Hi my son is 6 and started school for the first time in August he is doing quite well health wize only one upper respiratory infection and responded well with antibiotics.I was very nervous about him attending school I actually wanted to home school him.But,after talking to doctor who felt he was ready teachers principals nurses secretary and most of all my son I went ahead and enrolled him.When he started school I not only spoke to all of these people but gave them literature on CF and a letter to each of them telling them about Nick his history struggles and just him.I want so badly for him to be healthy first and foremost.We also went over his needs snacks meds handwashing toileting whatever I could think of I also gave them my phone numbers and email to try to keep open communication.
Here is my problem I got a call from a truancy officer yes he is in kindergarden!!I guess the policy at school although I was not made aware of this is after 5 days a quarter of absenses he must have doctors excuse.He has missed 9 days he was home 4 in a row due to his infection put on antibiotic ect. seen by doctor.When this officer called I explained situation and contacted his specialist and they gave them doctors excuses for all the dates he missed. I keep Nick home if he is symptomatic or obviously sick also if he is up all night coughing ect.he is in class 4 hours a day.Also I am a nurse and hoping by keeping on top of things I try to mantain his health best I can as I think most of us parents do.
When I called the school I was distraught I told them I thought I had done everything I could to educate them on Cf and Nick.They told me they understand but it was too much.I became angry at this point who are they to say its too much!!They said well I dont know cause I dont have a child with that!!!My gosh they dont even know what it is called!!!
I have no problems with this officer now once all was clarified and we are getting a IEP if any of you are familiar with this it helps to establish his needs.
I have requested meeting with principal because I am still very upset am I wrong???
Also my son is struggling in school with school work I know its a confidence thing so I am going to try to have him talk with someone and help him as much as I can.Am I wrong to expect more from his school ???Any suggestion sorry to ramble just dont know what else I could have done??
Here is my problem I got a call from a truancy officer yes he is in kindergarden!!I guess the policy at school although I was not made aware of this is after 5 days a quarter of absenses he must have doctors excuse.He has missed 9 days he was home 4 in a row due to his infection put on antibiotic ect. seen by doctor.When this officer called I explained situation and contacted his specialist and they gave them doctors excuses for all the dates he missed. I keep Nick home if he is symptomatic or obviously sick also if he is up all night coughing ect.he is in class 4 hours a day.Also I am a nurse and hoping by keeping on top of things I try to mantain his health best I can as I think most of us parents do.
When I called the school I was distraught I told them I thought I had done everything I could to educate them on Cf and Nick.They told me they understand but it was too much.I became angry at this point who are they to say its too much!!They said well I dont know cause I dont have a child with that!!!My gosh they dont even know what it is called!!!
I have no problems with this officer now once all was clarified and we are getting a IEP if any of you are familiar with this it helps to establish his needs.
I have requested meeting with principal because I am still very upset am I wrong???
Also my son is struggling in school with school work I know its a confidence thing so I am going to try to have him talk with someone and help him as much as I can.Am I wrong to expect more from his school ???Any suggestion sorry to ramble just dont know what else I could have done??