Thank you all so much for all your comments. Sometimes it helps just to know I'm not alone... that other people have felt what I am feeling and have survived it. And it definately helps to read the stories of the adults with CF and how their FEV1's have stayed the same over a period of years. That is encouraging.
This has been hands down one of the most difficult weeks of my life. I am a basket case...but I've been able to pretty much keep it behind closed doors. I haven't slept much (neither has my husband, thanks to me) but I'm still functioning. I lay in bed and everything starts overwhelming me and I"ll start sobbing. It's almost like being pregnant when the smallest things make you start crying... that's how I have been all week.
I hope things improve. I am certainly praying for that. I battle with what to and not to say to the girls. On one hand I want them to know how important it is that they cough and do their treatments correctly (especially now with her sick)... on the other hand I don't want to paint this terrible picture and scare them to death. I mean, they know what CF is and they know that people die from it but because they had always been so healthy before I don't think they really ever accepted that they could really be affected... and maybe I had fallen into the same frame of mind... so this wake up call is hard for all of us.
Sorry, I am rambling... Thank you all so much for your help and support. It is so nice to have a place to go where everyone understands...
