Mucus Problems

[thelizardqueen]

I do know what a bronchoscopy is. That being said, I've only ever had one once in my life because of hemoptosis. Again, I'm not sure what docs are doing with the younger generation, but I've never heard of annual bronchs being done.

 

[thelizardqueen]

I do know what a bronchoscopy is. That being said, I've only ever had one once in my life because of hemoptosis. Again, I'm not sure what docs are doing with the younger generation, but I've never heard of annual bronchs being done.

 

[Diana]

Could be an Australian thing! So far it has proved beneficial though. My youngest has her first one booked for 17th Feb. She will be 15 weeks old and it's a bit horrible to see them go under anaesthetic at that age.

 

[Diana]

Could be an Australian thing! So far it has proved beneficial though. My youngest has her first one booked for 17th Feb. She will be 15 weeks old and it's a bit horrible to see them go under anaesthetic at that age.

 

[eli]

Hi to all,

I think the yearly bronchoscopy is an Australian thing. I am from Australia and my daughetrs clinic does them every year until the age of five.
The Doctors say it has proven to be benefitial, in their studies.
My main concern with doing the bronchs, is cross infection with other CF'ERS and actually being in hospital, where Staph is easier contracted.
I don't know maybe i'm just overly concerned, it must be a mum thing.

Regards
Eli<img src="i/expressions/angel.gif" border="0">

 

[eli]

Hi to all,

I think the yearly bronchoscopy is an Australian thing. I am from Australia and my daughetrs clinic does them every year until the age of five.
The Doctors say it has proven to be benefitial, in their studies.
My main concern with doing the bronchs, is cross infection with other CF'ERS and actually being in hospital, where Staph is easier contracted.
I don't know maybe i'm just overly concerned, it must be a mum thing.

Regards
Eli<img src="i/expressions/angel.gif" border="0">

 

[Faust]

Well they can bronch someone all day long, if the cystic already has PA, they will always have PA. Even oregano oil (and other essential oils) won't be able to 100% get rid of PA. When someone cultures and "shows no sign of PA" after whatever treatment to combat PA (even oregano oil), it's because the PA levels are drastically reduced, but not eliminated. You are talking about microscopic life forms with the best place in the human body to hide in.


As far as an annual bronch, no not me. Research in aussie land might show that it is beneficial in early diagnosis means, but the procedure itself is also very invasive, and can cause problems in itself. I've personally never had a bronch, but i've known others who have, and even under anesthetic they have said it completely sucked (some said it was horrible). What is the bronch going to show you besides what common sense, deductive logic, medical training, CF training, and medical personel with experience dealing with CF infection can find on their own? You can go quite a while without colonizing PA as a cystic (I went till I was in my early teens), but once you got it, nothing is going to 100% remove it, it's with you for life. You can only use what works for you to keep your bugs as low as possible.

 

[Faust]

Well they can bronch someone all day long, if the cystic already has PA, they will always have PA. Even oregano oil (and other essential oils) won't be able to 100% get rid of PA. When someone cultures and "shows no sign of PA" after whatever treatment to combat PA (even oregano oil), it's because the PA levels are drastically reduced, but not eliminated. You are talking about microscopic life forms with the best place in the human body to hide in.


As far as an annual bronch, no not me. Research in aussie land might show that it is beneficial in early diagnosis means, but the procedure itself is also very invasive, and can cause problems in itself. I've personally never had a bronch, but i've known others who have, and even under anesthetic they have said it completely sucked (some said it was horrible). What is the bronch going to show you besides what common sense, deductive logic, medical training, CF training, and medical personel with experience dealing with CF infection can find on their own? You can go quite a while without colonizing PA as a cystic (I went till I was in my early teens), but once you got it, nothing is going to 100% remove it, it's with you for life. You can only use what works for you to keep your bugs as low as possible.

 

[thelizardqueen]

I've also been told that a bronch is a very invasive procedure, and that docs don't like doing them unless need be. I had my bronch because I had very bad hemoptosis and wouldn't stop bleeding, so they had to go in and see what was damaged and causing so much blood. Once pseudo is in your lungs, its there for life, there's no getting rid of it.

 

[thelizardqueen]

I've also been told that a bronch is a very invasive procedure, and that docs don't like doing them unless need be. I had my bronch because I had very bad hemoptosis and wouldn't stop bleeding, so they had to go in and see what was damaged and causing so much blood. Once pseudo is in your lungs, its there for life, there's no getting rid of it.

 

[JazzysMom]

I have NEVER had a bronch done & during all the years with hemoptysis & the last few years with the severity of problems, it still wasnt brought up during treatment. I would "assume" that it would be under dire circumstances that my doctor would ask for it. This might be for me only tho it is a ??? I will address next month. I am curious as to why some doctors are so quick to jump on an invasive procedure.

 

[JazzysMom]

I have NEVER had a bronch done & during all the years with hemoptysis & the last few years with the severity of problems, it still wasnt brought up during treatment. I would "assume" that it would be under dire circumstances that my doctor would ask for it. This might be for me only tho it is a ??? I will address next month. I am curious as to why some doctors are so quick to jump on an invasive procedure.

 

[Anonymous1]

My son just had a bronch done about a month back. he has been coughing and the antis werent helping so they wanted to make sure they wernt missing anything. it is not a regular thing done at his clinic, its only done as a last resort..



