My son was diagnosed with CF yesterday at 10 days old!

[Mommafirst]

Hi Sue,

So sorry to hear of the diagnosis. As for your older three, I'd imagine you will worry until you know for sure. Unfortunately, that's how us moms are programmed. I still worry, and my boys were declared to be carriers, both with my husband's mutation and not mine. My youngest son has lots of trouble gaining weight, just like my CFer, so there are some days where I wonder and worry.

Hang in there, hopefully your other three will be CF free.

 

[Mommafirst]

Hi Sue,

So sorry to hear of the diagnosis. As for your older three, I'd imagine you will worry until you know for sure. Unfortunately, that's how us moms are programmed. I still worry, and my boys were declared to be carriers, both with my husband's mutation and not mine. My youngest son has lots of trouble gaining weight, just like my CFer, so there are some days where I wonder and worry.

Hang in there, hopefully your other three will be CF free.

 

[Mommafirst]

Hi Sue,

So sorry to hear of the diagnosis. As for your older three, I'd imagine you will worry until you know for sure. Unfortunately, that's how us moms are programmed. I still worry, and my boys were declared to be carriers, both with my husband's mutation and not mine. My youngest son has lots of trouble gaining weight, just like my CFer, so there are some days where I wonder and worry.

Hang in there, hopefully your other three will be CF free.

 

[Mommafirst]

Hi Sue,

So sorry to hear of the diagnosis. As for your older three, I'd imagine you will worry until you know for sure. Unfortunately, that's how us moms are programmed. I still worry, and my boys were declared to be carriers, both with my husband's mutation and not mine. My youngest son has lots of trouble gaining weight, just like my CFer, so there are some days where I wonder and worry.

Hang in there, hopefully your other three will be CF free.

 

[Mommafirst]

Hi Sue,

So sorry to hear of the diagnosis. As for your older three, I'd imagine you will worry until you know for sure. Unfortunately, that's how us moms are programmed. I still worry, and my boys were declared to be carriers, both with my husband's mutation and not mine. My youngest son has lots of trouble gaining weight, just like my CFer, so there are some days where I wonder and worry.

Hang in there, hopefully your other three will be CF free.

 

[OperaMama]

Hope they're doing the blood not the sweat. There are LOTS of blogs here to help you out with that one.

Good luck and wlecome to the club. You get to feel totally emotionally numbed out and overloaded for at least six months, up to a year. We're all here for you.

M'nell, mother of Francis 5/yo (diagnosed one year ago)

 

[OperaMama]

Hope they're doing the blood not the sweat. There are LOTS of blogs here to help you out with that one.

Good luck and wlecome to the club. You get to feel totally emotionally numbed out and overloaded for at least six months, up to a year. We're all here for you.

M'nell, mother of Francis 5/yo (diagnosed one year ago)

 

[OperaMama]

Hope they're doing the blood not the sweat. There are LOTS of blogs here to help you out with that one.

Good luck and wlecome to the club. You get to feel totally emotionally numbed out and overloaded for at least six months, up to a year. We're all here for you.

M'nell, mother of Francis 5/yo (diagnosed one year ago)

 

[OperaMama]

Hope they're doing the blood not the sweat. There are LOTS of blogs here to help you out with that one.

Good luck and wlecome to the club. You get to feel totally emotionally numbed out and overloaded for at least six months, up to a year. We're all here for you.

M'nell, mother of Francis 5/yo (diagnosed one year ago)

 

[OperaMama]

Hope they're doing the blood not the sweat. There are LOTS of blogs here to help you out with that one.

Good luck and wlecome to the club. You get to feel totally emotionally numbed out and overloaded for at least six months, up to a year. We're all here for you.

M'nell, mother of Francis 5/yo (diagnosed one year ago)

 

[mom2lillian]

hello. I am sorry to hear about your child, what a traumatic time.

My words to the wise woudl be:
THere is alot of outdated info--read with caution

Too much info can be overkill for some so read what your comfortable with and take a step back when needed--sometimes a bit of denial is necessary

Have your older children tested asap and by blood preferrably, some can have it without showing 'typical' signs and you want to catch it before it silently does damage. I and many others like me were not diagnosed utnil adults.

If you want info on ambry genetics (blood test) please visit my blog

dont worry, take one day at a time, dont worry about what might be ahead of you

take a deep breath and look into getting some counselign if you feel it woudl help you and your family

 

[mom2lillian]

hello. I am sorry to hear about your child, what a traumatic time.

