Ok, now time for my extremely horrible, upsetting day.
I went to the hosp. for some tests, as well as my regular IV appt (which for the first time in years went well! It only took one poke to get a vein - yay!) First up at 10am were my PFTs. I knew they wouldn't be good, i just knew it. Lately i've been feeling tired all the time and all that. I blew sh*t. I'm suprised it even registered on the computer. The fact that it did is a miracle in itself. After doing each test over and over it was finally done. I was very upset. The pulmo told me judging by my numbers that I needed to be listed for a tx, pretty much ASAP just incase. I lost it. I started bawling hysterically. To make it worse I was by myself. She took me to another room and I got an ABG - arterial blood gas. Yup yup, finally got one. Actually, not one, two! Yes two. My veins and arteries are really small and at first she felt around and couldn't find them, but eventually found one in my wrist. She took out the really long needle and put it in. I thought, "Oh...well this isn't that bad, i don't feel anything." but that was before she started digging around. Yeah, that's right, she dug around and nothing came out, so she took it out and moved to my other arm. Eventually she got it in my elbow, and now it's really really sore.
All i could think about was how she told me i needed to be listed and all that. I was so upset i started crying again and she hugged me and let me cry. Eventually I had to go for a skeletal survey x-ray, and that went quick and well.
When i got to my regular floor for my IV i lost it when i saw all my nurses. I just cried and cried and cried. They hugged me and I got a private room where I could be alone and just cry to my hearts content. I thought that i really f*cked things up this time. Then about 2 hours later my respirologist called in a panic, wondering if I was sick, really sick and needed to be admitted into the hosp or something. The nurses told her I seemed like my regular self and was ok. She even spoke to me and saw that I was fine.
She figured the pulmo freaked out b/c she had never seen me before, and didn't know that my numbers have been low for a while, same to my O2 sats (they were 86/87..woo hoo). She told me that I DO NOT NEED TO BE LISTED FOR A TX YET or any time soon prob, and that she was really upset that the pumlo upset and scared me that way. I felt better. BUT my respirologist wants me to make an appt in her office after the next time i go for my IV so we can talk. She wants to see about setting up at sat monitor at night to measure my night sats and maybe get on some night O2.
I am not thrilled. Obviously i'm upset and the thought of going on O2 at night makes me feel like an old person, but it's sure as hell a lot better than what i was told this morning.
That is all! I'm sorry this was so long... When i calm down a bit i'll be able to answer questions. I'm still upset.
I went to the hosp. for some tests, as well as my regular IV appt (which for the first time in years went well! It only took one poke to get a vein - yay!) First up at 10am were my PFTs. I knew they wouldn't be good, i just knew it. Lately i've been feeling tired all the time and all that. I blew sh*t. I'm suprised it even registered on the computer. The fact that it did is a miracle in itself. After doing each test over and over it was finally done. I was very upset. The pulmo told me judging by my numbers that I needed to be listed for a tx, pretty much ASAP just incase. I lost it. I started bawling hysterically. To make it worse I was by myself. She took me to another room and I got an ABG - arterial blood gas. Yup yup, finally got one. Actually, not one, two! Yes two. My veins and arteries are really small and at first she felt around and couldn't find them, but eventually found one in my wrist. She took out the really long needle and put it in. I thought, "Oh...well this isn't that bad, i don't feel anything." but that was before she started digging around. Yeah, that's right, she dug around and nothing came out, so she took it out and moved to my other arm. Eventually she got it in my elbow, and now it's really really sore.
All i could think about was how she told me i needed to be listed and all that. I was so upset i started crying again and she hugged me and let me cry. Eventually I had to go for a skeletal survey x-ray, and that went quick and well.
When i got to my regular floor for my IV i lost it when i saw all my nurses. I just cried and cried and cried. They hugged me and I got a private room where I could be alone and just cry to my hearts content. I thought that i really f*cked things up this time. Then about 2 hours later my respirologist called in a panic, wondering if I was sick, really sick and needed to be admitted into the hosp or something. The nurses told her I seemed like my regular self and was ok. She even spoke to me and saw that I was fine.
She figured the pulmo freaked out b/c she had never seen me before, and didn't know that my numbers have been low for a while, same to my O2 sats (they were 86/87..woo hoo). She told me that I DO NOT NEED TO BE LISTED FOR A TX YET or any time soon prob, and that she was really upset that the pumlo upset and scared me that way. I felt better. BUT my respirologist wants me to make an appt in her office after the next time i go for my IV so we can talk. She wants to see about setting up at sat monitor at night to measure my night sats and maybe get on some night O2.
I am not thrilled. Obviously i'm upset and the thought of going on O2 at night makes me feel like an old person, but it's sure as hell a lot better than what i was told this morning.
That is all! I'm sorry this was so long... When i calm down a bit i'll be able to answer questions. I'm still upset.