need some info

lovingaunt77

New member
<P>I am looking for some information for my nephew. He is 18 years old, a senior in high school, andwants to know if he moves out how does he change where his meds are sent. He has an absolutely miserable life and is very depressed.....I want to help him enjoy the years he has left with us.  How do I find out legal issues regarding if he can move out, is he considered an adult, what happens with insurance??? </P>
<P>Anyone with any information, we would love to hear what kind of options he has. I don't know what I can do to help him, but I will do anything to make this child's life better!</P>
<P>Thanks!!!</P>
 

lovingaunt77

New member
<P>I am looking for some information for my nephew. He is 18 years old, a senior in high school, andwants to know if he moves out how does he change wherehis meds are sent. He has an absolutely miserable life and is very depressed.....I want to help him enjoy the years he has left with us. How do I find out legal issues regarding if he can move out, is he considered an adult, what happens with insurance??? </P>
<P>Anyone with any information, we would love to hear what kind of options he has. I don't know what I can do to help him, but I will do anything to make this child's life better!</P>
<P>Thanks!!!</P>
 

lovingaunt77

New member
<P><BR>I am looking for some information for my nephew. He is 18 years old, a senior in high school, andwants to know if he moves out how does he change wherehis meds are sent. He has an absolutely miserable life and is very depressed.....I want to help him enjoy the years he has left with us. How do I find out legal issues regarding if he can move out, is he considered an adult, what happens with insurance??? </P>
<P>Anyone with any information, we would love to hear what kind of options he has. I don't know what I can do to help him, but I will do anything to make this child's life better!</P>
<P>Thanks!!!</P>
 

Printer

Active member
He needs some legal assistance. A call to his pharmacy will answer the question of location of delivery. There is an attorney at the Cystic Fibrosis Foundation who may be some assistance, I would call her. Just ask for the legal department.
 

Printer

Active member
He needs some legal assistance. A call to his pharmacy will answer the question of location of delivery. There is an attorney at the Cystic Fibrosis Foundation who may be some assistance, I would call her. Just ask for the legal department.
 

Printer

Active member
He needs some legal assistance. A call to his pharmacy will answer the question of location of delivery. There is an attorney at the Cystic Fibrosis Foundation who may be some assistance, I would call her. Just ask for the legal department.
 

jamoncita

New member
Hi there! I moved out of my house into a dormitory when I was your nephew's age. After the first year I moved into an apartment with my friend. I was on my mom's insurance at the time, and the only thing I had to do was figure out the nearest pharmacy so that my doctors could call in my meds there for me to pick up. It was a fairly simple matter of changing my address and informing the insurance company, so I don't imagine you'll have much more to worry about unless there's something you didn't mention which I wouldn't know about (and I get the feeling there is). It was fortunate for me that I happened to move to SF which is where my CF specialist is located, so that made things a lot easier. Best of luck to you!
 

jamoncita

New member
Hi there! I moved out of my house into a dormitory when I was your nephew's age. After the first year I moved into an apartment with my friend. I was on my mom's insurance at the time, and the only thing I had to do was figure out the nearest pharmacy so that my doctors could call in my meds there for me to pick up. It was a fairly simple matter of changing my address and informing the insurance company, so I don't imagine you'll have much more to worry about unless there's something you didn't mention which I wouldn't know about (and I get the feeling there is). It was fortunate for me that I happened to move to SF which is where my CF specialist is located, so that made things a lot easier. Best of luck to you!
 

jamoncita

New member
Hi there! I moved out of my house into a dormitory when I was your nephew's age. After the first year I moved into an apartment with my friend. I was on my mom's insurance at the time, and the only thing I had to do was figure out the nearest pharmacy so that my doctors could call in my meds there for me to pick up. It was a fairly simple matter of changing my address and informing the insurance company, so I don't imagine you'll have much more to worry about unless there's something you didn't mention which I wouldn't know about (and I get the feeling there is). It was fortunate for me that I happened to move to SF which is where my CF specialist is located, so that made things a lot easier. Best of luck to you!
 

just1more

New member
As for being able to move, if he is 18 he is free to go.

