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Need help with some questions
- Thread starter ReneeP
- Start date
I haven't read the above posts. But FEV 75-25 is a measurement of small airways and usually isn't used as a measurement for complete lung function.
FEV 75-25 can often detect asthma or allergies. My experience has been that docs see a decline in PFT's and they automatically go to antibiotics. Oftentimes, as it has been with me and other CFers, allergies & asthma are overlooked. All the antibiotics in the world aren't going to fix inflammation due to allergies.
Prednisone will. Allergy shots will. Allergy avoidence will. i would suggestion to your doc inflammation associated with allergies/asthma and get her tested for allergies (not IgE blood test, but skin test).
Good luck and keep us posted!
FEV 75-25 can often detect asthma or allergies. My experience has been that docs see a decline in PFT's and they automatically go to antibiotics. Oftentimes, as it has been with me and other CFers, allergies & asthma are overlooked. All the antibiotics in the world aren't going to fix inflammation due to allergies.
Prednisone will. Allergy shots will. Allergy avoidence will. i would suggestion to your doc inflammation associated with allergies/asthma and get her tested for allergies (not IgE blood test, but skin test).
Good luck and keep us posted!
I haven't read the above posts. But FEV 75-25 is a measurement of small airways and usually isn't used as a measurement for complete lung function.
FEV 75-25 can often detect asthma or allergies. My experience has been that docs see a decline in PFT's and they automatically go to antibiotics. Oftentimes, as it has been with me and other CFers, allergies & asthma are overlooked. All the antibiotics in the world aren't going to fix inflammation due to allergies.
Prednisone will. Allergy shots will. Allergy avoidence will. i would suggestion to your doc inflammation associated with allergies/asthma and get her tested for allergies (not IgE blood test, but skin test).
Good luck and keep us posted!
FEV 75-25 can often detect asthma or allergies. My experience has been that docs see a decline in PFT's and they automatically go to antibiotics. Oftentimes, as it has been with me and other CFers, allergies & asthma are overlooked. All the antibiotics in the world aren't going to fix inflammation due to allergies.
Prednisone will. Allergy shots will. Allergy avoidence will. i would suggestion to your doc inflammation associated with allergies/asthma and get her tested for allergies (not IgE blood test, but skin test).
Good luck and keep us posted!
I haven't read the above posts. But FEV 75-25 is a measurement of small airways and usually isn't used as a measurement for complete lung function.
FEV 75-25 can often detect asthma or allergies. My experience has been that docs see a decline in PFT's and they automatically go to antibiotics. Oftentimes, as it has been with me and other CFers, allergies & asthma are overlooked. All the antibiotics in the world aren't going to fix inflammation due to allergies.
Prednisone will. Allergy shots will. Allergy avoidence will. i would suggestion to your doc inflammation associated with allergies/asthma and get her tested for allergies (not IgE blood test, but skin test).
Good luck and keep us posted!
FEV 75-25 can often detect asthma or allergies. My experience has been that docs see a decline in PFT's and they automatically go to antibiotics. Oftentimes, as it has been with me and other CFers, allergies & asthma are overlooked. All the antibiotics in the world aren't going to fix inflammation due to allergies.
Prednisone will. Allergy shots will. Allergy avoidence will. i would suggestion to your doc inflammation associated with allergies/asthma and get her tested for allergies (not IgE blood test, but skin test).
Good luck and keep us posted!
Wow, you guys have been through a lot the past few weeks. Sometimes antibiotics can raise blood sugars too. My son had very high numbers last year and was diagnosed with CFRD. As soon as he stopped the med, he was fine. Great numbers again.
I'd ask about all the meds.
My thoughts are with you- hang in there, I know its tough.
I'd ask about all the meds.
My thoughts are with you- hang in there, I know its tough.
Wow, you guys have been through a lot the past few weeks. Sometimes antibiotics can raise blood sugars too. My son had very high numbers last year and was diagnosed with CFRD. As soon as he stopped the med, he was fine. Great numbers again.
