Mother of a 10yr old girl with CF - looking for a comrade

Darinsmom · Jul 14, 2007

Hi Melissa,
I can give you my e-mail address- Laurie.Knutsen@comcast.net. I usually chat through the postings but I don't mind giving out my e-mail on here. Is your daughter participating in the Denufosal trial? We might. My son really doesn't want to but we are encouraging him to . He is on Hypertonic Saline every other month and does albueterol and flovent inhalers and pulmozyme twice a day. He also takes zithromax,zyrtec, and singular. What does your daughters treatments comsist of? I can't forget the vest too which is his least favorite.

Have a great weekend!

Laurie
Darin 9 w/CF
Owen 2 w/o CF

Darinsmom · Jul 14, 2007

Hi Melissa,
I can give you my e-mail address- Laurie.Knutsen@comcast.net. I usually chat through the postings but I don't mind giving out my e-mail on here. Is your daughter participating in the Denufosal trial? We might. My son really doesn't want to but we are encouraging him to . He is on Hypertonic Saline every other month and does albueterol and flovent inhalers and pulmozyme twice a day. He also takes zithromax,zyrtec, and singular. What does your daughters treatments comsist of? I can't forget the vest too which is his least favorite.

Have a great weekend!

Laurie
Darin 9 w/CF
Owen 2 w/o CF

vmhoward · Jul 17, 2007

Melissa,

My son is 6 and I understand how lonely it can get because you seem to do everything for your child and lots of things in your life get pushed on the back burner.

The fact is many people just wont understand what you as a Parent of a CF'er go through unless they are a parent of a CF'er also. And being that the kids just cant get together it is difficult to have face to face relationships with other parents.

This site has given me an opportunity to meet other people going through the same things we do daily. It makes me feel a little less alone.

If you need help with posting images or other things on the site and cant find it in the FAQ's feel free to PM me and I will help you out.

Talk to you soon!

vmhoward · Jul 17, 2007

Melissa,

My son is 6 and I understand how lonely it can get because you seem to do everything for your child and lots of things in your life get pushed on the back burner.

The fact is many people just wont understand what you as a Parent of a CF'er go through unless they are a parent of a CF'er also. And being that the kids just cant get together it is difficult to have face to face relationships with other parents.

This site has given me an opportunity to meet other people going through the same things we do daily. It makes me feel a little less alone.

If you need help with posting images or other things on the site and cant find it in the FAQ's feel free to PM me and I will help you out.

Talk to you soon!

vmhoward · Jul 17, 2007

Melissa,

My son is 6 and I understand how lonely it can get because you seem to do everything for your child and lots of things in your life get pushed on the back burner.

The fact is many people just wont understand what you as a Parent of a CF'er go through unless they are a parent of a CF'er also. And being that the kids just cant get together it is difficult to have face to face relationships with other parents.

This site has given me an opportunity to meet other people going through the same things we do daily. It makes me feel a little less alone.

If you need help with posting images or other things on the site and cant find it in the FAQ's feel free to PM me and I will help you out.

Talk to you soon!

vmhoward · Jul 17, 2007

Melissa,

My son is 6 and I understand how lonely it can get because you seem to do everything for your child and lots of things in your life get pushed on the back burner.

The fact is many people just wont understand what you as a Parent of a CF'er go through unless they are a parent of a CF'er also. And being that the kids just cant get together it is difficult to have face to face relationships with other parents.

This site has given me an opportunity to meet other people going through the same things we do daily. It makes me feel a little less alone.

If you need help with posting images or other things on the site and cant find it in the FAQ's feel free to PM me and I will help you out.

Talk to you soon!

vmhoward · Jul 17, 2007

Melissa,

My son is 6 and I understand how lonely it can get because you seem to do everything for your child and lots of things in your life get pushed on the back burner.

The fact is many people just wont understand what you as a Parent of a CF'er go through unless they are a parent of a CF'er also. And being that the kids just cant get together it is difficult to have face to face relationships with other parents.

This site has given me an opportunity to meet other people going through the same things we do daily. It makes me feel a little less alone.

If you need help with posting images or other things on the site and cant find it in the FAQ's feel free to PM me and I will help you out.

Talk to you soon!

vmhoward · Jul 17, 2007

Melissa,

My son is 6 and I understand how lonely it can get because you seem to do everything for your child and lots of things in your life get pushed on the back burner.

The fact is many people just wont understand what you as a Parent of a CF'er go through unless they are a parent of a CF'er also. And being that the kids just cant get together it is difficult to have face to face relationships with other parents.

This site has given me an opportunity to meet other people going through the same things we do daily. It makes me feel a little less alone.

If you need help with posting images or other things on the site and cant find it in the FAQ's feel free to PM me and I will help you out.

Talk to you soon!

cfangel03 · Jul 19, 2007

Hi Melissa,
I meet sooo many people who has CF and have children with CF.
some very sick, some not sick at all.
My daughter is 4 1/2 and has never been hospitalized. Never even the common cold - Knock on wood!
I travel a good part of every year promting my book: Kyle's First Crush, and my next book comes out in October. If you ever have any real life questions about CF, I have met so many people over 40 and doing very well.
I will be your friend!

Leah Orr

cfangel03 · Jul 19, 2007

Hi Melissa,
I meet sooo many people who has CF and have children with CF.
some very sick, some not sick at all.
My daughter is 4 1/2 and has never been hospitalized. Never even the common cold - Knock on wood!
I travel a good part of every year promting my book: Kyle's First Crush, and my next book comes out in October. If you ever have any real life questions about CF, I have met so many people over 40 and doing very well.
I will be your friend!

Leah Orr

cfangel03 · Jul 19, 2007

Hi Melissa,
I meet sooo many people who has CF and have children with CF.
some very sick, some not sick at all.
My daughter is 4 1/2 and has never been hospitalized. Never even the common cold - Knock on wood!
I travel a good part of every year promting my book: Kyle's First Crush, and my next book comes out in October. If you ever have any real life questions about CF, I have met so many people over 40 and doing very well.
I will be your friend!

Leah Orr

cfangel03 · Jul 19, 2007

Hi Melissa,
I meet sooo many people who has CF and have children with CF.
some very sick, some not sick at all.
My daughter is 4 1/2 and has never been hospitalized. Never even the common cold - Knock on wood!
I travel a good part of every year promting my book: Kyle's First Crush, and my next book comes out in October. If you ever have any real life questions about CF, I have met so many people over 40 and doing very well.
I will be your friend!

Leah Orr

cfangel03 · Jul 19, 2007

Hi Melissa,
I meet sooo many people who has CF and have children with CF.
some very sick, some not sick at all.
My daughter is 4 1/2 and has never been hospitalized. Never even the common cold - Knock on wood!
I travel a good part of every year promting my book: Kyle's First Crush, and my next book comes out in October. If you ever have any real life questions about CF, I have met so many people over 40 and doing very well.
I will be your friend!

Leah Orr

cfangel03 · Jul 19, 2007

Hi Melissa,
I meet sooo many people who has CF and have children with CF.
some very sick, some not sick at all.
My daughter is 4 1/2 and has never been hospitalized. Never even the common cold - Knock on wood!
I travel a good part of every year promting my book: Kyle's First Crush, and my next book comes out in October. If you ever have any real life questions about CF, I have met so many people over 40 and doing very well.
I will be your friend!

Leah Orr

Kaitsmom · Jul 23, 2007