muscle tone in 3-month old

[purplemartin]

My son is 9 months old and is behind on a LOT of his motor skills. At his check up last week, the Pediatrician suggested getting him involved in the "First Steps" program in my hometown for children 0-3 yrs. We will be having our first visit with a therapist this coming Thursday. Anyway, th Ped. suggested that he had most likely fallen behind due to hospital stays and sickness, I also agreed with his theory.

I'd think CF and muscle tone have absolutly nothing to do with each other, except for when the little ones spend a great deal of there baby years in the hospital or being sick. That would be the only link between the two, in my opinion.

 

[marishka]

Did they think Sophia might have had SMA? If so, then you're right, a diagnosis of CF would be a bit of a relief... I have a friend whose granddaughter had sma. When Abby was born and we all started doing research, one of the first things we learned is that there are a lot of things out there that are a whole lot worse than CF. Doesn't make it good, but at least we have a fighting chance, and the CFF has made a lot of progress.

This forum is the best, everyone is so matter of fact and willing to share. I love reading the progress that so many seem to be making. I feel like we are just at the beginning of this journey and it's good to have someone show the way.

 

[marishka]

Did they think Sophia might have had SMA? If so, then you're right, a diagnosis of CF would be a bit of a relief... I have a friend whose granddaughter had sma. When Abby was born and we all started doing research, one of the first things we learned is that there are a lot of things out there that are a whole lot worse than CF. Doesn't make it good, but at least we have a fighting chance, and the CFF has made a lot of progress.

This forum is the best, everyone is so matter of fact and willing to share. I love reading the progress that so many seem to be making. I feel like we are just at the beginning of this journey and it's good to have someone show the way.

 

[marishka]

Did they think Sophia might have had SMA? If so, then you're right, a diagnosis of CF would be a bit of a relief... I have a friend whose granddaughter had sma. When Abby was born and we all started doing research, one of the first things we learned is that there are a lot of things out there that are a whole lot worse than CF. Doesn't make it good, but at least we have a fighting chance, and the CFF has made a lot of progress.

This forum is the best, everyone is so matter of fact and willing to share. I love reading the progress that so many seem to be making. I feel like we are just at the beginning of this journey and it's good to have someone show the way.

 

[sdelorenzo]

The doctors didn't go into too many details about what the muscle breakdown could mean for Sophia. There was only about a day in the hospital where her diagnosis was uncertain. My cousin has a young child with a severe case of muscular dystrophy. It is heartbreaking how challenging the disease is for the child and family. It is such a blessing that my children are able to run with their friends and have a "normal" childhood. And congratuations on your new grandbaby!
Sharon, mom of Sophia, 5 and Jack, 3 both with cf

 

[sdelorenzo]

The doctors didn't go into too many details about what the muscle breakdown could mean for Sophia. There was only about a day in the hospital where her diagnosis was uncertain. My cousin has a young child with a severe case of muscular dystrophy. It is heartbreaking how challenging the disease is for the child and family. It is such a blessing that my children are able to run with their friends and have a "normal" childhood. And congratuations on your new grandbaby!
Sharon, mom of Sophia, 5 and Jack, 3 both with cf

 

[sdelorenzo]

The doctors didn't go into too many details about what the muscle breakdown could mean for Sophia. There was only about a day in the hospital where her diagnosis was uncertain. My cousin has a young child with a severe case of muscular dystrophy. It is heartbreaking how challenging the disease is for the child and family. It is such a blessing that my children are able to run with their friends and have a "normal" childhood. And congratuations on your new grandbaby!
Sharon, mom of Sophia, 5 and Jack, 3 both with cf

 

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