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National CF Awareness Month...
- Thread starter ej0820
- Start date
thelizardqueen
New member
I believe its May - but I could be wrong!
thelizardqueen
New member
I believe its May - but I could be wrong!
Rutgersnyy
New member
Isn't it sad that we don't know. CF does not get the attention that cancer and AIDS do.
Rutgersnyy
New member
Isn't it sad that we don't know. CF does not get the attention that cancer and AIDS do.
Emily65Roses
New member
I have a question. What's the point of a CF awareness month, if no one but the CF community really knows about it? We are already aware.
Do they actually post this information anywhere important (i.e. newspapers, TV, schools, government buildings, etc)? I hope so.
Do they actually post this information anywhere important (i.e. newspapers, TV, schools, government buildings, etc)? I hope so.
Emily65Roses
New member
I have a question. What's the point of a CF awareness month, if no one but the CF community really knows about it? We are already aware.
Do they actually post this information anywhere important (i.e. newspapers, TV, schools, government buildings, etc)? I hope so.
Do they actually post this information anywhere important (i.e. newspapers, TV, schools, government buildings, etc)? I hope so.
Did you guys realize that CF is considered an orphan disease because it only affects 30,000 people in the United States? Pharmaceutical companies will not pay to do research for CF because they cannot profit from it...Pretty sad huh. That is why it is so important that everyone knows that May is CF awareness month. The research that is done for CF is founded by the CF foundation.
Did you guys realize that CF is considered an orphan disease because it only affects 30,000 people in the United States? Pharmaceutical companies will not pay to do research for CF because they cannot profit from it...Pretty sad huh. That is why it is so important that everyone knows that May is CF awareness month. The research that is done for CF is founded by the CF foundation.
JennifersHope
New member
I don't know when it is, but I am going to do a lot to make people aware what ever the month is. I just ordered a ton more of those blue breath bands.. and I am going to give them out again.. I did that last year... the only person still wearing it is my boss... But last year, I gave them out and a lot of people asked about them..
As far as orphan diseases... Addison's disease is also a very orphan disease. 1 in 160 or 180,000 people have... and no one cares as far as research and stuff goes... Last person who had it that brought any attention to it was JFK.
I feel like I should have red curly hair and start singing " The sun will come out tomorrow"
As far as orphan diseases... Addison's disease is also a very orphan disease. 1 in 160 or 180,000 people have... and no one cares as far as research and stuff goes... Last person who had it that brought any attention to it was JFK.
I feel like I should have red curly hair and start singing " The sun will come out tomorrow"
JennifersHope
New member
I don't know when it is, but I am going to do a lot to make people aware what ever the month is. I just ordered a ton more of those blue breath bands.. and I am going to give them out again.. I did that last year... the only person still wearing it is my boss... But last year, I gave them out and a lot of people asked about them..
As far as orphan diseases... Addison's disease is also a very orphan disease. 1 in 160 or 180,000 people have... and no one cares as far as research and stuff goes... Last person who had it that brought any attention to it was JFK.
I feel like I should have red curly hair and start singing " The sun will come out tomorrow"
As far as orphan diseases... Addison's disease is also a very orphan disease. 1 in 160 or 180,000 people have... and no one cares as far as research and stuff goes... Last person who had it that brought any attention to it was JFK.
I feel like I should have red curly hair and start singing " The sun will come out tomorrow"