I'd ask about all the meds.
My thoughts are with you- hang in there, I know its tough.
I'd ask about all the meds.
My thoughts are with you- hang in there, I know its tough.
Wow, you guys have been through a lot the past few weeks. Sometimes antibiotics can raise blood sugars too. My son had very high numbers last year and was diagnosed with CFRD. As soon as he stopped the med, he was fine. Great numbers again.
I'd ask about all the meds.
My thoughts are with you- hang in there, I know its tough.
I'd ask about all the meds.
My thoughts are with you- hang in there, I know its tough.
RosesforRachel
New member
I am really sorry about everything you are going through. I totally understand your frustration and being overwhelmed. I think it is doubly hard because of the age of your child. If she is anything like my 11 year old they get so scared and watch your every move and reaction so basically you have to have a permanent smile on your face. I too am in the hospital right now with my daughter. This is the 4th admission since Halloween and I am ready to pull my hair out. SHe has been so healthy up to this point and I feel like all of sudden everything is crashing down. My daughter does not have CFRD but has been tested and is borderline. I will tell you from experience and what docs have told me is that when they are going through and exacerbation their sugar can run higher. I don't know if they mean as high as your daughters but it is possible. Have they ever done a glucose tolerance test. You may want to have that done after she is better and done with treatment. What type of bacteria are they treating? Just curious.
RosesforRachel
New member
I am really sorry about everything you are going through. I totally understand your frustration and being overwhelmed. I think it is doubly hard because of the age of your child. If she is anything like my 11 year old they get so scared and watch your every move and reaction so basically you have to have a permanent smile on your face. I too am in the hospital right now with my daughter. This is the 4th admission since Halloween and I am ready to pull my hair out. SHe has been so healthy up to this point and I feel like all of sudden everything is crashing down. My daughter does not have CFRD but has been tested and is borderline. I will tell you from experience and what docs have told me is that when they are going through and exacerbation their sugar can run higher. I don't know if they mean as high as your daughters but it is possible. Have they ever done a glucose tolerance test. You may want to have that done after she is better and done with treatment. What type of bacteria are they treating? Just curious.
RosesforRachel
New member
I am really sorry about everything you are going through. I totally understand your frustration and being overwhelmed. I think it is doubly hard because of the age of your child. If she is anything like my 11 year old they get so scared and watch your every move and reaction so basically you have to have a permanent smile on your face. I too am in the hospital right now with my daughter. This is the 4th admission since Halloween and I am ready to pull my hair out. SHe has been so healthy up to this point and I feel like all of sudden everything is crashing down. My daughter does not have CFRD but has been tested and is borderline. I will tell you from experience and what docs have told me is that when they are going through and exacerbation their sugar can run higher. I don't know if they mean as high as your daughters but it is possible. Have they ever done a glucose tolerance test. You may want to have that done after she is better and done with treatment. What type of bacteria are they treating? Just curious.
Thanks for all the responses. It has been a crazy day to say the least so I am just now getting a chance to respond. Right now I am on such an emotional rollercoaster that I don't know whether I am coming or going.
To try to answer some of the questions above... Kaitlyn hasn't cultured anything at all... They think it was a virus which triggered a major asthma attack, which let to all the problems. She had asthma problems prior to her diagnosis when she was 2 years old, but not since then (until now).
She is on Prednisone right now. 40 mgs daily. She will be reducing to 20 mgs on Saturday. I know that can effect her blood sugar and we are hoping against hope that it will go back to normal once the steriods are gone. However, they did the H1AC (i know that is wrong, but it was something like that... my brain is on overload) and it was borderline so the drs opinion is that she does have CFRD and will need ongoing treatment. However, they have not started insulin because they want to see what will happen when she gets off the steriods. Her blood sugars for the past 2 days have been averaging in the 300's. Only one time out of the 8 times we have checked it has it been normal. Her last 3 today were 386, 305 & 365. Those were all more than 2 hours after eating. To me that sounds really high, but they say they are not going to treat her until after the steriods are gone (16 more days). I will continue to check her blood sugar 4 times a day until then.
