My boyfriend has CF and I'm scared

firefly3000 · Dec 16, 2009

Hi all. I'm 31, my boyfriend of 6 months is 27. He was diagnosed with CF at an early age, but quit going to the doctor for his CF at 16 (his parents allowed him to make this decision). I've been with him for 6 months, and I adore him. I'll stay with him regardless, but what I read about CF scares me so bad. I read about shortened life spans and such. The thing is... I am watching him closely and I don't see any symptoms. He stays with me every weekend (Fri., Sat., and Sun.). He doesn't cough, doesn't exhibit breathing problems, nothing too obvious. I am trying to talk him into seeing a doctor just for a checkup but he is reluctant. I think he doesn't want to know, he's happier in denial (plus he doesn't have insurance). But I love him and I want him here with me as long as possible. I'm just learning about CF and I would really appreciate anyone's help, advice, anything.

firefly3000 · Dec 16, 2009

Hi all. I'm 31, my boyfriend of 6 months is 27. He was diagnosed with CF at an early age, but quit going to the doctor for his CF at 16 (his parents allowed him to make this decision). I've been with him for 6 months, and I adore him. I'll stay with him regardless, but what I read about CF scares me so bad. I read about shortened life spans and such. The thing is... I am watching him closely and I don't see any symptoms. He stays with me every weekend (Fri., Sat., and Sun.). He doesn't cough, doesn't exhibit breathing problems, nothing too obvious. I am trying to talk him into seeing a doctor just for a checkup but he is reluctant. I think he doesn't want to know, he's happier in denial (plus he doesn't have insurance). But I love him and I want him here with me as long as possible. I'm just learning about CF and I would really appreciate anyone's help, advice, anything.

firefly3000 · Dec 16, 2009

Hi all. I'm 31, my boyfriend of 6 months is 27. He was diagnosed with CF at an early age, but quit going to the doctor for his CF at 16 (his parents allowed him to make this decision). I've been with him for 6 months, and I adore him. I'll stay with him regardless, but what I read about CF scares me so bad. I read about shortened life spans and such. The thing is... I am watching him closely and I don't see any symptoms. He stays with me every weekend (Fri., Sat., and Sun.). He doesn't cough, doesn't exhibit breathing problems, nothing too obvious. I am trying to talk him into seeing a doctor just for a checkup but he is reluctant. I think he doesn't want to know, he's happier in denial (plus he doesn't have insurance). But I love him and I want him here with me as long as possible. I'm just learning about CF and I would really appreciate anyone's help, advice, anything.

firefly3000 · Dec 16, 2009

Hi all. I'm 31, my boyfriend of 6 months is 27. He was diagnosed with CF at an early age, but quit going to the doctor for his CF at 16 (his parents allowed him to make this decision). I've been with him for 6 months, and I adore him. I'll stay with him regardless, but what I read about CF scares me so bad. I read about shortened life spans and such. The thing is... I am watching him closely and I don't see any symptoms. He stays with me every weekend (Fri., Sat., and Sun.). He doesn't cough, doesn't exhibit breathing problems, nothing too obvious. I am trying to talk him into seeing a doctor just for a checkup but he is reluctant. I think he doesn't want to know, he's happier in denial (plus he doesn't have insurance). But I love him and I want him here with me as long as possible. I'm just learning about CF and I would really appreciate anyone's help, advice, anything.

firefly3000 · Dec 16, 2009

Hi all. I'm 31, my boyfriend of 6 months is 27. He was diagnosed with CF at an early age, but quit going to the doctor for his CF at 16 (his parents allowed him to make this decision). I've been with him for 6 months, and I adore him. I'll stay with him regardless, but what I read about CF scares me so bad. I read about shortened life spans and such. The thing is... I am watching him closely and I don't see any symptoms. He stays with me every weekend (Fri., Sat., and Sun.). He doesn't cough, doesn't exhibit breathing problems, nothing too obvious. I am trying to talk him into seeing a doctor just for a checkup but he is reluctant. I think he doesn't want to know, he's happier in denial (plus he doesn't have insurance). But I love him and I want him here with me as long as possible. I'm just learning about CF and I would really appreciate anyone's help, advice, anything.

Lex · Dec 16, 2009

I was in the same boat--but from the boyfriend side. I had virtually no symptoms in my 20's but my GF at the time (now wife) insisted that I see a specialist. Well...good thing because I started to take a sudden turn for the worse. I just got a TX last month because my "symptom free" lungs were actually dying slowly. I didn't cough but that was a bad thing. Anyway, my doc set me up with the TX team and the rest is history. In my case, my relationship would not have worked if me and my wife were not on the same page regarding my health. Especially when it came to having kids. She saved my life when she threatened to leave me or go see a doctor. My advice: If you truly love him, give him this ultimatum. It might save his life. Just my opinion. Thanks.

