CF doc appointment went great, and I kept my head about me and was able to ask the questions that I already know the answers to, but I needed to hear the answers again from the doc.
And I need to really, really believe the answers today, because I've got one foot in the hopeful, positive world, but one foot still in the how-can-this-be-happening-to-my-daughter world. I'm frustrated with myself for not being able to get both feet firmly planted where they need to be!
The questions generally had to do with the benefits of all of this preventive treatment we are doing for Katy's lungs. He wants to add Hypertonic Saline and Albuterol to her treatments. So now we will do Albuterol, HS, Pulmo, and CPT plus TOBI in the "on" months. And to think that I wondered if I had overdone it when I tried to explain her treatment regimen on her montage!
I feel like I've almost turned the corner - these treatments are positive opportunities to keep Katy well, to keep her lungs healthy, to extend her life.
I'm almost there! But as Donkey says in one of the Shrek movies: "I think I need a hug". Thanks for listening.
And I need to really, really believe the answers today, because I've got one foot in the hopeful, positive world, but one foot still in the how-can-this-be-happening-to-my-daughter world. I'm frustrated with myself for not being able to get both feet firmly planted where they need to be!
The questions generally had to do with the benefits of all of this preventive treatment we are doing for Katy's lungs. He wants to add Hypertonic Saline and Albuterol to her treatments. So now we will do Albuterol, HS, Pulmo, and CPT plus TOBI in the "on" months. And to think that I wondered if I had overdone it when I tried to explain her treatment regimen on her montage!
I feel like I've almost turned the corner - these treatments are positive opportunities to keep Katy well, to keep her lungs healthy, to extend her life.
I'm almost there! But as Donkey says in one of the Shrek movies: "I think I need a hug". Thanks for listening.