I am so overwhelmed and exhausted (mentally and physically) that I just don't think I can absorb anything else right now. This has been the hardest experience I have had since Kaitlyn's diagnosis 10 years ago. I made the HUGE mistake of researching CFRD online and came across this stupid article that said that once a CFer develops CFRD their life expectency greatly deminishes... especially in females. It said that females with CFRD have a 16 year lower life expectancy than CF females without CFRD. Well, that wasn't exactly what I needed to hear at the moment.
I am so scared right now I could just literaly fall apart. I am trying so hard to hold it together to get kailtyn home and then i will lose it once I am alone. I need to have a break down... I need to scream and cry and scream and cry some more. Then I can start to absorb all this and see where we go from here. And I want to help her get it out of her system too, but I'm not sure how. She is not a person to show emotions. Today when the dietician came in to teach us how to count carbs she was talking about insulin and that kaitlyn would probably need it with each meal. Kaitlyn said "well, I will just stop eating then." A little while later kaitlyn asked the dietician "how long will I have to do that" The dietician answered "for the rest of your life"... I can't even begin to describe the emotions in this room at that moment. I am sobbing right now just thinking about it. It absolutely ripped my heart out. She started crying and it nearly killed me. It reminded me of when she was 3 and asked me how old she would be when she could stop taking enzymes... It is so ******* unfair.
I ABSOLUTELY HATE THIS ******* DISEASE!!!!!
To try to answer some of the questions above... Kaitlyn hasn't cultured anything at all... They think it was a virus which triggered a major asthma attack, which let to all the problems. She had asthma problems prior to her diagnosis when she was 2 years old, but not since then (until now).
She is on Prednisone right now. 40 mgs daily. She will be reducing to 20 mgs on Saturday. I know that can effect her blood sugar and we are hoping against hope that it will go back to normal once the steriods are gone. However, they did the H1AC (i know that is wrong, but it was something like that... my brain is on overload) and it was borderline so the drs opinion is that she does have CFRD and will need ongoing treatment. However, they have not started insulin because they want to see what will happen when she gets off the steriods. Her blood sugars for the past 2 days have been averaging in the 300's. Only one time out of the 8 times we have checked it has it been normal. Her last 3 today were 386, 305 & 365. Those were all more than 2 hours after eating. To me that sounds really high, but they say they are not going to treat her until after the steriods are gone (16 more days). I will continue to check her blood sugar 4 times a day until then.
I am so overwhelmed and exhausted (mentally and physically) that I just don't think I can absorb anything else right now. This has been the hardest experience I have had since Kaitlyn's diagnosis 10 years ago. I made the HUGE mistake of researching CFRD online and came across this stupid article that said that once a CFer develops CFRD their life expectency greatly deminishes... especially in females. It said that females with CFRD have a 16 year lower life expectancy than CF females without CFRD. Well, that wasn't exactly what I needed to hear at the moment.
I am so scared right now I could just literaly fall apart. I am trying so hard to hold it together to get kailtyn home and then i will lose it once I am alone. I need to have a break down... I need to scream and cry and scream and cry some more. Then I can start to absorb all this and see where we go from here. And I want to help her get it out of her system too, but I'm not sure how. She is not a person to show emotions. Today when the dietician came in to teach us how to count carbs she was talking about insulin and that kaitlyn would probably need it with each meal. Kaitlyn said "well, I will just stop eating then." A little while later kaitlyn asked the dietician "how long will I have to do that" The dietician answered "for the rest of your life"... I can't even begin to describe the emotions in this room at that moment. I am sobbing right now just thinking about it. It absolutely ripped my heart out. She started crying and it nearly killed me. It reminded me of when she was 3 and asked me how old she would be when she could stop taking enzymes... It is so ******* unfair.