Melissa mom to dylan 7 nocf and caleb 4wcf

 

[Anonymous1]

My son just had a bronch done about a month back. he has been coughing and the antis werent helping so they wanted to make sure they wernt missing anything. it is not a regular thing done at his clinic, its only done as a last resort..



Melissa mom to dylan 7 nocf and caleb 4wcf

 

[Diana]

ok so I can only assume that the purpose is for young children only as it is the easiest way to get a sputum culture. Adding logic to the equation, Mikayla can now bring up mucus so her bronchs should stop.

I have read though that pseudo can be eliminated in young children if caught early enough? And I was told this by the CF clinic nurse. I guess what backs up this statement a little is that my daughter was culturing pseudo at 5 months old - they treated it aggresively and after 3.5 months repeated the bronch and the results were no sign of the pseudo. After that point she was not required to be on Tobi at all and has only had it for 2 week periods when a cough resulting from the flu etc hasn't resolved after 2 weeks of augmentin/amoxycillin. This has only happened mabe 3 times. She is quite a healthy little girl.

Raises questions I guess. I think I will look into it some more because now I am just curious!

 

[Diana]

ok so I can only assume that the purpose is for young children only as it is the easiest way to get a sputum culture. Adding logic to the equation, Mikayla can now bring up mucus so her bronchs should stop.

I have read though that pseudo can be eliminated in young children if caught early enough? And I was told this by the CF clinic nurse. I guess what backs up this statement a little is that my daughter was culturing pseudo at 5 months old - they treated it aggresively and after 3.5 months repeated the bronch and the results were no sign of the pseudo. After that point she was not required to be on Tobi at all and has only had it for 2 week periods when a cough resulting from the flu etc hasn't resolved after 2 weeks of augmentin/amoxycillin. This has only happened mabe 3 times. She is quite a healthy little girl.

Raises questions I guess. I think I will look into it some more because now I am just curious!

 

[thelizardqueen]

<blockquote>Quote<br><hr><i>Originally posted by: <b>JazzysMom</b></i><br>I would "assume" that it would be under dire circumstances that my doctor would ask for it. This might be for me only tho it is a ??? I will address next month. I am curious as to why some doctors are so quick to jump on an invasive procedure.<hr></blockquote>

I had a bronch done because I was literally coughing up CUPS of blood at a time. My hemoptosis started without reason at the time. I had no prior lung infection, no coughing, etc, so the docs weren't sure why I had started coughing the blood to begine with. That was the very first time I had ever had that sort of episode, and the docs were worried that something was wrong. I was literally coughing up cups for about 2 months straight. The docs were worried that I was lossing to much blood, and wanted to see what it could be in my lungs. Turns out I had a corodid vein that wouldn't close. I had to have an embolization to stop the bleeding.

 

[thelizardqueen]

<blockquote>Quote<br><hr><i>Originally posted by: <b>JazzysMom</b></i><br>I would "assume" that it would be under dire circumstances that my doctor would ask for it. This might be for me only tho it is a ??? I will address next month. I am curious as to why some doctors are so quick to jump on an invasive procedure.<hr></blockquote>

I had a bronch done because I was literally coughing up CUPS of blood at a time. My hemoptosis started without reason at the time. I had no prior lung infection, no coughing, etc, so the docs weren't sure why I had started coughing the blood to begine with. That was the very first time I had ever had that sort of episode, and the docs were worried that something was wrong. I was literally coughing up cups for about 2 months straight. The docs were worried that I was lossing to much blood, and wanted to see what it could be in my lungs. Turns out I had a corodid vein that wouldn't close. I had to have an embolization to stop the bleeding.

 

[anonymous]

Hello
Kait has never had a bronch done and at our last visit a couple of weeks ago, I asked the doctor why. She told me that normally this procedure is done in their older patients and that Kait did not need that done at this time. Also Kait has now cultured pseudomonas for about 4 years now, she didn't culture it her last culture but normally she does, i have always been told that once you have it, you always have it, sometimes it is just dormant for awhile and then you will at some point culture it again. Kait does not always go on antibiotics when she cultures it . Only when she is sick.... like i said she normally cultures pseudomonas so therefore she would always be on antibiotics. Her doctors are pretty aggressive when treating Kait when she is sick but i do know that they do not want her becoming resistant to antibiotics so alot of times it really depends on how Kait is feeling and if she is sick as to whether or not she is being treated for it.

Kaitsmom<img src="i/expressions/rose.gif" border="0">

 

[anonymous]

Hello
Kait has never had a bronch done and at our last visit a couple of weeks ago, I asked the doctor why. She told me that normally this procedure is done in their older patients and that Kait did not need that done at this time. Also Kait has now cultured pseudomonas for about 4 years now, she didn't culture it her last culture but normally she does, i have always been told that once you have it, you always have it, sometimes it is just dormant for awhile and then you will at some point culture it again. Kait does not always go on antibiotics when she cultures it . Only when she is sick.... like i said she normally cultures pseudomonas so therefore she would always be on antibiotics. Her doctors are pretty aggressive when treating Kait when she is sick but i do know that they do not want her becoming resistant to antibiotics so alot of times it really depends on how Kait is feeling and if she is sick as to whether or not she is being treated for it.

Kaitsmom<img src="i/expressions/rose.gif" border="0">