Nightwriter,
No, this is what happened.
At the end of September, my weight was 116 pounds, FEV1=64%. Height=4'11".
We took in two very toubled foster children October 6th.
Four weeks later, early November, reported I was sick. My weight dropped to 111 pounds, FEV1=57%. I was placed on two weeks of Cipro 500 mg, three times a day. Still had the kids.
At the end of the two weeks, week before Thanksgiving, I ended up on IVs. I was on Tobramyacin (QD) and Cephapine (BID) for 3 weeks. Hoc up time was 2 hours a day.
Boys left my care December 9th.
Finished IVs December 12th. I was checked at clinic and reported that I wasn't feeling 'like I should'. My FEV1 was now 52%, weight=108. Yet my CF doctor said that it would take more time to get back to where I was because I was so rundown. A sputum culture was taken.
December 22nd - Rushed to clinic with left lung pain and fever of 103. FEV1-49%, Weight-107. An x-ray confirmed pneumonia on both lungs, left lung worse. My sputum culture came back the same as it has for the past 4 years - PA + MRSA. I also had some additional bugs due to the pneumonia, but nothing serious. Was admitted into the hospital. White blood cell count 20,000. Normal-10,000.
December 24th, released on home IVs. Tobramyacin (QD), Cephtazadime (TID), Zyvox (BID). Total infusion time-6 hours daily for a total of 2 weeks. I'm almost halfway through.
I go back to clinic January 13th.
My doctor is sure that I'll get the lung function back since my body was so rundown so quickly. However, I just was curious about what else I can do. I hadn't had pneumonia in at least 6 years so I was shocked. I wasn't even in the hospital for 2.5 years. I can honestly say that I'm finally starting to feel better!!! However, I just was curious what else others,like yourself, would suggest. I am aiming for a close to full recovery by January 13th. Also, I pray that none of the lung function loss is permanent. I would have a hard time forgiving myself...