I ABSOLUTELY HATE THIS ******* DISEASE!!!!!
Thanks for all the responses. It has been a crazy day to say the least so I am just now getting a chance to respond. Right now I am on such an emotional rollercoaster that I don't know whether I am coming or going.
To try to answer some of the questions above... Kaitlyn hasn't cultured anything at all... They think it was a virus which triggered a major asthma attack, which let to all the problems. She had asthma problems prior to her diagnosis when she was 2 years old, but not since then (until now).
She is on Prednisone right now. 40 mgs daily. She will be reducing to 20 mgs on Saturday. I know that can effect her blood sugar and we are hoping against hope that it will go back to normal once the steriods are gone. However, they did the H1AC (i know that is wrong, but it was something like that... my brain is on overload) and it was borderline so the drs opinion is that she does have CFRD and will need ongoing treatment. However, they have not started insulin because they want to see what will happen when she gets off the steriods. Her blood sugars for the past 2 days have been averaging in the 300's. Only one time out of the 8 times we have checked it has it been normal. Her last 3 today were 386, 305 & 365. Those were all more than 2 hours after eating. To me that sounds really high, but they say they are not going to treat her until after the steriods are gone (16 more days). I will continue to check her blood sugar 4 times a day until then.
I am so overwhelmed and exhausted (mentally and physically) that I just don't think I can absorb anything else right now. This has been the hardest experience I have had since Kaitlyn's diagnosis 10 years ago. I made the HUGE mistake of researching CFRD online and came across this stupid article that said that once a CFer develops CFRD their life expectency greatly deminishes... especially in females. It said that females with CFRD have a 16 year lower life expectancy than CF females without CFRD. Well, that wasn't exactly what I needed to hear at the moment.
I am so scared right now I could just literaly fall apart. I am trying so hard to hold it together to get kailtyn home and then i will lose it once I am alone. I need to have a break down... I need to scream and cry and scream and cry some more. Then I can start to absorb all this and see where we go from here. And I want to help her get it out of her system too, but I'm not sure how. She is not a person to show emotions. Today when the dietician came in to teach us how to count carbs she was talking about insulin and that kaitlyn would probably need it with each meal. Kaitlyn said "well, I will just stop eating then." A little while later kaitlyn asked the dietician "how long will I have to do that" The dietician answered "for the rest of your life"... I can't even begin to describe the emotions in this room at that moment. I am sobbing right now just thinking about it. It absolutely ripped my heart out. She started crying and it nearly killed me. It reminded me of when she was 3 and asked me how old she would be when she could stop taking enzymes... It is so ******* unfair.
I ABSOLUTELY HATE THIS ******* DISEASE!!!!!
To try to answer some of the questions above... Kaitlyn hasn't cultured anything at all... They think it was a virus which triggered a major asthma attack, which let to all the problems. She had asthma problems prior to her diagnosis when she was 2 years old, but not since then (until now).
She is on Prednisone right now. 40 mgs daily. She will be reducing to 20 mgs on Saturday. I know that can effect her blood sugar and we are hoping against hope that it will go back to normal once the steriods are gone. However, they did the H1AC (i know that is wrong, but it was something like that... my brain is on overload) and it was borderline so the drs opinion is that she does have CFRD and will need ongoing treatment. However, they have not started insulin because they want to see what will happen when she gets off the steriods. Her blood sugars for the past 2 days have been averaging in the 300's. Only one time out of the 8 times we have checked it has it been normal. Her last 3 today were 386, 305 & 365. Those were all more than 2 hours after eating. To me that sounds really high, but they say they are not going to treat her until after the steriods are gone (16 more days). I will continue to check her blood sugar 4 times a day until then.
I am so overwhelmed and exhausted (mentally and physically) that I just don't think I can absorb anything else right now. This has been the hardest experience I have had since Kaitlyn's diagnosis 10 years ago. I made the HUGE mistake of researching CFRD online and came across this stupid article that said that once a CFer develops CFRD their life expectency greatly deminishes... especially in females. It said that females with CFRD have a 16 year lower life expectancy than CF females without CFRD. Well, that wasn't exactly what I needed to hear at the moment.
