A
AdamMom
Guest
My son is 20 weeks old, under weight and i don't know what to do in my situation. Please HELP
Hi everyone,
I'm a mother of a 20 week old baby, who was born 20 days before the given due date. We found out our son having CF when he was almost a month old with the newborn screening. We then did the sweat test which confirmed it.
I've been breastfeeding him since birth. Two months ago he was underweight and this month he is more underweight than last. The staffing in the CF office (including the dietitian) say its not enough and its extremely important for him to start gaining weight. I have read that breast fed babies don't gain as much weight as formula fed babies. The staff recommended I start fortifying my breast milk with formula. As much as I didn't and don't like the idea of formula, I went ahead and did it anyway. My son had a bad reaction to it and I immediately stopped. I started giving him organic whole grain rice cereal instead with my breast milk which seems to agree, but it's not giving him enough of the nutrients he needs. Additionally, he is not eating as often since he is fuller and satisfied from the cereal.
The dietitian has recommended a hypoallergenic formula as well as starting him on solid foods. Is it too early? I've been really uncomfortable with the way things in this office have been handled from the daily dosage of salt to the antacid to the aerosol. I really love homeopathic remedies and wish I could apply it to the things he is taking (any suggestions?) We tried the Creon5 enzymes which did not agree with him, but found the Pancreacarb MS4 works as long as we keep increasing his dosage. Same thing happened with the Prevacid to Zantac. We also tried a multivitamin, (I can't remember the name of it right now,) but it didn't work for him so we switched to SourceCF.
I'm now able to give him 1/4 tsp of salt a day. Once we got all of this under control, plus his body got used to it, this week my son developed a mucous cough (the CF doctor's office say it's upper respiratory so is it really necessary if his lungs are clear to give him aerosol?)
My son takes:
2 capsules of Pancreacarb MS4 with every feeding
1 ml of Zantac 3x a day
1/4 tsp of salt a day
.25 ml 4x a day of multivitamin
<img src=""> I really need advice; I feel stuck. Do you know of anyone that has been through a similar experience? Should I start him on formula (Pregestimil) and/or solid foods (avocado, sweet potato, banana)?
My nutritional recommendations are:
add 1/4 tsp of Pregestimil powder per ounce of extracted breast milk
start giving enzymes in apple sauce
start spoon feedings 1-2 x per day
eventually add 1/4 tsp oil (olive or canola) per ounce of baby food (once tolerant on its own for 3-4 days)
Thank-you in advance for any and all recommendations you may give me, and/or any suggestions to ease my son's ailments.
Hi everyone,
I'm a mother of a 20 week old baby, who was born 20 days before the given due date. We found out our son having CF when he was almost a month old with the newborn screening. We then did the sweat test which confirmed it.
I've been breastfeeding him since birth. Two months ago he was underweight and this month he is more underweight than last. The staffing in the CF office (including the dietitian) say its not enough and its extremely important for him to start gaining weight. I have read that breast fed babies don't gain as much weight as formula fed babies. The staff recommended I start fortifying my breast milk with formula. As much as I didn't and don't like the idea of formula, I went ahead and did it anyway. My son had a bad reaction to it and I immediately stopped. I started giving him organic whole grain rice cereal instead with my breast milk which seems to agree, but it's not giving him enough of the nutrients he needs. Additionally, he is not eating as often since he is fuller and satisfied from the cereal.
The dietitian has recommended a hypoallergenic formula as well as starting him on solid foods. Is it too early? I've been really uncomfortable with the way things in this office have been handled from the daily dosage of salt to the antacid to the aerosol. I really love homeopathic remedies and wish I could apply it to the things he is taking (any suggestions?) We tried the Creon5 enzymes which did not agree with him, but found the Pancreacarb MS4 works as long as we keep increasing his dosage. Same thing happened with the Prevacid to Zantac. We also tried a multivitamin, (I can't remember the name of it right now,) but it didn't work for him so we switched to SourceCF.
I'm now able to give him 1/4 tsp of salt a day. Once we got all of this under control, plus his body got used to it, this week my son developed a mucous cough (the CF doctor's office say it's upper respiratory so is it really necessary if his lungs are clear to give him aerosol?)
My son takes:
2 capsules of Pancreacarb MS4 with every feeding
1 ml of Zantac 3x a day
1/4 tsp of salt a day
.25 ml 4x a day of multivitamin
<img src=""> I really need advice; I feel stuck. Do you know of anyone that has been through a similar experience? Should I start him on formula (Pregestimil) and/or solid foods (avocado, sweet potato, banana)?
My nutritional recommendations are:
add 1/4 tsp of Pregestimil powder per ounce of extracted breast milk
start giving enzymes in apple sauce
start spoon feedings 1-2 x per day
eventually add 1/4 tsp oil (olive or canola) per ounce of baby food (once tolerant on its own for 3-4 days)
Thank-you in advance for any and all recommendations you may give me, and/or any suggestions to ease my son's ailments.