My PFT's are down... any advice?

kybert

New member
you should probably consider getting a port. its no where near as bad as a picc line and can be easily disguised.
 
yeah i had one before, had it for like 3 years, You could barely notice it, I had a pediatric port, in my chest, and it was deep in my tissues. Had to have it removed because I had a blood fungus, so I've been using piccs the past few years.
 
yeah i had one before, had it for like 3 years, You could barely notice it, I had a pediatric port, in my chest, and it was deep in my tissues. Had to have it removed because I had a blood fungus, so I've been using piccs the past few years.
 
yeah i had one before, had it for like 3 years, You could barely notice it, I had a pediatric port, in my chest, and it was deep in my tissues. Had to have it removed because I had a blood fungus, so I've been using piccs the past few years.
 

Diane

New member
Well take this for all its worth , but when i get in the position you are in, i take extra vitamin c, drink a lot of extra fluids, and try to eat more to help fight off whatever's going on. It might also be a good idea to try to get as much exercise in as you can, even if you have to "sneak" it in, like going to a large store and walking every aisle. Parking the car further away so you have to walk further, taking stairs instead of elevators. And of coarse doing your best to avoid anyone with a cold of any sort. Now for the nighttime coughing, im not sure what you can do about that to avoid it, but i always leave something to drink next to where i sleep with a cough drop next to it if i am having a lot of coughing. I also use "Vicks Vaporub" and it does seem to help . These are very small suggestions that wont cure you of your symptoms, but may help you get thru what you are going thru till your next round of iv's. I hope the Cipro works for you, im not a fan of iv's either, but when you need 'em, its best to get 'em before things get too bad. ( i've learned that the hard way myself) Hope you feel better soon <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Diane

New member
Well take this for all its worth , but when i get in the position you are in, i take extra vitamin c, drink a lot of extra fluids, and try to eat more to help fight off whatever's going on. It might also be a good idea to try to get as much exercise in as you can, even if you have to "sneak" it in, like going to a large store and walking every aisle. Parking the car further away so you have to walk further, taking stairs instead of elevators. And of coarse doing your best to avoid anyone with a cold of any sort. Now for the nighttime coughing, im not sure what you can do about that to avoid it, but i always leave something to drink next to where i sleep with a cough drop next to it if i am having a lot of coughing. I also use "Vicks Vaporub" and it does seem to help . These are very small suggestions that wont cure you of your symptoms, but may help you get thru what you are going thru till your next round of iv's. I hope the Cipro works for you, im not a fan of iv's either, but when you need 'em, its best to get 'em before things get too bad. ( i've learned that the hard way myself) Hope you feel better soon <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Diane

New member
Well take this for all its worth , but when i get in the position you are in, i take extra vitamin c, drink a lot of extra fluids, and try to eat more to help fight off whatever's going on. It might also be a good idea to try to get as much exercise in as you can, even if you have to "sneak" it in, like going to a large store and walking every aisle. Parking the car further away so you have to walk further, taking stairs instead of elevators. And of coarse doing your best to avoid anyone with a cold of any sort. Now for the nighttime coughing, im not sure what you can do about that to avoid it, but i always leave something to drink next to where i sleep with a cough drop next to it if i am having a lot of coughing. I also use "Vicks Vaporub" and it does seem to help . These are very small suggestions that wont cure you of your symptoms, but may help you get thru what you are going thru till your next round of iv's. I hope the Cipro works for you, im not a fan of iv's either, but when you need 'em, its best to get 'em before things get too bad. ( i've learned that the hard way myself) Hope you feel better soon <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
Thanks Diane, that sounds like some good tips. Lots of people have been telling me to take vitamin c. I should go and buy some. And the whole sneaking excersize, is a good idea too, but even that takes motivation sometimes, lol. I'm a big fan of vicks too. Little by little I'm starting to loosen all this stuff, I just hope that I can do it without the coughing fits getting too bad.
 
Thanks Diane, that sounds like some good tips. Lots of people have been telling me to take vitamin c. I should go and buy some. And the whole sneaking excersize, is a good idea too, but even that takes motivation sometimes, lol. I'm a big fan of vicks too. Little by little I'm starting to loosen all this stuff, I just hope that I can do it without the coughing fits getting too bad.
 
Thanks Diane, that sounds like some good tips. Lots of people have been telling me to take vitamin c. I should go and buy some. And the whole sneaking excersize, is a good idea too, but even that takes motivation sometimes, lol. I'm a big fan of vicks too. Little by little I'm starting to loosen all this stuff, I just hope that I can do it without the coughing fits getting too bad.
 

CowTown

New member
A thought on helping you get through the night without coughing would be to sleep with many pillows propping you up. For me my only chance sometimes is to sleep sitting practically straight up. When I cough all night long, it often means I have post nasal drip going on. Sleeping at an almost 90 degree angle helps to reduce my coughing fits. I would probably just give Cipro a try and if you don't feel better in like 5 days, then I'd go in. Good luck.
 

CowTown

New member
A thought on helping you get through the night without coughing would be to sleep with many pillows propping you up. For me my only chance sometimes is to sleep sitting practically straight up. When I cough all night long, it often means I have post nasal drip going on. Sleeping at an almost 90 degree angle helps to reduce my coughing fits. I would probably just give Cipro a try and if you don't feel better in like 5 days, then I'd go in. Good luck.
 

