Nasal Polyps

JENNYC

New member
It was a very shocking, very unexpected event, but none the less it happened. I just wanted to apologize if I shouldn't have said all that I did. I forget that little ones might be reading this as well. I just wanted everyone to be aware as we were not, and are now paying for it, or rather my baby is and will forever. Now not only does she have CF she now her looks are impaired as well. If only we would have known, we could have prevented this <img src="i/expressions/face-icon-small-sad.gif" border="0"> I will try to be more careful about how and what I post from now on. Again I am truly sorry if I have scared anyone, it was not my intension. My best to all and I pray this is only our story, and that no one else has to go through that.
 

JENNYC

New member
It was a very shocking, very unexpected event, but none the less it happened. I just wanted to apologize if I shouldn't have said all that I did. I forget that little ones might be reading this as well. I just wanted everyone to be aware as we were not, and are now paying for it, or rather my baby is and will forever. Now not only does she have CF she now her looks are impaired as well. If only we would have known, we could have prevented this <img src="i/expressions/face-icon-small-sad.gif" border="0"> I will try to be more careful about how and what I post from now on. Again I am truly sorry if I have scared anyone, it was not my intension. My best to all and I pray this is only our story, and that no one else has to go through that.
 

fallenarches

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JENNYC</b></i>

It was a very shocking, very unexpected event, but none the less it happened. I just wanted to apologize if I shouldn't have said all that I did. I forget that little ones might be reading this as well. I just wanted everyone to be aware as we were not, and are now paying for it, or rather my baby is and will forever. Now not only does she have CF she now her looks are impaired as well. If only we would have known, we could have prevented this <img src=""> I will try to be more careful about how and what I post from now on. Again I am truly sorry if I have scared anyone, it was not my intension. My best to all and I pray this is only our story, and that no one else has to go through that.</end quote></div>

<div><br></div><div>No, no, no...I am glad you posted what you did.  I was somewhat exaggerating about DD not reading this.  She's 16 so not really little any more.  She would rather know the "worst" and find out that it isn't that bad really.   We have been talking a lot about the "what if's" with her and since she has an interest in becoming a doctor, all of this has been somewhat fascinating for her.  The only thing we really haven't talked about is having children someday and what having CF MIGHT mean for her--or might not.  She knows enough about genetics having studied it in school to "understand" she may pass this on but hasn't really voiced that yet.</div>
 

fallenarches

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JENNYC</b></i>

It was a very shocking, very unexpected event, but none the less it happened. I just wanted to apologize if I shouldn't have said all that I did. I forget that little ones might be reading this as well. I just wanted everyone to be aware as we were not, and are now paying for it, or rather my baby is and will forever. Now not only does she have CF she now her looks are impaired as well. If only we would have known, we could have prevented this <img src=""> I will try to be more careful about how and what I post from now on. Again I am truly sorry if I have scared anyone, it was not my intension. My best to all and I pray this is only our story, and that no one else has to go through that.</end quote>

<br>No, no, no...I am glad you posted what you did. I was somewhat exaggerating about DD not reading this. She's 16 so not really little any more. She would rather know the "worst" and find out that it isn't that bad really. We have been talking a lot about the "what if's" with her and since she has an interest in becoming a doctor, all of this has been somewhatfascinatingfor her. The only thing we really haven't talked about is having children someday and what having CF MIGHT mean for her--or might not. She knows enough about genetics having studied it in school to "understand" she may pass this on but hasn't really voiced that yet.
 

fallenarches

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JENNYC</b></i>

It was a very shocking, very unexpected event, but none the less it happened. I just wanted to apologize if I shouldn't have said all that I did. I forget that little ones might be reading this as well. I just wanted everyone to be aware as we were not, and are now paying for it, or rather my baby is and will forever. Now not only does she have CF she now her looks are impaired as well. If only we would have known, we could have prevented this <img src=""> I will try to be more careful about how and what I post from now on. Again I am truly sorry if I have scared anyone, it was not my intension. My best to all and I pray this is only our story, and that no one else has to go through that.</end quote>

<br>No, no, no...I am glad you posted what you did. I was somewhat exaggerating about DD not reading this. She's 16 so not really little any more. She would rather know the "worst" and find out that it isn't that bad really. We have been talking a lot about the "what if's" with her and since she has an interest in becoming a doctor, all of this has been somewhatfascinatingfor her. The only thing we really haven't talked about is having children someday and what having CF MIGHT mean for her--or might not. She knows enough about genetics having studied it in school to "understand" she may pass this on but hasn't really voiced that yet.
 

