need advice...

[kayleesgrandma]

What a spot to be in! I agree with you--and this is a touchy subject here on site...Why oh why would someone do that to a child? I do not believe in WILLFULLY bringing a cf child into the world...I feel that it is NOT something left to God--that is why he gave us brains.

At least, for the sake of the child, it is important that you convey how imperrative it is to be compliant with healthcare. I have been tearing my hair out because my daughter thinks Kaylee is "ok" and has "mild cf", and doesn't do the vest as she should...

At least, if these parents went ahead and had a child--they should AT LEAST have read up on CF...

Good luck, let us know when this will take place--I will say a prayer for you!

 

[kayleesgrandma]

What a spot to be in! I agree with you--and this is a touchy subject here on site...Why oh why would someone do that to a child? I do not believe in WILLFULLY bringing a cf child into the world...I feel that it is NOT something left to God--that is why he gave us brains.

At least, for the sake of the child, it is important that you convey how imperrative it is to be compliant with healthcare. I have been tearing my hair out because my daughter thinks Kaylee is "ok" and has "mild cf", and doesn't do the vest as she should...

At least, if these parents went ahead and had a child--they should AT LEAST have read up on CF...

Good luck, let us know when this will take place--I will say a prayer for you!

 

[kayleesgrandma]

What a spot to be in! I agree with you--and this is a touchy subject here on site...Why oh why would someone do that to a child? I do not believe in WILLFULLY bringing a cf child into the world...I feel that it is NOT something left to God--that is why he gave us brains.

At least, for the sake of the child, it is important that you convey how imperrative it is to be compliant with healthcare. I have been tearing my hair out because my daughter thinks Kaylee is "ok" and has "mild cf", and doesn't do the vest as she should...

At least, if these parents went ahead and had a child--they should AT LEAST have read up on CF...

Good luck, let us know when this will take place--I will say a prayer for you!

 

[kayleesgrandma]

What a spot to be in! I agree with you--and this is a touchy subject here on site...Why oh why would someone do that to a child? I do not believe in WILLFULLY bringing a cf child into the world...I feel that it is NOT something left to God--that is why he gave us brains.

At least, for the sake of the child, it is important that you convey how imperrative it is to be compliant with healthcare. I have been tearing my hair out because my daughter thinks Kaylee is "ok" and has "mild cf", and doesn't do the vest as she should...

At least, if these parents went ahead and had a child--they should AT LEAST have read up on CF...

Good luck, let us know when this will take place--I will say a prayer for you!

 

[kayleesgrandma]

What a spot to be in! I agree with you--and this is a touchy subject here on site...Why oh why would someone do that to a child? I do not believe in WILLFULLY bringing a cf child into the world...I feel that it is NOT something left to God--that is why he gave us brains.
<br />
<br />At least, for the sake of the child, it is important that you convey how imperrative it is to be compliant with healthcare. I have been tearing my hair out because my daughter thinks Kaylee is "ok" and has "mild cf", and doesn't do the vest as she should...
<br />
<br />At least, if these parents went ahead and had a child--they should AT LEAST have read up on CF...
<br />
<br />Good luck, let us know when this will take place--I will say a prayer for you!

 

[ktsmom]

As a mom of a CF'er, I would personally LOVE to sit with an adult w/cf and talk about, gosh, a huge number of things including how far treatment has come. But that's just me - we are on a proactive treatment regimen, we are compliant, we constantly look for information.

Tie in the fact that you 'look so good' with the fact that you are extremely compliant. Focus the conversation on yourself and what you do to try to stay healthy. It is touchy seeing that if things go south during the conversation your husband has to continue to work with the dad. But remember the dad ASKED YOU for your insight. Perhaps he needs some help convincing the mom to be more proactive? Whatever the reason, I see this as an opportunity to spread good info.

 

[ktsmom]

As a mom of a CF'er, I would personally LOVE to sit with an adult w/cf and talk about, gosh, a huge number of things including how far treatment has come. But that's just me - we are on a proactive treatment regimen, we are compliant, we constantly look for information.

Tie in the fact that you 'look so good' with the fact that you are extremely compliant. Focus the conversation on yourself and what you do to try to stay healthy. It is touchy seeing that if things go south during the conversation your husband has to continue to work with the dad. But remember the dad ASKED YOU for your insight. Perhaps he needs some help convincing the mom to be more proactive? Whatever the reason, I see this as an opportunity to spread good info.

 

[ktsmom]

As a mom of a CF'er, I would personally LOVE to sit with an adult w/cf and talk about, gosh, a huge number of things including how far treatment has come. But that's just me - we are on a proactive treatment regimen, we are compliant, we constantly look for information.

Tie in the fact that you 'look so good' with the fact that you are extremely compliant. Focus the conversation on yourself and what you do to try to stay healthy. It is touchy seeing that if things go south during the conversation your husband has to continue to work with the dad. But remember the dad ASKED YOU for your insight. Perhaps he needs some help convincing the mom to be more proactive? Whatever the reason, I see this as an opportunity to spread good info.

 

[ktsmom]

As a mom of a CF'er, I would personally LOVE to sit with an adult w/cf and talk about, gosh, a huge number of things including how far treatment has come. But that's just me - we are on a proactive treatment regimen, we are compliant, we constantly look for information.

Tie in the fact that you 'look so good' with the fact that you are extremely compliant. Focus the conversation on yourself and what you do to try to stay healthy. It is touchy seeing that if things go south during the conversation your husband has to continue to work with the dad. But remember the dad ASKED YOU for your insight. Perhaps he needs some help convincing the mom to be more proactive? Whatever the reason, I see this as an opportunity to spread good info.

