my family doesnt care if I am dying of c.f.

Dreamer

New member
I understand exactly what you mean regarding the hospital. When I was in the hospital, I got worse. I couldn't move around like I usually would and the doctors agreed. They thought that maybe the lack of activity was bringing me down. Have you spoken with your doctor about doing IVs at home? I think that is a better alternative for some people. Although rest is still important, some people are more comfortable doing them at home.

Sometimes it is better to take each day at a time. It can be easier that way. It reminds me of one of my favorite quotes, "Dream as if you'll live forever, live as if you'll die today." Planning can be good, but living for the day is good, too. I think that once you find a balance between those two, it will help a lot.

I'm glad to read that you're feeling better today. Each day things tend to get a bit easier! Hope you have a great rest of the day!
 

PeterC

New member
clinging2faith:

You seem to have many reasons to complain!!

The only thing that will change your experience is to change your focus and how you think about and talk about things. You <u>can not</u> change what other people do, or change how they think and besides it is not your responsibility!!

You are focused on the bad and unfortunate things in your life! The more you talk about and think about how bad things are the worse they will feel to you and in fact they will appear to get even worse.

You need to look for the positive things in your life. You need to start to feel greatful for the good things you have.

I know it sounds impossible at this point but I assure you that if you took an honest look you will find things to feel grateful for. The more gratitude you show the more things will improve! Show your gratitude daily, several times a day if you can think of it. Each morning when I get up I think of all the things I am grateful for that day, as my tea brews and sometimes I even make a list. It sets the tone for the whole day and it will transform your life!!! This is absolute fact!!

You say that you are on your own 24/7! I say that if this is so, you have all the time you need to research the many things you may be able to do to improve your situation.

Your situation sounds quite desperate! It is awful to feel desperate!! I know because I have been there!!!

The thing that made the biggest difference to me was to take complete responsibility for myself and my health. When you feel desperate you need to seek out support. I found a really good therapist to help me through the difficult times and to help point me in new and useful directions.

Another thing I learned that helped a great deal was to learn to forgive those I thought had wronged me. Many people have misunderstood the purpose of forgiveness. Forgiveness is not meant to let someone off the hook for what they did, <u>it is meant to get the forgiver off the hook</u>!! It frees you of the thing that has so upset you, hooked you. And forgiveness of someone is not necessarily a one time deal. You may have to forgive someone for the same offense every time you find yourself thinking about what they did if it re-upsets you. Forgiveness frees you up every time you employ it!!! It will make you feel better!!

I hope I have been of help to you and you start to feel better about things soon!!
Your life depends on it!!!

Sincerely:

PeterC
 

PeterC

New member
clinging2faith:

You seem to have many reasons to complain!!

The only thing that will change your experience is to change your focus and how you think about and talk about things. You <u>can not</u> change what other people do, or change how they think and besides it is not your responsibility!!

You are focused on the bad and unfortunate things in your life! The more you talk about and think about how bad things are the worse they will feel to you and in fact they will appear to get even worse.

You need to look for the positive things in your life. You need to start to feel greatful for the good things you have.

I know it sounds impossible at this point but I assure you that if you took an honest look you will find things to feel grateful for. The more gratitude you show the more things will improve! Show your gratitude daily, several times a day if you can think of it. Each morning when I get up I think of all the things I am grateful for that day, as my tea brews and sometimes I even make a list. It sets the tone for the whole day and it will transform your life!!! This is absolute fact!!

You say that you are on your own 24/7! I say that if this is so, you have all the time you need to research the many things you may be able to do to improve your situation.

Your situation sounds quite desperate! It is awful to feel desperate!! I know because I have been there!!!

The thing that made the biggest difference to me was to take complete responsibility for myself and my health. When you feel desperate you need to seek out support. I found a really good therapist to help me through the difficult times and to help point me in new and useful directions.

Another thing I learned that helped a great deal was to learn to forgive those I thought had wronged me. Many people have misunderstood the purpose of forgiveness. Forgiveness is not meant to let someone off the hook for what they did, <u>it is meant to get the forgiver off the hook</u>!! It frees you of the thing that has so upset you, hooked you. And forgiveness of someone is not necessarily a one time deal. You may have to forgive someone for the same offense every time you find yourself thinking about what they did if it re-upsets you. Forgiveness frees you up every time you employ it!!! It will make you feel better!!

I hope I have been of help to you and you start to feel better about things soon!!
Your life depends on it!!!

Sincerely:

PeterC
 

PeterC

New member
clinging2faith:

You seem to have many reasons to complain!!

The only thing that will change your experience is to change your focus and how you think about and talk about things. You <u>can not</u> change what other people do, or change how they think and besides it is not your responsibility!!

You are focused on the bad and unfortunate things in your life! The more you talk about and think about how bad things are the worse they will feel to you and in fact they will appear to get even worse.

You need to look for the positive things in your life. You need to start to feel greatful for the good things you have.

I know it sounds impossible at this point but I assure you that if you took an honest look you will find things to feel grateful for. The more gratitude you show the more things will improve! Show your gratitude daily, several times a day if you can think of it. Each morning when I get up I think of all the things I am grateful for that day, as my tea brews and sometimes I even make a list. It sets the tone for the whole day and it will transform your life!!! This is absolute fact!!