Lex · Dec 16, 2009

I was in the same boat--but from the boyfriend side. I had virtually no symptoms in my 20's but my GF at the time (now wife) insisted that I see a specialist. Well...good thing because I started to take a sudden turn for the worse. I just got a TX last month because my "symptom free" lungs were actually dying slowly. I didn't cough but that was a bad thing. Anyway, my doc set me up with the TX team and the rest is history. In my case, my relationship would not have worked if me and my wife were not on the same page regarding my health. Especially when it came to having kids. She saved my life when she threatened to leave me or go see a doctor. My advice: If you truly love him, give him this ultimatum. It might save his life. Just my opinion. Thanks.

Lex · Dec 16, 2009

I was in the same boat--but from the boyfriend side. I had virtually no symptoms in my 20's but my GF at the time (now wife) insisted that I see a specialist. Well...good thing because I started to take a sudden turn for the worse. I just got a TX last month because my "symptom free" lungs were actually dying slowly. I didn't cough but that was a bad thing. Anyway, my doc set me up with the TX team and the rest is history. In my case, my relationship would not have worked if me and my wife were not on the same page regarding my health. Especially when it came to having kids. She saved my life when she threatened to leave me or go see a doctor. My advice: If you truly love him, give him this ultimatum. It might save his life. Just my opinion. Thanks.

Lex · Dec 16, 2009

I was in the same boat--but from the boyfriend side. I had virtually no symptoms in my 20's but my GF at the time (now wife) insisted that I see a specialist. Well...good thing because I started to take a sudden turn for the worse. I just got a TX last month because my "symptom free" lungs were actually dying slowly. I didn't cough but that was a bad thing. Anyway, my doc set me up with the TX team and the rest is history. In my case, my relationship would not have worked if me and my wife were not on the same page regarding my health. Especially when it came to having kids. She saved my life when she threatened to leave me or go see a doctor. My advice: If you truly love him, give him this ultimatum. It might save his life. Just my opinion. Thanks.

Lex · Dec 16, 2009

I was in the same boat--but from the boyfriend side. I had virtually no symptoms in my 20's but my GF at the time (now wife) insisted that I see a specialist. Well...good thing because I started to take a sudden turn for the worse. I just got a TX last month because my "symptom free" lungs were actually dying slowly. I didn't cough but that was a bad thing. Anyway, my doc set me up with the TX team and the rest is history. In my case, my relationship would not have worked if me and my wife were not on the same page regarding my health. Especially when it came to having kids. She saved my life when she threatened to leave me or go see a doctor. My advice: If you truly love him, give him this ultimatum. It might save his life. Just my opinion. Thanks.

beleache · Dec 16, 2009

Hi Firefly,

Welcome to the site. You will find a lot of info & support here..

Cystic Fibrosis presents differently in every patient .. I was dxd (diagnosed) late in life 44 y/o .. I had more GI symptoms then lung involvement back then, but now id say my lungs & GI issues are even steven.. So you see , even though i looked "ok" i really wasn't.

You cant force him if he doesnt want to , but you can learn for yourself & maybe when he is ready you will be able to steer him in the right direction.. He will need health coverage for sure, if not now then down the road..

You can suggest he reads some of the posts on this site.. You can both (or just you) join us in chat (usually gets going about 8 pm est) to ask some questions ...

If you have any questions PM me & i will do my best to help you.

Take care <img src="i/expressions/heart.gif" border="0"> joni

beleache · Dec 16, 2009

Hi Firefly,

Welcome to the site. You will find a lot of info & support here..

Cystic Fibrosis presents differently in every patient .. I was dxd (diagnosed) late in life 44 y/o .. I had more GI symptoms then lung involvement back then, but now id say my lungs & GI issues are even steven.. So you see , even though i looked "ok" i really wasn't.

You cant force him if he doesnt want to , but you can learn for yourself & maybe when he is ready you will be able to steer him in the right direction.. He will need health coverage for sure, if not now then down the road..

You can suggest he reads some of the posts on this site.. You can both (or just you) join us in chat (usually gets going about 8 pm est) to ask some questions ...

If you have any questions PM me & i will do my best to help you.

Take care <img src="i/expressions/heart.gif" border="0"> joni

beleache · Dec 16, 2009

Hi Firefly,

Welcome to the site. You will find a lot of info & support here..

Cystic Fibrosis presents differently in every patient .. I was dxd (diagnosed) late in life 44 y/o .. I had more GI symptoms then lung involvement back then, but now id say my lungs & GI issues are even steven.. So you see , even though i looked "ok" i really wasn't.

You cant force him if he doesnt want to , but you can learn for yourself & maybe when he is ready you will be able to steer him in the right direction.. He will need health coverage for sure, if not now then down the road..

You can suggest he reads some of the posts on this site.. You can both (or just you) join us in chat (usually gets going about 8 pm est) to ask some questions ...

