of action. Remember CF is a progressive disease, therefore parents of young children may paint a more optimisitc picture than those parents that have seen CF through all it's phases. I'm not saying to completely discount their opinions but a weighting factor is certainly in order.
 
 It is true that your next child may not have CF at all, however, the possibility exists and that is what you have to prepare for. After all people don't "prepare" for the best case scenario only the worst. That said, you need to know if you, your spouse, your older child, and your family can handle CF and all it brings emotionally and financially. Having a CF child is hard, don't kid yourself.
 
 I've met many CF parents on here and through our clinic that have burried their infants, toddlers, and children.
 
 Some will argue that even with a non-CF child, you cannot predict the future. There are no guarantees. This is true, however, in those cases the risk was unkown ahead of time. You have knowledge/information on your side. Use it wisely.

Sophiesmum · Dec 10, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: strider820

Hi guys,

So, my wife and I found out with our first baby that we're both carriers for CF. Fortunately, our first child (now 18 months) isn't even a carrier, so we're pretty happy about that.

So we're struggling with the idea of having more kids. We both really want more kids of our own, but this whole CF thing has played a major role in our struggle. I was hoping to get a little bit of guidance from people that have CF, and people that have kids with CF. I have a few questions that I'd like to ask to help the ball get rolling.

Should CF be a show-stopper when thinking about having kids?

Does anyone have any experience with our mutations together (D1152H and Delta F508)? How has it presented itself? In the grand scheme of things, was it on any extreme of the CF scale? Is there anything you would want us to know about these mutations (either separate or together)?

How hard is it financially? I have really good health insurance from my work, but even with that, does it take a toll on the wallet?

How hard is it on the family? On your relationship as a couple? On your life, living with CF?

Thank you for any input you can give us. Really, we both want to just say have more kids, and figure it out later if the child has CF, but at the same time, we're so scared.

Joshua H</end quote></div>

Hi Joshua

Very difficult decision.

Our daughter has both DF508 and D1152H. What I can tell you is DF508 is a class 2 mutation and D1152H is a class 4 mutation. Our daughter is pancreatic sufficient (needs no enzymes) and her levels are above 500 so completely normal. Currently she has no real chest problems at all (obviously this can change) but her specialists are very hopeful that she should continue this way due to the class 4 mutation appearing to be dominant.

However, our daughter is only 2 and a half. We did make contact with a lady who carries the same genes and she wasn't diagnosed until her mid thirties and had very little chest problems, she was incredibly healthy.

Obviously each person is different and the class 2 gene could be more dominant for someone else and cause much more problems.

If you wish to discuss anything further feel free to send me a message.

x

Sophiesmum · Dec 10, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: strider820

Hi guys,

So, my wife and I found out with our first baby that we're both carriers for CF. Fortunately, our first child (now 18 months) isn't even a carrier, so we're pretty happy about that.

So we're struggling with the idea of having more kids. We both really want more kids of our own, but this whole CF thing has played a major role in our struggle. I was hoping to get a little bit of guidance from people that have CF, and people that have kids with CF. I have a few questions that I'd like to ask to help the ball get rolling.

Should CF be a show-stopper when thinking about having kids?

Does anyone have any experience with our mutations together (D1152H and Delta F508)? How has it presented itself? In the grand scheme of things, was it on any extreme of the CF scale? Is there anything you would want us to know about these mutations (either separate or together)?

How hard is it financially? I have really good health insurance from my work, but even with that, does it take a toll on the wallet?

How hard is it on the family? On your relationship as a couple? On your life, living with CF?

Thank you for any input you can give us. Really, we both want to just say have more kids, and figure it out later if the child has CF, but at the same time, we're so scared.

Joshua H</end quote></div>

Hi Joshua

Very difficult decision.

Our daughter has both DF508 and D1152H. What I can tell you is DF508 is a class 2 mutation and D1152H is a class 4 mutation. Our daughter is pancreatic sufficient (needs no enzymes) and her levels are above 500 so completely normal. Currently she has no real chest problems at all (obviously this can change) but her specialists are very hopeful that she should continue this way due to the class 4 mutation appearing to be dominant.

However, our daughter is only 2 and a half. We did make contact with a lady who carries the same genes and she wasn't diagnosed until her mid thirties and had very little chest problems, she was incredibly healthy.

Obviously each person is different and the class 2 gene could be more dominant for someone else and cause much more problems.

If you wish to discuss anything further feel free to send me a message.

x

Sophiesmum · Dec 10, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: strider820

Hi guys,

So, my wife and I found out with our first baby that we're both carriers for CF. Fortunately, our first child (now 18 months) isn't even a carrier, so we're pretty happy about that.

So we're struggling with the idea of having more kids. We both really want more kids of our own, but this whole CF thing has played a major role in our struggle. I was hoping to get a little bit of guidance from people that have CF, and people that have kids with CF. I have a few questions that I'd like to ask to help the ball get rolling.

Should CF be a show-stopper when thinking about having kids?