I am so scared right now I could just literaly fall apart. I am trying so hard to hold it together to get kailtyn home and then i will lose it once I am alone. I need to have a break down... I need to scream and cry and scream and cry some more. Then I can start to absorb all this and see where we go from here. And I want to help her get it out of her system too, but I'm not sure how. She is not a person to show emotions. Today when the dietician came in to teach us how to count carbs she was talking about insulin and that kaitlyn would probably need it with each meal. Kaitlyn said "well, I will just stop eating then." A little while later kaitlyn asked the dietician "how long will I have to do that" The dietician answered "for the rest of your life"... I can't even begin to describe the emotions in this room at that moment. I am sobbing right now just thinking about it. It absolutely ripped my heart out. She started crying and it nearly killed me. It reminded me of when she was 3 and asked me how old she would be when she could stop taking enzymes... It is so ******* unfair.
I ABSOLUTELY HATE THIS ******* DISEASE!!!!!
Thanks for all the responses. It has been a crazy day to say the least so I am just now getting a chance to respond. Right now I am on such an emotional rollercoaster that I don't know whether I am coming or going.
To try to answer some of the questions above... Kaitlyn hasn't cultured anything at all... They think it was a virus which triggered a major asthma attack, which let to all the problems. She had asthma problems prior to her diagnosis when she was 2 years old, but not since then (until now).
She is on Prednisone right now. 40 mgs daily. She will be reducing to 20 mgs on Saturday. I know that can effect her blood sugar and we are hoping against hope that it will go back to normal once the steriods are gone. However, they did the H1AC (i know that is wrong, but it was something like that... my brain is on overload) and it was borderline so the drs opinion is that she does have CFRD and will need ongoing treatment. However, they have not started insulin because they want to see what will happen when she gets off the steriods. Her blood sugars for the past 2 days have been averaging in the 300's. Only one time out of the 8 times we have checked it has it been normal. Her last 3 today were 386, 305 & 365. Those were all more than 2 hours after eating. To me that sounds really high, but they say they are not going to treat her until after the steriods are gone (16 more days). I will continue to check her blood sugar 4 times a day until then.
I am so overwhelmed and exhausted (mentally and physically) that I just don't think I can absorb anything else right now. This has been the hardest experience I have had since Kaitlyn's diagnosis 10 years ago. I made the HUGE mistake of researching CFRD online and came across this stupid article that said that once a CFer develops CFRD their life expectency greatly deminishes... especially in females. It said that females with CFRD have a 16 year lower life expectancy than CF females without CFRD. Well, that wasn't exactly what I needed to hear at the moment.
I am so scared right now I could just literaly fall apart. I am trying so hard to hold it together to get kailtyn home and then i will lose it once I am alone. I need to have a break down... I need to scream and cry and scream and cry some more. Then I can start to absorb all this and see where we go from here. And I want to help her get it out of her system too, but I'm not sure how. She is not a person to show emotions. Today when the dietician came in to teach us how to count carbs she was talking about insulin and that kaitlyn would probably need it with each meal. Kaitlyn said "well, I will just stop eating then." A little while later kaitlyn asked the dietician "how long will I have to do that" The dietician answered "for the rest of your life"... I can't even begin to describe the emotions in this room at that moment. I am sobbing right now just thinking about it. It absolutely ripped my heart out. She started crying and it nearly killed me. It reminded me of when she was 3 and asked me how old she would be when she could stop taking enzymes... It is so ******* unfair.
I ABSOLUTELY HATE THIS ******* DISEASE!!!!!
To try to answer some of the questions above... Kaitlyn hasn't cultured anything at all... They think it was a virus which triggered a major asthma attack, which let to all the problems. She had asthma problems prior to her diagnosis when she was 2 years old, but not since then (until now).