You say that you are on your own 24/7! I say that if this is so, you have all the time you need to research the many things you may be able to do to improve your situation.

Your situation sounds quite desperate! It is awful to feel desperate!! I know because I have been there!!!

The thing that made the biggest difference to me was to take complete responsibility for myself and my health. When you feel desperate you need to seek out support. I found a really good therapist to help me through the difficult times and to help point me in new and useful directions.

Another thing I learned that helped a great deal was to learn to forgive those I thought had wronged me. Many people have misunderstood the purpose of forgiveness. Forgiveness is not meant to let someone off the hook for what they did, <u>it is meant to get the forgiver off the hook</u>!! It frees you of the thing that has so upset you, hooked you. And forgiveness of someone is not necessarily a one time deal. You may have to forgive someone for the same offense every time you find yourself thinking about what they did if it re-upsets you. Forgiveness frees you up every time you employ it!!! It will make you feel better!!

I hope I have been of help to you and you start to feel better about things soon!!
Your life depends on it!!!

Sincerely:

PeterC
 

Dreamer

New member
What a great post, Peter! I agree entirely!

I also think that exercising will help because exercising releases chemicals in your brain that will help balance out your depression. Start a gradual program and I bet you'll like it!
 

Dreamer

New member
What a great post, Peter! I agree entirely!

I also think that exercising will help because exercising releases chemicals in your brain that will help balance out your depression. Start a gradual program and I bet you'll like it!
 

Dreamer

New member
What a great post, Peter! I agree entirely!

I also think that exercising will help because exercising releases chemicals in your brain that will help balance out your depression. Start a gradual program and I bet you'll like it!
 
We all know how you feel. I have felt what you have felt, Also, I have people who care deeply who think things don't happen for me just because of CF. I just keep on reminding them that when I don't get the things I want like being a lead teacher at my school instead of being an assitant teacher it's not because of my Cf. It's because there hasn't been an opening.
We will always be hear for you.
Have you talked to your family about your feelings? Have you talked to your family or friends or a church that you need people to come visit you?
 
We all know how you feel. I have felt what you have felt, Also, I have people who care deeply who think things don't happen for me just because of CF. I just keep on reminding them that when I don't get the things I want like being a lead teacher at my school instead of being an assitant teacher it's not because of my Cf. It's because there hasn't been an opening.
We will always be hear for you.
Have you talked to your family about your feelings? Have you talked to your family or friends or a church that you need people to come visit you?
 
We all know how you feel. I have felt what you have felt, Also, I have people who care deeply who think things don't happen for me just because of CF. I just keep on reminding them that when I don't get the things I want like being a lead teacher at my school instead of being an assitant teacher it's not because of my Cf. It's because there hasn't been an opening.
We will always be hear for you.
Have you talked to your family about your feelings? Have you talked to your family or friends or a church that you need people to come visit you?
 

kybert

New member
i would like to hear your daughters side of the story. she sounds like a decent person who wouldnt take the decision of 'cutting' you off lightly.
 

kybert

New member
i would like to hear your daughters side of the story. she sounds like a decent person who wouldnt take the decision of 'cutting' you off lightly.
 

kybert

New member
i would like to hear your daughters side of the story. she sounds like a decent person who wouldnt take the decision of 'cutting' you off lightly.
 

senatorgraham

New member
Dear Clinging2faith,

I just read your post and had to pm you and say you are in my prayers.

I think we all go through hard times, but yours definitley seems harsher than many.

Sincerely,

Steven "Senator" Graham
CF, Bi-lateral lung transplant receipant 2002

"My friends are my estate. Forgive me the avarice to hoard them."-Emily Dickinson
 

senatorgraham

New member
Dear Clinging2faith,

I just read your post and had to pm you and say you are in my prayers.

I think we all go through hard times, but yours definitley seems harsher than many.

Sincerely,

Steven "Senator" Graham
CF, Bi-lateral lung transplant receipant 2002

"My friends are my estate. Forgive me the avarice to hoard them."-Emily Dickinson
 

senatorgraham

New member
Dear Clinging2faith,

I just read your post and had to pm you and say you are in my prayers.

I think we all go through hard times, but yours definitley seems harsher than many.

Sincerely,

Steven "Senator" Graham
CF, Bi-lateral lung transplant receipant 2002

"My friends are my estate. Forgive me the avarice to hoard them."-Emily Dickinson
 

Ricky123

New member
i feel for you life is a bitch its harder for some poeple than others.I keep persisting with your daughters though love eventually conquers eerything they might just need a bit of space in the short term hope everything sorts itself out peace
 

Ricky123

New member
i feel for you life is a bitch its harder for some poeple than others.I keep persisting with your daughters though love eventually conquers eerything they might just need a bit of space in the short term hope everything sorts itself out peace
 

Ricky123

New member
i feel for you life is a bitch its harder for some poeple than others.I keep persisting with your daughters though love eventually conquers eerything they might just need a bit of space in the short term hope everything sorts itself out peace
 

clinging2faith

New member
well to start with i am very greatful for all these msgs of wonderful support and well wishes. I am moved. I will come back to respond to eaxch msg. Im new here so I dont know how to use othr features but im using the forums to post and read these wonderful supporting msgs.

in actuality these last two days have helped me see the good things in my life still i have.
thank you all and i need to come back and answer (but now need to rest first).
Mary
 
Top