Likewise, he is now legally free to make his own medical decisions, his own appointments, and tell the pharmacy where he wants his meds delivered.

HOWEVER, if like most 18yr olds he is using his parent's insurance, then they will have some say and control. They can't dictate where he lives, and can't limit his access to his drs or meds, but they can cancel his insurance if he pisses them off. The insurance may also influence how he gets his meds (ie mail vs at a local pharmacy).

Now there are options for CFrs that don't have insurance, but that would take time and likely an adult (ie you) to help him navigate. I would suggest calling the CF center where he is seen and ask to talk to the social worker. Every CF clinic has one and they will be able to answer many of his/your questions.
 

just1more

New member
As for being able to move, if he is 18 he is free to go.

Likewise, he is now legally free to make his own medical decisions, his own appointments, and tell the pharmacy where he wants his meds delivered.

HOWEVER, if like most 18yr olds he is using his parent's insurance, then they will have some say and control. They can't dictate where he lives, and can't limit his access to his drs or meds, but they can cancel his insurance if he pisses them off. The insurance may also influence how he gets his meds (ie mail vs at a local pharmacy).

Now there are options for CFrs that don't have insurance, but that would take time and likely an adult (ie you) to help him navigate. I would suggest calling the CF center where he is seen and ask to talk to the social worker. Every CF clinic has one and they will be able to answer many of his/your questions.
 

just1more

New member
As for being able to move, if he is 18 he is free to go.
<br />
<br />Likewise, he is now legally free to make his own medical decisions, his own appointments, and tell the pharmacy where he wants his meds delivered.
<br />
<br />HOWEVER, if like most 18yr olds he is using his parent's insurance, then they will have some say and control. They can't dictate where he lives, and can't limit his access to his drs or meds, but they can cancel his insurance if he pisses them off. The insurance may also influence how he gets his meds (ie mail vs at a local pharmacy).
<br />
<br />Now there are options for CFrs that don't have insurance, but that would take time and likely an adult (ie you) to help him navigate. I would suggest calling the CF center where he is seen and ask to talk to the social worker. Every CF clinic has one and they will be able to answer many of his/your questions.
<br />
<br />
 
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patrish22

Guest
Who's insurance is he on? Technically he can be a dependant on insurance until he is 26 unless he is married first. My son is on his dad's insurance and can stay there until he is 26. He went away to school and used a different clinic and all was fine. When he graduated he moved cross country and stayed on the insurance and used yet another clinic. I work with ins. companies in a large medical practice and it can varry with the type of insurance. It should not be a problem. Hopefully his parents will let him stay on. I don't know the situation, but maybe getting away and getting a place would do him some good. If he is very depressed he should see someone. The depression is understandable, but he should seek treatment, maybe you could go with him? Unfortunately depression can have an effect on whether or not he can get on a transplant list, sad but true. I went through this with my daughter and we lost her before she could get on a list. Some standards really suck. Now her twin is struggling with sadness and grief and we are hoping she will get better in time to qualify for a transplant list. We had the good fortune to meet a wonderful counselor through the hospice we used for her sister. It sounds like your nephew has a really good friend in you. I know this is not easy. Do know you and your nephew have wonderful support and friends here! The folks on this sight have gotten me through a very difficult year and I am so grateful to all who are here. Feel free to ask any ins. questions and I will do my best to get you some answers.
 
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patrish22

Guest
Who's insurance is he on? Technically he can be a dependant on insurance until he is 26 unless he is married first. My son is on his dad's insurance and can stay there until he is 26. He went away to school and used a different clinic and all was fine. When he graduated he moved cross country and stayed on the insurance and used yet another clinic. I work with ins. companies in alarge medical practiceand it can varry with the type of insurance. It should not be a problem. Hopefully his parents will let him stay on. I don't know the situation, but maybe getting away and getting a place would do him some good. If he is very depressed he should see someone. The depression is understandable, but he should seek treatment, maybe you could go with him? Unfortunately depression can have an effect on whether or not he can get on a transplant list, sad but true. I went through this with my daughter and we lost her before she could get on a list. Some standards really suck. Now her twin is struggling with sadness and grief and we are hoping she will get better in time to qualify for a transplant list. We had the good fortune to meet a wonderful counselor through the hospice we used for her sister. It sounds like your nephew has a really good friend in you. I know this is not easy. Do know you and your nephew have wonderful support and friends here! The folks on this sight have gotten me through a very difficult year and I am so grateful to all who are here. Feel free to ask any ins. questions and I will do my best to get you some answers.
 