CowTown

New member
A thought on helping you get through the night without coughing would be to sleep with many pillows propping you up. For me my only chance sometimes is to sleep sitting practically straight up. When I cough all night long, it often means I have post nasal drip going on. Sleeping at an almost 90 degree angle helps to reduce my coughing fits. I would probably just give Cipro a try and if you don't feel better in like 5 days, then I'd go in. Good luck.
 

LouLou

New member
get a juicer and drink a pint of carrot/apple/celery/lemon juice. If you can be brave add tomatoes and beets. Take up to 10,000 mg of Vit. C each day. Exercise 20 minutes each day. Practice positive thinking - don't let yourself get self pitying and negative. Make up a mantra that's upbeat and positive and repeat it outloud until you believe it. Drink 64oz. of water and when you are coughing do the Vest or other clearance technique for 20 min. take a break and if within an hour you are coughing a lot again... repeat. Eat well balanced meals heavy on protein. Take antioxidants and zinc. Learn to huff cough if you don't already know. If you are coughing during sleep, get up and do clearance while drinking hot water with lemon and honey. If you are going to take Cipro make sure to take acidophilus (I take Primal Defense everyday) for vaginal comfort and intestinal health. PM me if you have any questions about this.

Oh and don't go on IVs if you plan to skip any doses at all. It does more harm than good. You should be hospitalized the whole time if you can't be diligent to do all meds on time at home.
 

LouLou

New member
get a juicer and drink a pint of carrot/apple/celery/lemon juice. If you can be brave add tomatoes and beets. Take up to 10,000 mg of Vit. C each day. Exercise 20 minutes each day. Practice positive thinking - don't let yourself get self pitying and negative. Make up a mantra that's upbeat and positive and repeat it outloud until you believe it. Drink 64oz. of water and when you are coughing do the Vest or other clearance technique for 20 min. take a break and if within an hour you are coughing a lot again... repeat. Eat well balanced meals heavy on protein. Take antioxidants and zinc. Learn to huff cough if you don't already know. If you are coughing during sleep, get up and do clearance while drinking hot water with lemon and honey. If you are going to take Cipro make sure to take acidophilus (I take Primal Defense everyday) for vaginal comfort and intestinal health. PM me if you have any questions about this.

Oh and don't go on IVs if you plan to skip any doses at all. It does more harm than good. You should be hospitalized the whole time if you can't be diligent to do all meds on time at home.
 

LouLou

New member
get a juicer and drink a pint of carrot/apple/celery/lemon juice. If you can be brave add tomatoes and beets. Take up to 10,000 mg of Vit. C each day. Exercise 20 minutes each day. Practice positive thinking - don't let yourself get self pitying and negative. Make up a mantra that's upbeat and positive and repeat it outloud until you believe it. Drink 64oz. of water and when you are coughing do the Vest or other clearance technique for 20 min. take a break and if within an hour you are coughing a lot again... repeat. Eat well balanced meals heavy on protein. Take antioxidants and zinc. Learn to huff cough if you don't already know. If you are coughing during sleep, get up and do clearance while drinking hot water with lemon and honey. If you are going to take Cipro make sure to take acidophilus (I take Primal Defense everyday) for vaginal comfort and intestinal health. PM me if you have any questions about this.

Oh and don't go on IVs if you plan to skip any doses at all. It does more harm than good. You should be hospitalized the whole time if you can't be diligent to do all meds on time at home.
 

NoExcuses

New member
you know i just remembered that in 2005 i was in the hospital for IV's and then went in again 3 months later. i was absolutely livid for the same reason that you are - i felt it was too soon.

but again my doc told me that my lung function was good and i needed to keep it that way and one of the best ways is to treat aggressively when an infection comes up.

if i didn't treat my infection aggressively in both June 2005 and then again in Sept 2005 , i don't think there's anyway that my FEV1 would still be at 95% here in December of 2006.
 

NoExcuses

New member
you know i just remembered that in 2005 i was in the hospital for IV's and then went in again 3 months later. i was absolutely livid for the same reason that you are - i felt it was too soon.

but again my doc told me that my lung function was good and i needed to keep it that way and one of the best ways is to treat aggressively when an infection comes up.

if i didn't treat my infection aggressively in both June 2005 and then again in Sept 2005 , i don't think there's anyway that my FEV1 would still be at 95% here in December of 2006.
 

NoExcuses

New member
you know i just remembered that in 2005 i was in the hospital for IV's and then went in again 3 months later. i was absolutely livid for the same reason that you are - i felt it was too soon.

but again my doc told me that my lung function was good and i needed to keep it that way and one of the best ways is to treat aggressively when an infection comes up.

if i didn't treat my infection aggressively in both June 2005 and then again in Sept 2005 , i don't think there's anyway that my FEV1 would still be at 95% here in December of 2006.
 
mine is at 46% right now. Thats really low for me... it has been lower earlier this year though. It just really scares me. And it is hard to do agressive treatments when I've been having chest pain off and on for over a month. (pluerisy, and now i think my lungs are just sore from so much coughing) My doc told me to take pain medicine when I was hurting real bad, just so I could do a good vest treatment without hurting.
 
Top