RistaGirly

New member
I have had 2 polypectomies in the past, and will be going for my 3rd on January 4th. I don't have allergies, only seasonal..which is even a little rare for me..this year is the first year ive ever shown signs of that.
I just hate being couped up in the house for a week.
 

RistaGirly

New member
I have had 2 polypectomies in the past, and will be going for my 3rd on January 4th. I don't have allergies, only seasonal..which is even a little rare for me..this year is the first year ive ever shown signs of that.
I just hate being couped up in the house for a week.
 

RistaGirly

New member
I have had 2 polypectomies in the past, and will be going for my 3rd on January 4th. I don't have allergies, only seasonal..which is even a little rare for me..this year is the first year ive ever shown signs of that.
<br />I just hate being couped up in the house for a week.
 

fallenarches

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>RistaGirly</b></i>

I have had 2 polypectomies in the past, and will be going for my 3rd on January 4th. I don't have allergies, only seasonal..which is even a little rare for me..this year is the first year ive ever shown signs of that.

I just hate being couped up in the house for a week.</end quote></div>

<div><br></div><div>At bare minimum, DD is going to have to have this done. Is this typically an "office" procedure or do they do it in the hospital--same day? overnight?</div>
 

fallenarches

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>RistaGirly</b></i>

I have had 2 polypectomies in the past, and will be going for my 3rd on January 4th. I don't have allergies, only seasonal..which is even a little rare for me..this year is the first year ive ever shown signs of that.

I just hate being couped up in the house for a week.</end quote>

<br>At bareminimum, DD is going to have to have this done. Is this typically an "office" procedure or do they do it in the hospital--same day? overnight?
 

fallenarches

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>RistaGirly</b></i>

I have had 2 polypectomies in the past, and will be going for my 3rd on January 4th. I don't have allergies, only seasonal..which is even a little rare for me..this year is the first year ive ever shown signs of that.

I just hate being couped up in the house for a week.</end quote>

<br>At bareminimum, DD is going to have to have this done. Is this typically an "office" procedure or do they do it in the hospital--same day? overnight?
 
wow, lots of good info! My son has CF and has had TONS of nasal polyps and chronic sinusitis. He's had a sinus surgery where they cleared out the polyps about every 3 years. For people without cf, it's usually an outpatient surgery, but with CF you have to watch out for issues with the lungs with the anesthesia. Our ENT surgeon recommended, and we agree, that any time my son gets a sinus surgery, we're booked for the night at the local children's hospital for observation. It's just a good plan of action.

Joe's got mild allergies, but no real relation between the polyps and the allergies. I do LOVE the results with the sinus flush, have your daughter start slowly and make sure the water you mix with is warm, less shocking that way.

Good luck and she'll feel a LOT better after the surgery (as long as no scary side-effects happen like the eyeballs thing--WOW that freaked me out, but good to know to ask about before surgery!!)
 
wow, lots of good info! My son has CF and has had TONS of nasal polyps and chronic sinusitis. He's had a sinus surgery where they cleared out the polyps about every 3 years. For people without cf, it's usually an outpatient surgery, but with CF you have to watch out for issues with the lungs with the anesthesia. Our ENT surgeon recommended, and we agree, that any time my son gets a sinus surgery, we're booked for the night at the local children's hospital for observation. It's just a good plan of action.

Joe's got mild allergies, but no real relation between the polyps and the allergies. I do LOVE the results with the sinus flush, have your daughter start slowly and make sure the water you mix with is warm, less shocking that way.

Good luck and she'll feel a LOT better after the surgery (as long as no scary side-effects happen like the eyeballs thing--WOW that freaked me out, but good to know to ask about before surgery!!)
 
wow, lots of good info! My son has CF and has had TONS of nasal polyps and chronic sinusitis. He's had a sinus surgery where they cleared out the polyps about every 3 years. For people without cf, it's usually an outpatient surgery, but with CF you have to watch out for issues with the lungs with the anesthesia. Our ENT surgeon recommended, and we agree, that any time my son gets a sinus surgery, we're booked for the night at the local children's hospital for observation. It's just a good plan of action.
<br />
<br />Joe's got mild allergies, but no real relation between the polyps and the allergies. I do LOVE the results with the sinus flush, have your daughter start slowly and make sure the water you mix with is warm, less shocking that way.
<br />
<br />Good luck and she'll feel a LOT better after the surgery (as long as no scary side-effects happen like the eyeballs thing--WOW that freaked me out, but good to know to ask about before surgery!!)
<br />
 

Beccamom

New member
fFllenarches, my daughter had day surgery at the Children's hospital. She was scheduled for just after lunch so that she could wake up slowly and check her pulsox over a longer period of time to ensure no lung issues. Also since we didn't leave until 7pm we were told it make it easier for insurance purposes to say that it was late and they wanted to keep her for observation. In the end we got to go home the same day. She did also just have her lifetime high PFTs so that made us more optimistic about lung function after anesthesia.