Does anyone have any experience with our mutations together (D1152H and Delta F508)? How has it presented itself? In the grand scheme of things, was it on any extreme of the CF scale? Is there anything you would want us to know about these mutations (either separate or together)?

How hard is it financially? I have really good health insurance from my work, but even with that, does it take a toll on the wallet?

How hard is it on the family? On your relationship as a couple? On your life, living with CF?

Thank you for any input you can give us. Really, we both want to just say have more kids, and figure it out later if the child has CF, but at the same time, we're so scared.

Joshua H</end quote></div>

Hi Joshua

Very difficult decision.

Our daughter has both DF508 and D1152H. What I can tell you is DF508 is a class 2 mutation and D1152H is a class 4 mutation. Our daughter is pancreatic sufficient (needs no enzymes) and her levels are above 500 so completely normal. Currently she has no real chest problems at all (obviously this can change) but her specialists are very hopeful that she should continue this way due to the class 4 mutation appearing to be dominant.

However, our daughter is only 2 and a half. We did make contact with a lady who carries the same genes and she wasn't diagnosed until her mid thirties and had very little chest problems, she was incredibly healthy.

Obviously each person is different and the class 2 gene could be more dominant for someone else and cause much more problems.

If you wish to discuss anything further feel free to send me a message.

x

Sophiesmum · Dec 10, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: strider820

Hi guys,

So, my wife and I found out with our first baby that we're both carriers for CF. Fortunately, our first child (now 18 months) isn't even a carrier, so we're pretty happy about that.

So we're struggling with the idea of having more kids. We both really want more kids of our own, but this whole CF thing has played a major role in our struggle. I was hoping to get a little bit of guidance from people that have CF, and people that have kids with CF. I have a few questions that I'd like to ask to help the ball get rolling.

Should CF be a show-stopper when thinking about having kids?

Does anyone have any experience with our mutations together (D1152H and Delta F508)? How has it presented itself? In the grand scheme of things, was it on any extreme of the CF scale? Is there anything you would want us to know about these mutations (either separate or together)?

How hard is it financially? I have really good health insurance from my work, but even with that, does it take a toll on the wallet?

How hard is it on the family? On your relationship as a couple? On your life, living with CF?

Thank you for any input you can give us. Really, we both want to just say have more kids, and figure it out later if the child has CF, but at the same time, we're so scared.

Joshua H</end quote>

Hi Joshua

Very difficult decision.

Our daughter has both DF508 and D1152H. What I can tell you is DF508 is a class 2 mutation and D1152H is a class 4 mutation. Our daughter is pancreatic sufficient (needs no enzymes) and her levels are above 500 so completely normal. Currently she has no real chest problems at all (obviously this can change) but her specialists are very hopeful that she should continue this way due to the class 4 mutation appearing to be dominant.

However, our daughter is only 2 and a half. We did make contact with a lady who carries the same genes and she wasn't diagnosed until her mid thirties and had very little chest problems, she was incredibly healthy.

Obviously each person is different and the class 2 gene could be more dominant for someone else and cause much more problems.

If you wish to discuss anything further feel free to send me a message.

x

Sophiesmum · Dec 10, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: strider820
 
 Hi guys,
 
 
 
 So, my wife and I found out with our first baby that we're both carriers for CF. Fortunately, our first child (now 18 months) isn't even a carrier, so we're pretty happy about that.
 
 
 
 So we're struggling with the idea of having more kids. We both really want more kids of our own, but this whole CF thing has played a major role in our struggle. I was hoping to get a little bit of guidance from people that have CF, and people that have kids with CF. I have a few questions that I'd like to ask to help the ball get rolling.
 
 
 
 Should CF be a show-stopper when thinking about having kids?
 
 
 
 Does anyone have any experience with our mutations together (D1152H and Delta F508)? How has it presented itself? In the grand scheme of things, was it on any extreme of the CF scale? Is there anything you would want us to know about these mutations (either separate or together)?
 
 
 
 How hard is it financially? I have really good health insurance from my work, but even with that, does it take a toll on the wallet?
 
 
 
 How hard is it on the family? On your relationship as a couple? On your life, living with CF?
 
 
 
 Thank you for any input you can give us. Really, we both want to just say have more kids, and figure it out later if the child has CF, but at the same time, we're so scared.
 
 
 
 Joshua H</end quote>
 
 
 Hi Joshua
 
 Very difficult decision.
 
 Our daughter has both DF508 and D1152H. What I can tell you is DF508 is a class 2 mutation and D1152H is a class 4 mutation. Our daughter is pancreatic sufficient (needs no enzymes) and her levels are above 500 so completely normal. Currently she has no real chest problems at all (obviously this can change) but her specialists are very hopeful that she should continue this way due to the class 4 mutation appearing to be dominant.
 
 However, our daughter is only 2 and a half. We did make contact with a lady who carries the same genes and she wasn't diagnosed until her mid thirties and had very little chest problems, she was incredibly healthy.
 
 Obviously each person is different and the class 2 gene could be more dominant for someone else and cause much more problems.
 
 If you wish to discuss anything further feel free to send me a message.
 
 x

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