She is on Prednisone right now. 40 mgs daily. She will be reducing to 20 mgs on Saturday. I know that can effect her blood sugar and we are hoping against hope that it will go back to normal once the steriods are gone. However, they did the H1AC (i know that is wrong, but it was something like that... my brain is on overload) and it was borderline so the drs opinion is that she does have CFRD and will need ongoing treatment. However, they have not started insulin because they want to see what will happen when she gets off the steriods. Her blood sugars for the past 2 days have been averaging in the 300's. Only one time out of the 8 times we have checked it has it been normal. Her last 3 today were 386, 305 & 365. Those were all more than 2 hours after eating. To me that sounds really high, but they say they are not going to treat her until after the steriods are gone (16 more days). I will continue to check her blood sugar 4 times a day until then.
I am so overwhelmed and exhausted (mentally and physically) that I just don't think I can absorb anything else right now. This has been the hardest experience I have had since Kaitlyn's diagnosis 10 years ago. I made the HUGE mistake of researching CFRD online and came across this stupid article that said that once a CFer develops CFRD their life expectency greatly deminishes... especially in females. It said that females with CFRD have a 16 year lower life expectancy than CF females without CFRD. Well, that wasn't exactly what I needed to hear at the moment.
I am so scared right now I could just literaly fall apart. I am trying so hard to hold it together to get kailtyn home and then i will lose it once I am alone. I need to have a break down... I need to scream and cry and scream and cry some more. Then I can start to absorb all this and see where we go from here. And I want to help her get it out of her system too, but I'm not sure how. She is not a person to show emotions. Today when the dietician came in to teach us how to count carbs she was talking about insulin and that kaitlyn would probably need it with each meal. Kaitlyn said "well, I will just stop eating then." A little while later kaitlyn asked the dietician "how long will I have to do that" The dietician answered "for the rest of your life"... I can't even begin to describe the emotions in this room at that moment. I am sobbing right now just thinking about it. It absolutely ripped my heart out. She started crying and it nearly killed me. It reminded me of when she was 3 and asked me how old she would be when she could stop taking enzymes... It is so ******* unfair.
I ABSOLUTELY HATE THIS ******* DISEASE!!!!!
Be strong - my thoughts and prayer are with you at this difficult and stressful time. You'll get through it. Try not to read to much about diabetes at the moment, knowledge is definitely power, but get strong first. I really feel for you when I read your post - even though I don't know you I'm pretty sure you'll be ok - hey you've gotta be right, for the sake of your daughter, yourself and the rest of your family.
I'm a mother myself, I have two beautiful daughters, youngest has CF. I'll never forget the day they told us she had CF, but time is a healer, you've just gotta be strong and stay positive. I know it's hard, but it's the right thing to do. If your daughter didn't have CF she wouldn't be the wonderful person that she is. I know CF sucks - I HATE it to, but you've got to make the best of it if you know what I mean.
I don't know what else to say, just that I am praying for you and your family.<img src="i/expressions/rose.gif" border="0">You sound like a wonderful mother but please be strong.<img src="i/expressions/heart.gif" border="0">
I'm a mother myself, I have two beautiful daughters, youngest has CF. I'll never forget the day they told us she had CF, but time is a healer, you've just gotta be strong and stay positive. I know it's hard, but it's the right thing to do. If your daughter didn't have CF she wouldn't be the wonderful person that she is. I know CF sucks - I HATE it to, but you've got to make the best of it if you know what I mean.
I don't know what else to say, just that I am praying for you and your family.<img src="i/expressions/rose.gif" border="0">You sound like a wonderful mother but please be strong.<img src="i/expressions/heart.gif" border="0">
Be strong - my thoughts and prayer are with you at this difficult and stressful time. You'll get through it. Try not to read to much about diabetes at the moment, knowledge is definitely power, but get strong first. I really feel for you when I read your post - even though I don't know you I'm pretty sure you'll be ok - hey you've gotta be right, for the sake of your daughter, yourself and the rest of your family.
