Need advice

C

ConnorsMom

New member
I don't have any different advice than you've gotten, but I wanted to say, that if your darling baby is gaining, there is no reason not to hold off on the g-tube. The CF team we had when Connor was that age, was always happy as long as he was gaining. He too was always in the 25th precentile. I know research has changed, and they are pushing weight. Just follow your gut. You have the right attitude about the g-tube. Rest asured that the g-tube doesn't really slow Connor down at all.
Good luck to you!
 
C

ConnorsMom

New member
I don't have any different advice than you've gotten, but I wanted to say, that if your darling baby is gaining, there is no reason not to hold off on the g-tube. The CF team we had when Connor was that age, was always happy as long as he was gaining. He too was always in the 25th precentile. I know research has changed, and they are pushing weight. Just follow your gut. You have the right attitude about the g-tube. Rest asured that the g-tube doesn't really slow Connor down at all.
Good luck to you!
 
C

ConnorsMom

New member
I don't have any different advice than you've gotten, but I wanted to say, that if your darling baby is gaining, there is no reason not to hold off on the g-tube. The CF team we had when Connor was that age, was always happy as long as he was gaining. He too was always in the 25th precentile. I know research has changed, and they are pushing weight. Just follow your gut. You have the right attitude about the g-tube. Rest asured that the g-tube doesn't really slow Connor down at all.
Good luck to you!
 
C

ConnorsMom

New member
I don't have any different advice than you've gotten, but I wanted to say, that if your darling baby is gaining, there is no reason not to hold off on the g-tube. The CF team we had when Connor was that age, was always happy as long as he was gaining. He too was always in the 25th precentile. I know research has changed, and they are pushing weight. Just follow your gut. You have the right attitude about the g-tube. Rest asured that the g-tube doesn't really slow Connor down at all.
Good luck to you!
 
C

ConnorsMom

New member
I don't have any different advice than you've gotten, but I wanted to say, that if your darling baby is gaining, there is no reason not to hold off on the g-tube. The CF team we had when Connor was that age, was always happy as long as he was gaining. He too was always in the 25th precentile. I know research has changed, and they are pushing weight. Just follow your gut. You have the right attitude about the g-tube. Rest asured that the g-tube doesn't really slow Connor down at all.
<br />Good luck to you!
 
C

ConnorsMom

New member
I don't have any different advice than you've gotten, but I wanted to say, that if your darling baby is gaining, there is no reason not to hold off on the g-tube. The CF team we had when Connor was that age, was always happy as long as he was gaining. He too was always in the 25th precentile. I know research has changed, and they are pushing weight. Just follow your gut. You have the right attitude about the g-tube. Rest asured that the g-tube doesn't really slow Connor down at all.
Good luck to you!
 
C

ConnorsMom

New member
I don't have any different advice than you've gotten, but I wanted to say, that if your darling baby is gaining, there is no reason not to hold off on the g-tube. The CF team we had when Connor was that age, was always happy as long as he was gaining. He too was always in the 25th precentile. I know research has changed, and they are pushing weight. Just follow your gut. You have the right attitude about the g-tube. Rest asured that the g-tube doesn't really slow Connor down at all.
Good luck to you!
 
C

ConnorsMom

New member
I don't have any different advice than you've gotten, but I wanted to say, that if your darling baby is gaining, there is no reason not to hold off on the g-tube. The CF team we had when Connor was that age, was always happy as long as he was gaining. He too was always in the 25th precentile. I know research has changed, and they are pushing weight. Just follow your gut. You have the right attitude about the g-tube. Rest asured that the g-tube doesn't really slow Connor down at all.
Good luck to you!
 
C

ConnorsMom

New member
I don't have any different advice than you've gotten, but I wanted to say, that if your darling baby is gaining, there is no reason not to hold off on the g-tube. The CF team we had when Connor was that age, was always happy as long as he was gaining. He too was always in the 25th precentile. I know research has changed, and they are pushing weight. Just follow your gut. You have the right attitude about the g-tube. Rest asured that the g-tube doesn't really slow Connor down at all.
Good luck to you!
 
C

ConnorsMom

New member
I don't have any different advice than you've gotten, but I wanted to say, that if your darling baby is gaining, there is no reason not to hold off on the g-tube. The CF team we had when Connor was that age, was always happy as long as he was gaining. He too was always in the 25th precentile. I know research has changed, and they are pushing weight. Just follow your gut. You have the right attitude about the g-tube. Rest asured that the g-tube doesn't really slow Connor down at all.
<br />Good luck to you!
 
F

folione

New member
25% sounds pretty good to me; my boy was closer to 15% at that age and we told the dietician to back off; a happy baby who is gaining weight counts for alot. I do not disagree with the evidence that bigger is better when you've got CF, but it is only one factor and the problem with dieticians/nutritionists is that weight/food is the only factor they think about. I'd discuss it with the doctor.
 