P

patrish22

Guest
<BR>Who's insurance is he on? Technically he can be a dependant on insurance until he is 26 unless he is married first. My son is on his dad's insurance and can stay there until he is 26. He went away to school and used a different clinic and all was fine. When he graduated he moved cross country and stayed on the insurance and used yet another clinic. I work with ins. companies in alarge medical practiceand it can varry with the type of insurance. It should not be a problem. Hopefully his parents will let him stay on. I don't know the situation, but maybe getting away and getting a place would do him some good. If he is very depressed he should see someone. The depression is understandable, but he should seek treatment, maybe you could go with him? Unfortunately depression can have an effect on whether or not he can get on a transplant list, sad but true. I went through this with my daughter and we lost her before she could get on a list. Some standards really suck. Now her twin is struggling with sadness and grief and we are hoping she will get better in time to qualify for a transplant list. We had the good fortune to meet a wonderful counselor through the hospice we used for her sister. It sounds like your nephew has a really good friend in you. I know this is not easy. Do know you and your nephew have wonderful support and friends here! The folks on this sight have gotten me through a very difficult year and I am so grateful to all who are here. Feel free to ask any ins. questions and I will do my best to get you some answers.
 

lovingaunt77

New member
Thanks to everyone for the information! There is more to the story.....his parents are so controlling and not supportive of what he wants to do with his life. They are so negative and threaten him all the time about how he is going to die. They are telling him he will never be able to move out and he is not allowed to attend college because they told him it is a waste of time and money. He feels like he is in prison and doesn't want to die with people knowing he had a miserable life. I just want to help him live the life he wants. They are using CF as an excuse for him to not experience life. He is a great kid and just needs some love and to know that it doesn't have to be this way!! Keep the info coming and I am going to share this with him when he comes to stay for the weekend! I am so glad I have found this site and can't wait to share it with him!
 

lovingaunt77

New member
Thanks to everyone for the information! There is more to the story.....his parents are so controlling and not supportive of what he wants to do with his life. They are so negative and threaten him all the time about how he is going to die. They are telling him he will never be able to move out and he is not allowed to attend college because they told him it is a waste of time and money. He feels like he is in prison and doesn't want to die with people knowing he had a miserable life. I just want to help him live the life he wants. They are using CF as an excuse for him to not experience life. He is a great kid and just needs some love and to know that it doesn't have to be this way!! Keep the info coming and I am going to share this with him when he comes to stay for the weekend! I am so glad I have found this site and can't wait to share it with him!
 

lovingaunt77

New member
Thanks to everyone for the information! There is more to the story.....his parents are so controlling and not supportive of what he wants to do with his life. They are so negative and threaten him all the time about how he is going to die. They are telling him he will never be able to move out and he is not allowed to attend college because they told him it is a waste of time and money. He feels like he is in prison and doesn't want to die with people knowing he had a miserable life. I just want to help him live the life he wants. They are using CF as an excuse for him to not experience life. He is a great kid and just needs some love and to know that it doesn't have to be this way!! Keep the info coming and I am going to share this with him when he comes to stay for the weekend! I am so glad I have found this site and can't wait to share it with him!
 

Gentrygirl

New member
Then 18 looks like a beautiful number! He is lucky to have a great Aunt that can be there to support him. I'm sure they are terrified of losing their son, and are only using the tools they have to keep him as close to them as possible, even if it's painful for all involved. How could they tell him it's a waste of money to go to college?! Watch; he'll live longer than both of them! Good luck to you both.
 

Gentrygirl

New member
Then 18 looks like a beautiful number! He is lucky to have a great Aunt that can be there to support him. I'm sure they are terrified of losing their son, and are only using the tools they have to keep him as close to them as possible, even if it's painful for all involved. How could they tell him it's a waste of money to go to college?! Watch; he'll live longer than both of them! Good luck to you both.
 
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