We are one week post surgery and she is off the pain meds, but still getting blood dripping from her sinuses when she does her hypertonic saline and vest at night. Brought a sample to the doctor yesterday and was told that blood was still normal. We are keeping her home from school for a second week as an infection precautious, but otherwise she is recovering well.
 

Beccamom

New member
fFllenarches, my daughter had day surgery at the Children's hospital. She was scheduled for just after lunch so that she could wake up slowly and check her pulsox over a longer period of time to ensure no lung issues. Also since we didn't leave until 7pm we were told it make it easier for insurance purposes to say that it was late and they wanted to keep her for observation. In the end we got to go home the same day. She did also just have her lifetime high PFTs so that made us more optimistic about lung function after anesthesia.

We are one week post surgery and she is off the pain meds, but still getting blood dripping from her sinuses when she does her hypertonic saline and vest at night. Brought a sample to the doctor yesterday and was told that blood was still normal. We are keeping her home from school for a second week as an infection precautious, but otherwise she is recovering well.
 

Beccamom

New member
fFllenarches, my daughter had day surgery at the Children's hospital. She was scheduled for just after lunch so that she could wake up slowly and check her pulsox over a longer period of time to ensure no lung issues. Also since we didn't leave until 7pm we were told it make it easier for insurance purposes to say that it was late and they wanted to keep her for observation. In the end we got to go home the same day. She did also just have her lifetime high PFTs so that made us more optimistic about lung function after anesthesia.
<br />
<br />We are one week post surgery and she is off the pain meds, but still getting blood dripping from her sinuses when she does her hypertonic saline and vest at night. Brought a sample to the doctor yesterday and was told that blood was still normal. We are keeping her home from school for a second week as an infection precautious, but otherwise she is recovering well.
 

fallenarches

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Beccamom</b></i>

fFllenarches, my daughter had day surgery at the Children's hospital. She was scheduled for just after lunch so that she could wake up slowly and check her pulsox over a longer period of time to ensure no lung issues. Also since we didn't leave until 7pm we were told it make it easier for insurance purposes to say that it was late and they wanted to keep her for observation. In the end we got to go home the same day. She did also just have her lifetime high PFTs so that made us more optimistic about lung function after anesthesia.



We are one week post surgery and she is off the pain meds, but still getting blood dripping from her sinuses when she does her hypertonic saline and vest at night. Brought a sample to the doctor yesterday and was told that blood was still normal. We are keeping her home from school for a second week as an infection precautious, but otherwise she is recovering well.</end quote></div>

<div><br></div><div>Thanks.  Sounds like we want to try to schedule this around a school holiday if possible.</div>
 

fallenarches

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Beccamom</b></i>

fFllenarches, my daughter had day surgery at the Children's hospital. She was scheduled for just after lunch so that she could wake up slowly and check her pulsox over a longer period of time to ensure no lung issues. Also since we didn't leave until 7pm we were told it make it easier for insurance purposes to say that it was late and they wanted to keep her for observation. In the end we got to go home the same day. She did also just have her lifetime high PFTs so that made us more optimistic about lung function after anesthesia.



We are one week post surgery and she is off the pain meds, but still getting blood dripping from her sinuses when she does her hypertonic saline and vest at night. Brought a sample to the doctor yesterday and was told that blood was still normal. We are keeping her home from school for a second week as an infection precautious, but otherwise she is recovering well.</end quote>

<br>Thanks. Sounds like we want to try to schedule this around a school holiday if possible.
 

fallenarches

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Beccamom</b></i>

fFllenarches, my daughter had day surgery at the Children's hospital. She was scheduled for just after lunch so that she could wake up slowly and check her pulsox over a longer period of time to ensure no lung issues. Also since we didn't leave until 7pm we were told it make it easier for insurance purposes to say that it was late and they wanted to keep her for observation. In the end we got to go home the same day. She did also just have her lifetime high PFTs so that made us more optimistic about lung function after anesthesia.



We are one week post surgery and she is off the pain meds, but still getting blood dripping from her sinuses when she does her hypertonic saline and vest at night. Brought a sample to the doctor yesterday and was told that blood was still normal. We are keeping her home from school for a second week as an infection precautious, but otherwise she is recovering well.</end quote>

<br>Thanks. Sounds like we want to try to schedule this around a school holiday if possible.
 
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