F

folione

New member
25% sounds pretty good to me; my boy was closer to 15% at that age and we told the dietician to back off; a happy baby who is gaining weight counts for alot. I do not disagree with the evidence that bigger is better when you've got CF, but it is only one factor and the problem with dieticians/nutritionists is that weight/food is the only factor they think about. I'd discuss it with the doctor.
 
F

folione

New member
25% sounds pretty good to me; my boy was closer to 15% at that age and we told the dietician to back off; a happy baby who is gaining weight counts for alot. I do not disagree with the evidence that bigger is better when you've got CF, but it is only one factor and the problem with dieticians/nutritionists is that weight/food is the only factor they think about. I'd discuss it with the doctor.
 
F

folione

New member
25% sounds pretty good to me; my boy was closer to 15% at that age and we told the dietician to back off; a happy baby who is gaining weight counts for alot. I do not disagree with the evidence that bigger is better when you've got CF, but it is only one factor and the problem with dieticians/nutritionists is that weight/food is the only factor they think about. I'd discuss it with the doctor.
 
F

folione

New member
25% sounds pretty good to me; my boy was closer to 15% at that age and we told the dietician to back off; a happy baby who is gaining weight counts for alot. I do not disagree with the evidence that bigger is better when you've got CF, but it is only one factor and the problem with dieticians/nutritionists is that weight/food is the only factor they think about. I'd discuss it with the doctor.
 
R

Ratatosk

Administrator
Staff member
We had similar issues with DS not drinking the required amount and we WERE feeding him every 3-4 hours -- would set the alarm for the middle of the night. We were able to maintain a 50th percentile; however, we continued to use a higher calorie formula (more powder to water ratio) because we just couldn't get DS to drink more that 4 ounces at a sitting. Calorie-wise we were fine, just not okay according to the dietician regarding number of ounces.

I will say, that because I was so stressed out, DS probably picked up on it. We did fine when he was sleeping -- I would sleep fed him -- meaning he slept thru his 2:30 feeding and that was probably his best feed. He was calm, I was calmer...
 
R

Ratatosk

Administrator
Staff member
We had similar issues with DS not drinking the required amount and we WERE feeding him every 3-4 hours -- would set the alarm for the middle of the night. We were able to maintain a 50th percentile; however, we continued to use a higher calorie formula (more powder to water ratio) because we just couldn't get DS to drink more that 4 ounces at a sitting. Calorie-wise we were fine, just not okay according to the dietician regarding number of ounces.

I will say, that because I was so stressed out, DS probably picked up on it. We did fine when he was sleeping -- I would sleep fed him -- meaning he slept thru his 2:30 feeding and that was probably his best feed. He was calm, I was calmer...
 
R

Ratatosk

Administrator
Staff member
We had similar issues with DS not drinking the required amount and we WERE feeding him every 3-4 hours -- would set the alarm for the middle of the night. We were able to maintain a 50th percentile; however, we continued to use a higher calorie formula (more powder to water ratio) because we just couldn't get DS to drink more that 4 ounces at a sitting. Calorie-wise we were fine, just not okay according to the dietician regarding number of ounces.

I will say, that because I was so stressed out, DS probably picked up on it. We did fine when he was sleeping -- I would sleep fed him -- meaning he slept thru his 2:30 feeding and that was probably his best feed. He was calm, I was calmer...
 
R

Ratatosk

Administrator
Staff member
We had similar issues with DS not drinking the required amount and we WERE feeding him every 3-4 hours -- would set the alarm for the middle of the night. We were able to maintain a 50th percentile; however, we continued to use a higher calorie formula (more powder to water ratio) because we just couldn't get DS to drink more that 4 ounces at a sitting. Calorie-wise we were fine, just not okay according to the dietician regarding number of ounces.

I will say, that because I was so stressed out, DS probably picked up on it. We did fine when he was sleeping -- I would sleep fed him -- meaning he slept thru his 2:30 feeding and that was probably his best feed. He was calm, I was calmer...
 
R

Ratatosk

Administrator
Staff member
We had similar issues with DS not drinking the required amount and we WERE feeding him every 3-4 hours -- would set the alarm for the middle of the night. We were able to maintain a 50th percentile; however, we continued to use a higher calorie formula (more powder to water ratio) because we just couldn't get DS to drink more that 4 ounces at a sitting. Calorie-wise we were fine, just not okay according to the dietician regarding number of ounces.
<br />
<br />I will say, that because I was so stressed out, DS probably picked up on it. We did fine when he was sleeping -- I would sleep fed him -- meaning he slept thru his 2:30 feeding and that was probably his best feed. He was calm, I was calmer...
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