If you have any questions PM me & i will do my best to help you.

Take care <img src="i/expressions/heart.gif" border="0"> joni

beleache · Dec 16, 2009

Hi Firefly,

Welcome to the site. You will find a lot of info & support here..

Cystic Fibrosis presents differently in every patient .. I was dxd (diagnosed) late in life 44 y/o .. I had more GI symptoms then lung involvement back then, but now id say my lungs & GI issues are even steven.. So you see , even though i looked "ok" i really wasn't.

You cant force him if he doesnt want to , but you can learn for yourself & maybe when he is ready you will be able to steer him in the right direction.. He will need health coverage for sure, if not now then down the road..

You can suggest he reads some of the posts on this site.. You can both (or just you) join us in chat (usually gets going about 8 pm est) to ask some questions ...

If you have any questions PM me & i will do my best to help you.

Take care <img src="i/expressions/heart.gif" border="0"> joni

beleache · Dec 16, 2009

Hi Firefly,
 
 Welcome to the site. You will find a lot of info & support here..
 
 Cystic Fibrosis presents differently in every patient .. I was dxd (diagnosed) late in life 44 y/o .. I had more GI symptoms then lung involvement back then, but now id say my lungs & GI issues are even steven.. So you see , even though i looked "ok" i really wasn't.
 
 You cant force him if he doesnt want to , but you can learn for yourself & maybe when he is ready you will be able to steer him in the right direction.. He will need health coverage for sure, if not now then down the road..
 
 You can suggest he reads some of the posts on this site.. You can both (or just you) join us in chat (usually gets going about 8 pm est) to ask some questions ...
 
 If you have any questions PM me & i will do my best to help you.
 
 Take care <img src="i/expressions/heart.gif" border="0"> joni

loveee12 · Dec 16, 2009

When I explain that I have CF, I point out that CF is very scary if you google it. But in reality, taking things one day at a time, it's not so terrible. It becomes routine. Yet, like beleache said, different for everyone. Bad things can happen to healthy people at any time. Plus, a cure is not so unfeasible. So, my opinion, I wouldn't want someone to turn away from me because of my CF, but it is a risk you have to be willing to accept.

BUT, he needs to get insured, & he needs to see a doctor. If I were you, I'd set that as a condition. I don't think it's fair for him to ask you to give your heart to someone who won't take care of himself... my opinion again. Best wishes!

loveee12 · Dec 16, 2009

When I explain that I have CF, I point out that CF is very scary if you google it. But in reality, taking things one day at a time, it's not so terrible. It becomes routine. Yet, like beleache said, different for everyone. Bad things can happen to healthy people at any time. Plus, a cure is not so unfeasible. So, my opinion, I wouldn't want someone to turn away from me because of my CF, but it is a risk you have to be willing to accept.

BUT, he needs to get insured, & he needs to see a doctor. If I were you, I'd set that as a condition. I don't think it's fair for him to ask you to give your heart to someone who won't take care of himself... my opinion again. Best wishes!

loveee12 · Dec 16, 2009

When I explain that I have CF, I point out that CF is very scary if you google it. But in reality, taking things one day at a time, it's not so terrible. It becomes routine. Yet, like beleache said, different for everyone. Bad things can happen to healthy people at any time. Plus, a cure is not so unfeasible. So, my opinion, I wouldn't want someone to turn away from me because of my CF, but it is a risk you have to be willing to accept.

BUT, he needs to get insured, & he needs to see a doctor. If I were you, I'd set that as a condition. I don't think it's fair for him to ask you to give your heart to someone who won't take care of himself... my opinion again. Best wishes!

loveee12 · Dec 16, 2009

When I explain that I have CF, I point out that CF is very scary if you google it. But in reality, taking things one day at a time, it's not so terrible. It becomes routine. Yet, like beleache said, different for everyone. Bad things can happen to healthy people at any time. Plus, a cure is not so unfeasible. So, my opinion, I wouldn't want someone to turn away from me because of my CF, but it is a risk you have to be willing to accept.

BUT, he needs to get insured, & he needs to see a doctor. If I were you, I'd set that as a condition. I don't think it's fair for him to ask you to give your heart to someone who won't take care of himself... my opinion again. Best wishes!

loveee12 · Dec 16, 2009

When I explain that I have CF, I point out that CF is very scary if you google it. But in reality, taking things one day at a time, it's not so terrible. It becomes routine. Yet, like beleache said, different for everyone. Bad things can happen to healthy people at any time. Plus, a cure is not so unfeasible. So, my opinion, I wouldn't want someone to turn away from me because of my CF, but it is a risk you have to be willing to accept.
 
 BUT, he needs to get insured, & he needs to see a doctor. If I were you, I'd set that as a condition. I don't think it's fair for him to ask you to give your heart to someone who won't take care of himself... my opinion again. Best wishes!

My boyfriend has CF and I'm scared

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