 

[ktsmom]

As a mom of a CF'er, I would personally LOVE to sit with an adult w/cf and talk about, gosh, a huge number of things including how far treatment has come. But that's just me - we are on a proactive treatment regimen, we are compliant, we constantly look for information.
<br />
<br />Tie in the fact that you 'look so good' with the fact that you are extremely compliant. Focus the conversation on yourself and what you do to try to stay healthy. It is touchy seeing that if things go south during the conversation your husband has to continue to work with the dad. But remember the dad ASKED YOU for your insight. Perhaps he needs some help convincing the mom to be more proactive? Whatever the reason, I see this as an opportunity to spread good info.

 

[mousesmom]

This is really a tough situation to be in, once you're invloved they may pester you every time the child becomes ill. Perhaps these parents need to talk to a CF'er whose not "looking so good" so that they would be more motivated to be compliant.

 

[mousesmom]

This is really a tough situation to be in, once you're invloved they may pester you every time the child becomes ill. Perhaps these parents need to talk to a CF'er whose not "looking so good" so that they would be more motivated to be compliant.

 

[mousesmom]

This is really a tough situation to be in, once you're invloved they may pester you every time the child becomes ill. Perhaps these parents need to talk to a CF'er whose not "looking so good" so that they would be more motivated to be compliant.

 

[mousesmom]

This is really a tough situation to be in, once you're invloved they may pester you every time the child becomes ill. Perhaps these parents need to talk to a CF'er whose not "looking so good" so that they would be more motivated to be compliant.

 

[mousesmom]

This is really a tough situation to be in, once you're invloved they may pester you every time the child becomes ill. Perhaps these parents need to talk to a CF'er whose not "looking so good" so that they would be more motivated to be compliant.

 

[TinyGreenTurtles]

I am a mom that has cf, and when I got pregnant the first time, it was unexpected. The second time, I didn't have my husband tested first. My thought then was "oh the chances are so small..." Okay, I was younger then, and probably stupid, and I was LUCKY not to have a child with cf. When I think about the fact that I did that, it makes my tummy tie up in knots. Now my tubes are tied and there won't be any more babies. The point of saying all this is, what's done is done. My daughter is here.
That child is here, and that child deserves every chance to have as healthy life as possible. In my opinion, if there is any way that you can help those people realize how important it is to be compliant when it comes to cf treatment, in order to prevent infections and lung damage, then you are doing that child - who again is already here no matter how stupid the choice - a HUGE favor.

 

[TinyGreenTurtles]

I am a mom that has cf, and when I got pregnant the first time, it was unexpected. The second time, I didn't have my husband tested first. My thought then was "oh the chances are so small..." Okay, I was younger then, and probably stupid, and I was LUCKY not to have a child with cf. When I think about the fact that I did that, it makes my tummy tie up in knots. Now my tubes are tied and there won't be any more babies. The point of saying all this is, what's done is done. My daughter is here.
That child is here, and that child deserves every chance to have as healthy life as possible. In my opinion, if there is any way that you can help those people realize how important it is to be compliant when it comes to cf treatment, in order to prevent infections and lung damage, then you are doing that child - who again is already here no matter how stupid the choice - a HUGE favor.

 

[TinyGreenTurtles]

I am a mom that has cf, and when I got pregnant the first time, it was unexpected. The second time, I didn't have my husband tested first. My thought then was "oh the chances are so small..." Okay, I was younger then, and probably stupid, and I was LUCKY not to have a child with cf. When I think about the fact that I did that, it makes my tummy tie up in knots. Now my tubes are tied and there won't be any more babies. The point of saying all this is, what's done is done. My daughter is here.
That child is here, and that child deserves every chance to have as healthy life as possible. In my opinion, if there is any way that you can help those people realize how important it is to be compliant when it comes to cf treatment, in order to prevent infections and lung damage, then you are doing that child - who again is already here no matter how stupid the choice - a HUGE favor.

 

[TinyGreenTurtles]

I am a mom that has cf, and when I got pregnant the first time, it was unexpected. The second time, I didn't have my husband tested first. My thought then was "oh the chances are so small..." Okay, I was younger then, and probably stupid, and I was LUCKY not to have a child with cf. When I think about the fact that I did that, it makes my tummy tie up in knots. Now my tubes are tied and there won't be any more babies. The point of saying all this is, what's done is done. My daughter is here.
That child is here, and that child deserves every chance to have as healthy life as possible. In my opinion, if there is any way that you can help those people realize how important it is to be compliant when it comes to cf treatment, in order to prevent infections and lung damage, then you are doing that child - who again is already here no matter how stupid the choice - a HUGE favor.

 

[TinyGreenTurtles]

I am a mom that has cf, and when I got pregnant the first time, it was unexpected. The second time, I didn't have my husband tested first. My thought then was "oh the chances are so small..." Okay, I was younger then, and probably stupid, and I was LUCKY not to have a child with cf. When I think about the fact that I did that, it makes my tummy tie up in knots. Now my tubes are tied and there won't be any more babies. The point of saying all this is, what's done is done. My daughter is here.
<br />That child is here, and that child deserves every chance to have as healthy life as possible. In my opinion, if there is any way that you can help those people realize how important it is to be compliant when it comes to cf treatment, in order to prevent infections and lung damage, then you are doing that child - who again is already here no matter how stupid the choice - a HUGE favor.