I'm a mother myself, I have two beautiful daughters, youngest has CF. I'll never forget the day they told us she had CF, but time is a healer, you've just gotta be strong and stay positive. I know it's hard, but it's the right thing to do. If your daughter didn't have CF she wouldn't be the wonderful person that she is. I know CF sucks - I HATE it to, but you've got to make the best of it if you know what I mean.
I don't know what else to say, just that I am praying for you and your family.<img src="i/expressions/rose.gif" border="0">You sound like a wonderful mother but please be strong.<img src="i/expressions/heart.gif" border="0">
I'm a mother myself, I have two beautiful daughters, youngest has CF. I'll never forget the day they told us she had CF, but time is a healer, you've just gotta be strong and stay positive. I know it's hard, but it's the right thing to do. If your daughter didn't have CF she wouldn't be the wonderful person that she is. I know CF sucks - I HATE it to, but you've got to make the best of it if you know what I mean.
I don't know what else to say, just that I am praying for you and your family.<img src="i/expressions/rose.gif" border="0">You sound like a wonderful mother but please be strong.<img src="i/expressions/heart.gif" border="0">
Be strong - my thoughts and prayer are with you at this difficult and stressful time. You'll get through it. Try not to read to much about diabetes at the moment, knowledge is definitely power, but get strong first. I really feel for you when I read your post - even though I don't know you I'm pretty sure you'll be ok - hey you've gotta be right, for the sake of your daughter, yourself and the rest of your family.
I'm a mother myself, I have two beautiful daughters, youngest has CF. I'll never forget the day they told us she had CF, but time is a healer, you've just gotta be strong and stay positive. I know it's hard, but it's the right thing to do. If your daughter didn't have CF she wouldn't be the wonderful person that she is. I know CF sucks - I HATE it to, but you've got to make the best of it if you know what I mean.
I don't know what else to say, just that I am praying for you and your family.<img src="i/expressions/rose.gif" border="0">You sound like a wonderful mother but please be strong.<img src="i/expressions/heart.gif" border="0">
I'm a mother myself, I have two beautiful daughters, youngest has CF. I'll never forget the day they told us she had CF, but time is a healer, you've just gotta be strong and stay positive. I know it's hard, but it's the right thing to do. If your daughter didn't have CF she wouldn't be the wonderful person that she is. I know CF sucks - I HATE it to, but you've got to make the best of it if you know what I mean.
I don't know what else to say, just that I am praying for you and your family.<img src="i/expressions/rose.gif" border="0">You sound like a wonderful mother but please be strong.<img src="i/expressions/heart.gif" border="0">
Renee,
Having a crying fit (in my opinion) is a good idea. Is there anyway you could find a quiet place to have a real good cry(private place so people don't ask if you need a psych consult, joke) I'm serious, like go in your car and cry til you can't anymore(obviously not in front of your daughter.) You may need to just let it out so you can move on and deal with theses issues ahead. And I know you can and will deal with them fine. Sometimes it's just too much and you need to let it out.
my daughter cultured MRSA almost 2 years ago and when I found out I cried like a baby. I looked up all the info and found out how awful this bug is. I threw a nutty. After I was done, I evenutally moved on and we do what needs to be done for my daughter and right now she's ok.
take care
Rebecca
Having a crying fit (in my opinion) is a good idea. Is there anyway you could find a quiet place to have a real good cry(private place so people don't ask if you need a psych consult, joke) I'm serious, like go in your car and cry til you can't anymore(obviously not in front of your daughter.) You may need to just let it out so you can move on and deal with theses issues ahead. And I know you can and will deal with them fine. Sometimes it's just too much and you need to let it out.
my daughter cultured MRSA almost 2 years ago and when I found out I cried like a baby. I looked up all the info and found out how awful this bug is. I threw a nutty. After I was done, I evenutally moved on and we do what needs to be done for my daughter and right now she's ok.
take care
Rebecca