My words to the wise woudl be:
THere is alot of outdated info--read with caution

Too much info can be overkill for some so read what your comfortable with and take a step back when needed--sometimes a bit of denial is necessary

Have your older children tested asap and by blood preferrably, some can have it without showing 'typical' signs and you want to catch it before it silently does damage. I and many others like me were not diagnosed utnil adults.

If you want info on ambry genetics (blood test) please visit my blog

dont worry, take one day at a time, dont worry about what might be ahead of you

take a deep breath and look into getting some counselign if you feel it woudl help you and your family

 

[mom2lillian]

hello. I am sorry to hear about your child, what a traumatic time.

My words to the wise woudl be:
THere is alot of outdated info--read with caution

Too much info can be overkill for some so read what your comfortable with and take a step back when needed--sometimes a bit of denial is necessary

Have your older children tested asap and by blood preferrably, some can have it without showing 'typical' signs and you want to catch it before it silently does damage. I and many others like me were not diagnosed utnil adults.

If you want info on ambry genetics (blood test) please visit my blog

dont worry, take one day at a time, dont worry about what might be ahead of you

take a deep breath and look into getting some counselign if you feel it woudl help you and your family

 

[mom2lillian]

hello. I am sorry to hear about your child, what a traumatic time.

My words to the wise woudl be:
THere is alot of outdated info--read with caution

Too much info can be overkill for some so read what your comfortable with and take a step back when needed--sometimes a bit of denial is necessary

Have your older children tested asap and by blood preferrably, some can have it without showing 'typical' signs and you want to catch it before it silently does damage. I and many others like me were not diagnosed utnil adults.

If you want info on ambry genetics (blood test) please visit my blog

dont worry, take one day at a time, dont worry about what might be ahead of you

take a deep breath and look into getting some counselign if you feel it woudl help you and your family

 

[mom2lillian]

hello. I am sorry to hear about your child, what a traumatic time.

My words to the wise woudl be:
THere is alot of outdated info--read with caution

Too much info can be overkill for some so read what your comfortable with and take a step back when needed--sometimes a bit of denial is necessary

Have your older children tested asap and by blood preferrably, some can have it without showing 'typical' signs and you want to catch it before it silently does damage. I and many others like me were not diagnosed utnil adults.

If you want info on ambry genetics (blood test) please visit my blog

dont worry, take one day at a time, dont worry about what might be ahead of you

take a deep breath and look into getting some counselign if you feel it woudl help you and your family

 

[paugh22]

Hi
Thank you all. I am so grateful to have others to talk to that are going through the same thing. My son weighed 6 pounds when he was born 12 days ago. Now he only weighs 5lbs 3 ozs. it is the scariest thing in the world to find out your child is sick and will be on medicine for the rest of his life. But thankfully he is taking the medicine really well. Next Thursday we will go to the CF clinic at Hasbro to find out everything we need to know.
thank you all again
Sue

 

[paugh22]

Hi
Thank you all. I am so grateful to have others to talk to that are going through the same thing. My son weighed 6 pounds when he was born 12 days ago. Now he only weighs 5lbs 3 ozs. it is the scariest thing in the world to find out your child is sick and will be on medicine for the rest of his life. But thankfully he is taking the medicine really well. Next Thursday we will go to the CF clinic at Hasbro to find out everything we need to know.
thank you all again
Sue

 

[paugh22]

Hi
Thank you all. I am so grateful to have others to talk to that are going through the same thing. My son weighed 6 pounds when he was born 12 days ago. Now he only weighs 5lbs 3 ozs. it is the scariest thing in the world to find out your child is sick and will be on medicine for the rest of his life. But thankfully he is taking the medicine really well. Next Thursday we will go to the CF clinic at Hasbro to find out everything we need to know.
thank you all again
Sue

 

[paugh22]

Hi
Thank you all. I am so grateful to have others to talk to that are going through the same thing. My son weighed 6 pounds when he was born 12 days ago. Now he only weighs 5lbs 3 ozs. it is the scariest thing in the world to find out your child is sick and will be on medicine for the rest of his life. But thankfully he is taking the medicine really well. Next Thursday we will go to the CF clinic at Hasbro to find out everything we need to know.
thank you all again
Sue

 

[paugh22]

Hi
Thank you all. I am so grateful to have others to talk to that are going through the same thing. My son weighed 6 pounds when he was born 12 days ago. Now he only weighs 5lbs 3 ozs. it is the scariest thing in the world to find out your child is sick and will be on medicine for the rest of his life. But thankfully he is taking the medicine really well. Next Thursday we will go to the CF clinic at Hasbro to find out everything we need to know.
thank you all again
Sue